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Hi ,

Please read Judy's story that she just posted today "IV's for Scleroderma"

and it will give you hope. If she can make it so sick and almost

dying, you can make it too. Don't give up! I know it's scary

but we all can beat this thing with AP.

That's what we're here for...to vent to and help as much as we can.

Please know that we are here for you and keep us posted as to how you are

doing.

I don't have any experience with lung scaring but I do have asthma and

know that lung involvement of any kind is not fun at all. I'm sure

there will be others posting to you to help with advice in that area.

Hang in there , we care about you!

Jeanette

De Juliis wrote:

hi gang

Just wondering whether any of you had any experience with scarring

on the

lungs? I saw a lung specialists after some xrays and he said i

have some

scarring which is the cause of the dry cough. As you can understand

Iim a

little freaked out and dont know what to do -ive been on mino for

over 2

years now for scleroderma and it looks like things are still getting

worse

eventhough i dont feel that bad (joint wise).

Im sorry to dump this on you but im pretty scared as the Dr wants

to do

other tests to confirm my heart is ok. On the drive home all I

could think

about is that i will not be around to see my little boy (13 mths)

grow up

and grow old with my wife (im 33).Im gonna fight this but there

is always

that nagging doubt that im losing this battle.

Sorry for the depressing post - i know you guys have your own problems

to

worry about just needed to vent a little

BTW - thank you Ethel for your Colloidal Silver advice.

john

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  • 6 years later...

Thanks to those of you who addressed my lung/RA question... here's another

regarding the cough... is it possible that it can come and go and still be

related to the RA? I have a Rhuemy appointment on the 3rd but have questions

in between :-)

Thanks,

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