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Thanks for the information Chelsea.. I checked out the site and it seems to

have allot of good information. Can you tell me how and why you started

your children on the fish oils??

Tina

_____

From:

[mailto: ] On Behalf Of cecegary

Sent: Sunday, November 27, 2005 3:58 PM

Subject: [ ] Re: Fish Oils

I buy all of our fish oils at www.seacoastvitamins.com - they've got

great prices and they ship very quickly.

Chelsea

>

> Where do i get the prodha capsules?

>

>

>

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Tina,

I started my son on fish oils after reading the LCP Solution. As I

mentioned in an earlier post on this thread, I tried a few different

products before settling on one.

Using fish oils was my first foray into addressing my sons " issues "

nutritionally. I have now spent hundreds of hours researching,

researching, researching...and then applying what I've learned. These

have been INVALUABLE sources of information. I just joined

this one, so I don't have much experience with it (although it seems

great so far! :) But I have learned something EVERY DAY from the

GFCFKids list. It's so much more than just a list about eating GFCF!

It's high volume, so I don't read all of the digests I get everyday,

but when I do, it's definitely worth my time.

One thing I've learned from my son's kinesiologist is that the body's

need for supplementation changes - often! Also, when (during the day)

you take your supplements, dosage, and brand (as well as other factors)

all affect how the body accepts them (or creates toxicity to them). I

am grateful to have a kinesiologist nearby to guide us through

this " maze " so that we don't have to stumble through with trial and

error (although many people are successful with that approach too, it

just takes longer).

Chelsea

>

> Thanks for the information Chelsea.. I checked out the site and it

seems to

> have allot of good information. Can you tell me how and why you

started

> your children on the fish oils??

>

> Tina

>

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Tina,

I forgot to mention that I started my daughter on fish oils at 2

because she was very jealous of her brother getting " fish vitamins "

when she wasn't! :) I give her the DHA Junior - mostly just because

they're small and chewable. She is yet to visit our kinesiologist to

determine exactly what she NEEDS. She has no developmental or

behavioral issues whatsoever, though, so it's not for that...just

general good health!

Chelsea

>

> Thanks for the information Chelsea.. I checked out the site and it

seems to

> have allot of good information. Can you tell me how and why you

started

> your children on the fish oils??

>

> Tina

>

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Hi,

My daughter has CP, and was diagnosed with apraxia. She is almost 5, and has

very little speech, but she is working on it very hard. I have used the fish

oils for a while now, and I don't see any great difference in her speech. I have

noticed a couple of other things and I wanted to know if anyone else had this

kind of result.

I worked with my daughter on potty training for almost a year, and after I

started to faithfully use the EFAs, she suddenly trained, with very few

accidents. She had the flu a few weeks ago, and I didn't give her the EFAs for

several days, and she began having accidents. I started giving it to her again

and they stopped. Over Thanksgiving weekend, we got off schedule and she didn't

take them for several days again, and more accidents. Is this something any one

else has experienced?

Also, my daughter has ataxia, which is a shakiness in her movements. When

she woule reach for something, her hand would tremble, almost like someone with

Parkinson's. I just suddenly realized the other day that she hardly shakes

anymore. She has gained a lot of upperbody strength, so that may be the reason,

but I wonder if this is due to the EFAs also.

I will definitely keep giveing her this stuff! I think it is helping in ways

I didn't even think of.

Another question: What is the difference between EFA and EPA? Should I be

giving her EPA in addition to the EFAs. I give her 2 tsps of Nordic Naturals

Complete Omega.

Thanks for all your help.

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I know I am coming in at the tail end of this discussion but I just talked with

my son's pediatrician about fish oils and she spoke very positively about taking

them. Where do you order your fish oil and how much do you give. She

emphasized to make sure I purchased mercury free for obvious reasons.

Another question I would like to put out on the floor is did anyone take

brethine (terbutaline) while they were pregnant? I had to take this medication

with both of my pregnancies but much longer with my son bed rest would only last

for so long. If I didn't keep my medication level up I would go into preterm

labor, which they were unable to successfully stop my first pregnancy. I chose

to do what I needed to keep my babies where they needed to be until they were

developed enough to be born, but I have often wondered if the medication

affected his development in any way. He was diagnosed with dyspraxia at 3, he

is almost 9 now and we have been through speech therapy, occupational therapy,

and are currently in vision therapy and he has ADHD symptoms. I have learned a

lot from your postings and would appreciate any information anyone has to share

about my above questions.

Thank you for your time - Sherry ('s mom)

kiddietalk <kiddietalk@...> wrote:

Chelsea that's interesting that the DHA alone works best for your

child. In two parental anecdotal feedbacks by CHERAB, one by ECHO

of Canada, and the professional anecdotal feedback -the Omega 3 and

6 mixed with around a 5 to 1 ratio of the Omega 3 over the 6 was the

best. EPA is also found to be so much more important to most of the

group -which is why I tell people if they need to use a pure Omega 3

for whatever reason to use the Coromega since it's a pure Omega 3 -

but very high in the EPA -higher than the DHA.

Also about Omega 3/6 formulas -when they researched fish oils alone

on ADHD using pure Omega 3 formulas -the results were the oils

didn't work. Then when they did the study with Omega 3/6 formulas...

for example http://www.durhamtrial.org/

So DHA alone and virtually without EPA -is not typical of most -as

you can read here

http://www.cherab.org/information/historyEFA.html

and here

http://www.speech-express.com/alternative-therapy/efa-faqs.html

You know how I always say that if the therapy and " right " formula of

EFAs that work alone for most don't work -to then explore the

biomedical approaches of DAN? Perhaps the DHA alone working best is

a sign of that. I wonder 'now' if the ProEFA would work better as it

does for most if you tried again? Just a thought.

=========

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Terbutaline has an excellent track record as being safe in pregnancy for

many years through thousands of pregnancies. There are so many women who

need to use this to curb their Pre-term labor, and apraxia is a fairly rare

thing. You made the right choice, as preemies often join this world with a

great deal more challenges than apraxia/dyspraxia. Medicine like

terbutaline are also used safely by many asthmatic mom's (albuterol). There

is always fear when one takes a medicine during pregnancy - because no meds

and a healthy diet (plus multivits etc - and yes probably omega 3/6 too) is

the best. However weighing benefit over risk, hands down - terb for preterm

labor, albuterol for asthma etc. The risk to the baby is greater if the

condition is not controlled. I actually used terb for a brief time with my

first (non-apraxic child) - but not in my 3rd apraxic little guy. Although

we don't really know the underlying cause of apraxia, I wouldn't spend any

more time worrying about the terb question as it is VERY unlikely to be

related.

Re fish oil REcommendations are on this site.

Pro-EFA can be purchased from Nordic naturals (on-line, no mercury) in

liquid or pill form. We use the liquid because my son is young, but at 9

your boy should be able to swallow pills and the pills have a longer shelf

life, easier to transport etc.

Liquid 1/2 tsp daily, double dose after speech surge plataues (usually about

6 months according to folks on this site), then at next plateau consider

adding Pro-EPA

We actually very quickly went to 1/2 tsp pro-EFA twice a day with our 2 year

old - your son is much bigger, so the higher dose may be fine. Hopefully

someone will post the pill equivalent - but I think its one pro-EFA

capsule/day. Hope you see some success.

BTW, I started everyone in the family on the oils, and my 4.5 year old

(non-apraxic) son who was displaying an increase in aggressive ADHD symptoms

had a complete resolution of his undesirable behavior within 2 weeks. I was

totally not expecting this. He came up to me and told me " my evil twin is

gone " Very interesting! It seems that the impulsiveness has just gone

away. Still a very busy, active normal guy - but the over-the-top, " my god

I'm going to have to medicate this kid to keep him in school " is completely

a thing of the past.(He is on 2 capsule/day of omega 3/6/9 junior. Its

chewable which is why we chose this formula - no idea what the omega " 9 "

does. Personally I feel like my concentration & short-term memory is better

on it as well, and at the very least its good for our aging

earts. -

Re: [ ] Re: Fish Oils

I know I am coming in at the tail end of this discussion but I just talked

with my son's pediatrician about fish oils and she spoke very positively

about taking them. Where do you order your fish oil and how much do you

give. She emphasized to make sure I purchased mercury free for obvious

reasons.

Another question I would like to put out on the floor is did anyone take

brethine (terbutaline) while they were pregnant? I had to take this

medication with both of my pregnancies but much longer with my son bed rest

would only last for so long. If I didn't keep my medication level up I

would go into preterm labor, which they were unable to successfully stop my

first pregnancy. I chose to do what I needed to keep my babies where they

needed to be until they were developed enough to be born, but I have often

wondered if the medication affected his development in any way. He was

diagnosed with dyspraxia at 3, he is almost 9 now and we have been through

speech therapy, occupational therapy, and are currently in vision therapy

and he has ADHD symptoms. I have learned a lot from your postings and would

appreciate any information anyone has to share about my above questions.

Thank you for your time - Sherry ('s mom)

kiddietalk <kiddietalk@...> wrote:

Chelsea that's interesting that the DHA alone works best for your

child. In two parental anecdotal feedbacks by CHERAB, one by ECHO

of Canada, and the professional anecdotal feedback -the Omega 3 and

6 mixed with around a 5 to 1 ratio of the Omega 3 over the 6 was the

best. EPA is also found to be so much more important to most of the

group -which is why I tell people if they need to use a pure Omega 3

for whatever reason to use the Coromega since it's a pure Omega 3 -

but very high in the EPA -higher than the DHA.

Also about Omega 3/6 formulas -when they researched fish oils alone

on ADHD using pure Omega 3 formulas -the results were the oils

didn't work. Then when they did the study with Omega 3/6 formulas...

for example http://www.durhamtrial.org/

So DHA alone and virtually without EPA -is not typical of most -as

you can read here

http://www.cherab.org/information/historyEFA.html

and here

http://www.speech-express.com/alternative-therapy/efa-faqs.html

You know how I always say that if the therapy and " right " formula of

EFAs that work alone for most don't work -to then explore the

biomedical approaches of DAN? Perhaps the DHA alone working best is

a sign of that. I wonder 'now' if the ProEFA would work better as it

does for most if you tried again? Just a thought.

=========

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Better late than never I say! Here's the " EFAs 101 " archive:

From: " kiddietalk " <kiddietalk@...>

Date: Thu Mar 11, 2004 5:49 pm

Subject: Re: proEFA/ childrens DHA???...and more

Hi Lebby, and all,

The confusion is more the brand names than the formulas. In

actuality there really is no such thing as a " children's EFA "

perfect for all children yet. However fish oils can be marketed to

children by making fun flavorings and smaller capsules. Most of

the parents I know squeeze the oil out of the capsule anyway -so

that's besides the point for most of our group.

EFAs are now in baby formula and food, and EFAs come and are used in

a variety of formulas for children for various reasons. Mainly we

hear about the use of them for healthy brain development in regards

to children -but they are even proven to help prevent asthma

http://www.theage.com.au/articles/2004/02/20/1077072840758.html

And they may be coming to a school lunch near you -if you live in an

area of savvy parents

http://www.valleystar.com/localnews_more.php?id=51945_0_19_0_C

Regarding your specific question: (and to answer your question Chris)

ProEFA is an Omega 3 (DHA and higher EPA) formula with a small

amount of Omega 6 (GLA) The Omega 3 in the ProEFA is from fish oil -

not from the liver of the fish -so no vitamin A. Only fish oil made

from the

liver of the fish contain vitamin A.

Children's DHA is cod liver oil which since it's from the liver of

the cod fish, it naturally contains Vitamin A. Cod liver oil only

contains Omega 3 (DHA and EPA) about that point:

" Most of our experience is with one, 1.0 gram capsule of ProEFA

(Complete Omega) that contains 144 mg EPA, 99 mg DHA and 40 mg of

GLA. We know that this combination appeared to work well. There

were some other supplements used but we could not conclude anything

about them. I can only say that both EPA and DHA are important and

GLA appears to have an additional positive effect on speech.

ALA, linoleic and oleic acids in " The Total Omega " contribute very

little to the EPA, DHA, and GLA effect.

I see at least 2 possibilities that you could use if you decide to

make the transition from short-chain omega-3s in plants (flax seed

oil containing alpha-linolenic acid or ALA, C18:2n-3) to the long-

chain mixture of EPA (C20:5n-3) and DHA (C22:6n-3). These are DHA

Jr. (30 mg DHA and 20 mg EPA in a serving unit) and Coromega (350 mg

EPA and 230 mg DHA). Both of these have been anecdotally successful

in the past.

Coromega can be divided in two and taken one half in the morning the

other in the evening. If you choose this mode you will provide your

son with the equivalent EPA+DHA of 2 ProEFA capsules per day without

the GLA.

Flax seed oil or freshly ground flax seeds are an excellent source

of the essential omega-3 alpha-linolenic acid (ALA or LNA) which is

the quintessential parent member of the omega-3 family of essential

fatty acids (EFAs). The body transforms it into EPA and the EPA

into DHA. This transformation is very inefficient (the yield is

about 10%) and is further inhibited by over consumption of omega-6

fatty acids from most vegetable oils or certain disease states.

Therefore, it is advisable to independently consume also ready made

EPA and DHA from good quality fish of from high quality fish oil

supplements. Some recommended intakes are listed on the

Introductory lecture on EFAs that I gave at the First Conference on

Therapy of Verbal Apraxia, July 23-24, 2001, town, NJ. (

http://www.cherab.org/news/scientific.html )

The CHERAB Foundation's positive research results on potential

improvement in speech following EFA supplementation are based

on the use of ProEFA (Complete Omega) and that contains also

another essential fatty acid, GLA which is an omega-6 fatty acid.

The latter appears to be beneficial to children with apraxia. It is

not present in flax seed/flaxseed oil.

None of these materials present with any known side effects or

known toxicity in an otherwise healthy person. Nevertheless, we

advise every user of supplements to use them under medical

supervision. We don't know your child and we cannot provide you

with medical advice.

Sincerely,

Katz, Ph.D. "

About mercury and fish oil (vs. eating fish)

" Fish oils have been tested for various heavy metals like mercury

and there has been enough preliminary proof through studies, as well

as theory from reputable sources, that as I've posted many times

I've heard that the oils from fish may be the safest way to get the

benefits of the EFAs without the toxins due to the fact that mercury

etc. binds to the proteins/muscles of the fish.

" Measurement of mercury levels in concentrated over-the-counter fish

oil preparations: is fish oil healthier than fish? "

" CONCLUSIONS: Fish are rich in omega-3 fatty acids, and their

consumption is recommended to decrease the risk of coronary artery

disease. However, fish such as swordfish and shark are also a source

of exposure to the heavy metal toxin, mercury. The fish oil brands

examined in this manuscript have negligible amounts of mercury and

may provide a safer alternative to fish consumption. "

Division of Laboratory Medicine, Department of Pathology,

Massachusetts General Hospital and Harvard Medical School, Boston,

Mass 02114, USA.

http://www.ncbi.nlm.nih.gov/entrez/query.fcgi?cmd=Retrieve & db=PubMed & list_uids=1\

\4632570 & dopt=Abstract

And one other thing to keep in mind for those like me who do eat

both fish and take fish oil, there are toxins in the fish you eat

that won't be in the oil For example while mercury etc. binds to

the protein (muscle of the fish) so it's not in the oil of the

fish. From what I've read -the largest problem with fish oil itself

is rancidity. Oxygen and fish oil doesn't mix well.

Consumer Reports had this to say (most likely because toxins in

many cases bind to the protein and most oils are not tested for

rancidity)

" Consumer Reports tested 16 top-selling fish-oil pills which, like

other supplements, aren't closely regulated by the FDA.

Consumer Reports' Metcalf says the test results are

reassuring, " We found that all 16 brands that we tested had the

amount of Omega-3s that they said they did, which is good news. And,

we don't always find that with supplements. "

Since fish can contain toxins, Metcalf says Consumer Reports also

checked the supplements for purity, " We tested for three kinds of

toxins that often appear in fish — mercury, dioxin, and PCBs. "

Testers didn't find significant levels of toxins in any of the pills

tested, so you don't have to worry about contaminants. "

http://abclocal.go.com/kfsn/features/consumerwatch/consumer_070303_om

ega3.html

" The omega-3 fatty acids offer some unique benefits, should they

prove to be truly effective mood stabilizers. The advantages of the

omega-3 fatty acids as mood stabilizers include the apparent acute

efficacy in both the manic and depressive phases of bipolar

disorder, their lack of toxicity, as well as high patient

acceptance. In addition, omega-3 fatty acids confer some health

benefits during chronic use, such as possible reduction in the risk

of a fatal myocardial infarction. In addition, the omega-3 fatty

acids have no documented adverse drug interactions, and appear to be

safe (and possibly beneficial) in pregnancy and in children. "

http://ods.od.nih.gov/news/conferences/w6w3_abstracts.html

" I had the wonderful opportunity to hear ph Hibbeln, M.D., Chief,

Outpatient Clinic National Institute of Alcoholism and Alcohol

Abuse, NIH, Bethesda, land at the First Apraxia Conference

http://www.cherab.org/news/scientific.htm lecture about the

importance of PUFA -especially during pregnancy when you are growing

a brain inside you. If you don't consume enough PUFAs while

pregnant -the babies body will pull it from the mother's body. It's

his theory and research as to why so many mom's experience post

partum depression. http://www.beachpsych.com/pages/cc46.html In

additionit is proven that the PUFAs are important for cognitive

ability.

http://neuroscience.nih.gov/Lab.asp?Org_ID=352

Here is a quote from the US Department of Agriculture,

Environmental Chemistry Laboratory, Agricultural Research Service,

20705, Beltsville, MD, USA

Brain-specific lipids from marine, lacustrine, or terrestrial food

resources: potential impact on early African Homo sapiens. The

polyunsaturated fatty acid (PUFA) composition of the mammalian

central nervous system is almost wholly composed of two long-chain

polyunsaturated fatty acids (LC-PUFA), docosahexaenoic acid (DHA)

and arachidonic acid (AA). PUFA are dietarily essential, thus normal

infant/neonatal brain, intellectual growth and development cannot be

accomplished if they are deficient during pregnancy and lactation.

Uniquely in the human species, the fetal brain consumes 70% of the

energy delivered to it by mother. DHA and AA are needed to construct

placental and fetal tissues for cell membrane growth, structure and

function. Contemporary evidence shows that the maternal circulation

is depleted of AA and DHA during fetal growth. Sustaining normal

adult human brain function also requires LC-PUFA.Homo sapiens is

unlikely to have evolved a large, complex, metabolically expensive

brain in an environment which did not provide abundant dietary LC-

PUFA.

http://www.unl.ac.uk/ibchn/e_Link/cbpbbmb2002.htm

" The omega-3 fatty acids offer some unique benefits, should they

prove to be truly effective mood stabilizers. The advantages of the

omega-3 fatty acids as mood stabilizers include the apparent acute

efficacy in both the manic and depressive phases of bipolar

disorder, their lack of toxicity, as well as high patient

acceptance. In addition, omega-3 fatty acids confer some health

benefits during chronic use, such as possible reduction in the risk

of a fatal myocardial infarction. In addition, the omega-3 fatty

acids have no documented adverse drug interactions, and appear to be

safe (and possibly beneficial) in pregnancy and in children. "

http://ods.od.nih.gov/news/conferences/w6w3_abstracts.html

Here is an archive answer to answer more on EFAs:

" I will use the following examples with the brand name ProEFA since

that's the formula/dosage that seems to work the best for most of us

(Efalex and EyeQ are similar Omega 3/6 formulas that also have good

reports) For any brand name of Omega 3/6 formula -you could make

the same formula by mixing together fish oil and either primrose or

borage seed oil if you prefer -or as found -another brand

name with a similar formula (and I hope also a good quality)

If you mix two fish oils together which is fine if you know why you

are doing that: Look at the amount of DHA, EPA (Omega 3) and the

amount of GLA (Omega 6) and then add them all together to see what

formula and dosage you now have is. So for those of you that ask -

you can mix any brand names together you would like -however what

you could change is the three things above (dosage, formula and

*quality (*if one of the companies you start using has rancid oils

which is not uncommon when it comes to fish oils -so make sure all

brands you use are pure) Keep in mind in anecdotal feedback done by

parents from all over through CHERAB -that pure Omega 3 or pure

Omega 6 either showed no results -or very little results in almost

all cases. Pure Omega 3 would include pure cod liver oil, fish oil,

flax seed oil without any Omega 6. So even though there is only a

small amount of GLA (Omega 6) in the formulas we found to be

successful -GLA appears to be important to be there for some

reason. GLA has anti-inflammatory properties which perhaps enable

to DHA and EPA to get to where it's needed in the brain?

Dosage of one capsule a day ProEFA that at the lowest dosage appears

to be the best -

148 mg EPA

99 mg DHA

40 mg GLA

Here is what many of us have found to be the best plan

anecdotally:

....start with the basic formula, one ProEFA a day, we

saw surges in a few days to three weeks which continued for months -

we then reached a plateau after around 6 months.

At this point we raised the dosage to two capsules of ProEFA a day

and once again had those surges which lasted again for months.

When we reached the next plateau after around a year, instead of

going to three a day - we squeezed 1/2 to one capsule of ProEPA into

the 2 capsules of ProEFA and for almost all of us that try -that

created another surge.

Over time -you may raise the dosage up higher -and you may slightly

change the formula to raise the Omega 3 over the Omega 6 ratio.

Most found raising the EPA vs. the DHA or GLA to be best -but

you need to know your own child, keep track of his progress through

both your own observations and that of the professionals -with the

advice of your child's doctor -to know what is best for him/her.

There is much more in the archives both here -as well as more

information at

http://www.cherab.org/information/indexinformation.html#diet

http://www.speechville.com

Since I receive lots of calls about this -I wanted to list the most

common changes in an apraxic or other speech disordered child on

EFAs from what I've read and heard and seen.

1. Increase in babbling or attempts at sounds.

2. Increase in imitation.

Changes also can be looked for in (what you see as positive or

negative)

sleep

attention

appetite

focus

behavior

stools

Next will come a breakthrough of something you were probably working

on for a bit -so you will be excited but will think " Well -I don't

want to get my hopes up we were working on that for awhile now -

maybe it's just a coincidence " However after the second or third

surge in a short period of time -and then another - you are pretty

sure things are different and it's at this point the professionals

and the rest of the family and your friends are noticing it too -

maybe about two to three weeks now.

OK -the next stage is pure elation and hope -you see the light and

no longer feel as desperate and want to share this new information

with everyone and anyone. As the months go by and your child

continues to progress at a much more rapid rate -you may even start

to doubt the original diagnosis -especially if you started EFA

supplementation at two -and perhaps the SLP that diagnosed the

apraxia who also was at first excited is starting to second guess if

the original diagnosis was correct as well.

Unless you have to stop the ProEFA (or other Essential Fatty Acids)

and literally have the chance to see the regression of acquired

speech and language skills, attempts, and changes in behavior like

we did with Tanner (and/or have a chance to again witness the second

surge when your child is put back on the EFAs) -that doubt will

probably remain somewhere in your mind and in others around your

child. So the " I told you that he would start talking when he was

ready " comments should be expected of course.

Up to this point is understandable to me -it's the point after this

that is confusing to me, and perhaps not the best stage for our

children and for raising awareness or having research done to find

out what is happening to our children and why. Perhaps because we

have truly hit a paradigm shift...

As Dr. Agin states the EFAs actually appear to be in some

ways " curing " the apraxic child -even those diagnosed with severe

oral and verbal apraxia, hypotonia, sensory and behavioral issues.

Especially those started at younger ages.

The child on ProEFA or some other EFA formula's like it no longer

fits the criteria of the classic definition of apraxia -and yet

doesn't fit the classic perception of what a late talker is either...

Some of the parents become more focused on other everyday activities

with their child and start to drift away from the support sources.

Problem with this attitude is that unless your child is really up to

speed on all aspects of speech and language, the support sources

that helped in the beginning will still benefit your child today.

ProEFA alone is not the only answer and until we know how and why it

works (or why in a handful of children it doesn't) we can't improve

on it "

Know there is lots of information here -but if you have to learn

just one thing from all of this it's right up on top -there is

always hope!

=====

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  • 4 months later...
Guest guest

Hi -

I think I'd give it a day or so to see if it " evens out " if you know

what I mean. You are adding OIL to his diet - probably the same

would happen if you added 1 tsp of olive oil. I think I'd try to

give it to him with crackers or bread - and maybe start some good

yogurt if he'll eat it. That seems to help some folks.

Marina

>

> hello, I started my son on complete omega 3,6,9 by nordic naturals

> three days ago. He's had diarrhea yesterday and today....more

like

> slurry today..blah. I've searched for info on this and decided to

> post. Just how common is this, and do you think it should go away

> soon. He's suppose to start day care next monday. I am not

planning

> on taking him off the fish oils, we want to see how that works.

Do

> you think I should buy the pro efa instead, i was too impatient to

> order it and wait for it.

> Is there something I can add to his diet to help this transition?

> Lessen the dosage? I give him one capsule a day. He's almost 28

> months old. Tends to have loose stools as it is.

> thank you for any advice or comments.

> lisa m.

> ya'll are a blessing :)

>

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Guest guest

If you do want to try giving him something to help digest the oil, I would

suggest Zyme

Prime by Houston Nutraceuticals, but you would probably have to order it online.

The

chewables are very very acceptable to picky kids. They tend to help digestion

and

diarrhea, because they have lipase (the enzyme that digests oil).

Peace,

Kathy E.

>

> hello, I started my son on complete omega 3,6,9 by nordic naturals

> three days ago. He's had diarrhea yesterday and today....more like

> slurry today..blah. I've searched for info on this and decided to

> post. Just how common is this, and do you think it should go away

> soon. He's suppose to start day care next monday. I am not planning

> on taking him off the fish oils, we want to see how that works. Do

> you think I should buy the pro efa instead, i was too impatient to

> order it and wait for it.

> Is there something I can add to his diet to help this transition?

> Lessen the dosage? I give him one capsule a day. He's almost 28

> months old. Tends to have loose stools as it is.

> thank you for any advice or comments.

> lisa m.

> ya'll are a blessing :)

>

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Guest guest

Just in case it isn't the fish oils but a little bug or imbalance of

flora in the gut, you might try lactobacilus (not sure about the

spelling). It isn't prescription but you have to get it from the

pharmacist. Ask for granules. Use one packet mixed in a little bit of

food you know he will eat (applesauce, pudding), once he eats all of

the dosed food you can give him the rest of the food (in other words,

don't stir it into the entire pudding cup, just use about 2 tablespoons

pudding mixed with granules then he can have the rest of the pudding

when he finishes, for example). It doesn't have a taste but it won't

dissolve all the way either. I've used this since my child was an

infant and it works great--though I don't know if it would work if the

problem is the fish oils... Anyway, it's all natural and totally

safe. Good luck!

PS you need to keep the packets of granules in the fridge.

>

> hello, I started my son on complete omega 3,6,9 by nordic naturals

> three days ago. He's had diarrhea yesterday and today....more like

> slurry today..blah. I've searched for info on this and decided to

> post. Just how common is this, and do you think it should go away

> soon. He's suppose to start day care next monday. I am not planning

> on taking him off the fish oils, we want to see how that works. Do

> you think I should buy the pro efa instead, i was too impatient to

> order it and wait for it.

> Is there something I can add to his diet to help this transition?

> Lessen the dosage? I give him one capsule a day. He's almost 28

> months old. Tends to have loose stools as it is.

> thank you for any advice or comments.

> lisa m.

> ya'll are a blessing :)

>

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Guest guest

Today is Trey's fourth day on the Complete Omega 3,6,9 by Nordic

Naturals and I'm happy to report, his BMs appear to be returning to

normal. Also, this digestive upset could be due in part to all the

pine nuts he ate Sunday night and new juices, cranberry. He's not

used to either of these.

Yesterday he had an appt with his ST, and she noticed he was more

focused and involved in what was going on. She kept making comments

on how impressed she was with him! I didn't tell her until the end

about the fish oils. I really did notice a difference too, to me I

felt a bit astonished and elated watching him. And he would say words

like " on " or " in " . It was encouraging to see. It finally feels like

there are some blocks to build on, so to speak. He was really

participating. The best way I can think of to describe the

improvements I saw is to say that is was like I was able to tune in

the channel better, like the fuzziness was gone. Like the reception

(mine of him I guess) is sharper. SOrry if that sounds crazy, it's

the only way I can think to describe it.

I was thinking last night, it would be a neat idea to have a blog of a

few children, maybe three or so, and just sort of keep an online

journal of them and their progress, or set backs. MIght be encouraging

or helpful for others to read.

Also, thank you for the posts on the " PECS " ideas. I'm so interested

in doing the things that have been suggested. One question, if the

pictures are all cut up into individual peices, how do you store

them? In a big box?? Just curious.

M.

mom to Trey, almost 28 months

>

> If you do want to try giving him something to help digest the oil, I

would suggest Zyme

> Prime by Houston Nutraceuticals, but you would probably have to

order it online. The

> chewables are very very acceptable to picky kids. They tend to help

digestion and

> diarrhea, because they have lipase (the enzyme that digests oil).

>

> Peace,

> Kathy E.

>

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Guest guest

That is the same effect I saw with my son. I say it helped clear up the

" haze " he was in before the oil. So, this in turn made him more receptive

to therapy and other instructional type things. I totally understand what

you said. It wasn't like all of sudden he started talking...he was just

more alert, more focused, more attentive..more receptive...

" jkmart_24 "

<LiisaAnn@...>

Sent by:

cc:

Subject: [ ] Re: fish oils

04/12/2006 02:54 PM

Today is Trey's fourth day on the Complete Omega 3,6,9 by

Nordic

Naturals and I'm happy to report, his BMs appear to be returning to

normal. Also, this digestive upset could be due in part to all the

pine nuts he ate Sunday night and new juices, cranberry. He's not

used to either of these.

Yesterday he had an appt with his ST, and she noticed he was more

focused and involved in what was going on. She kept making comments

on how impressed she was with him! I didn't tell her until the end

about the fish oils. I really did notice a difference too, to me I

felt a bit astonished and elated watching him. And he would say words

like " on " or " in " . It was encouraging to see. It finally feels like

there are some blocks to build on, so to speak. He was really

participating. The best way I can think of to describe the

improvements I saw is to say that is was like I was able to tune in

the channel better, like the fuzziness was gone. Like the reception

(mine of him I guess) is sharper. SOrry if that sounds crazy, it's

the only way I can think to describe it.

I was thinking last night, it would be a neat idea to have a blog of a

few children, maybe three or so, and just sort of keep an online

journal of them and their progress, or set backs. MIght be encouraging

or helpful for others to read.

Also, thank you for the posts on the " PECS " ideas. I'm so interested

in doing the things that have been suggested. One question, if the

pictures are all cut up into individual peices, how do you store

them? In a big box?? Just curious.

M.

mom to Trey, almost 28 months

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Guest guest

Congratulations! I can't wait to get my proEFA in the mail!!

Organizing PECS - still trying to get a handle on that. I'm

planning to make a big binder with velcro attachments and then group

them by category. I've also thought of keeping a couple of baskets

or boxes around the house next to appropriate objects (match PECS to

toys in living room or foods in kitchen, for exp). My ST also

suggested a laminated sheet (small board) with velcro attachments to

mount on the fridge low enough for my child to reach. The idea is

once he learns what some of the cards mean, he can pull the one that

corresponds to what he wants (fish crackers for exp) and bring it to

me. I'm interested to hear what others are doing because it's easy

for these PECS cards to sort of get out of control.

>

> Today is Trey's fourth day on the Complete Omega 3,6,9 by Nordic

> Naturals and I'm happy to report, his BMs appear to be returning

to

> normal. ...

> Also, thank you for the posts on the " PECS " ideas. I'm so

interested

> in doing the things that have been suggested. One question, if

the

> pictures are all cut up into individual peices, how do you store

> them? In a big box?? Just curious.

> M.

> mom to Trey, almost 28 months

>

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Guest guest

Give it some time and that increased alertness will turn into speech! We

are now 6 months into this and totally recovered from the last regression I

described when we ran out of the EPA - and making more progress. We're back

to 7 word sentenses (some of which I actually understand!). ph is doing

great. He also said " I love you mommy " clear as day into my cell phone

voicemail - while I was traveling...that message I will never erase!. I'm

sure OT and a great speech therapist is helping...but nothing seemed to be

helping before we started the omega supplements. The more I am reading on

omegas and talking to folks who know something about fatty acid metabolism,

the less stressed I am about the high doses we are using. And the more I

feel like other apraxic families will benefit from higher doses - if your

child seems to be responding. It is also possible that those " not

responding " actually just needed a higher dose, or the higher EPA sooner.

Generally the body will metabolize excess omega 3. But in our case - it

doesn't seem to be excess, because every bump brought with it dramatic

progress... in both speech and coordination issues. If you are seeing

benefits - give it a few weeks then consider going to twice a day (morning

and night). Some kids have sleep problems with the night-time dose - in our

case that lasted about a week, then resolved. The increased

crankiness/crying more also resolved after about 3 weeks, and was well worth

communication in exchange. But if sleep becomes an issue the twice a day

dose can be in the am and then early afternoon...shouldn't impact sleep that

way. As many of you know, we are at a 3 times a day dosing (1/2 tsp of

omega 3/6/9 plus one capsule EPA given 3 times a day).

After watching all the benefits for my youngest, we also doubled the dose

for my 4 year old (dyslexic with ADHD symptomes this summer that resolved 2

weeks of supplementation). Although I first thought - why mess with a good

thing - he's doing great with just 1/2 tsp a day omega 3/6/9 - we added EPA

and then started giving the EFA/EPA dose twice a day (still lower dose than

my apraxic baby). Although the impact was not as dramatic as it was over

the summer, within days he started playing with puzzles and completing them

(something he NEVER did - never sat through more than 4 or 5 pieces), less

interrupting adult conversation, less fighting with his siblings, and

generally so much more pleasant to be around. Very interesting! Really I

thought he was fine before, but am happy to see this nicer version of the

child. Anyway, that's our update. (Been away for 2 weeks - now 495 emails

to go through!). -

[ ] Re: fish oils

04/12/2006 02:54 PM

Today is Trey's fourth day on the Complete Omega 3,6,9

by Nordic

Naturals and I'm happy to report, his BMs appear to be returning to

normal. Also, this digestive upset could be due in part to all the

pine nuts he ate Sunday night and new juices, cranberry. He's not

used to either of these.

Yesterday he had an appt with his ST, and she noticed he was more

focused and involved in what was going on. She kept making comments

on how impressed she was with him! I didn't tell her until the end

about the fish oils. I really did notice a difference too, to me I

felt a bit astonished and elated watching him. And he would say words

like " on " or " in " . It was encouraging to see. It finally feels like

there are some blocks to build on, so to speak. He was really

participating. The best way I can think of to describe the

improvements I saw is to say that is was like I was able to tune in

the channel better, like the fuzziness was gone. Like the reception

(mine of him I guess) is sharper. SOrry if that sounds crazy, it's

the only way I can think to describe it.

I was thinking last night, it would be a neat idea to have a blog of a

few children, maybe three or so, and just sort of keep an online

journal of them and their progress, or set backs. MIght be encouraging

or helpful for others to read.

Also, thank you for the posts on the " PECS " ideas. I'm so interested

in doing the things that have been suggested. One question, if the

pictures are all cut up into individual peices, how do you store

them? In a big box?? Just curious.

M.

mom to Trey, almost 28 months

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  • 1 month later...
Guest guest

Yes, Omega 3, 6,9 are EFAs (essential fatty acids). The brain needs them to

function.

Some children do better after a number of months on Complete Omega or ProEFA

(dosages differ slightly I believe) if EPA is then added...if you intend to do

this, suggest

you use a low dose at first. Some children may become hyper or aggressive when

the EPA

is added, others bound forward.

Peace,

Kathy E.

>

> One last question about fish oils...the Nordic Naturals Complete Omega

> 3 6 9 has 270 mg EPA, 180 mg DHA and 66 mg GLA. We give our 4 year old

> son 2 of these capsules. Since this already contains EPA, do we need

> to give him any additional EPA? And, dumb question, but is this Omega

> 3 6 9 an EFA? These fish oils are completely foreign to me and the

> EFA's and EPA's and all the doseage numbers are completely confusing

> to me. I just want to make sure we are giving our son the proper (and

> most beneficial) doseage and if we should be adding anything else. I'm

> sorry to keep harping on this but I want to get it right! Thanks again

> to everyone for all your helpful advice! -- and ps: the person

> who wrote about talking to their son on a cell phone--what a great

> mother's day gift. I hope to one day hear my son say that much! That'd

> be the greatest gift of all!!

>

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  • 1 month later...
Guest guest

Hi Dawn!

Probably better if you call me since I'll be on the road (to fun

places) now that school is out for the summer. You can reach me at

772 335 5135 because I have the CHERAB phone transferred to my

cell. I try to keep up with emails (try being the operative word)

I'm happy to help -and typically so are my two boys Dakota and

Tanner who will be able to tell you first hand what they think of

fish oils.

BTW speaking of fish oils -just came back from the cardiologist with

Glenn and this highly respected and recommended cardiologist is also

the self proclaimed " number one fan of fish oils " and takes " a bunch

of them " every day himself! His success rate is incredible in that

the majority who see him never have a second heart attack -which is

what we heard and why we are seeing him. Aggressive on testing and

conservative on medications. Gotta love it! (and we do love this

doc!)

=====

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  • 1 year later...
Guest guest

Ok, I am still being dumb here, but to get old posts do you have to register

your name with a password? I am having a hard time figuring out this? Also,

I know people have mentioned PRO EFA and EPA. I tried the combo, but I don't

think for long enough. Now my son is just taking three PRE EFA and no EPA. Is

it really a must to get the PRO EPA too? A two to one ratio? Also, can anyone

recommend a vitamin E that would just be one capsule that you pierce, that

would have everything in it? Or do you have to get two different kinds. I

could probably find the answers myself if I could get into the archives. Help.

**************It's Tax Time! Get tips, forms, and advice on AOL Money &

Finance. (http://money.aol.com/tax?NCID=aolprf00030000000001)

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  • 10 months later...

Hi

New here. I have a 2 yr old with

A speech delay. Wanted to know how u get her to take the fish oil

And vitamin. If u can tell me which kind as well. I take omega fish oil in

caplets and know how useful they are. Not sure how I can make him drink it.

Thanks

Merianne

Sent from my iPhone

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Give it to him with a syringe. My son chews the gel caps but I did

give him liquid in a syringe when he was 2. Nordic Naturals has a

liquid.

On Jan 5, 2009, at 9:04 PM, wrote:

> Hi

>

> New here. I have a 2 yr old with

> A speech delay. Wanted to know how u get her to take the fish oil

> And vitamin. If u can tell me which kind as well. I take omega fish

> oil in caplets and know how useful they are. Not sure how I can make

> him drink it.

>

> Thanks

> Merianne

>

> Sent from my iPhone

>

>

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hi there,

i know there are a different brands available but for our daughter

(same age as your son), we are using the nordic naturals proEFA (which

you have to buy online) and the trader joes brand of vitamin e (make

sure to check the label to make sure it's the natural vitamin e and not

the synthetic natural e).

we put the vitamin oil and the fish oil on our daughter's waffle in the

morning and she doesn't have a problem. if the taste is an issue, you

could probably put syrup on the waffle to mask the taste, or you could

do what other people have suggested and use yogurt, apple sauce, etc.

i hope this helps and wish you luck!

>

> Hi

>

> New here. I have a 2 yr old with

> A speech delay. Wanted to know how u get her to take the fish oil

> And vitamin. If u can tell me which kind as well. I take omega fish

oil in caplets and know how useful they are. Not sure how I can make

him drink it.

>

> Thanks

> Merianne

>

> Sent from my iPhone

>

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thank you so much, this is most helpful.  I will give it a try.

Merianne

________________________________

From: pslocali <pslocali@...>

Sent: Tuesday, January 6, 2009 1:42:32 AM

Subject: [ ] Re: fish oils

hi there,

i know there are a different brands available but for our daughter

(same age as your son), we are using the nordic naturals proEFA (which

you have to buy online) and the trader joes brand of vitamin e (make

sure to check the label to make sure it's the natural vitamin e and not

the synthetic natural e).

we put the vitamin oil and the fish oil on our daughter's waffle in the

morning and she doesn't have a problem. if the taste is an issue, you

could probably put syrup on the waffle to mask the taste, or you could

do what other people have suggested and use yogurt, apple sauce, etc.

i hope this helps and wish you luck!

>

> Hi

>

> New here. I have a 2 yr old with

> A speech delay. Wanted to know how u get her to take the fish oil

> And vitamin. If u can tell me which kind as well. I take omega fish

oil in caplets and know how useful they are. Not sure how I can make

him drink it.

>

> Thanks

> Merianne

>

> Sent from my iPhone

>

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Kristy

Thanks, will give it a try.

Merianne

________________________________

From: Kristy <klsandersrn@...>

Sent: Monday, January 5, 2009 11:38:44 PM

Subject: Re: [ ] fish oils

Give it to him with a syringe. My son chews the gel caps but I did

give him liquid in a syringe when he was 2. Nordic Naturals has a

liquid.

On Jan 5, 2009, at 9:04 PM, wrote:

> Hi

>

> New here. I have a 2 yr old with

> A speech delay. Wanted to know how u get her to take the fish oil

> And vitamin. If u can tell me which kind as well. I take omega fish

> oil in caplets and know how useful they are. Not sure how I can make

> him drink it.

>

> Thanks

> Merianne

>

> Sent from my iPhone

>

>

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i mix it in any food my child likes.

> Hi

>

> New here. I have a 2 yr old with

> A speech delay. Wanted to know how u get her to take the fish oil

> And vitamin. If u can tell me which kind as well. I take omega fish

> oil in caplets and know how useful they are. Not sure how I can make

> him drink it.

>

> Thanks

> Merianne

>

> Sent from my iPhone

>

>

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