Re: Excerise

[Guest guest]

Hi - I am sorry you are in so much pain. I know what you mean

about being your own personal weather person. Here in FL, hurricane

season was horrible for me this year. I was on a barometric pressure

roller coaster ride. Thank God its almost over (11/30) - this drier,

cooler air is a blessing.

You have your pity party all you want and I'll join in. I'm in the

same boat with the weight. Can't do gastric bypass - not a candidate

due to the " auto immune " part of this disease. Walking is out - my hip

feels like it is going to pop out of its socket and my lower back

can't handle the standing.

Years ago they made these Ayds candies that you would eat (1) about

15-30 mins before your meal with a cup of beef or chicken bouillon. I

lost all kinds of weight with that. I've since tried those candies and

they're gross. I guess my taste buds have changed over the years.

The other day I saw and advertisement on TV for Fullbar.com . They use

the same principle as the candies, but with their granola/type bar and

a full glass of water. I think I'm going to try it. I now tip the

scales at 303 since my diagnosis and all the meds and I just can't

handle all of this weight anymore.

Hope this helped, . Take care..........Doreen

>

> Hi everyone,

> Hope you all are feeling better then I am. There is a storm on it's

> way and I am my own personal weather person. I guess, I am having

> a little " pity party " since I hurt. I was watching The Biggest

> Looser on NBC and sometimes that show gets to me. I would LOVE to

> be able to excerise that intensely w/o killing myself. So far, I

> have never seen a person with a chronic pain condition on any show

> like that. Yeah, I hear the contestants whine when they hurt, but

> it's nothing like what we go through on a daily basis. I am

> tempted to audition for the show for next season, but I doubt I

> would get the medical clearing for it and I do take opiates for my

> severe abdominal pain, which knowing my luck, be an instant

> disqualification.

> Lately, my weight is increasing. I can't excerise until my wounds

> from my hernia surgery 2 months ago heal. I just don't know what

> else I can do. I am on lyrica and seroquil which cause weight gain,

> which is the only side effect that I ever get. I have jokingly

> told my husband and I wish I had a tape worm or an eating disorder.

> I just don't know what to do anymore...any ideas!?!??

>

>

>

[Guest guest]

Hi

I know what you mean about hurting when the weather comes in, I live

in Eastern Washington and it gets COLD here in the winter, so I have

4 months of pain,Im fortunate that I dont have 12 months of pain.

As far as exercise goes, that has been what has helped my pain the

most. I started walking in April because I got a puppy and she had

energy she needed to burn, so I would walk her at night. We started

out slow, just walking for 20 minutes or so, then, over time, we got

up to walking for 75 minutes a day, sometimes longer. When it

started to get too cold and dark to walk outside anymore I got a

treadmill and now I walk on that once a day and ride on a stationary

bike once a day (my puppy walks on the treadmill while Im riding the

bike : ) )

Some people may think they dont have the time to exercise, but I work

full time (because DH is in school full time) and we have a 5-year-

old but I MAKE SURE I have the time. DH knows its important for me

to get my excerise so he takes over the kiddo while Im out, or in the

spring and summer I go when kiddo goes to bed and DH is studying.

This winter has been easier because I can exercise inside and kiddo

can " help " me.

I have to tell you it was really hard to get out and going at first,

but now I have a hard time missing a day. Im so glad that I started

exercising. I dont weigh myself, but I have gone down 2 pant sizes

since I started in April : ) but the best thing is that I feel great.

One question I have is how much prednisone are you on? Of course you

know that the more your on the harder it is to loose weight. I went

from being on 20mg/day for 2 years down to 3-4mg/day when I found out

I had glaucoma (Im 32).

I really hope you start feeling better and are able to start doing

some sort of exercise routine.

Heidi

>

> Hi everyone,

> Hope you all are feeling better then I am. There is a storm on it's

way

> and I am my own personal weather person. I guess, I am having a

> little " pity party " since I hurt. I was watching The Biggest

Looser on

> NBC and sometimes that show gets to me. I would LOVE to be able to

> excerise that intensely w/o killing myself. So far, I have never

seen

> a person with a chronic pain condition on any show like that.

Yeah, I

> hear the contestants whine when they hurt, but it's nothing like

what

> we go through on a daily basis. I am tempted to audition for the

show

> for next season, but I doubt I would get the medical clearing for

it

> and I do take opiates for my severe abdominal pain, which knowing

my

> luck, be an instant disqualification.

> Lately, my weight is increasing. I can't excerise until my wounds

from

> my hernia surgery 2 months ago heal. I just don't know what else I

can

> do. I am on lyrica and seroquil which cause weight gain, which is

the

> only side effect that I ever get. I have jokingly told my husband

and

> I wish I had a tape worm or an eating disorder. I just don't know

what

> to do anymore...any ideas!?!??

>

>

>

[Guest guest]

Until you are cleared to exercise, your just going to have to count calories and

monitor your intake to the best of your ability. There are tons of calculators

online that can help you determine how much you need to take in, taking into

consideration your height and activity levels. This is how I lost weight after

I gave birth to my daughter. It's a tough time of year to try to lose weight

because of the upcoming holidays, so take it easy on yourself.

Lori

http://home.comcast.net/~queenstitcher/

http://stitchingqueen.multiply.com

[Guest guest]

Everyone,

THank you for the responses. I was doing really well, going to the

gym, watching my diet and then BOOM. Hernia surgery. I had to quit

excerising so I wouldn't run the risk of strangulating it. I had the

repair w/ my usual complications.

I haven't been cleared for excerise, but I did do some walking today

w/ my husband. It felt good, but now that I got home...I know I am

going to feel that. I am just frustrated I guess. Thanks. Have a

HAPPY THANKSGIVING!!

> >

> > As far as exercise goes, that has been what has helped my pain the

> > most. I started walking in April because I got a puppy and she

had

> > energy she needed to burn, so I would walk her at night. We

started

> > out slow, just walking for 20 minutes or so, then, over time, we

got

> > up to walking for 75 minutes a day, sometimes longer. When it

> > started to get too cold and dark to walk outside anymore I got a

> > treadmill and now I walk on that once a day and ride on a

stationary

> > bike once a day (my puppy walks on the treadmill while Im riding

the

> > bike : ) )

>

[Guest guest]

Hi ,

10 years ago I use to tip the scales at 120kg (265 lb). I have since

been down to 74kg until i quit smoking (3rd time is the charm), then

it's yoyo'd a bit. At the moment I'm about 82kg (180lb) & falling

(i've lost 3kg just in the last week from being nauseous).

I find the major culprit, especially in people who are small eaters,

is liquid calories. For me it was Milk ( ironically I'm lactose

intolerate, lol) but for others it may be those cups of tea/coffee

(if you have 10 cups with a teaspoon of sugar thats 50g of sugar) or

perhaps softdrinks.

Please do not be tempted by quick fixes, diets etc. You'll only put

it back on. Long term weight loss is about lifestyle change. If you

can't get the exercise then you need to reduce your calorie intake.

A common method is to record everything you consume for a week or so,

& that's eveything, be it a beverage or chewy. This will give you a

clearer picture.

Also it will be worth your while to discuss this with your doctor

(primary). They can offer advice as well as monitor your progress.

Sharon of OZ

>

> >

> > Hi everyone,

> > Hope you all are feeling better then I am. There is a storm on

it's

> > way and I am my own personal weather person. I guess, I am

having

> > a little " pity party " since I hurt. I was watching The Biggest

> > Looser on NBC and sometimes that show gets to me. I would LOVE

to

> > be able to excerise that intensely w/o killing myself. So far, I

> > have never seen a person with a chronic pain condition on any

show

> > like that. Yeah, I hear the contestants whine when they hurt,

but

> > it's nothing like what we go through on a daily basis. I am

> > tempted to audition for the show for next season, but I doubt I

> > would get the medical clearing for it and I do take opiates for

my

> > severe abdominal pain, which knowing my luck, be an instant

> > disqualification.

> > Lately, my weight is increasing. I can't excerise until my wounds

> > from my hernia surgery 2 months ago heal. I just don't know what

> > else I can do. I am on lyrica and seroquil which cause weight

gain,

> > which is the only side effect that I ever get. I have jokingly

> > told my husband and I wish I had a tape worm or an eating

disorder.

> > I just don't know what to do anymore...any ideas!?!??

> >

> >

> >

>

[Guest guest]

Thanks!

I started out by standing on the sides (with either leg on each side)

and 2 leashes and the emergency stop thing hooked to her and started

out slowly (2mph) now shes going at a good trot (3mph) and I dont

have to hook that emergency stop thing on her anymore, she still has

a leash on her, but thats just so she doesnt get distracted and jump

off (shes a really good dog, but not too smart). It didnt take her

anytime at all to learn to walk on it. It helps that Im riding right

by her though : )

> >

> > As far as exercise goes, that has been what has helped my pain the

> > most. I started walking in April because I got a puppy and she

had

> > energy she needed to burn, so I would walk her at night. We

started

> > out slow, just walking for 20 minutes or so, then, over time, we

got

> > up to walking for 75 minutes a day, sometimes longer. When it

> > started to get too cold and dark to walk outside anymore I got a

> > treadmill and now I walk on that once a day and ride on a

stationary

> > bike once a day (my puppy walks on the treadmill while Im riding

the

> > bike : ) )

>

[Guest guest]

Sharon,

I never smoked. My big culprit is my husband. When we were

seperated, I ate relatively healthy, I hadn't drank soda in over a

year and was slowly cutting the sugar out of my diet. (I have a MAJOR

sweet tooth, it is a full on addication). When he moved back in, he

drinks nothing but soda (he's a writer, he writes and drinks soda,

hardly eats). I started just having a small glass occasionally and

now...I drink it everday. It's cold, so the local farmers market

where I was going every week is closed until spring...so I am back at

the supermarket.

It doesn't help since my hernia surgery 2 months ago. I am still

paking wounds, and I haven't been cleared or any excerise until I am

completely healed. I am currently arroung 230 and I hate my body.

Between bad food choices, lack of excerise and meds...I have stacked

on the weight. I just get soo frustrated w/ it and I tend to eat

more. I am hoping that I will be cleared for light excerise in

January and I start going back to the gym. The holidays are bad to

start any sort of the diet. It is my New Years Resolution...my first.

Ever since the sepsis 2 years ago, I have had 6 emergancy abdoiminal

surgeries and it has left my midsection extremely scarred (inside and

out). I don't know why, but the sepsis caused my RA and fibromyalgia

to jump into hyperdrive.

I finally found a rheumy who is willing to treat my RA more

aggresively then my old one. BUT, I can't start the treatment he

wants me to try until I am healed from my last surgery. It's been 2

months and I am still paking a small wound. I went in for a CT last

week to see why this wound refuses to close. I feel like I can't

reclaim my life back until I recover from surgery. Once that wound is

closed, I can get back on remicade and excerise again. My body

offically hates me.

My therapist is trying to help me see my body as part of me, instead

of something that I hate. We'll see what happens. Thanks.

> > >

> > > Hi everyone,

> > > Hope you all are feeling better then I am. There is a storm on

> it's

> > > way and I am my own personal weather person. I guess, I am

> having

> > > a little " pity party " since I hurt. I was watching The Biggest

> > > Looser on NBC and sometimes that show gets to me. I would LOVE

> to

> > > be able to excerise that intensely w/o killing myself. So far,

I

> > > have never seen a person with a chronic pain condition on any

> show

> > > like that. Yeah, I hear the contestants whine when they hurt,

> but

> > > it's nothing like what we go through on a daily basis. I am

> > > tempted to audition for the show for next season, but I doubt I

> > > would get the medical clearing for it and I do take opiates for

> my

> > > severe abdominal pain, which knowing my luck, be an instant

> > > disqualification.

> > > Lately, my weight is increasing. I can't excerise until my

wounds

> > > from my hernia surgery 2 months ago heal. I just don't know

what

> > > else I can do. I am on lyrica and seroquil which cause weight

> gain,

> > > which is the only side effect that I ever get. I have jokingly

> > > told my husband and I wish I had a tape worm or an eating

> disorder.

> > > I just don't know what to do anymore...any ideas!?!??

> > >

> > >

> > >

> >

>

[Guest guest]

I think she does enjoy it, her tail and head are always up when shes

on it.

We just joke about her being dumb, shes a little over 1 now but still

chews EVERYTHING. We say that if we stood still in the yard for 30

seconds she would chew on us. Shes half basset/half black lab (aka

bassador). I guess the lab in her is what makes her a chewer. Shes

an absolutely adorable dog, and is wonderful and patient with our

5-year-old.

I should try and post a picture, because with my RA she has been a

great walking partner for me because I can control her really well.

Shes " smallish " like a basset, but not as lazy as one.

>

> > Thanks!

> > I started out by standing on the sides (with either leg on each side)

> > and 2 leashes and the emergency stop thing hooked to her and started

> > out slowly (2mph) now shes going at a good trot (3mph) and I dont

> > have to hook that emergency stop thing on her anymore, she still has

> > a leash on her, but thats just so she doesnt get distracted and jump

> > off (shes a really good dog, but not too smart). It didnt take her

> > anytime at all to learn to walk on it. It helps that Im riding right

> > by her though : )

>

[Guest guest]

How fortunate to be able to walk. My RA attacks my lower extremities,

especially the feet. I find swimming doesn't work because the water is

cold and bunches up my muscles making things worse. What do you all

recommend? I am lucky to still be able to work, so I guess I could try

a gym and ride a stationary bike....sure is hard to make myself get up

and go in the cold & dark before work. I think it is the fatigue ore

than the cold and dark that makes me back off from exercise. Anyway, I

find this post inspirational...I know I need to do something after

gaining 30 pounds and full blown osteoporosis on prednisone. Also, the

mtx is miserable but my feet hurt less, I used to not even put a sheet

on them at night, but now I think I could press the pedals on an

exercise bike. Any other suggestions out there?

>

> I wear a pedometer which counts how many steps when I walk. Started

out

> doing 2000 a day but now do at least 10,000 most days. Also keep a

log

> on my diet program for all the food I eat and any type exercise.

Doing

> laundry and housework counts as exercise, too.

> hugs,

> Debbie L

>

[Guest guest]

Thank you for your nice compliments.

When our area is very cold my leg muscles act up when we walk outside

also since I have fibromyalgia. I get rather tired during the day,

too. Our local gym has stationary or recumbant bikes but I don't use

thme much. Best of luck to you.

hugs,

Debbie L

>

> How fortunate to be able to walk. My RA attacks my lower

extremities,

> especially the feet. I find swimming doesn't work because the

water is

> cold and bunches up my muscles making things worse. What do you

all

> recommend? I am lucky to still be able to work, so I guess I could

try

> a gym and ride a stationary bike....sure is hard to make myself get

up

> and go in the cold & dark before work. I think it is the fatigue

ore

> than the cold and dark that makes me back off from exercise.

Anyway, I

> find this post inspirational> >

>

[Guest guest]

Most YMCA's and some other health facilities (like Universities and

Colleges) have therapy pools or heated pools. These do wonders for RA.

If you can find an Arthritis Foundation water class, even better!

You might also try weight belts...the kind of weights that you can

strap around your ankle and/or wrists. You can do some weight bearing

exercises without having to use joints too much. I think you can find

these at Wal-Mart and such.

Good luck!

Kim

[Guest guest]

and group;

My daughter had myrsa after her c-section, its a staff infection too.

Ths doctor had to pack her wound to. She had to see a wound

specialist. A nurse came out once a week to pack it. It's healed good

now.

We all seem to have all our own divices. I drink diet cola. Not a

lot though. mostly I eat ice. I am not allowed over 4 litres of

fluid a day because of congestibe heart failure.

I cant exercise yet either. I want to get into water exercising. I

need to get busy and call the YWCA. I have piled on 150 extra pounds

in the last 3 years. It's like it happen all at once. I finally got

a full length mirrow and went into shock at my size. It's like I was

in denial till I saw myself ug (rolling eyes).

You're small compared to me. I am 320 lbs. I feel so ashamed. I got

to make myself lose weight. Without exercise you can eat harldy

nothing and maintain your weight.

Well Lots of luck on your weight loss. I will keep you in my

prayers. I put everyone in my prayer note book and pray over

it every night. Hope you had a nice Thanks giving.

gentle hugs

Clora

*********************************************************

> Sharon,

> I never smoked. My big culprit is my husband. When we were

> seperated, I ate relatively healthy, I hadn't drank soda in over a

> year and was slowly cutting the sugar out of my diet. (I have a

MAJOR

> sweet tooth, it is a full on addication). When he moved back in,

he

> drinks nothing but soda (he's a writer, he writes and drinks soda,

> hardly eats). I started just having a small glass occasionally and

> now...I drink it everday. It's cold, so the local farmers market

> where I was going every week is closed until spring...so I am back

at

> the supermarket.

> It doesn't help since my hernia surgery 2 months ago. I am still

> paking wounds, and I haven't been cleared or any excerise until I

am

> completely healed. I am currently arroung 230 and I hate my body.

> Between bad food choices, lack of excerise and meds...I have

stacked

> on the weight. I just get soo frustrated w/ it and I tend to eat

> more. I am hoping that I will be cleared for light excerise in

> January and I start going back to the gym. The holidays are bad to

> start any sort of the diet. It is my New Years Resolution...my

first.

> Ever since the sepsis 2 years ago, I have had 6 emergancy

abdoiminal

> surgeries and it has left my midsection extremely scarred (inside

and

> out). I don't know why, but the sepsis caused my RA and

fibromyalgia

> to jump into hyperdrive.

> I finally found a rheumy who is willing to treat my RA more

> aggresively then my old one. BUT, I can't start the treatment he

> wants me to try until I am healed from my last surgery. It's been 2

> months and I am still paking a small wound. I went in for a CT last

> week to see why this wound refuses to close. I feel like I can't

> reclaim my life back until I recover from surgery. Once that wound

is

> closed, I can get back on remicade and excerise again. My body

> offically hates me.

> My therapist is trying to help me see my body as part of me,

instead

> of something that I hate. We'll see what happens. Thanks.

>

>

>

>

[Guest guest]

Hi Clora and :

I have read both of your posts, and I know exactly how bad you feel

about yourself and your extra weight. I lost 100 lbs. over 30 years

ago, and I kept it off all that time. When I went on the Prednisone

over 5 years ago, I put on 30 lbs., and can't budge it. I just hate the

extra weight.

I have tried many times to get off the Prednisone, but can't do it. I

feel so much better when on it, so I had to decide if I wanted to be

pain free, or thin. Guess what I chose? To be pain free!!

I liked the way I felt and looked when I lost all that weight. It took

me 3 years to loose it. I guess we all have to come to terms with

things in our life. I hate the way I look, but can't do anything about

it. So I do know exactly how you both feel.

I can tell by your letters that you are both lovely, caring women. Your

weight gain doesn't change what you are, only how you see yourselves.

Wishing you both pain free days. Take care of yourselves.

Hugs,

Barbara

>

> and group;

>

>

> My daughter had myrsa after her c-section, its a staff infection too.

> Ths doctor had to pack her wound to. She had to see a wound

> specialist. A nurse came out once a week to pack it. It's healed good

> now.

>

> We all seem to have all our own divices. I drink diet cola. Not a

> lot though. mostly I eat ice. I am not allowed over 4 litres of

> fluid a day because of congestibe heart failure.

>

> I cant exercise yet either. I want to get into water exercising. I

> need to get busy and call the YWCA. I have piled on 150 extra pounds

> in the last 3 years. It's like it happen all at once. I finally got

> a full length mirrow and went into shock at my size. It's like I was

> in denial till I saw myself ug (rolling eyes).

>

> You're small compared to me. I am 320 lbs. I feel so ashamed. I got

> to make myself lose weight. Without exercise you can eat harldy

> nothing and maintain your weight.

>

> Well Lots of luck on your weight loss. I will keep you in my

> prayers. I put everyone in my prayer note book and pray over

> it every night. Hope you had a nice Thanks giving.

>

> gentle hugs

> Clora

>

> *********************************************************

>

>

> > Sharon,

> > I never smoked. My big culprit is my husband. When we were

> > seperated, I ate relatively healthy, I hadn't drank soda in over a

> > year and was slowly cutting the sugar out of my diet. (I have a

> MAJOR

> > sweet tooth, it is a full on addication). When he moved back in,

> he

> > drinks nothing but soda (he's a writer, he writes and drinks soda,

> > hardly eats). I started just having a small glass occasionally and

> > now...I drink it everday. It's cold, so the local farmers market

> > where I was going every week is closed until spring...so I am back

> at

> > the supermarket.

> > It doesn't help since my hernia surgery 2 months ago. I am still

> > paking wounds, and I haven't been cleared or any excerise until I

> am

> > completely healed. I am currently arroung 230 and I hate my body.

> > Between bad food choices, lack of excerise and meds...I have

> stacked

> > on the weight. I just get soo frustrated w/ it and I tend to eat

> > more. I am hoping that I will be cleared for light excerise in

> > January and I start going back to the gym. The holidays are bad to

> > start any sort of the diet. It is my New Years Resolution...my

> first.

> > Ever since the sepsis 2 years ago, I have had 6 emergancy

> abdoiminal

> > surgeries and it has left my midsection extremely scarred (inside

> and

> > out). I don't know why, but the sepsis caused my RA and

> fibromyalgia

> > to jump into hyperdrive.

> > I finally found a rheumy who is willing to treat my RA more

> > aggresively then my old one. BUT, I can't start the treatment he

> > wants me to try until I am healed from my last surgery. It's been 2

> > months and I am still paking a small wound. I went in for a CT last

> > week to see why this wound refuses to close. I feel like I can't

> > reclaim my life back until I recover from surgery. Once that wound

> is

> > closed, I can get back on remicade and excerise again. My body

> > offically hates me.

> > My therapist is trying to help me see my body as part of me,

> instead

> > of something that I hate. We'll see what happens. Thanks.

> >

> >

> >

> >

>