New to group- feeling down

October 17, 2009

Hello everyone!

My name is Sherri and I have had RA since I was 26. I am now 42.

I have had an chronic ear infection for a few years and now I finally

have a new dr who wants to operate (already had both ears operated on

years ago), but I just lost my insurance this week. (made just over the

allowable amount for Il Kid and family care Premium) My Ra has been

getting progressively worse and I cannot take any of the immune

suppressant meds because of the ear. I currently take Alieve, Doxycyline

and Lyrica. (Prednisone to get over the humps) [(:|] I am a firm

believer of turning it over to God. Right now I am just feeling like

things are hopeless. I have joint damage, sicca syndrome-dry eyes and

mouth (had plugs put in my eyes), asthma,severe allergies, mitrovalve

prolapse (chest pain is worse with flares). I am unable to do like I use

to. This last year it has been going down hill fast. I do work as an

office Coordinator for a tax office. Off season I teach classes and

collect partial unemployment. I am finding it more and more difficult to

do the job. I'm having a lot of problems with household chores. I love

to garden and because I was unable to harvest and put it away this year

my husband has suggested that I give it up. I am an over achiever and a

perfectionist. I am a recovering alcoholic and drug addict with over 16

years in the 12 step programs so Narcotic pain relievers are out of the

question.I am just trying to cope with my limitations, insurance being

cut off and flu season.I am tossing around cutting back at work so I can

be eligible for Il medicade again. Actually I don't really have a

choice in the matter. We are checking into ins. plans and OHHHH the

Pre-existing clauses are discouraging. I have also been thinking it

might be time to sign us for SSDI. I heard that it is hard to get. Does

anyone have any tips to expediate the process?

Hey on a higher note - I have read over 50 books this summer! Does

anyone refer to their disease like it is a person? It bring a little

humur into all the turmoil! I'm sure you will all agree that when arthur

visits , he is one Guest who is encouraged to leave! Anyway just getting

my frustrations off my chest has helped me already. Any thoughts, Tips

or good wishes will be 100% welcome!!

Sherri

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