Re: sulfasalazine and itching-

[Guest guest]

I don't know how you did it. I really wanted it to work too but my doc

said to stop it. He really wasn't sure it would be a strong enough

drug for me anyway. I think I would have gone nuts if I itched for 2

years. I guess we will go through a lot when we get desperate though.

Thanks,

--- In , CATHERINE RANIOLO <c.raniolo@...>

wrote:

>

> I tried to stay on sulfasalazine for 2 years. I was allergic to

plaquenal and I wanted the sulfa to work. We reduced dosage etc....

> I looked like I had measles I was scratching myself so much.  I

surrendered and stopped it.  Good luck.

>

> Raniolo

>

>

[Guest guest]

I am not allowed any of the biologics. It was a last chance for me.

I have liver disease and can not take any drug that affects liver function.

I and all my siblings  contracted hepatitis in utero. My mother had it in WW2

Europe.

 

I wish you well. I have chosen longevity and I will deal with the limitations RA

causes.

Raniolo

From: ktandtm <ktandtm@...>

Subject: [ ] Re: sulfasalazine and itching-

Date: Sunday, November 9, 2008, 10:33 AM

I don't know how you did it. I really wanted it to work too but my doc

said to stop it. He really wasn't sure it would be a strong enough

drug for me anyway. I think I would have gone nuts if I itched for 2

years. I guess we will go through a lot when we get desperate though.

Thanks,

--- In @gro ups.com, CATHERINE RANIOLO <c.raniolo@. ..>

wrote:

>

> I tried to stay on sulfasalazine for 2 years. I was allergic to

plaquenal and I wanted the sulfa to work. We reduced dosage etc....

> I looked like I had measles I was scratching myself so much.  I

surrendered and stopped it.  Good luck.

>

> Raniolo

>

>

[Guest guest]

and group

I am a little confused why cathering can't take bioligics. Will it

affect our livers. I know I get a blood text from my rheumy every 3

months and I think it is to check my liver.

Does biologics hurt our livers?

gentle hugs

CLora

**********************************************************

>

> I am not allowed any of the biologics. It was a last chance for me.

> I have liver disease and can not take any drug that affects liver

function.

> I and all my siblings  contracted hepatitis in utero. My mother had

it in WW2 Europe.

>  

> I wish you well. I have chosen longevity and I will deal with the

limitations RA causes.

>

> Raniolo

>

[Guest guest]

My understanding is all the drugs affect immunity. If my immunity gets lowered

the hepatitis can get out of control. They feel that allthough my bllod enzymes

 are extremely high I function well.

I am sure your Doctor carefully monitors your liver to be sure you do not

develop liver disease. I was born with liver disease.

I am not allowed tylenol and other such products either...

Trust your Doctor.... God Bless

Raniolo

From: CLORA <clora4jesus@...>

Subject: [ ] Re: sulfasalazine and itching-

Date: Sunday, November 9, 2008, 10:56 AM

and group

I am a little confused why cathering can't take bioligics. Will it

affect our livers. I know I get a blood text from my rheumy every 3

months and I think it is to check my liver.

Does biologics hurt our livers?

gentle hugs

CLora

************ ********* ********* ********* ********* ********* *

>

> I am not allowed any of the biologics. It was a last chance for me.

> I have liver disease and can not take any drug that affects liver

function.

> I and all my siblings  contracted hepatitis in utero. My mother had

it in WW2 Europe.

>  

> I wish you well. I have chosen longevity and I will deal with the

limitations RA causes.

>

> Raniolo

>

[Guest guest]

,

Funny you mention this. I am not allowed biologics I am told because I

not only do I have RA but Lupus too. (my actual diagnosis is MCTD) My

doc said I can't take them because it could cause my lupus to get

worse. I too have chose longevity up until this point but now I seem

to be having problems with inflammation in my head (bad pressure and

headaches) and he wants to get that under control before it turns into

something bad. If it wasn't for that I probably wouldn't mess with a

lot of this stuff since I have such side effects. Guess we gotta do

what we gotta do.

--- In , CATHERINE RANIOLO <c.raniolo@...>

wrote:

>

> I am not allowed any of the biologics. It was a last chance for me.

> I have liver disease and can not take any drug that affects liver

function.

> I and all my siblings  contracted hepatitis in utero. My mother had

it in WW2 Europe.

>  

> I wish you well. I have chosen longevity and I will deal with the

limitations RA causes.

>

> Raniolo

[Guest guest]

for people who can't tolerate the usual DMARDs or biologics or don't

like the side effects, the antibiotic protocol for rheumatic disease may

be an option. see:

http://www.roadback.org/

http://rheumatic.org/

monique

[Guest guest]

Cath and group

I am so sorry what are you taking for your pain. Omg I hope they give

you something for pain. When my blood levels wasnt right my rheumy

wouldnt give me my meds. I had to go to my primary doctor. I didnt

even know I had an infection.

I was freaked out when she said that she couldnt give me my meds. I

got my eyes checked and the eye opth=something. Cause with lyrcia you

can go blind. My eye doc didnt send her the results like I asked. I

had to sign a sheet so my rheumy could send for it.

It's a mess with us isnt it. I really hope you can take something. I

still have pain with all the stuff I get. I got to lie down all the

time. I can't even walk to the mail box and I get all kinds of

meds. The humira injections works good. I had to stop it for a

couple weeks and the pain was so bad. God bless you hon and take

care. Pleas let me know what they are doing for you. God bless and

take care. I cant take methotrexate it broke me out in alcaria hives.

It felt worse than poison ivy.

gentle hugs

clora

*************************************************************

>

> My understanding is all the drugs affect immunity. If my immunity

gets lowered the hepatitis can get out of control. They feel that

allthough my bllod enzymes  are extremely high I function well.

> I am sure your Doctor carefully monitors your liver to be sure you

do not develop liver disease. I was born with liver disease.

> I am not allowed tylenol and other such products either...

> Trust your Doctor.... God Bless

> Raniolo

>

>

>

> From: CLORA <clora4jesus@...>

> Subject: [ ] Re: sulfasalazine and itching-

>

> Date: Sunday, November 9, 2008, 10:56 AM

>

>

>

>

>

>

> and group

>

> I am a little confused why cathering can't take bioligics. Will it

> affect our livers. I know I get a blood text from my rheumy every 3

> months and I think it is to check my liver.

>

> Does biologics hurt our livers?

>

> gentle hugs

> CLora

>

> ************ ********* ********* ********* ********* ********* *

> >

> > I am not allowed any of the biologics. It was a last chance for

me.

> > I have liver disease and can not take any drug that affects liver

> function.

> > I and all my siblings  contracted hepatitis in utero. My mother

had

> it in WW2 Europe.

> >  

> > I wish you well. I have chosen longevity and I will deal with the

> limitations RA causes.

> >

> > Raniolo

> >

>

>

>

>

>

>

>

>

>

>

>

>

>

>

>

>

[Guest guest]

ok thanks! My rheumy did comment about liver problems. She said she

tested me.

Clora

****************************************************************

>

> Clora,

>

> Biologics can affect the liver. You can ask your rheumatologist about

> how you are being monitored.

>

>

>

> Not an MD

>

>