Re: Anyone on Remicade/Infusion and Red Face

[Guest guest]

My rheumy decided yesterday that she is going to start me on Remicade

infusions. That is, if my insurance will cover it since it won't cover

Enbrel. I was wondering how is the Remicade working for you as far as pain.

I can see you are having some side effects which I am so sorry these things

are happening to you. My rheumy told me it's very rare to have side effects

except for a headache. Looks like you may be the 1 in 3,000 that have other

side effects.

Would appreciate any info you (or anyone) could give me about Remicade and

if it helps the pain, etc.

Thank you,

Shay

Michigan

-- [ ] Infusion and Red Face

The last time I had my Remicade Infusion, I woke up the next day with a

really red face and one cheek looked like a welt. I also could feel a fine

rash on my legs. So I called the office and reported it. He told me to take

Benedryl or something else which might not make me sleepy. (Of course, I've

forgotten the name of the alternate).

So yesterday they did a pre-treatment with a steroid and gave me a Benedryl

before the infusion. I slept through most of the infusion.

Today I woke up with the red face again and my neck looks like I was

wearing a v neck and got a sunburn. I had my husband take a picture of it.

It's

more like cea. I will call the office again and report it -- I figure

there's no hurry since the next infusion isn't for 8 weeks.

But I was wondering if anyone else has cea and has a flare from a

biologic?

dd

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[Guest guest]

In a message dated 4/23/2009 9:55:23 P.M. Central Daylight Time,

sweetnsassy55@... writes:

Would appreciate any info you (or anyone) could give me about Remicade and

if it helps the pain, etc.

My pain has been good with Methotrexate and Prednisone, except for small

aches and pains. But my numbers were not good. We tried Arava and that was

terrible for me. My GI doctor recommended Remicade for my Crohn's Disease and

of course it's also for RA. I've had about 4 or 5 infusions. The first

ones I had no trouble at all. The last two, I've gotten the red face that is

like (and may be) cea. The Remicade has helped a lot with the intestinal

problems and is so much better than the Arava.

dd

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