Re: Re: MTX - I'm afraid!!

[Guest guest]

I take my MTX every Thursday before I go to bed, and take my Folic Acid every

morning. It's very rare that I ever have a reaction. Once in a while, bad

fatigue the next day but that's about it.

Phyllis

[ ] Re: MTX - I'm afraid!!

My Rheumy has me on the eight mtx per week with folic acid. He has told me

that you take the folic acid every day but wait until much later in the day to

take it the day of the mtx. Also backed up by the pharmatist.

Dave

[Guest guest]

HI DAVE, HOW R U? I TAKE 7 MTX PILLS EVERY FRIDAY BUT W/O THE FOLIC

ACID...MELYNDA

________________________________

From: Dave Lumsden <dlumsden@...>

Sent: Saturday, November 15, 2008 6:57:22 AM

Subject: [ ] Re: MTX - I'm afraid!!

My Rheumy has me on the eight mtx per week with folic acid.  He has told me that

you take the folic acid every day but wait until much later in the day to take

it the day of the mtx.  Also backed up by the pharmatist.

Dave

[Guest guest]

I suggest that anyone who is afraid of DMARDS watch the video that Shirley

posted the link for.

dd

In a message dated 11/16/2008 3:51:40 P.M. Central Standard Time,

blueworld_of_fire@... writes:

,

I too am afraid to even start MTX let alone ANY DMARD. I had a

really bad week last week and almost caved in, but I had also eaten a

lot of candy from Halloween and forbidden foods (peppers, potatoes).

It took me about four days to get back to " normal " . But unlike you,

I have had no problems yet with NSAIDs, as long as I take them with a

meal. I've found that taking hot milk and honey at night with my

supplements and ibuprofen really helps me sleep as well as smoothing

things out for the following morning. Not sure why, but anything to

help, right?

Have you tried any natural or alternative methods? I'm still on the

search for something good - DMARDs are my very last resort.

Brad

>

> My Rheumy wants to start me on MTX. So far, I have had stomach probs

> with all NSAIDs except Naprolen (wh/ didn't give me a whole lot of

> relief), I had an allergic reaction to Plaquenil (my tongue swelled

&

> I had a rash on my face & neck) & Sulfasalazine made me feel even

> worse (constant non stop flare the entire 2 months I was on it). So

> she put me on 10mg of Prednisone daily & I am in HEAVEN! I can't

> believe how good I feel! But, she only wanted it to be a bridge to

the

> next drug - MTX.

>

> But I'm afraid - I've heard so many bad things about it. My Dr. said

> that sometimes on the day you take it (orally) & the next you are

flu

> like sick. I have 3 kids (one is a toddler) & I just can't fathom

being

> sick two days a week - it almost doesn't seem worth the pain relief.

>

> I remember some posts here about folic acid & also a discussion

about

> pills vs. injection, but I can't seem to find them.

>

> She is sending me some literature to look at so I can have questions

> when we meet for my appointment on Wed (the 19th). Any advice or

> questions I should bring with me? I hate that we all have to take

all

> these scary drugs!!

>

> Thanks!

>

>

>

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[Guest guest]

, I'm chiming in late, you may have already talked about this. Have you

considered asking your rheum about a biologic?

________________________________

From: Brad Berg <blueworld_of_fire@...>

Sent: Sunday, November 16, 2008 3:50:29 PM

Subject: [ ] Re: MTX - I'm afraid!!

,

I too am afraid to even start MTX let alone ANY DMARD. I had a

really bad week last week and almost caved in, but I had also eaten a

lot of candy from Halloween and forbidden foods (peppers, potatoes).

It took me about four days to get back to " normal " . But unlike you,

I have had no problems yet with NSAIDs, as long as I take them with a

meal. I've found that taking hot milk and honey at night with my

supplements and ibuprofen really helps me sleep as well as smoothing

things out for the following morning. Not sure why, but anything to

help, right?

Have you tried any natural or alternative methods? I'm still on the

search for something good - DMARDs are my very last resort.

Brad

>

> My Rheumy wants to start me on MTX. So far, I have had stomach probs

> with all NSAIDs except Naprolen (wh/ didn't give me a whole lot of

> relief), I had an allergic reaction to Plaquenil (my tongue swelled

&

> I had a rash on my face & neck) & Sulfasalazine made me feel even

> worse (constant non stop flare the entire 2 months I was on it). So

> she put me on 10mg of Prednisone daily & I am in HEAVEN! I can't

> believe how good I feel! But, she only wanted it to be a bridge to

the

> next drug - MTX.

>

> But I'm afraid - I've heard so many bad things about it. My Dr. said

> that sometimes on the day you take it (orally) & the next you are

flu

> like sick. I have 3 kids (one is a toddler) & I just can't fathom

being

> sick two days a week - it almost doesn't seem worth the pain relief.

>

> I remember some posts here about folic acid & also a discussion

about

> pills vs. injection, but I can't seem to find them.

>

> She is sending me some literature to look at so I can have questions

> when we meet for my appointment on Wed (the 19th). Any advice or

> questions I should bring with me? I hate that we all have to take

all

> these scary drugs!!

>

> Thanks!

>

>

>

[Guest guest]

Brad;

 

You naughty naughty boy lol. Forbidden food.  Why is this food forbidden?  And

the hot milk and honey,  Is that a tsp of honey in a cup of hot milk?

 

gentle hugs

Clora.

 

From: Brad Berg <blueworld_of_fire@...>

Subject: [ ] Re: MTX - I'm afraid!!

Date: Sunday, November 16, 2008, 4:50 PM

,

I too am afraid to even start MTX let alone ANY DMARD. I had a

really bad week last week and almost caved in, but I had also eaten a

lot of candy from Halloween and forbidden foods (peppers, potatoes).

It took me about four days to get back to " normal " . But unlike you,

I have had no problems yet with NSAIDs, as long as I take them with a

meal. I've found that taking hot milk and honey at night with my

supplements and ibuprofen really helps me sleep as well as smoothing

things out for the following morning. Not sure why, but anything to

help, right?

Have you tried any natural or alternative methods? I'm still on the

search for something good - DMARDs are my very last resort.

Brad

>

> My Rheumy wants to start me on MTX. So far, I have had stomach probs

> with all NSAIDs except Naprolen (wh/ didn't give me a whole lot of

> relief), I had an allergic reaction to Plaquenil (my tongue swelled

&

> I had a rash on my face & neck) & Sulfasalazine made me feel even

> worse (constant non stop flare the entire 2 months I was on it). So

> she put me on 10mg of Prednisone daily & I am in HEAVEN! I can't

> believe how good I feel! But, she only wanted it to be a bridge to

the

> next drug - MTX.

>

> But I'm afraid - I've heard so many bad things about it. My Dr. said

> that sometimes on the day you take it (orally) & the next you are

flu

> like sick. I have 3 kids (one is a toddler) & I just can't fathom

being

> sick two days a week - it almost doesn't seem worth the pain relief.

>

> I remember some posts here about folic acid & also a discussion

about

> pills vs. injection, but I can't seem to find them.

>

> She is sending me some literature to look at so I can have questions

> when we meet for my appointment on Wed (the 19th). Any advice or

> questions I should bring with me? I hate that we all have to take

all

> these scary drugs!!

>

> Thanks!

>

>

>

[Guest guest]

I guess I'm in the minority here but I take MTX and Plaquenil and I've never had

any trouble with either.

Jere

Male, 66

[Guest guest]

Hi Barbara and Jere,

Same goes for me. Just make sure you get those eye tests with Plaquenil. I

just had that funky peripheral vision one last week. Still waiting on

results.

Hope everone is having a nice weekend!

Heidi, freezin' in Mass....

In a message dated 11/23/2008 8:40:50 A.M. Eastern Standard Time,

bcreedon@... writes:

Hi Jere:

Same for me too.

Hugs,

Barbara

>

> I guess I'm in the minority here but I take MTX and Plaquenil and I've

never had any trouble with either.

>

> Jere

> Male, 66

>

> [Non-text portions of this message have been removed]

>

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