Re: Doctor has run out of option

October 28, 2010

Missie, Don't give up hope! There are many more medicines and combinations that

you can try. I have been on every drug and combination known to man and each

one offered some relief. They didn't last long, but any relief is a welcome

reprieve. I just had to stop Cimzia after 7 months but it worked pretty well.

I was also taking Arava with the Cimzia which helped until the side effects

kicked in. I was also on injectable gold a few years ago which also helped. If

you can no longer tolerate prednisone, ask your doc about depomedrol injections.

While you don't want to use this long term, it certainly helps to ease the pain

and inflammation and can serve as bridge therapy until you find a med or combo

that will work for you. I feel your pain, as I had young ones too when I was

first diagnosed and it was extremely difficult to manage a toddler, infant and

my third most unruly child, the RA. Don't ever give up hope. Go out and get

second and third opinions if you can. I wish you all the best. Keep fighting!

Best, Lenae

>

> I am stuck. My doctor admitted to me that he is out of options and doesn't

know what else to do with me. He is one of the best doctors in the area. I have

tried MTX, Enbrel, Humira, and now I am on Remicade. Prednisone was kind of a

band-aid for me. It was the only thing working, but started to have negative

effects on my body, and then slowly stopped working. I have my 3rd dose of

Remicade on 11/15, and I hope it starts working. I am forced to go on Short Term

Disability, because I don't know what else to do. I need to take pain killers to

help with the massive amounts of pain I am in, but I cannot drive or work on

them. If I get caught taking them at work, I will lose my job. I also have 2

small children at home, 2 and 4, that I can barely care for. I am miserable, and

feel like I have no future.

> Has anyone else had this problem? Any suggestions maybe I could present to my

Dr.?

> Missie

>

October 29, 2010

I take MTX and Rituxan. The rituan is works differently than all the other

infusion meds. I like that I have 1 infusion every 5 months. You can research

it at www.rituxan.com You should discuss this with your Rheumy.

in MN

October 29, 2010

Thanks, I'll ask my Rheumy about those. The depo shots did NOTHING for me. Not

one noticeable difference. I hope you find something as well!

Missie

October 29, 2010

What about Orencia?

Sue

On Oct 28, 2010, at 4:20 PM, missieph wrote:

> Has anyone else had this problem? Any suggestions maybe I could

> present to my Dr.?

> Missie

November 1, 2010

Missy,

I have also been on all those drugs. I went on Orencia and it worked for over a

year for me. I recently tried Rituxin and that was a disaster. I am hoping

that since I have been off Orencia for ten months that it will work for me

again. Good luck!

G

[ ] Doctor has run out of option

I am stuck. My doctor admitted to me that he is out of options and doesn't