Re: Osteo mostly small frames Clora

[Guest guest]

Hi Vickie:

I was happy to read your cancer cell blood work was negative, and you

are doing great in that area.

Sorry you are in a bad RA flare, and I hope your Rheumy can give you

some meds. so the flare goes away. I know how awful those flares are,

and so debilitating. When my RA flares my feet and ankles are so bad, I

am in bed for days. Can't stand on them, and it makes me very unsteady

trying to walk. Those days I use my walker. Ug, I hate that thing, but

it is very supportive.

I hope you will be feeling better soon, and wishing you pain free days.

I also pray you will be off your Chemo. treatment soon. That will be a

wonderful Chrismas present for you.

Hugs,

Barbara

>

> From: Vicki gramvick@...

> Subject: Re: [ ] Re: Osteo mostly small frames

>

> Date: Tuesday, November 11, 2008, 3:19 PM

>

> Makes sense as I have osteoporosis, Fibro and RA but not

osteoarthritis. I am Caucasian, red hair so very light skinned, small

frame,was thrown into early menopause due to endometrial cancer, and an

ex smoker. All of which they say contributes to osteoporosis. My last

bone scan showed bones that should be in an 80 year old woman. I am 47,

5 foot tall, and 120 pounds.

>

> In osteoporosis the bones become so aged and brittle that a slight

slip or fall can actually fracture them. Which is why so many of my

bones broke in the car accident a few years back. I have stubbed toes

and broken them, coughed to hard with pneumonia and fractured ribs. I

take Boniva to help strengthen them and just have to be very careful.

> Vicki

> Iowa

>

>

>

>

[Guest guest]

Hi Bob:

You have come to the right place, as this group has such wonderful,

caring, informative, loving people. They have made such a difference in

my life, all for the better.

Yes, I would say you are in a bad flare right now. Boy, we all know how

awful they are. RA is a nasty, awful disease. I hope you called your

Rheumy, so you can get some stronger pain meds, so you can begin to feel

better. It is no fun to suffer so with RA.

Again, welcome here. Wishing you pain free days.

Hugs,

Barbara

--- In , Jerry <itsallgood6942@...>

wrote:

>

> Hello Everyone,

> I am a newbie to the group, first time i have actually looked into any

of the groups out there in cyber space.. )

> I am a 42 year old Caucasian male. I was diagnosed 10 years ago, so I

can understand a lot of what i have been reading these last couple of

weeks.... Luckily i have not had very severe reactions to any of the

meds i have taken over the years... like most of you i have been on and

off of prednisone, i had methotrexate for quite a while in the

beginning. For about 6 years now i have been on Enbrel and have seem to

be pretty successful with it up until the last year or so.... Talking

to my Rhumey last week we have decided to give Humera a go... we'll see

how that does!! lol..

>

> Luckily i would have to say that i do not have a severe case of RA, I

am still able to function well although everything is a chore, and

usually very exhausting... Although the dr had run some sort of a blood

test a couple of months ago and informed me that i do have an aggressive

form of RA.. ??? what ever that means.. lots of unknowns with this

disease..

>

> The last couple of days i have heard you all mention " flares " . I'm

actually looking for a little help in gauging what a flare is?? Again

fortunately I have never again experienced the pain that i had

experienced at the onset of the RA, but i am almost always in some form

of pain, something usually hurts one way or another or one degree to

another. The last 3 - 4 months have been probably the worst i have had

in the ten years,,,, my hands have been constantly swollen and very

sensitive.... even experiencing numbness, and the pain has been

awakening me at night... So i guess my question is ...Is this a

flare?? and the rest of the time has just been normal?? if there is a

normal?? ) any input would be greatly appreciated. I must say it is

comforting to talk to people who can truly understand, that has always

been very frustrating.... nice to know you are not so alone in this

after all.... although i'm sorry were in the same boat

> together....

>

>

> Hope all is well

> Bob

>

>

>

>

>

[Guest guest]

Vicki and group;

Vicki I have a prayer book. I write down each person that needs

prayer and at bedtime or sometimes just when I go to prayer, I put

my hand on the book and pray that God helps each one in it.

I am so please that your blood test came back with no cancer cells.

Please let us know how the scope text comes out.

I didnt think of osteoporosis not painful. I guess thats it don't

get any breaks if humanly possible. I hate those flares. Sometimes

I can't tell if a flare is temporary or I need to seek help for

them. I try different ways to feel better. Wish I had some pain

pills. Or even some OXYCOTIN lol, I guess that is for sprains or

temporary pain.

How is the humira doing for you. I felt a responce right away. Some

people it takes a while. Right away meaning the next day. Did your

flare go away and how was your visit with your rheumy? God bless and

take care.......................................Clora

********************************************************

>

> Thanks Clora,

> Is nice to know I am in your prayers. My health has actually

improvrd some what in the past few months. Blood tests came back

negative for any cancer cells, so if they don't find anything in the

scope on Wednesday I should be able to go off chemo the first of

December.

>

> At least in my case osteoporosis is not painful. Well unless I

break bones but I do try to be very careful in that aspect.

>

> I have been in an awful RA flare though the last couple days.

Especially in my hips and ankles. X rays show a small hairline

fracture in the right ankle. Cane just was not helping enough so blue

cross did order me a new walker. Should have it on Tuesday.

>

> I see my Rheumy on Wednesday as well. Hopefully by then I am over

this flare or she can do something lese to help. I did take both the

Humira and MTX last night, and still have the oxycontin

so....................guess we just have to wait and see.

>

> I won't keep you all any longer, Each of you is in my prayers, I

may not post often but I do read the posts every day.

>

> Good Night, Take Care and God Bless

>

> Vicki

> Iowa

>

>

>

>

[Guest guest]

Welcome to the group, Bob. It sounds like you are in a flare - sorry

to say. I'm happy to hear you are able to still function, although I

think " normal " is one of those subjective words that varies from

person to person. We look forward to hearing from you more and hope

that you continue to get good information from us as well. Take

care........Doreen

Hello Everyone,

I am a newbie to the group, first time i have actually looked into

any of the groups out there in cyber space..  )

I am a 42 year old Caucasian male. I was diagnosed 10 years ago, so I

can understand a lot of what i have been reading these last couple of

weeks....  Luckily i have not had very severe reactions to any of the

meds i have taken over the years...  like most of you i have been on

and off of prednisone, i had methotrexate for quite a while in the

beginning. For about 6 years now i have been on Enbrel and have seem

to be pretty successful with it up until the last year or so.... 

Talking to my Rhumey last week we have decided to give Humera a go... 

we'll see how that does!! lol..

 

Luckily i would have to say that i do not have a severe case of RA, I

am still able to function well although everything is a chore, and

usually very exhausting...  Although the dr had run some sort of a

blood test a couple of months ago and informed me that i do have an

aggressive form of RA.. ???  what ever that means.. lots of unknowns

with this disease..

 

The last couple of days i have heard you all mention " flares " . I'm

actually looking for a little help in gauging what a flare is?? Again

fortunately I have never again experienced the pain that i had

experienced at the onset of the RA, but i am almost always in some

form of pain, something usually hurts one way or another or one degree

to another. The last 3 - 4 months have been probably the worst i have

had in the ten years,,,,  my hands have been constantly swollen and

very sensitive....  even experiencing numbness, and the pain has been

awakening me at night...    So i guess my question is ...Is this a

flare??  and the rest of the time has just been normal??  if there is

a normal?? )  any input would be greatly appreciated. I must say it 

is comforting to talk to people who can truly understand, that has

always been very frustrating....  nice to know you are not so alone in

this after all....  although i'm sorry were in the same boat

together.... 

 

 

Hope all is well

Bob