Guest guest Posted November 29, 2008 Report Share Posted November 29, 2008 a friend who exhausted all options with Crohn's disease was sent to the top Chron's guru, traveled far and got several pointers, but it took near death a few times before his managed health care referred him to the top guru Is there such a person with RA? Who is considered the expert in this field? Or the top location for treating RA? I am frustrated with my rheumy who keeps saying " I don't know " . I appreciate his honesty but 6 months of no answers is worrying me. I was mis-diagnosed for 3 years before that, and get worried when I hear aggressive immediate treatment is the best thing for RA....I'm already 3 years behind Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 30, 2008 Report Share Posted November 30, 2008 Hi & group, I too become very frustrated by the same thing, however I like to try & step in other peoples shoes (eg.the Rheumies) & try & see their perspective. What I see is; These are doctors treating a disease that they don't know what causes it, they can't accurately predict it's onset or progress, that the symptoms of vary day to day & they are treating it with drugs that they don't really know how they work. Oftentimes when your read an article on RA there will be at least a couple of time where the phase " cause unknown " will come up. > > > a friend who exhausted all options with Crohn's disease was sent to the top Chron's guru, traveled far and got several pointers, but it took near death a few times before his managed health care referred him to the top guru > > Is there such a person with RA? > Who is considered the expert in this field? Or the top location for treating RA? Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 1, 2008 Report Share Posted December 1, 2008 , If your diagnosis is in question, s Hopkins in Baltimore, MD; Mayo Clinic in Rochester, MN; Hospital for Special Surgery in NY, NY; and the Cleveland Clinic in Cleveland, OH are good bets. Not an MD On Sat, Nov 29, 2008 at 1:33 PM, OCC <occ_susan@...> wrote: > > a friend who exhausted all options with Crohn's disease was sent to the top > Chron's guru, traveled far and got several pointers, but it took near death > a few times before his managed health care referred him to the top guru > > Is there such a person with RA? > Who is considered the expert in this field? Or the top location for > treating RA? > > I am frustrated with my rheumy who keeps saying " I don't know " . I > appreciate his honesty but 6 months of no answers is worrying me. I was > mis-diagnosed for 3 years before that, and get worried when I hear > aggressive immediate treatment is the best thing for RA....I'm already 3 > years behind Quote Link to comment Share on other sites More sharing options...
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