Re: Nat geo autism show

[Guest guest]

OK, I watched it too Sara. I didn't tape it though. My VCR won't tape. So

stupid.

Anyways, this is what I got out of it.

Temple said " My nervous system is more like that of an animal. Fear is

their main emotion. " That made me a bit sad. I know she talks about

sensory overload a lot, but do you think our kids spend so much time in

fear? Ugh, I hate to think that.

I was very interested in the study on eye-tracking. I found myself

concentrating on what *I* was looking at on the TV (autistics follow motion

and objects/ NTs follow eyes and gestures). LOL. They did brain scanning

as well and showed that autistics see faces the same way that they see

objects. NTs see faces differently, the fusiformgyrus part of the brain

lights up. It doesn't with autistics.

Did anyone catch the Indian boy's last name. Sara, you have it taped.

Could you find it for me? I caught the first 6 letters, but they flashed it

up there too quickly. I want to do a search for his book of poems. It is

Tito Mukopa.....something or other.

Also, why do so many of us focus on our kids opening or not opening their

presents? It just seems weird that we have all noticed that and one of the

moms on the show also mentioned it.

Watching that, I realized how nice it would be to have money. One of the

families (three kids with autism) had a palatial home and they donated 2.5

million to research. Another family paid out $3700 for a new auditory

processing therapy.

Also, Dr. Folstein (genetic research in autism) made mention of how

parents quite often have " autistic tendencies. " Her name in a search engine

brought up tons of hits.

Check out http://www.nationalgeographic.com for more info on the show. It

was called " Science Times. "

Amy H--in Michigan

Kepler 5 ASD and Bethany 6 1/2 NT

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[Guest guest]

> SO if anybody wants a copy I'll be happy to send it to you. Tho I will

have

> to find another VCR to make them first. If I get a lot of responses I

> may have to ask for people to pay for the tapes & postage.

>

> -Sara.

I do, I do!

Nobody I know gets that channel. :-(

i'll be happy to pay for a blank tape and postage.

Jacquie

[Guest guest]

> Temple said " My nervous system is more like that of an animal. Fear is

> their main emotion. " That made me a bit sad. I know she talks about

> sensory overload a lot, but do you think our kids spend so much time in

> fear? Ugh, I hate to think that.

Unfortunately, after today I have good reason to believe that is absolutely

true. I think home is safe; I think home is a place where they can let go

of the fear. But the rest of the world.........

Jacquie

[Guest guest]

You know this is where Alec just doesnt seem to fit the mold at all!

He is always laid back. He doesnt seem to care about the world around

him being different and such. Alec takes everything in stride.

Greggory used to have such anxiety over things but now he hardly ever

does. So it must change over time or at least has the chance of

changing. I dont think my boys fit this description, it must be very

hard for those children who do.

Jacquie H

>

> > Temple said " My nervous system is more like that of an animal.

Fear is

> > their main emotion. " That made me a bit sad. I know she talks

about

> > sensory overload a lot, but do you think our kids spend so much

time in

> > fear? Ugh, I hate to think that.

>

>

> Unfortunately, after today I have good reason to believe that is

absolutely

> true. I think home is safe; I think home is a place where they can

let go

> of the fear. But the rest of the world.........

>

> Jacquie

[Guest guest]

wow. just got done watching the first segment. i just want to say to those

of you with all of your kids being autistic... i am in awe of how you do it.

bravo

" Something important to remember...we'll always be who we are. " - Mr.

[Guest guest]

mukhopadyay

" Something important to remember...we'll always be who we are. " - Mr.

[Guest guest]

amy,

go to http://www.canfoundation.org/ and click on " meet tito "

" Something important to remember...we'll always be who we are. " - Mr.

[Guest guest]

In a message dated 9/3/2002 10:39:20 PM Eastern Standard Time,

thebyks@... writes:

>

> SO if anybody wants a copy I'll be happy to send it to you. Tho I will

> have

> to find another VCR to make them first. If I get a lot of responses I

> may have to ask for people to pay for the tapes & postage.

>

>

Sara, I would love a copy and would be more than happy to pay postage and for

the tape. I looked for it in my listings but could find nothing. Pam

[Guest guest]

>>OHHHHHHH I laughed SOOO hard at that too...Sara, can I call you

sometime...I believe you and I may be kindred souls, and with and Mikey

apparently trying to be long-distance twins, it would be fun to talk. Where

do you live again?<<

Absolutely! We're in Ohio. (614)853-2617.

Actually anyone is welcome to call me. I need friends. But, unless

you're , you will have to tell me you're from the PA list and who your

kids are, or chances are I won't know who you are. It's nothing personall,

I am just horrid with names! Once I get it figured out tho I will remember

all your stories...

-Sara.

[Guest guest]

Thank you !!!!

Amy H--in Michigan

Kepler 5 ASD and Bethany 6 1/2 NT

_________________________________________________________________

Chat with friends online, try MSN Messenger: http://messenger.msn.com

[Guest guest]

> In a message dated 9/3/2002 10:39:20 PM Eastern Standard Time,

> thebyks@e... writes:

>

>

> >

> > SO if anybody wants a copy I'll be happy to send it to you. Tho

I will

> > have

> > to find another VCR to make them first. If I get a lot of

responses I

> > may have to ask for people to pay for the tapes & postage.

> >

> >

I too would love a copy... let me know how much you will need for

postage, tape and whatnot. Thanks so much !!

Amy mom to

Noah 6 autism

Lucas ADHD HFA

[Guest guest]

's the same way. Some things used to send her into hysterics but

she's calmed down a lot with age. The autistic behaviors really

peaked for her at about 4. She used to be terrified of the vacuum

cleaner and airplanes flying overhead. She's very laid back now. So

long as her routine is fairly stable, she's a very happy child.

Tina

> Greggory used to have such anxiety over things but now he hardly

ever does. So it must change over time or at least has the chance of

changing. I dont think my boys fit this description, it must be very

hard for those children who do.

> Jacquie H

>

> > Temple said " My nervous system is more like that of an animal.

> Fear is their main emotion. " That made me a bit sad. I know she

talks about sensory overload a lot, but do you think our kids spend

so much time in fear? Ugh, I hate to think that.

> >

[Guest guest]

>

> > Temple said " My nervous system is more like that of an animal.

Fear is

> > their main emotion. " That made me a bit sad. I know she talks

about

> > sensory overload a lot, but do you think our kids spend so much

time in

> > fear? Ugh, I hate to think that.

>

>

> Unfortunately, after today I have good reason to believe that is

absolutely

> true. I think home is safe; I think home is a place where they can

let go

> of the fear. But the rest of the world.........>>

This is what I think, too. Kids with sensory challenges can't make

sense of the world...and we fear what we don't understand. I think

that fear often rules their world, that taking away the fear is the

most important thing we can do for our kids...honest.

Raena

[Guest guest]

I do want one. Please let me how much do I have to pay for it and where do I

send you my address.

Cecilia

-----Mensaje original-----

De: The Byks

Enviado el: Martes, 03 de Septiembre de 2002 09:23 p.m.

Para: pa

Asunto: Nat geo autism show

That was a pretty good show! It showed a wide range of people on the

spectrum. Temple Grandin was on it. At the end they were talking about

genetic research & finding the genes that cause autism. Temple said we

can't just get rid of these genes; in small doses they result in gifted

individuals, and only in large doses (and often only with compounding

environmental factors - my add in) do they cause handicap. " If we got rid

of these genes we'd have a bunch of socialites who would yakkety-yak all day

long and not get anything done. After all, the first person to invent a

flint tool wasn't a socialite -- it was a person who liked to sit in the

corner and bang rocks together. " Oh how I laughed. But it's true!

SO if anybody wants a copy I'll be happy to send it to you. Tho I will have

to find another VCR to make them first. If I get a lot of responses I

may have to ask for people to pay for the tapes & postage.

-Sara.

[Guest guest]

For those of you who already seen the show. Would it be a good show

to show to someone who doesn't know much about autism? My BF

is trying very hard to understand it and to understand why Mark does

some of the things he does, but it's still hard for him. He is

amazingly patient with Mark, sometimes more patient than me. For

example when we were in Wal-mart this last weekend. Mark was

throwing his normal fits and didn't know how to react. I told

him what I do is ignore Mark's tantrum, give him about 10 or 15

minutes and he'll get over it and when people give you dirty looks

give them the look right back. He gave me a funny look but did what

I said, and whala 10 minutes later Mark was fine. ha ha But the

looks we got from people in the store were hilarious. Well I was in

a goofy mood and wasn't going to let anyone bring me down. ;o)

Tina W.

[Guest guest]

> I was very interested in the study on eye-tracking. I found myself

concentrating on what *I* was looking at on the TV <

hahahaha! me too! and were your eyes everywhere? mine were :-P

" Something important to remember...we'll always be who we are. " - Mr.

[Guest guest]

and whala 10 minutes later Mark was fine. ha ha But the

> looks we got from people in the store were hilarious. Well I was

in a goofy mood and wasn't going to let anyone bring me down. ;o)

>

>:] (very evil grin)

My husband and parents hated to go anywhere with me when was

younger. I have been known to ask people, " What? Should I hang a sign

on her that says she's autistic? Maybe a big blue handicapped sticker

on her forehead? " It's amazing how quickly they find other parts of

the store more interesting...

Tina

[Guest guest]

Sorry, didn't answer the original question. Yes, the show would be

good to show someone that has doesn't know a lot about autism. I

wouldn't say that it was really at a beginner level, but having your

boyfriend see the other autistic kids on the program can be very

educational. It's easy to forget sometimes that we're not the only

parents in the world dealing with the problem. Especially when we're

the only ones at Walmart or Mcs when a major tempertantrum hits.

Tina

[Guest guest]

" If we got rid

of these genes we'd have a bunch of socialites who would yakkety-yak all day

long and not get anything done. After all, the first person to invent a

flint tool wasn't a socialite -- it was a person who liked to sit in the

corner and bang rocks together. " Oh how I laughed. But it's true!

OHHHHHHH I laughed SOOO hard at that too...Sara, can I call you sometime...I

believe you and I may be kindred souls, and with and Mikey apparently

trying to be long-distance twins, it would be fun to talk. Where do you live

again?

" It is a curious thought, but it is only when you see people looking ridiculous

that you realize just how much you love them. "

- Agatha Christie

, frazzled mom to:

, PDD-NOS, ADHD, Mixed Expressive/Receptive Language Disorder, 4

, NT, Terrible Twos, but adorable none-the-less, 2

Nat geo autism show

That was a pretty good show! It showed a wide range of people on the

spectrum. Temple Grandin was on it. At the end they were talking about

genetic research & finding the genes that cause autism. Temple said we

can't just get rid of these genes; in small doses they result in gifted

individuals, and only in large doses (and often only with compounding

environmental factors - my add in) do they cause handicap.

SO if anybody wants a copy I'll be happy to send it to you. Tho I will have

to find another VCR to make them first. If I get a lot of responses I

may have to ask for people to pay for the tapes & postage.

-Sara.

[Guest guest]

" What? Should I hang a sign

on her that says she's autistic? Maybe a big blue handicapped sticker

on her forehead? " It's amazing how quickly they find other parts of

the store more interesting...

Tina

Sounds like something I would say...I love it!!

" It is a curious thought, but it is only when you see people looking ridiculous

that you realize just how much you love them. "

- Agatha Christie

, frazzled mom to:

, PDD-NOS, ADHD, Mixed Expressive/Receptive Language Disorder, 4

, NT, Terrible Twos, but adorable none-the-less, 2

Re: Nat geo autism show

and whala 10 minutes later Mark was fine. ha ha But the

> looks we got from people in the store were hilarious. Well I was

in a goofy mood and wasn't going to let anyone bring me down. ;o)

>

>:] (very evil grin)

My husband and parents hated to go anywhere with me when was

younger. I have been known to ask people,

[Guest guest]

> Absolutely! We're in Ohio. (614)853-2617.

>

> Actually anyone is welcome to call me. I need friends. But,

unless you're , you will have to tell me you're from the PA list

and who your kids are, or chances are I won't know who you are. It's

nothing personall, I am just horrid with names! Once I get it

figured out tho I will remember all your stories...

>

Cool, another Buckeye. ) I'm in southwest Ohio though. Near Dayton.

Tina

[Guest guest]

>

>Unfortunately, after today I have good reason to believe that is absolutely

>true. I think home is safe; I think home is a place where they can let go

>of the fear. But the rest of the world.........

Yes, I have seen it in Kep too, just hate to think of him spending so much

of his life afraid. Sooooo, how did today go?

Amy H--in Michigan

Kepler 5 ASD and Bethany 6 1/2 NT

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[Guest guest]

>

>

>hahahaha! me too! and were your eyes everywhere? mine were :-P

>

That was the funny thing. When I was thinking about where my eyes were, I

was literally forcing myself to watch eyes and gestures. When I relaxed, my

eyes immediately slid to the flashing computer next to the guy that was

yakking. LOL. We know the truth, don't we?

Amy H--in Michigan

Kepler 5 ASD and Bethany 6 1/2 NT

_________________________________________________________________

Chat with friends online, try MSN Messenger: http://messenger.msn.com

[Guest guest]

You are Tina?? I used to live in Cincinnati. Last year we moved to the

Cleveland area. Wow, lots of Ohio people here.

Debbie

Re: Nat geo autism show

> Absolutely! We're in Ohio. (614)853-2617.

>

> Actually anyone is welcome to call me. I need friends. But,

unless you're , you will have to tell me you're from the PA list

and who your kids are, or chances are I won't know who you are. It's

nothing personall, I am just horrid with names! Once I get it

figured out tho I will remember all your stories...

>

Cool, another Buckeye. ) I'm in southwest Ohio though. Near Dayton.

Tina

[Guest guest]

> You are Tina?? I used to live in Cincinnati. Last year we moved

to the Cleveland area. Wow, lots of Ohio people here.

>

I'm not " too " far from Cincinnati. I've found it takes me an hour and

15 minutes to get to Children's Hospital in Cincy, and an hour and 15

minutes to get to Children's in Dayton. I'm out in the middle of a

bunch of corn fields.

Tina