Re: RA & Plaquenil; Road Back

April 27, 2009

Hi beth,

Welcome to the site. There's so much information presented, feelings and

reactions discussed, truly very helpful.

I too am seronegative, just got my diagnosis end of March and had it

confirmed at the University of Michigan rheumatology clinic three weeks ago

after a really awful winter. The general thought about my condition is (I am

in the mild to moderate classification) is to throw a lot at it early to

prevent any damage to the joints and possibly (oh how I hope) throw me into

remission. I am taking 2 grams of sulfazine, 400 mg of Celebrex and the U of

M doc put me on 400 mg of plaquenil daily. I was told because I am

seronegative (don't have the antibodies the antibiotic would fight against) I am

not a candidate for antibiotic therapy.

Has anyone out there have any other ideas?

Jane in Michigan

In a message dated 4/27/2009 2:32:55 P.M. Eastern Daylight Time,

mbvogt1@... writes:

Hello All, I am so glad you are out there. I finally gave in and

started taking Plaquenil after a blast taper of prednisone and return of

pain with a vengeance. I have only been taking it for 10 days and the

doctor says to give it 3 mos. I just don't know if I can stand this

level of pain and inflammation for 3 mos only to find out Plaquenil is

not working. I am also taking 7.5 mg of prednisone since the dr. says

Plaquenil takes time to build up in the body. Has anyone experienced

relief with Plaquenil? The dr. says I can try methotrexate, but it is

so much more toxic. I am really bummed out and angry all the time. I

worry about the effect on my husband and children. I have virtually no

patience for them, my poor suffering family, who have done nothing to

deserve my wrath.

I read some of the info on roadback.org and it sounds intriguing. I

plan to call my dr. today to see what she knows about it. Has anyone

tried the antibiotic therapy recommended at roadback.org? Also, I am

seronegative so I am not sure how the dr. would monitor my progress

other than self-reports.

Thank you for your advice. - Beth.

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