Im at the end of my tether!!!

[Guest guest]

Hi

First i do apologise i think i only come on here when i need to complain!

Second im a bit out of the loop as things have been so bad ive only came on to

clear out my email

Im officialy at my wits end and no longer know what to do for the best, i am

sero negative inflammatory polyarthritis and have been for 2 years, im on

sulfasalazine, methotrexate, plaquenil. diclofenac, omeprazole, amotryptoline

and co codamol.

I was off work for 3 months over the summer with neck spasms, i went back to

work in August on reduced hours and the plan to slowly build up to 7.5 hours per

day 4 days per week, as i attend hydrotherapy on fridays.

Over the last 3-4 weeks things have got worse, my neck has got steadily worse

and i almost feel its back as bad as it was when i went off sick before, on top

of that my hands, feet, hips and knees have decided to flare as well. Im going

to bed at 8pm in order to be able to get up and go to work the next day.

To add to the joy of my life im a single parent, which means life goes at 100mph

and my body goes 50mph!!

So last week i had enough i spent 3 days straight in tears and unable to

function due to the pain, so i called my boss and told him things werent working

for me on the full days, he is amazing and i cant give him enough credit for all

he has done for me, today i had a meeting with h.r and they agreed for me to go

down to 4 hours per day 4 days per week.

So guess what now i have the added worry of the effect on my finances so close

to christmas, which is stressing me and giving me a headache as well.

I called a helpline about my finances and im still waiting for them to call me

back, my physio advised i need intra muscular injections so i left a message at

the hospital and they havent called me back, and this is what i cant take, im

sat here in a bubbling mess of tears and frustration and without the energy to

kick and scream to get some answers

Why does it have to be so difficult to get help??

Sharon xx

[Guest guest]

(((((Sharon))))) I am so sorry to hear you are having such tough time

right now. God Bless you boss who was so willing to work with you

regarding your hours. I don't know how things work over in the UK

regarding any kind of disability programs, but I do know how slow they

are at getting you any kind of medical help. I have a friend who has

been out of work for over 3 years with a back injury that has taken

them all this time to get a second MRI in order to decide what mode of

treatment he will receive.

I pray that somehow you are able to get some relief. Is there no way

to get a quick appointment? What if you continue to call or can you go

to an Emergency Room for immediate assistance? Do you get any

assistance from your children's father? Do you have any family near by

that can help you?

Again, I don't know how things work over there in the UK, but I've

always been one who will continue to call until I get an answer. Kind

of like the " squeaky wheel gets the grease " type of thing. My prayers

are with you, Sharon. Keep your chin up and keep us posted. I do

care..........Doreen

>

> Hi

>

> First i do apologise i think i only come on here when i need to

> complain! Second im a bit out of the loop as things have been so

> bad ive only came on to clear out my email

>

> Im officialy at my wits end and no longer know what to do for the

> best, i am sero negative inflammatory polyarthritis and have been

> for 2 years, im on sulfasalazine, methotrexate, plaquenil.

> diclofenac, omeprazole, amotryptoline and co codamol.

>

> I was off work for 3 months over the summer with neck spasms, i

> went back to work in August on reduced hours and the plan to slowly

> build up to 7.5 hours per day 4 days per week, as i attend

> hydrotherapy on fridays.

>

> Over the last 3-4 weeks things have got worse, my neck has got

> steadily worse and i almost feel its back as bad as it was when i

> went off sick before, on top of that my hands, feet, hips and knees

> have decided to flare as well. Im going to bed at 8pm in order to

> be able to get up and go to work the next day.

>

> To add to the joy of my life im a single parent, which means life

> goes at 100mph and my body goes 50mph!!

>

> So last week i had enough i spent 3 days straight in tears and

> unable to function due to the pain, so i called my boss and told

> him things werent working for me on the full days, he is amazing

> and i cant give him enough credit for all he has done for me, today

> i had a meeting with h.r and they agreed for me to go down to 4

> hours per day 4 days per week.

>

> So guess what now i have the added worry of the effect on my

> finances so close to christmas, which is stressing me and giving me

> a headache as well.

>

> I called a helpline about my finances and im still waiting for them

> to call me back, my physio advised i need intra muscular injections

> so i left a message at the hospital and they havent called me back,

> and this is what i cant take, im sat here in a bubbling mess of

> tears and frustration and without the energy to kick and scream to

> get some answers

>

> Why does it have to be so difficult to get help??

>

> Sharon xx

[Guest guest]

Sharon,

I don't know what to advise, but I hope you will find some assistance soon.

Please let us know how you are doing.

Not an MD

On Mon, Dec 1, 2008 at 10:24 AM, Sharon <rupertsmum@...> wrote:

> Hi

>

> First i do apologise i think i only come on here when i need to complain!

> Second im a bit out of the loop as things have been so bad ive only came on

> to clear out my email

>

> Im officialy at my wits end and no longer know what to do for the best, i am

> sero negative inflammatory polyarthritis and have been for 2 years, im on

> sulfasalazine, methotrexate, plaquenil. diclofenac, omeprazole,

> amotryptoline and co codamol.

>

> I was off work for 3 months over the summer with neck spasms, i went back to

> work in August on reduced hours and the plan to slowly build up to 7.5 hours

> per day 4 days per week, as i attend hydrotherapy on fridays.

>

> Over the last 3-4 weeks things have got worse, my neck has got steadily

> worse and i almost feel its back as bad as it was when i went off sick

> before, on top of that my hands, feet, hips and knees have decided to flare

> as well. Im going to bed at 8pm in order to be able to get up and go to work

> the next day.

>

> To add to the joy of my life im a single parent, which means life goes at

> 100mph and my body goes 50mph!!

>

> So last week i had enough i spent 3 days straight in tears and unable to

> function due to the pain, so i called my boss and told him things werent

> working for me on the full days, he is amazing and i cant give him enough

> credit for all he has done for me, today i had a meeting with h.r and they

> agreed for me to go down to 4 hours per day 4 days per week.

>

> So guess what now i have the added worry of the effect on my finances so

> close to christmas, which is stressing me and giving me a headache as well.

>

> I called a helpline about my finances and im still waiting for them to call

> me back, my physio advised i need intra muscular injections so i left a

> message at the hospital and they havent called me back, and this is what i

> cant take, im sat here in a bubbling mess of tears and frustration and

> without the energy to kick and scream to get some answers

>

> Why does it have to be so difficult to get help??

>

> Sharon xx