Re: I can't imagine a day without pain anymore.

[Guest guest]

,

PLEASE CALL YOUR RHEUMY and tell him everything you have told us here. You may

need something other than Humira. Please?

Maybe a few days of prednisone would help?

*~ Kami ~*

[ ] I can't imagine a day without pain anymore.

Venting for a minute......

I just don't know what the right thing to do is anymore.

I'm sorry to be a downer, but on days like today when it is

beautiful outside and my body wants to crash, I'm just

feeling the need to vent.

I hurt from head to toe but I want and need to be productive.

My Humira and Arava are not working anymore and I really

don't want to go back to my Rheumatoligist until my next

scheduled appointment in December because I believe she

will probably raise my Humira injections from once every 2

weeks to more like once a week, and I just don't know if I

want to do that. The area on my legs where I have been giving

myself injections (15 so far) are becoming sore and burn, and

I don't like it.

A cortisone shot sounds nice, but lately I feel that the areas

that hurt the most are where I have been given cortisone

shots so....what the.....I guess I do need to go lay down on the

heat pad for a couple hours.

Thanks for listening.

(musiclvr3237)

.

[Guest guest]

Hi :

I just read your post, and please, put in a call to your Rheumy. You

need help with your pain and suffering. He/she needs to know what is

going on with you, etc. I don't think you should wait until Dec.,

especially when you are feeling so awful.

I pray you will get the help and relief you need from all your pain and

suffering. Very, very hard to get through days and nights, feeling as

you do.

May God help you, and may you be pain free soon. You need to be.

Hugs,

Barbara

--- In , " musiclvr3237 " <musiclvr3237@...>

wrote:

>

>

> Venting for a minute......

> I just don't know what the right thing to do is anymore.

> I'm sorry to be a downer, but on days like today when it is

> beautiful outside and my body wants to crash, I'm just

> feeling the need to vent.

> I hurt from head to toe but I want and need to be productive.

> My Humira and Arava are not working anymore and I really

> don't want to go back to my Rheumatoligist until my next

> scheduled appointment in December because I believe she

> will probably raise my Humira injections from once every 2

> weeks to more like once a week, and I just don't know if I

> want to do that. The area on my legs where I have been giving

> myself injections (15 so far) are becoming sore and burn, and

> I don't like it.

> A cortisone shot sounds nice, but lately I feel that the areas

> that hurt the most are where I have been given cortisone

> shots so....what the.....I guess I do need to go lay down on the

> heat pad for a couple hours.

> Thanks for listening.

> (musiclvr3237)

>

[Guest guest]

,

Please call your rheumatologist ASAP. A December appointment is too

long to wait.

I hope you and she can work something out soon, so you will get some relief.

Not an MD

On Wed, Nov 5, 2008 at 11:59 AM, musiclvr3237 <musiclvr3237@...> wrote:

>

> Venting for a minute......

> I just don't know what the right thing to do is anymore.

> I'm sorry to be a downer, but on days like today when it is

> beautiful outside and my body wants to crash, I'm just

> feeling the need to vent.

> I hurt from head to toe but I want and need to be productive.

> My Humira and Arava are not working anymore and I really

> don't want to go back to my Rheumatoligist until my next

> scheduled appointment in December because I believe she

> will probably raise my Humira injections from once every 2

> weeks to more like once a week, and I just don't know if I

> want to do that. The area on my legs where I have been giving

> myself injections (15 so far) are becoming sore and burn, and

> I don't like it.

> A cortisone shot sounds nice, but lately I feel that the areas

> that hurt the most are where I have been given cortisone

> shots so....what the.....I guess I do need to go lay down on the

> heat pad for a couple hours.

> Thanks for listening.

> (musiclvr3237)

[Guest guest]

I'm sorry that you are suffering so much, . Maybe you do need to

call your rheumy and tell her what's going on.

Hoping for better days for you.

Sue

On Wednesday, November 5, 2008, at 12:59 PM, musiclvr3237 wrote:

>

> Venting for a minute......

> I just don't know what the right thing to do is anymore.

> I'm sorry to be a downer, but on days like today when it is

> beautiful outside and my body wants to crash, I'm just

> feeling the need to vent.

[Guest guest]

and group;

I am so sorry your in so much pain. Maybe you should see your rheumy

earlier and tell her your concerns. You are the boss, you pay her.

She makes the recomendations. She may even give you something to stop

the reactions on the injection spots. I just hate for you to suffer

so much.

She may have something you can take that is not a shot for the

allergic reaction. At least talk to her/him. God bless and take

care.

gentle hugs

Clora

********************************************************

>

>

> Venting for a minute......

> I just don't know what the right thing to do is anymore.

> I'm sorry to be a downer, but on days like today when it is

> beautiful outside and my body wants to crash, I'm just

> feeling the need to vent.

> I hurt from head to toe but I want and need to be productive.

> My Humira and Arava are not working anymore and I really

> don't want to go back to my Rheumatoligist until my next

> scheduled appointment in December because I believe she

> will probably raise my Humira injections from once every 2

> weeks to more like once a week, and I just don't know if I

> want to do that. The area on my legs where I have been giving

> myself injections (15 so far) are becoming sore and burn, and

> I don't like it.

> A cortisone shot sounds nice, but lately I feel that the areas

> that hurt the most are where I have been given cortisone

> shots so....what the.....I guess I do need to go lay down on the

> heat pad for a couple hours.

> Thanks for listening.

> (musiclvr3237)

>

[Guest guest]

((((())))) No apologies are needed. This is EXACTLY what we all

are here for - to vent when no one else would understand. I've had

days like you are having and they are miserable. I was reading online

today that its important to stagger our injections an inch apart from

each other so that we don't have injection site problems.

http://www.cc.nih.gov/ccc/patient_education/pepubs/subq.pdf I hope

you can get some good information from this article too.

Please don't wait if your meds aren't working like they should. I

understand your reasoning, but we shouldn't have to live in pain

either. What are you taking in the way of pain medication? Maybe that

needs to be changed/upped as well. I take Percocet 10/325mg. Since

I've been taking 10mg per day of Prednisone, I've only had to take 1

or 2 per day. Now, this morning I woke up feeling like a fibro-flare

was starting up, so I had to take an extra one and ended up sleeping

for several hours.

Hang in there, dear one. Please call your Rheumy. Moist heating pads

work the best. Keep us posted. My prayers are with you.....Doreen

--- In , " musiclvr3237 " <musiclvr3237@...>

wrote:

>

>

> Venting for a minute......

> I just don't know what the right thing to do is anymore.

> I'm sorry to be a downer, but on days like today when it is

> beautiful outside and my body wants to crash, I'm just

> feeling the need to vent.

> I hurt from head to toe but I want and need to be productive.

> My Humira and Arava are not working anymore and I really

> don't want to go back to my Rheumatoligist until my next

> scheduled appointment in December because I believe she

> will probably raise my Humira injections from once every 2

> weeks to more like once a week, and I just don't know if I

> want to do that. The area on my legs where I have been giving

> myself injections (15 so far) are becoming sore and burn, and

> I don't like it.

> A cortisone shot sounds nice, but lately I feel that the areas

> that hurt the most are where I have been given cortisone

> shots so....what the.....I guess I do need to go lay down on the

> heat pad for a couple hours.

> Thanks for listening.

> (musiclvr3237)

>

[Guest guest]

I want to say thank you to , Mimi, Dorreen, Clora, Sue, , Barbara,

and Kami for your thoughtfulness, concern, and kind words you sent yesterday. 

, thank you for the websites. I visited www.roadback.org/ and

intend on speaking with my chiropractor and rheumatologist, but it sounds good

to me right now.  Maybe it is what I have been searching for the past 17 years.

 I am just one person who strongly believes that the side effects of the drugs I

have taken, and the list is long, do more damage to my internal organs although

my swelling has went down dramatically.  I have neck pain and headaches

everyday.  Stomach pain almost every night, but the pain related with the

swelling is not present as much.  It is a different type of pain now.  It is the

pain of my bones rubbing together or being fused together. Rather than my hands

feeling like they were on fire, now they become frozen and turn blue.

So what the......I want to try the Antibiodic Therapy. 

I assume many of you know exactly what I am talking about 

Pain is always present although the degree of pain and where it is located

changes by the minute, so I have to ask my self what pain I prefer. none!  so,

going to take 3 Aleve and run my hands under some warm water for a minute or

two.  I hope you all have a nice day.

Thank you again,

(musiclvr3237) 

ps...Doreen

      My doctor had told me about injections being an inch apart, and so what I

have done with my 15 injections is alternate legs every two weeks.  Next

wednesday I will give myself the injection in my left leg which is not nearly as

sore as my right, which scares me because do I want both legs hurting, or just

keep it in one....

You had asked about pain medication....good question...If Arava is a pain

medication, then yes, if not, well, Aleve.  My rheumatologist wanted to

prescribe me Vicodin in September but I refused because I know me, and I just

might like them too much...

Refuse to take prednisone and methotrexate too because my insides hate them. 

fuzzy brain and head issues with prednisone, and severe stomach pain with

methotrexate.  I've just always been stubborn like that.

Thank you for your thoughts and prayers.

 

 

From: Mimi <mimi212@...>

Subject: [ ] Re: I can't imagine a day without pain anymore.

Date: Wednesday, November 5, 2008, 7:10 PM

((((()) ))) No apologies are needed. This is EXACTLY what we all

are here for - to vent when no one else would understand. I've had

days like you are having and they are miserable. I was reading online

today that its important to stagger our injections an inch apart from

each other so that we don't have injection site problems.

http://www.cc. nih.gov/ccc/ patient_educatio n/pepubs/ subq.pdf I hope

you can get some good information from this article too.

Please don't wait if your meds aren't working like they should. I

understand your reasoning, but we shouldn't have to live in pain

either. What are you taking in the way of pain medication? Maybe that

needs to be changed/upped as well. I take Percocet 10/325mg. Since

I've been taking 10mg per day of Prednisone, I've only had to take 1

or 2 per day. Now, this morning I woke up feeling like a fibro-flare

was starting up, so I had to take an extra one and ended up sleeping

for several hours.

Hang in there, dear one. Please call your Rheumy. Moist heating pads

work the best. Keep us posted. My prayers are with you.....Doreen

--- In @gro ups.com, " musiclvr3237 " <musiclvr3237@ ...>

wrote:

>

>

> Venting for a minute......

> I just don't know what the right thing to do is anymore.

> I'm sorry to be a downer, but on days like today when it is

> beautiful outside and my body wants to crash, I'm just

> feeling the need to vent.

> I hurt from head to toe but I want and need to be productive.

> My Humira and Arava are not working anymore and I really

> don't want to go back to my Rheumatoligist until my next

> scheduled appointment in December because I believe she

> will probably raise my Humira injections from once every 2

> weeks to more like once a week, and I just don't know if I

> want to do that. The area on my legs where I have been giving

> myself injections (15 so far) are becoming sore and burn, and

> I don't like it.

> A cortisone shot sounds nice, but lately I feel that the areas

> that hurt the most are where I have been given cortisone

> shots so....what the.....I guess I do need to go lay down on the

> heat pad for a couple hours.

> Thanks for listening.

> (musiclvr3237)

>

[Guest guest]

, why don't you try injecting into your tummy? I believe they say

that there are fewer nerve endings there. Anyway, I inject Enbrel and

use my tummy, and it is never sore at all.

Sue

On Thursday, November 6, 2008, at 10:22 AM, Stone wrote:

>

>       My doctor had told me about injections being an inch apart, and

> so what I have done with my 15 injections is alternate legs every two

> weeks.  Next wednesday I will give myself the injection in my left leg

> which is not nearly as sore as my right, which scares me because do I

> want both legs hurting, or just keep it in one....