Diane

[Guest guest]

a,

Thanks for the concern!! Tried the unfiltered vinegar -- probably not for

me at this time, though my husband will probably prosper with it for other

reasons!

Had cytotoxic food allergy testing done years ago, and have added my own

research to the list since then. Wish we had known about candida back

then -- it sure would have helped!

Thanks again -- I'll take all the suggestions I can get!

Diane

DIANE

> From: a Perza <chestnutt@...>

>

> If I may offer my suggestion, Seek a homeopath to do some study as to

> food sensitivities. All the right stuff for , is not all the

> right stuff for Diane, a or Myra. For myself, I can tolorate milk

> products on a rotational basis, but my daughter is NOT tolerant to dairy

> at all. I can eat artichokes, she cannot. (We both have Candida and

> are sensitive to yeast, and wheat produts)

> I have had a Computerized Electo Dermal Screening done to both myself

> and one of my daughters. The ND looked at over 300 different food

> products and allergens that directly affect my system negatively. These

> items are rated on a numeric scale for ones sensitivity level. Vinegar

> for me is a NONO... so that just would not work. I found this type of

> test to be most valuable and informative. Consequently, have completely

> changed my diet. Feeling better as a result. NOT perfect yet.. but on

> the road please god!

> Just a suggestion, perhaps you have seen me mention this to someone else

> at an earlier date. Sorry if it appears repititious.

>

> Good Luck,

> a

>

> > _

>

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>

>

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>

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[Guest guest]

Hi Vicky,

I just got this message.... I don't know when it was sent..... Thank

you for thinking of me Vicky. My daughter will probably be here next

Friday!!!! She will fly back with my Grandson to Florida..... You know

Vicky... I feel that way at times too.... Not as many participants as

when we started out.... With the summer here most people are out and

about.... I can remember last summer it was real slow too..... You are

in my prayers Vicky...... Keep posting and others will come out of

hiding too..... ;o

Angel Hugs,

Diane

[Guest guest]

I think is part of it also, I too get messages

out of sequence. Maybe we need someone to step up and

write us a daily thought as Joe used to do, that may

generate more activity. -dz-

--- diane214@... wrote:

> Hi Vicky,

> I just got this message.... I don't know when it

> was sent..... Thank

> you for thinking of me Vicky. My daughter will

> probably be here next

> Friday!!!! She will fly back with my Grandson to

> Florida..... You know

> Vicky... I feel that way at times too.... Not as

> many participants as

> when we started out.... With the summer here most

> people are out and

> about.... I can remember last summer it was real

> slow too..... You are

> in my prayers Vicky...... Keep posting and others

> will come out of

> hiding too..... ;o

>

>

>

> Angel Hugs,

>

> Diane

>

>

__________________________________________________

[Guest guest]

Hi Everyone,

Sorry I haven't been out here but I have been at the campground all

week..... Came home to clean litter boxes and all that fun stuff. ;o

..... had so many e-mails I had to delete them... sending love to each

of you and praying for all.... Miss you Guys.... Now I have to get ready

to take the kids back to the campground.... My daughter comes in from

Florida on Saturday.... First time in years I have had all 3 children

together....... I will probably cry...... My daughter has been sick and

wants to be with me for a while...... Isn't it funny how they all want

their Moms when they are sick?????? Even 2000 miles away from

home.....;o I have had my Grandkids for so long...... I am loving every

minute of it.......They love the campground..... They fish and canoe...

There is an island there in the center of the lake and it is a bird

sanctuary.. their Dads take them out there and they just love it...... I

saw a few baby chipmonks about 4 inches long..... They were so cute.....

My Grandson was fatuated by it..... Talk to yu soon.... In the meantime

have a super day!!!!!

Angel Hugs,

Diane

[Guest guest]

Hi Diane

Glad to see that you are enjoying the company of your Grand kids. My

Granddaughter is flying in from Indiana Tomorrow. It's the first time for

her to fly by herself so she is a little nervous about it.I'm sure she will

be OK. I have to work so I won't be able to be there when she gets here.

Re: [ ] Diane

> Hi Everyone,

> Sorry I haven't been out here but I have been at the campground all

> week..... Came home to clean litter boxes and all that fun stuff. ;o

> .... had so many e-mails I had to delete them... sending love to each

> of you and praying for all.... Miss you Guys.... Now I have to get ready

> to take the kids back to the campground.... My daughter comes in from

> Florida on Saturday.... First time in years I have had all 3 children

> together....... I will probably cry...... My daughter has been sick and

> wants to be with me for a while...... Isn't it funny how they all want

> their Moms when they are sick?????? Even 2000 miles away from

> home.....;o I have had my Grandkids for so long...... I am loving every

> minute of it.......They love the campground..... They fish and canoe...

> There is an island there in the center of the lake and it is a bird

> sanctuary.. their Dads take them out there and they just love it...... I

> saw a few baby chipmonks about 4 inches long..... They were so cute.....

> My Grandson was fatuated by it..... Talk to yu soon.... In the meantime

> have a super day!!!!!

>

>

> Angel Hugs,

> Diane

>

>

>

[Guest guest]

Hello Raf...How R U today??

[Guest guest]

Re: [ ] Vicky-12 step program

Hallo Diane,

If you believe in God, I think he is the best way to go through this.

Greetings

Raf

[Guest guest]

Diane I hope all ges ok with you..When you are at the Dr's office I'll be thinking of ya at Mardi Gras!!!!! I love ya girl..I have to go to the Dr. on Wednesday...Not good when they send you a certified letter to make an appointment!!!!!!!

[Guest guest]

PLease tell Joe thankyou for the info on Diane..We miss her so much..She is so dear to us..She is in my prayers..

[Guest guest]

Diane

>

> Joe

>

> Many of us are wondering if you have any news about Diane. We are

> very worried about her. If you have any news or updates would you

> please let me know.

>

> Thank you

>

>

>

-.-.-.-.This mail has been virus scanned and spam filtered.-.-.-.-

[Guest guest]

Thanks for letting us know .

Sharon

__________________________________________________

[Guest guest]

I just mix it with whatever I am drinking at the time. I drink a lot of water

with lemon juice. Not sure I should do this, and Duncan will probably let me

know if I shouldn't but I often add it in with my Dyna Whey. I don't drink

a lot of juice, but I like apple juice, so, on the occasional days where I have

some, I add inulin to that as well. I have trouble drinking just plain water,

but, might even be acceptable there... I'll let someone else try that

----- Original Message -----

From: ldubois22000

Hi Diane,

I, too, am waiting for inulin from Duncan. Thanks for the mixing

hints. What kind of juice do you mix it with?

[Guest guest]

Diane

There is research supporting the fact that thyroid difficulties is related and

actually caused by candida. If you treat the candida, you will improve your

thyroid functioning.

I am taking ThreeLac and was diagnosed w/Hypothyroidism in 1991. The ThreeLac

has been helping the thyroid a great deal--I am still taking the Synthroid as I

want to give the ThreeLac at least 8-9 months to work--and then I'll get

retested to see if I can at least reduce my dosage of Synthroid--it will be

interesting! My candida is being eliminated and my fatigue is gone. I was SOO

tired all of the time also and just wiped out. I believe now the candida was

affecting the thyroid and the Synthroid just wasn't going to the real source of

the problem

anyway let me know if you want samples of ThreeLac

brenda

Re: diane

Yes I am... I'm in Canada, the med of choice here is synthroid (.175) I can

honestly say that I don't feel a difference one way or the other. Im just

soooo tired all the time.

----- Original Message -----

From: gliTTer

Are you on meds?

[Guest guest]

Are you on meds?

Diane Trudeau <dianatrudeau@...> wrote: Keep us posted on how that works

out. I also have hashimotos. They don't really tell you much. Docs have said

that eventually, the thyroid will just poop out. Good luck

----- Original Message -----

From: gliTTer

Hashimotos is an autoimmune disease which attacks the thyroid. I am in the

process of stopping the meds and am very very ill. THis always happens when i

change my dose. I am terrified my thyroid wont work but theres only one way to

find out. I AM HOPING my antibodies and goiter were caused by bowel toxicity.

[Guest guest]

Diane,

do you remember what your TSH t3 and t4 were at the time of diagnosis? My tsh

was 2.69 T3 was 4 (2.5 - 5.5) and t4 was 16 (10-20) so basically all normal. I

was put on meds due to antibodies 1200 (<40) and small goiter and have almost

died on them especially everytime i had to increase or decrease my dose. Thats

why i'm stopping them. I havent had antibodies for some months now.

Diane Trudeau <dianatrudeau@...> wrote:

Yes I am... I'm in Canada, the med of choice here is synthroid (.175) I can

honestly say that I don't feel a difference one way or the other. Im just

soooo tired all the time.

----- Original Message -----

From: gliTTer

Are you on meds?

[Guest guest]

Yes I am... I'm in Canada, the med of choice here is synthroid (.175) I can

honestly say that I don't feel a difference one way or the other. Im just

soooo tired all the time.

----- Original Message -----

From: gliTTer

Are you on meds?

[Guest guest]

I have no idea what my numbers are. But I do know that my antibodies keep going

up.. odd thing. I had a grape sized nodule on my thyroid, but it's gone now.

Not sure how that happened.

Re: diane

Diane,

do you remember what your TSH t3 and t4 were at the time of diagnosis? My tsh

was 2.69 T3 was 4 (2.5 - 5.5) and t4 was 16 (10-20) so basically all normal. I

was put on meds due to antibodies 1200 (<40) and small goiter and have almost

died on them especially everytime i had to increase or decrease my dose. Thats

why i'm stopping them. I havent had antibodies for some months now.

[Guest guest]

That is about 5 hrs away

OLD IS WHEN...a sexy babe catches your eye and your pacemaker opens the garage door.Eddie

[Guest guest]

Diane,

The stories we have are truly full of courage (whether we recognize it

or not) and only some of it is related to our spines. You and your

sweetie have endured so much. I suspect the trials have bonded you in

ways that an ordinary couple could not even begin to fathom. I do hope

that there are many bright spots in your immediate future.

Thank you for sharing your experiences. You were missed whilst you were

silent and it is SO GOOD to have you posting again. I'm a bit delayed

in mentioning this, but your absence was noted.

The future is Rozie, my friend!

kam

[Guest guest]

Hi Kam, It sure has been awhile hasn't it. Thanx for the welcome.

I guess u know after reading my posts what happened to me 5 days

after surgery & why I had not been posting. Truly it has been only

the last month that I have felt like myself again. It is so good to

be back & feeling normal ( whatever that is ) once again. My surgery

not counting what hapened to my memory was a great success. The

future is certainly looking alot more Rozie!!!

Yes you are right Jim has been a real blessing to me since the day I

met him & though what happened to me really tested the strength of

our marriage ( I had no memory of him either ) now I am happy to say

we are still together & more in love than before.

While I was still in the hospital my husband moved us from Lansford

to Frackville. I DO NOT recommend this to anyone having major

surgery. He thought it would be better for me being everything is on

one floor but after losing my memory coming bk after a month away to

a different house was awful.

My 33 yr old son also became a single parent of 2 boys aged 5 & 2. I

have been keeping very busy babysitting them as my son went bk to

college to get his PTA. I am very thankful my surgery was successful

as before I had it I could barely walk nevermind watch 2 young boys

who are full of energy. If not for this I would working to get my

license renewed so I could get bk to wk. I recognize your name but

am sorry to say really don't remember you or the details of your back

etc. Hopefully now that I am really feeling like myself again I can

familiarize myself with everyone.

I was really disappointed that I had to cancel NC as I was so looking

forward to finaly meeting people face to face.

Thanx again for the warm welcome back,

Diane B

PS My first name at baptism was Rozalie Diane cuz when I was born no

priest would baptize me Diane. I have been called Diane though since

the day I was born & with the way my mom spelled Rozalie it wked well

as a pc name.....noone else had ever used it & any website I went to

accepted it.---

In , " advokam " <advokam@...> wrote:

>

> Diane,

>

> The stories we have are truly full of courage (whether we recognize

it

> or not) and only some of it is related to our spines. You and your

> sweetie have endured so much. I suspect the trials have bonded you

in

> ways that an ordinary couple could not even begin to fathom. I do

hope

> that there are many bright spots in your immediate future.

>

> Thank you for sharing your experiences. You were missed whilst you

were

> silent and it is SO GOOD to have you posting again. I'm a bit

delayed

> in mentioning this, but your absence was noted.

>

> The future is Rozie, my friend!

>

> kam

>

[Guest guest]

Thank you! I hope I have good luck with it too. Glad it is working

for you and you are feeling better.

--- In , " diane crawford " <nuttynurse25@...>

wrote:

>

> KATIE, iM ON ARAVA 20MGS DAILY..i STARTED THIS IN JULY WITH

> PLAQUINEL..i HAVE HAD A FEW SIDE EFFECTS SOME HAVE IMPROVED AFTER A

> WEEK LIKE THE NAUSEA...tHE ONE THING IS IM STILL GETTING BOUTS OF THE

> SCOOTS..BUT IMMODIUM DOES HELP...iM NOTICING IMPROVEMENT IN PAIN AND

> FATIQUE..I STILLHAVE SOME MINOR FLARES, BUT I WANT TO GIVE IT 6

> MONTHS.MY WHITE COUNT ONLY DIPPED A LITTLE...GOOD LUCK

>

> DIANE IN OHIO

>

[Guest guest]

Hi Diane

so true about the name of what the evil is we suffer from

my sister just had her kidney out--stage 4 cancer---and while id never wish that

on anyone I am very angry and aggravated that its OK for her to whine and need

help and yet here my 19 yr old is missing his entire teen ages in bed moaning

from pain being told by HER that he isnt fighting hard enough and if he wanted

to be well he would heal!!!

and here I am so ill for the last 10 yrs since relapsing ( and in total the

entire 19 yrs since pregnancy with Evan)

and raised 3 kids, one now so ill, on my own ( the almost ex lives a few miles

away unable to deal with chronic illness) and Im not allowed to have help...and

Im making my kid ill by modeling poor health etc etc

I am glad she is healing fast after surgery, and very glad she is prancing

around to the gym 2 weeks later and taking morphine ( she cant deal with the

tiniest of pain) and is doing cancer the " right way " per her--but to hear her

and my parents and others compare that to what Evan and I deal with daily...its

aggravating

this is what I hear almost daily:

its " just " Lyme, ignore the symptoms and get on with life, its not cancer so why

are you complaining, I have cancer so Mom is here helping me ( even though I

guess I feel OK) and no she cant drop dinner by--get off the couch and ignore

the vertigo and cook for you and Evan...no wonder he is still so ill--you refuse

to care for him properly

and on and ON

and every time I dare to point out that each of us suffers through our own

struggles the best we can and that no one can ever " know " what we go through (

any of us no matter the diagnosis)--and that many times for someone just getting

out of bed and dressing at 3 PM is such a struggle that this IS fighting and not

giving in---and that swallowing dozens of meds and enduring the side effects and

all that just to try to get well and dragging to the hundreth specialist...how

DARE anyone judge ??

well my answer is always from my sis and Mom: well others get well so youre

obviosuly not doing something right and not trying hard enough to think yourself

well...you must WANT to be ill and you must WANT to keep your son ill

sigh

and thats why conversations are now very limited to hows Dad, hows my niece and

why I talk with my counselor regularly

I thought that " well I never wanted my sister to be ill but NOW, now she will

get it--that you cant judge anothers struggles... " but no--its become even

worse--she is now " proof " that you can be well if you want it badly

enough--according to her anyway

blame the victim??? just as sane as the devout Muslims stoning to death the teen

girls who dared to allowed themselves to be raped!!!? what sort of insane world

do we live in???

take care

Finette

[ ] Re: 10 year old herx headache/Sarsaparilla questions

THANK YOU - everyone who gave me idea's - I will be calling the doctor

soon and see what he has to say. It's good to know that I am not the

only one in the world dealing with this but not good to know that other

kids are suffering also. They can send a man to the moon but not

figure out lyme disease - at times I feel it would be easier to have

cancer - as then people have compasion and " help you out " not that I

want any of my children or I to deal with cancer but because of lyme

disease we are so isolated -

thanks again for your info -

Diane (WI)

[Guest guest]

HI Diane:  I was sorry to read that you have been flaring.  I hope the addition

of the new meds. helps you.  It is good your Rheumy is trying this, plus giving

you a steroid shot to help you out.

I pray your health is better so far now.  I know how careful you have to be. 

Wishing you better days ahead.  I think of you all the time.

 

Hugs,

 

Barbara

From: clampert5 <nuttynurse25@...>

Subject: [ ] Re: Breakthru RA with Enbrel

Date: Monday, November 2, 2009, 10:29 AM

 

OKD

I have been on enbrel now for 6 months..last month I Was in a flare and my

sedrate went back up..I am also on plaquenel..My rheumy added sulfazine and gave

me steroid injection..My rheumy said I was in a flare but added the new

medicine..he wasnt ready to give up on the enbrel yet..but did discuss ohter

options down the road...Yes you can have aflare and I think it depends how often

they come and last rather or not your rheumy will change it..but this new

medicine and the shot seems to be helping..Maybe should call your rheumy if it

is really bad..I have also medrol dose paks if I need it...It is frusting!!!hand

in there.

diane in ohio

[Guest guest]

thanks barbara,

My docter put me on sulfazine and making me sick to stomach,,I have tried the

prilosec without sucess..o, I need to call the rhumy and let im know...I hope

every thing is well with you...

diane in ohio

[Guest guest]

Things are good with me Diane.  I hope you feel  better soon, and your Rheumy

can help you find another med. that agrees with you.

I sure hope you have better days ahead.

Talk soon.

 

Hugs,

 

Barbara

From: clampert5 <nuttynurse25@...>

Subject: [ ] Re: DIANE

Date: Tuesday, November 3, 2009, 11:26 AM

 

thanks barbara,

My docter put me on sulfazine and making me sick to stomach,,I have tried the

prilosec without sucess..o, I need to call the rhumy and let im know...I hope

every thing is well with you...

diane in ohio