Guest guest Posted July 21, 2000 Report Share Posted July 21, 2000 Hi Bill Thought I would let you know about the good ole Aussie system. We are having Dad assessed for respite day care next Tuesday. He can go five days a week. Activities galore, ( things like bingo, carpet bowls etc) nurses in attendance, physio if needed, exercises, morning tea, lunch and transport inclusive. Attends 9.30 - 2.30 each day. Cost $5.00 per day. They can once a week stay overnight and once a month they can stay two full days and nights. Extra $5.00 for day and night. B*****y fantastic!! He will have all the stimulation and attention he needs, still come home after, and we can get things done in this time without worrying about him. Love Anne The best and most beautiful things in the world cannot be seen nor touched but are felt in the heart. Helen Keller > I know we still had some help after the nursing home and I took her to the doctor > a couple of times. I still had to get the firemen to help me get her in and out > at that time (before stairlift). Maybe they just did not know. But nurse and > all ended when they figured she was not progressing with PT and ST. > > I know waht you mean about Catch 22. Charlotte would be far better off with the > weekly maintainence PT and ST like the Aussies and Great Britian have. But > instead we have to let her go downhill, then the doctor orders more and they come > 2-3 times a week for a month or so - then we start over again. > > The most stupid thing was that Medicare keeps paying rental on the pole that > holds the PEG pump. I had the choice of owning everything or keeping everything > on maintenance. Since I want them to fix the pump if it goes bad I wanted to > keep it on maintenance and own the pole - nope - Catch 22 so Medicare and BC/BS > keep paying monthly for the pole (over $20 per month). Doctors and patients > should write Medicare rules NOT stupid politicians. We could tell them how to > save big bucks. > > Take care, Bill and Charlotte > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 21, 2000 Report Share Posted July 21, 2000 Anne, Can I send Charlotte and $30 so I can go to the Support Group Meeting in Cleveland? Oops! that's 3 overnights in one week ) Here that will cost me about $600 or more, for Fri, Sat and Sun. (if they have an opening then). Two years ago, we could take Charlotte 20 miles (32 km) to a daycare center for $75 per day BUT, she could not lay down and they would not give her the tube feeding AND she could not stay over night at all. Take care, Bill and Charlotte Pledger wrote: > Hi Bill > Thought I would let you know about the good ole Aussie system. We are > having Dad assessed for respite day care next Tuesday. He can go five days > a week. Activities galore, ( things like bingo, carpet bowls etc) nurses in > attendance, physio if needed, exercises, morning tea, lunch and transport > inclusive. Attends 9.30 - 2.30 each day. Cost $5.00 per day. They can > once a week stay overnight and once a month they can stay two full days and > nights. Extra $5.00 for day and night. B*****y fantastic!! He will have > all the stimulation and attention he needs, still come home after, and we > can get things done in this time without worrying about him. > Love Anne > The best and most beautiful things in the world cannot be seen nor touched > but are felt in the heart. Helen Keller > > > I know we still had some help after the nursing home and I took her to the > doctor > > a couple of times. I still had to get the firemen to help me get her in > and out > > at that time (before stairlift). Maybe they just did not know. But nurse > and > > all ended when they figured she was not progressing with PT and ST. > > > > I know waht you mean about Catch 22. Charlotte would be far better off > with the > > weekly maintainence PT and ST like the Aussies and Great Britian have. > But > > instead we have to let her go downhill, then the doctor orders more and > they come > > 2-3 times a week for a month or so - then we start over again. > > > > The most stupid thing was that Medicare keeps paying rental on the pole > that > > holds the PEG pump. I had the choice of owning everything or keeping > everything > > on maintenance. Since I want them to fix the pump if it goes bad I wanted > to > > keep it on maintenance and own the pole - nope - Catch 22 so Medicare and > BC/BS > > keep paying monthly for the pole (over $20 per month). Doctors and > patients > > should write Medicare rules NOT stupid politicians. We could tell them > how to > > save big bucks. > > > > Take care, Bill and Charlotte > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 21, 2000 Report Share Posted July 21, 2000 Hi Anne, Glad you're back. Was just worrying about you yesterday and hoping your arms weren't giving you any more problems. What a great thing for your Dad to be able to take part in and relief for you too. Good going my dear, Love Re: Bill > Hi Bill > Thought I would let you know about the good ole Aussie system. We are > having Dad assessed for respite day care next Tuesday. He can go five days > a week. Activities galore, ( things like bingo, carpet bowls etc) nurses in > attendance, physio if needed, exercises, morning tea, lunch and transport > inclusive. Attends 9.30 - 2.30 each day. Cost $5.00 per day. They can > once a week stay overnight and once a month they can stay two full days and > nights. Extra $5.00 for day and night. B*****y fantastic!! He will have > all the stimulation and attention he needs, still come home after, and we > can get things done in this time without worrying about him. > Love Anne > The best and most beautiful things in the world cannot be seen nor touched > but are felt in the heart. Helen Keller > > > I know we still had some help after the nursing home and I took her to the > doctor > > a couple of times. I still had to get the firemen to help me get her in > and out > > at that time (before stairlift). Maybe they just did not know. But nurse > and > > all ended when they figured she was not progressing with PT and ST. > > > > I know waht you mean about Catch 22. Charlotte would be far better off > with the > > weekly maintainence PT and ST like the Aussies and Great Britian have. > But > > instead we have to let her go downhill, then the doctor orders more and > they come > > 2-3 times a week for a month or so - then we start over again. > > > > The most stupid thing was that Medicare keeps paying rental on the pole > that > > holds the PEG pump. I had the choice of owning everything or keeping > everything > > on maintenance. Since I want them to fix the pump if it goes bad I wanted > to > > keep it on maintenance and own the pole - nope - Catch 22 so Medicare and > BC/BS > > keep paying monthly for the pole (over $20 per month). Doctors and > patients > > should write Medicare rules NOT stupid politicians. We could tell them > how to > > save big bucks. > > > > Take care, Bill and Charlotte > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 21, 2000 Report Share Posted July 21, 2000 Oh Bill, how I wish you could. Charlotte would so welcome. Haven't you got a relative or friend that could stay with Charlotte so that you can go to the meeting? $75 per day!!!!!!! Golly, gosh! I thought we would be a little out of pocket here, and was blown away by the small cost. Would have done it before, if I had known it was so reasonable. Dad has been bored for ages with us so busy. Also the use it or lose it theory. He won't do anything alone. His degree of dementia has made him give up trying. Also he is starting to get frail as he is not exercising his muscles. At the Centre he will have exercises for the muscles (even though mild to medium dementia, physically fit at age 95) He is now having falls, think it is because his leg muscles are starting to atrophy. The exercises and activities that involve movement might well help this. At least we are hoping. When the interviewer comes on Tuesday she said that she explains it to the person that it is a Community Centre for the elderly where they go to have fun and meet others to make friends. She said that the word respite isn't mentioned, as this can be off putting for the patient. She said in the past patients have accused families of trying to get rid of them and this has made things unpleasant within the family. So, Community Centre for fun and games it is. They do have beds there too for those they consider are genuinely in need of a rest. Mostly not required as she said that they don't want to miss the activities. Some before attending the Centre had been sleeping most of the day. Obviously boredom (very tiring). She also said they were adaptable on more nights spent there, if carers needed more of a break. All sounds too good to be true, but I know the Centre is good having a friend that worked there when I was doing Welfare. I just never asked the cost though she told me all about it. She was then one of the Activity Officers. Forgot to mention that one day a week they are taken out on outings if they want to go. I think it is going to work well for the three of us, and in our own ways all will benefit. Love Anne. The best and most beautiful things in the world cannot be seen nor touched but are felt in the heart. Helen Keller Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 22, 2000 Report Share Posted July 22, 2000 Hi Bill TRY the garbage dump!!! ) Probably free there!!! You get rain as well as icicles?? Love to both Anne The best and most beautiful things in the world cannot be seen nor touched but are felt in the heart. Helen Keller > Sally, > > I don't believe what I just read - you have a snow board made from a slab of 2 > inch thick Teflon????? I did not know you had that much money - the cheapest I > could find a piece of Teflon 2 inches thick - 12 inches wide and 36 inches long > this morning is $1376.38 and that is just a slab. Must be teflon coated or telon > lined. The same size in 1/16 th inch thick virgin teflon would be about $52 and > mechanical grade teflon is about $26. > > Yes, staying on it would be almost impossible especially if it was wet too. When > I ran our shop, we used 1/32 inch (0.8 mm) teflon to line things to make them > slippery. You can buy a " gluable " grade (even more expensive) which has been > etched with sodium and will adhere to glues. Something like that on a board would > possibly work. I have seen transfer boards as low as $30 which would hold a 300 > pound person. P.S - I've never seen a snowboard that cheap which would safety > hold a 200 pound man and span the distance in the picture I showed you of our > transfer board. > > Take care, Bill and Charlotte Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 22, 2000 Report Share Posted August 22, 2000 The best and most beautiful things in the world cannot be seen nor touched but are felt in the heart. Helen Keller Re: brittle > > > > > Hi , > > > > > > I've never heard brittle bones mentioned as a symptom of MSA, but it's a > > > symptom of normal aging. I would think though that in general, if you > > > are still mobile and get enough calcium your bones stay strong, if you > > > don't do any weight bearing exercises your bones weaken over time, some > > > sooner than others. Another case of use it or lose it. > > > > > > Take care, > > > Pam > > > > > > > > > Sabo wrote: > > > > > > > > I am sorry that Warren was injured. Can you say why bones seem to > > break > > > > so easily with this disorder? I am a new caregiver. If my ex fell right > > now > > > > he probably wouldn't break a hip. As the dyndrome progresses do the > > bones > > > > become more brittle? > > > > S > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 30, 2000 Report Share Posted August 30, 2000 She does. However she has no speech. She can't even muscle up a whisper. She uses a computer to communicate with us. That is begin to get harder for her. Her hands have now closed in a fist and she can't move her arms. Takes about 10min. for a three letter word. Mostly we play what my husband has called " wheel of words " . She will try and blink if we got the jist of what she is saying. jennifer Werre wrote: > Actually, > > The tubes (after the first one), have all come out by themselves. The first one got > caught in the wheelchair and pulled out when she stood up. The others (about every 3-4 > months) the balloon inside breaks and the tube pops out. Once I was able to put it back > until we got to the doctor, but usually it comes out in the shower. No one has to touch > it once the ballon goes. > > They are not hard to care for, you wash the area once a day and put on a new dressing. > > Has your mom had speech therapy, that may help a lot with the swallowing problem. It > helped Charlotte. > > Take care, Bill and Charlotte > > And Steve Cameron wrote: > > > Bill, > > > > I agree with you. The tube allows my mother to get the nutrition she was lacking. > > She only eats the odd bowl of ice cream, or a milkshake. She has had it replaced 4 > > times since it has been in (2 yrs.). Mostly due to the nurses accidentally pulling > > it out. > > > > I noticed yesterday, during a visit with her that she, every so often has a mouthful > > of salvia. She says she just can't swallow it. So I mentioned it to the nurse and > > she suggested that she stop having anything by mouth. Mother was not to impressed > > and demanded that I feed her. She has always been stubborn. > > > > I am glad she chose that way to go. She had once thought of refusing it. But I > > thought that starving to death would be worse. > > > > > > > > Werre wrote: > > > > > Sorry, > > > > > > A PEG is a short version of a horrible name I can't remember, but it is a > > > feeding tube which goes directly into the stomach about 2 inches to the left of > > > the belly button. You can open it and pour in whatever the patient needs. > > > Sounds a lot worse than it is. It makes life easy as Charlotte does not have to > > > swallow liquids. Lets her reserve her energy for eating. > > > > > > She has had one since about mid August 1998. > > > > > > Take care, Bill and Charlotte > > > > > > ------------------------------------------------- > > > Ritchie/Clifton White wrote: > > > > > > > Bill, > > > > What is a PEG??? > > > > > > > > Re: DNR Orders > > > > > > > > > Mike, > > > > > > > > > > Several years ago, both Charlotte and I did the whole bit, funeral > > > > arrangements, wills, powers of attorney, medical powers of attorney, talks > > > > with the doctors involved and bought a cemetery plot. The doctors now > > > > discuss any measures they want to take with us. They did suggest a PEG and > > > > after discussing it we agreed to that - glad we did. > > > > > > > > > > Take care, Bill and Charlotte > > > > > ------------------------------------------------------------------- > > > > > > > > > > Mike McEwen wrote: > > > > > > > > > > > Maybe I can put in my 2 cents worth regarding DNR orders. My wife is an > > > > RN so has to deal with DNR orders all the time. DNR in fact does stand for > > > > " DO NOT RESESITATE " That means the nurse and/or doctor cannot by law > > > > perform any " HERIOC MEASURES " . It is not enough to have a DNR order in > > > > place, the staff has to know about it. Again if the're not positive the > > > > staff has to perform " heroic measures " . Please discuss this with your > > > > primary care physican, and make sure your feelings are well known. It can > > > > save your family a very hard decision. > > > > > > My father passed away in February with cancer, and one of the final > > > > gifts he gave my mother was placing a DNR order on himself - it saved her > > > > making a tough decision. > > > > > > I know it's a delicate subject. > > > > > > > > > > > > Mike > > > > > > in London, Ont. > > > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 1, 2000 Report Share Posted September 1, 2000 Bill: Fred is trying the sinemet cr again today. He seem to be doing better on that then the sinmet 50-200 . What does the comtan do? I see your picking on Anne, Only thing she'll get you back. Take care Vera Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 2, 2000 Report Share Posted September 2, 2000 Hi Bill Well, well done. My first lesson in American!!!! No wonder I get so confused!) So now I have more to study!! You so like to see me work hard don't you! OK so ripper, bonza and bewdy, But I am NOT giving high fives or jumping up and down. Still cant have it all can you!! ) Getting tired now, but hang out for Monday!!!!!!! Gud day to both. Love from Anne from Anne The best and most beautiful things in the world cannot be seen nor touched but are felt in the heart. Helen Keller > Anne, > > You asked for it, here you are: > Ave a ball, mate! > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 2, 2000 Report Share Posted September 2, 2000 Hi Bill Well, well done. My first lesson in American!!!! No wonder I get so confused!) So now I have more to study!! You so like to see me work hard don't you! OK so ripper, bonza and bewdy, But I am NOT giving high fives or jumping up and down. Still cant have it all can you!! ) Getting tired now, but hang out for Monday!!!!!!! Gud day to both. Love from Anne from Anne The best and most beautiful things in the world cannot be seen nor touched but are felt in the heart. Helen Keller > Anne, > > You asked for it, here you are: > Ave a ball, mate! > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 2, 2000 Report Share Posted September 2, 2000 Vera, Comtan helps the Sinemet stay in the system longer. I know Anne will get me back, we've been doing this for about a year and a half now. Fordy ('s husband) used to get in on it too. Another Aussie too - Louise - I think she is back on now, she was off the list for awhile. Even though they are upside down and backwards, these Aussies have a great sense of humour. Got to give her a fair go at getting back ) Take care, Bill and Charlotte FVJAMES@... wrote: > Bill: Fred is trying the sinemet cr again today. He seem to be doing > better on that then the sinmet 50-200 . What does the comtan do? > > I see your picking on Anne, Only thing she'll get you back. > > Take care > Vera > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 4, 2000 Report Share Posted September 4, 2000 Vera, Don't worry about anyone taking up for Anne, she does all right by herself. Eighty pounds of pure dy no mite! ) She has taken on better people than me. She and Sally spend the whole night (day for Anne) dreaming up ways to pick on me ) Someone has to keep them straight! Fordy used to help me out there, but took away his email priviledges. ) She picks on us too. Fordy and I started the road business, then Anne and Louise downunder joined in. I saw a note from Louise recently, but she is not writing as much as she used to. Owyergoinmate? Anne sent me a strine site and I found some more. I'm learning Aussie! Don't anyone get the wrong idea. Anne, , Fordy and I have been engaged in this friendly chit-chat since April 1999 and we are all best of friends (as close as you can get via email). At that time Fordy had exactly the same symptoms as Charlotte except his bad side was his left side and Charlotte's bad side is her right side, so I suggested that Fordy was different because he was upside down and backward. Anne jumped in and told me we were upside down and backward. ) WHO US - upsidedown - just look at the map! Then Anne admitted that they wear magnetic boots downunder so they don't fall off. ) Take care, Bill and Charlotte FVJAMES@... wrote: > Hi Bill : You still picking on Anne? I've been gone for a couple of > day's playing with the grandkids, so I have some catching up to do. > The comtan sounds like it may help Fred with his sinemet. His still > getting alot of down time. The doctor wanted him back in a few > months, but if we can't get the sinemet to work for him for longer > times, I will have to get him in sooner. Thanks for the help. And > watch out for Anne. > > Thurday child has far to go > Vera > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 4, 2000 Report Share Posted September 4, 2000 Hey Bill , I think it's great that you all get along so well, that you can pick on each other. Nothing like a friend that is there, for all the good times and the not so good times. all the up's and downunder too. It make's life just that much more fun when you can joke and laugh over nothing and still have a good time. That friend I told you that I will know forty years tomorrow. We've been that since the day one. Have a good time doing nothing and laughing about it all. Only we start laughing we can't stop, till we have tear's. Good for the belly to. Take Care Vera Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 17, 2000 Report Share Posted September 17, 2000 Bill: So your a man after a good deal. Me to alway looking for closes out. I use to be one of those coupon queens long ago that could go in and buy $100s in food and only pay a few $ but now most of the kids are gone and I don't have the time to do it. I will watch for the sheets when the new Wal mart opens out here. I've got all the padding on the bed, along with the liner's, but still it got all over. I guess sometimes thing don't work the way there should. Wish they did at times. Always Vera Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 17, 2000 Report Share Posted September 17, 2000 Bill: So your a man after a good deal. Me to alway looking for closes out. I use to be one of those coupon queens long ago that could go in and buy $100s in food and only pay a few $ but now most of the kids are gone and I don't have the time to do it. I will watch for the sheets when the new Wal mart opens out here. I've got all the padding on the bed, along with the liner's, but still it got all over. I guess sometimes thing don't work the way there should. Wish they did at times. Always Vera Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 23, 2000 Report Share Posted September 23, 2000 Hey Bill, you forgot about feeding, grooming and cleaning up after 2 dogs, 1 cat, 2 birds and now 1 rabbit, other than that I think we live very similar lives, I managed to build a pergola this year in my spare time, what did you build? Never forget to mention the weight lifting exercises we do either i.e. 95kgs about 5 or 6 times a day, where would I be without my weight bearing exercises!!!!!!!!! Take care Fordy's in Oz Re: I'm all right>Vera > Sally, > > Now, Now, that sounds like a typical day to me. Today, I got up at 5:30 AM to > get Mitch off to school, then got Charlotte up with first pill session, then got > Rhonda up for work, Charlotte dressed and washed, next pill session, Charlotte > to doctor, talked to school about Mitch, went and got Mitch at school, took > him to shrink, now I have to go and get Charlotte's handicapped pass renewed, > then get girls from work, oops (made meals in between), etc. > > How about it , can you top that ) I've also heard some beauts from > you Sally ) All caregivers have a tough time of it, let's face it. Then you > have another problem when the caregiving goes away and you have to find things > to fill the time. > > Hugs to all, Bill and Charlotte > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 23, 2000 Report Share Posted September 23, 2000 Hey Bill, you forgot about feeding, grooming and cleaning up after 2 dogs, 1 cat, 2 birds and now 1 rabbit, other than that I think we live very similar lives, I managed to build a pergola this year in my spare time, what did you build? Never forget to mention the weight lifting exercises we do either i.e. 95kgs about 5 or 6 times a day, where would I be without my weight bearing exercises!!!!!!!!! Take care Fordy's in Oz Re: I'm all right>Vera > Sally, > > Now, Now, that sounds like a typical day to me. Today, I got up at 5:30 AM to > get Mitch off to school, then got Charlotte up with first pill session, then got > Rhonda up for work, Charlotte dressed and washed, next pill session, Charlotte > to doctor, talked to school about Mitch, went and got Mitch at school, took > him to shrink, now I have to go and get Charlotte's handicapped pass renewed, > then get girls from work, oops (made meals in between), etc. > > How about it , can you top that ) I've also heard some beauts from > you Sally ) All caregivers have a tough time of it, let's face it. Then you > have another problem when the caregiving goes away and you have to find things > to fill the time. > > Hugs to all, Bill and Charlotte > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 24, 2000 Report Share Posted September 24, 2000 Bill ... How you do those wonderful animations ??? Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 24, 2000 Report Share Posted September 24, 2000 Bill ... How you do those wonderful animations ??? Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 24, 2000 Report Share Posted September 24, 2000 Sheila, You can buy a disk of them (actually many disks or you can get some free at: http://www.mediabuilder.com/index.html Bill and Charlotte -------------------- sheila coutant wrote: Bill ...How you do those wonderful animations ??? Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 24, 2000 Report Share Posted September 24, 2000 thx ... I knew there was a source somewhere ;-] Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 12, 2002 Report Share Posted January 12, 2002 In a message dated 1/12/02 1:53:29 PM Eastern Standard Time, surfacehippy writes: << OK, I'm confused. I have been reading on this group about folks getting the Conserve Plus prosethesis and being scheduled for getting it. I had an appointment here in Denver with an orthopedist who has had at least one patient who got the metal-on-metal resurfacing. She was saying that trials were over or at least that the " major docs " in LA and Baltimore had used up their alloted number of prosetheses. So was the doctor that I went to see today misinformed? Has there been an extension of the trials? or are all the docs on the surgeons list on the activejoints.com page done with the trials? are some done or some still going? Thanks in advance for shedding some light on the question. Bill >> Bill, the clinical trials are not closed. The JRI in LA now has approval to go ahead and do as many resurfacings as they need to. Rather than have an allotmnet of the devices they can go ahead and use whatever they need. Franca Quote Link to comment Share on other sites More sharing options...
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