why is noone answering my posts?

[Guest guest]

this is my 3rd post asking for help re my reaction to mtx and noone

replies. i've seen others talk about problems with mtx but no answers to

mine. i don't understand????????

i took it 4 wks by injection 10 mg and erach week got more fatigued - so

bad i coudl barely get dressed. didn;t leave house for wks. also severe

nausea and dizziness which worsened each week. i stopped it 3 wks ago

and still the symptoms persist. am wondering how long it took others

here who got sick from mtx to recover from the med?

thanks

monique

[Guest guest]

I'm sorry you haven't received answers. I take MTX but not the injectible type.

I experience fatigue with the pills though.

I would suggest calling your doctor about this. It sounds as if you might

really need to see him. Sorry I couldn't be more help.

Phyllis

[ ] why is noone answering my posts?

this is my 3rd post asking for help re my reaction to mtx and noone

replies. i've seen others talk about problems with mtx but no answers to

mine. i don't understand????????

i took it 4 wks by injection 10 mg and erach week got more fatigued - so

bad i coudl barely get dressed. didn;t leave house for wks. also severe

nausea and dizziness which worsened each week. i stopped it 3 wks ago

and still the symptoms persist. am wondering how long it took others

here who got sick from mtx to recover from the med?

thanks

monique

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8:23 AM

[Guest guest]

Sorry , I don't take it either.  My friend's husband takes it and has

poor compliance b/c it makes him so tired and nauseaous he pretty much misses

out on weekends if he takes it on Fris.

________________________________

From: Phyllis son <mammap@...>

Sent: Monday, December 1, 2008 1:01:37 PM

Subject: Re: [ ] why is noone answering my posts?

I'm sorry you haven't received answers. I take MTX but not the injectible type.

I experience fatigue with the pills though.

I would suggest calling your doctor about this. It sounds as if you might really

need to see him. Sorry I couldn't be more help.

Phyllis

[ ] why is noone answering my posts?

this is my 3rd post asking for help re my reaction to mtx and noone

replies. i've seen others talk about problems with mtx but no answers to

mine. i don't understand?? ??????

i took it 4 wks by injection 10 mg and erach week got more fatigued - so

bad i coudl barely get dressed. didn;t leave house for wks. also severe

nausea and dizziness which worsened each week. i stopped it 3 wks ago

and still the symptoms persist. am wondering how long it took others

here who got sick from mtx to recover from the med?

thanks

monique

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Checked by AVG - http://www.avg. com

Version: 8.0.176 / Virus Database: 270.9.12/1822 - Release Date: 12/1/2008 8:23

AM

[Guest guest]

In a message dated 12/1/2008 12:59:09 P.M. Central Standard Time,

moniquesauve@... writes:

i stopped it 3 wks ago

and still the symptoms persist. am wondering how long it took others

here who got sick from mtx to recover from the med?

My reaction only lasts a few days. So If I stopped taking it, the next week

I would have no reaction. But I had a sinus infection one week and couldn't

take Mtx or Arava. I thought I would feel great, but the fatigue and nausea

that seems to be from RA was there.

dd

**************Life should be easier. So should your homepage. Try the NEW

AOL.com.

(http://www.aol.com/?optin=new-dp & icid=aolcom40vanity & ncid=emlcntaolcom00000002)

[Guest guest]

Hi ,

I'm new here. I'm so sorry you have been so sick. I take mtx but have

only taken it once. I did not notice any side effects. I take four

tablets (no injection). Do side effects usually start right away? I'm

so glad I found this group. Everyone has been so nice and helpful. I

feel like I'm sitting in someone's living room having a group chat.

Again, I'm sorry you feel so badly. My thoughts are with you.

Namaste' ... Rhonda

this is my 3rd post asking for help re my reaction to mtx and noone

replies. i've seen others talk about problems with mtx but no answers to

mine. i don't understand????????

i took it 4 wks by injection 10 mg and erach week got more fatigued -

so

bad i coudl barely get dressed. didn;t leave house for wks. also severe

nausea and dizziness which worsened each week. i stopped it 3 wks ago

and still the symptoms persist. am wondering how long it took others

here who got sick from mtx to recover from the med?

thanks

monique

[Guest guest]

I am on mtx but in pill form. Some weeks I have reactions and others I don't

but I have only been on the pills for about 8 weeks

marla

-- Re: [ ] why is noone answering my posts?

Hi ..so sorry, I dont have any experience with mtx. maybe someone can

help you soon.

Good luck..paula

**************

Life should be easier. So should your

homepage. Try the NEW AOL.com. (http://www.aol.com/?optin=new-dp & amp

icid=aolcom40vanity & amp;

ncid=emlcntaolcom00000002)

[Guest guest]

I've never done the inj, I do the pills with no problem (except thinning hair),

can you be sure after 3 weeks have passed that it was the mtx causing your

fatigue in the first place? Wishing you well, in PA

[ ] why is noone answering my posts?

this is my 3rd post asking for help re my reaction to mtx and noone

replies. i've seen others talk about problems with mtx but no answers to

mine. i don't understand????????

i took it 4 wks by injection 10 mg and erach week got more fatigued - so

bad i coudl barely get dressed. didn;t leave house for wks. also severe

nausea and dizziness which worsened each week. i stopped it 3 wks ago

and still the symptoms persist. am wondering how long it took others

here who got sick from mtx to recover from the med?

thanks

monique

------------------------------------------------------------------------------

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Checked by AVG - http://www.avg.com

Version: 8.0.176 / Virus Database: 270.9.12/1822 - Release Date: 12/1/2008

8:23 AM

[Guest guest]

Hi :

I did answer your post the other day. Maybe you missed it.

I am taking my MTX inject. each week with no problems. But when I took

the MTX pills I was so sick just like you. I tried them for 6 weeks,

and had to go to the injections.

Perhaps you need to put a call into your Rheumy, and maybe he/she can

give you something for the nausea. I take 2 Leucovorin pillls 12 hours

after my MTX injection, and have no nausea.

I hope you can find out what is making you so sick. It is awful to feel

that way, day in and day out. MTX lasts about 5 days, so I do get tired

by the end of each week. Overall, I am doing very good with all my RA

meds.

I wish you pain free days, and God Bless you.

Hugs,

Barbara

>

> I've never done the inj, I do the pills with no problem (except

thinning hair), can you be sure after 3 weeks have passed that it was

the mtx causing your fatigue in the first place? Wishing you well,

in PA

> [ ] why is noone answering my posts?

>

>

> this is my 3rd post asking for help re my reaction to mtx and noone

> replies. i've seen others talk about problems with mtx but no answers

to

> mine. i don't understand????????

> i took it 4 wks by injection 10 mg and erach week got more fatigued -

so

> bad i coudl barely get dressed. didn;t leave house for wks. also

severe

> nausea and dizziness which worsened each week. i stopped it 3 wks ago

> and still the symptoms persist. am wondering how long it took others

> here who got sick from mtx to recover from the med?

>

> thanks

> monique

>

>

>

>

>

>

------------------------------------------------------------------------\

------

>

>

>

> No virus found in this incoming message.

> Checked by AVG - http://www.avg.com

> Version: 8.0.176 / Virus Database: 270.9.12/1822 - Release Date:

12/1/2008 8:23 AM

>

>

>

[Guest guest]

I was on methotrexate for a couple of months and had terrible reactions to it. I

literally felt as though I was had been poisoned every time I took it. It never

got any better- in fact, the cumulative effect wore me down to the point that I

walked around looking haunted all the time (or so I was told by several folks).

I know that I felt like a ghost in my own life- I was worn out beyond belief.

I also experienced some nutritional problems while on it- in part due to my past

history of bariatric surgery and the added insult of what the methotrexate does

to your digestive system pushed me over the edge.

In desperation I began taking five times the amount of folic acid prescribed. It

did help, but only minimally. While on it, I had maybe two good days out of

seven. And " good " wasn't especially wonderful.

When I told the doctor that I refused to take the medication any longer due to

the side effects, I could tell that she did not really believe me but I know

that the way I felt when I was on it was for real. For me, that is one BAD

medication. I do know others who have little to no difficulties on it.

~Marie

[Guest guest]

Hi ,

I took MTX for several months. I went from being sick about 4-5 days after

I took it. but it only lasted for a day or so, well as time went one the

sickness went from 1 day a week to 2 then 3 then 4-5 so I talked to my Rhu

and we decided it was best I just stopped it.I still take Humera and hope

that maybe I can someday retake it as I can really tell the difference pain

wize without it. I was taking 6-2.5mg tabs weekly. so, hopefully I can

return to it soon.

Heidibug

On Mon, Dec 1, 2008 at 1:58 PM, Sauve <moniquesauve@...> wrote:

> this is my 3rd post asking for help re my reaction to mtx and noone

> replies. i've seen others talk about problems with mtx but no answers to

> mine. i don't understand????????

> i took it 4 wks by injection 10 mg and erach week got more fatigued - so

> bad i coudl barely get dressed. didn;t leave house for wks. also severe

> nausea and dizziness which worsened each week. i stopped it 3 wks ago

> and still the symptoms persist. am wondering how long it took others

> here who got sick from mtx to recover from the med?

>

> thanks

> monique

>

>

[Guest guest]

hi marie

thanks for the response. mtx after 4 wks also flared up the ulcer i had

in the stomach from NSAIDs. i hadn't had any problem with my stomach

since stopping the NSAID until after a few wks on mtx. mtx was so awful

i would never take it again. woudl honestly rather be in a wheelchair.

my ND thinks i had such a severe allergic reaction to it that it crashed

my adrenal glands. the last 6 wks have never been so tired in my life.

could barely get out of bed. energy was much better b/f taking mtx. what

do you take now for your RA marie?

i am scared to try more meds as this is the 3rd one i've had a bad

reaction to.

thanks

monique

I was on methotrexate for a couple of months and had terrible reactions

to it. I literally felt as though I was had been poisoned every time I

took it. It never got any better- in fact, the cumulative effect wore me

down to the point that I walked around looking haunted all the time (or

so I was told by several folks). I know that I felt like a ghost in my

own life- I was worn out beyond belief.

I also experienced some nutritional problems while on it- in part due to

my past history of bariatric surgery and the added insult of what the

methotrexate does to your digestive system pushed me over the edge.

In desperation I began taking five times the amount of folic acid

prescribed. It did help, but only minimally. While on it, I had maybe

two good days out of seven. And " good " wasn't especially wonderful.

When I told the doctor that I refused to take the medication any longer

due to the side effects, I could tell that she did not really believe me

but I know that the way I felt when I was on it was for real. For me,

that is one BAD medication. I do know others who have little to no

difficulties on it.

~Marie

[Guest guest]

hi heidi

so the humira isn't enough on its own? did you try the other biologics?

monique

Hi ,

I took MTX for several months. I went from being sick about 4-5 days after

I took it. but it only lasted for a day or so, well as time went one the

sickness went from 1 day a week to 2 then 3 then 4-5 so I talked to my Rhu

and we decided it was best I just stopped it.I still take Humera and hope

that maybe I can someday retake it as I can really tell the difference pain

wize without it. I was taking 6-2.5mg tabs weekly. so, hopefully I can

return to it soon.

Heidibug

[Guest guest]

and group;

Hon I think its safe to say we all go through this at times. Unless

you ask a question people will think we don't need an answer. I broke

out in hives when I took methtrexate. I took it for about 4 weeks till

I realized it was the methtrexate breaking me out. So that ended

that.

My best advise is talk to your rheumy. Fatigue and nausea is aweful

way to feel for weeks. Plus you have to work. Let us know what your

rheumy says.

gentle hugs

Clora

**********************************************************

>

> this is my 3rd post asking for help re my reaction to mtx and noone

> replies. i've seen others talk about problems with mtx but no answers

to

> mine. i don't understand????????

> i took it 4 wks by injection 10 mg and erach week got more fatigued -

so

> bad i coudl barely get dressed. didn;t leave house for wks. also

severe

> nausea and dizziness which worsened each week. i stopped it 3 wks ago

> and still the symptoms persist. am wondering how long it took others

> here who got sick from mtx to recover from the med?

>

> thanks

> monique

>

[Guest guest]

Hi - please accept my sincerest of apologies for not seeing

your post before now. I also take MTX injections, but have not had the

reaction you are having. I am glad to hear that you have stopped

taking it with the reactions you have been getting. Have you called

your Rheumy? He/She would be the best one to tell you what to do from

here. I would think that after 3 weeks, the MTX symptoms would be gone

- perhaps you have something else going on now. Could pregnancy be a

possibility? Please contact your Rheumy or GP. Keep us posted. We

really do care.......Doreen

>

> this is my 3rd post asking for help re my reaction to mtx and noone

> replies. i've seen others talk about problems with mtx but no

> answers to mine. i don't understand????????

> i took it 4 wks by injection 10 mg and erach week got more fatigued

> - so bad i coudl barely get dressed. didn;t leave house for wks.

> also severe nausea and dizziness which worsened each week. i

> stopped it 3 wks ago and still the symptoms persist. am wondering

> how long it took others here who got sick from mtx to recover from

> the med?

>

> thanks

> monique

>

[Guest guest]

Hi

I was on Enbrel but it just didn't seem to make any difference. I can tell

the Humera helps some. But nothing I take or do helps my hands. I just try

to do all I can. I am really kinda sad this year. I usually make stockings

for all the kids each year. I replace the old ones as they need it. as I am

trying this year I know that if my RA does not get better, and I am seeing

it get worse this will be my last year. My Hands just won't let me.I made

two so far this year and it has taken me three months. Geese it used to take

a week or so.

On Mon, Dec 1, 2008 at 11:17 PM, Sauve <moniquesauve@...> wrote:

> hi heidi

>

> so the humira isn't enough on its own? did you try the other biologics?

>

> monique

>

> Hi ,

> I took MTX for several months. I went from being sick about 4-5 days after

> I took it. but it only lasted for a day or so, well as time went one the

> sickness went from 1 day a week to 2 then 3 then 4-5 so I talked to my Rhu

> and we decided it was best I just stopped it.I still take Humera and hope

> that maybe I can someday retake it as I can really tell the difference pain

> wize without it. I was taking 6-2.5mg tabs weekly. so, hopefully I can

> return to it soon.

> Heidibug

>

>

>

[Guest guest]

thanks for the responses. i really appreciate them. finally yesterday

the dizziness nausea and fatigue started letting up. thank god. i called

the rheumy and the pharmacist. the rheumy told me to stop it which is

why i did 3 wks ago. he didn't say how long it woudl take to clear

system. the pharm this weekend told me that for some ppl it's weeks and

for others mos so the mtx coudl indeed make one sick for weeks

afterwards. wow that stuff is powerful. i knew it was thw mtx as a few

days after the 1st inj the symptoms began and they got worse each week

on it. i was taking folic acid daily and leucovorin 12 h after inj. and

stil had this reaction. guess i am very sensitive.

monique

[Guest guest]

Hi :

I was glad to read you are starting to feel a little better. It takes

time for the MTX to leave our systems.

I hope your Rheumy can help you out. I would be lost without my Rheumy.

Wishing you better days ahead, and God Bless you.

Hugs,

Barbara

--- In , Sauve <moniquesauve@...>

wrote:

>

> thanks for the responses. i really appreciate them. finally yesterday

> the dizziness nausea and fatigue started letting up. thank god. i

called

> the rheumy and the pharmacist. the rheumy told me to stop it which is

> why i did 3 wks ago. he didn't say how long it woudl take to clear

> system. the pharm this weekend told me that for some ppl it's weeks

and

> for others mos so the mtx coudl indeed make one sick for weeks

> afterwards. wow that stuff is powerful. i knew it was thw mtx as a few

> days after the 1st inj the symptoms began and they got worse each week

> on it. i was taking folic acid daily and leucovorin 12 h after inj.

and

> stil had this reaction. guess i am very sensitive.

>

> monique

>

[Guest guest]

hi monique, i'm sorry no one has posted a reponse. i don't take mtx injections

,however i do take the pills. i've had no side effects at all.

i hope someone will respond soon. god bless, melynda

________________________________

From: Sauve <moniquesauve@...>

Sent: Monday, December 1, 2008 12:58:58 PM

Subject: [ ] why is noone answering my posts?

this is my 3rd post asking for help re my reaction to mtx and noone

replies. i've seen others talk about problems with mtx but no answers to

mine. i don't understand????????

i took it 4 wks by injection 10 mg and erach week got more fatigued - so

bad i coudl barely get dressed. didn;t leave house for wks. also severe

nausea and dizziness which worsened each week. i stopped it 3 wks ago

and still the symptoms persist. am wondering how long it took others

here who got sick from mtx to recover from the med?

thanks

monique

------------------------------------