Re: I'm having a pity party! Feel free to join!

[Guest guest]

Kami, I'm sorry you're feeling crummy.  Remember that flares can cause

depression.  I'm like a zombie when I flare and the whole world seems hopeless. 

A belated happy birthday to you!  Since you feel crummy, you should reschedule

your bday to a future date and do something fun.  In the meantime, could you get

a massage?  go swimming?  Something gentle that would help the pain?  As for

meds, my rheum says most of her patients on a biologic also take a 2nd agent, so

maybe they'll do short term pred and ease you on to another DMARD.  Hugs!  Kate

F

________________________________

From: ~ Kami ~ <kamilleon@...>

< >

Sent: Monday, November 24, 2008 8:25:37 AM

Subject: [ ] I'm having a pity party! Feel free to join!

I am starting to feel like a lil old lady! Please don't anyone take offense to

that statement... .. I am officially old according to my daughter.

I turned 39 last week and seeing the downward spiral my life has taken this

year... I am starting to FEEL old and I HATE IT. I think that RA rearing it's

ugly head into my life on my birthday last year has made me depressed because I

HOPED it would have been better by THIS birthday. Age has never mattered to

me... It was only a number and when I FELT good, life was great. Life sucks

right now. I am flaring in the worst possible way and I am blaming the %^$#@ & !!!

weather.

I am having pain in my: hands, fingers, elbows, hips, knees, feet, and once

again my toes. If I could pinpoint the WORST pain, it has to be in my elbows and

then my hands/fingers. Gone are the days of being able to tie my shoes

comfortably, peeling a banana, and today the ultimate slap in the face so to

speak: I couldn't open a splenda packet. I found myself looking at slip on shoes

this morning....

I felt the best on MTX and Humira together. Humira alone, even though I inject

every 10 days, is NOT cutting it..... I do have a call in to my rheumy and am

hoping he can see me this week. I am pretty sure he will put me on Prednisone

(YAY! Weight gain! *sarcasm*) and see me within a few days unless, of course, he

is on vacation. Maybe he can come up with a better option.

So all together now.... 1...2...3... .. AWWWWWWWWWW.

I feel so much better! :-)

*~ Kami ~*

[Guest guest]

Hi all,

I am 47 and living in Ottawa. I have been diagnosed with RA and Fibro

and OA for about 7 years now.

Was wondering if anybody on this list from Ontario....

Corinne

[Guest guest]

Kami,

It's OK to have a pity party. I do it more frequently then I would

like to admit. I know how it feels. I was diagnosed with RA when I

was 24. I think one of the bet things about this group is the

overhelming feeling to support and compassion.

If it matters any, I don't think your old...

>

> I am starting to feel like a lil old lady! Please don't anyone take

offense to that statement..... I am officially old according to my

daughter.

>

> I turned 39 last week and seeing the downward spiral my life has

taken this year... I am starting to FEEL old and I HATE IT. I think

that RA rearing it's ugly head into my life on my birthday last year

has made me depressed because I HOPED it would have been better by

THIS birthday. Age has never mattered to me... It was only a number

and when I FELT good, life was great. Life sucks right now. I am

flaring in the worst possible way and I am blaming the %^$#@ & !!!

weather.

>

> I am having pain in my: hands, fingers, elbows, hips, knees, feet,

and once again my toes. If I could pinpoint the WORST pain, it has to

be in my elbows and then my hands/fingers. Gone are the days of being

able to tie my shoes comfortably, peeling a banana, and today the

ultimate slap in the face so to speak: I couldn't open a splenda

packet. I found myself looking at slip on shoes this morning....

>

> I felt the best on MTX and Humira together. Humira alone, even

though I inject every 10 days, is NOT cutting it..... I do have a

call in to my rheumy and am hoping he can see me this week. I am

pretty sure he will put me on Prednisone (YAY! Weight gain!

*sarcasm*) and see me within a few days unless, of course, he is on

vacation. Maybe he can come up with a better option.

>

> So all together now.... 1...2...3..... AWWWWWWWWWW.

>

> I feel so much better! :-)

>

>

>

>

> *~ Kami ~*

>

>

>

>

>

[Guest guest]

Kami,

OMG, I feel so bad for you... I truly hope you feel better real soon!

These diseases are awful... I was feeling so low yesterday, I

actually told the preacher that hell would be a walk in the park...LOL

Opps! That was a bad idea... Now I have a meeting scheduled with him

to discuss my emotional distress....

Every week I spend my sunday afternoons at my grandmothers 40 acre

farm... Pre-disease, I would spend my time walking around and

visiting all the animals or helping to feed/water them all... Now I

sit around the kitchen table with my aunts, who are all in there early

and late 70's, comparing aches and pains.... I'm only 33! I

shouldn't have issues with severe aches and pains... (by the way I

realize there are some much younger then me, dealing with more then I

am.... I'm just joining the pitty party)

On a bright note, my mtx was increased as of last night, and I already

noticed a difference as I felt a little bit better today... Today

was the first day in three weeks that I didn't have tears in my eyes

as I was attempting to do my version of walking (or gimping).

Tomorrow, I'll start my Rituxin infusions... (I'm so scared I can

hardly function)... My doc says this could be my miracle... The

answer to all my prayers... We'll see...

I'll keep everyone posted on the results, perhaps you can talk to your

doctor about this as well...

Hope you are feeling a bit better this evening... Try a warm bath...

bubbles are always a fun way to feel young again...

Bonnie

[Guest guest]

Here's hoping that it will be your miracle drug, Bonnie!

Sue

On Monday, November 24, 2008, at 05:50 PM, Bonnie wrote:

>

> Tomorrow, I'll start my Rituxin infusions... (I'm so scared I can

> hardly function)... My doc says this could be my miracle... The

> answer to all my prayers... We'll see...

[Guest guest]

Bonnie,

I hope your infusion goes good tomorrow. I remember when I started Remicade, I

was scared out of my mind, I was actually in tears and all for nothing, I had no

reaction at all. The things we put ourselves through. Good Luck, in PA

[ ] Re: I'm having a pity party! Feel free to join!

Kami,

OMG, I feel so bad for you... I truly hope you feel better real soon!

These diseases are awful... I was feeling so low yesterday, I

actually told the preacher that hell would be a walk in the park...LOL

Opps! That was a bad idea... Now I have a meeting scheduled with him

to discuss my emotional distress....

Every week I spend my sunday afternoons at my grandmothers 40 acre

farm... Pre-disease, I would spend my time walking around and

visiting all the animals or helping to feed/water them all... Now I

sit around the kitchen table with my aunts, who are all in there early

and late 70's, comparing aches and pains.... I'm only 33! I

shouldn't have issues with severe aches and pains... (by the way I

realize there are some much younger then me, dealing with more then I

am.... I'm just joining the pitty party)

On a bright note, my mtx was increased as of last night, and I already

noticed a difference as I felt a little bit better today... Today

was the first day in three weeks that I didn't have tears in my eyes

as I was attempting to do my version of walking (or gimping).

Tomorrow, I'll start my Rituxin infusions... (I'm so scared I can

hardly function)... My doc says this could be my miracle... The

answer to all my prayers... We'll see...

I'll keep everyone posted on the results, perhaps you can talk to your

doctor about this as well...

Hope you are feeling a bit better this evening... Try a warm bath...

bubbles are always a fun way to feel young again...

Bonnie

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9:03 AM

[Guest guest]

Thanks to the two 's....lol

I hope I'm all worked up about nothing as well... I've been driving

myself insane worrying about the what if's...

I'll keep you guys posted...

Bonnie

[Guest guest]

Hello Kami,

i am sorry to hear of your pain. I too am having a flare up due to the weather

as well. As you know i have Lupus, as well as firbro and RA. And i too have a

birthday coming November 26th i will be 43, and feeling 93 these days. And wear

i live sort of the dessert, in central washington. Seems like the winter is

going to be early this year. Last night it was down past 30 a few degrees. And

each year my Lupus gets worse, i was in remission for a few months last year.

And the only rhemy in this twon does not take my medical. So i have to go to

Wenatchee to see the rhumatologist. And i find myself going to bed around 8:30

anymore like i did when i was five, lol. I love the changing seasons and fall is

my favorite time of year, after that it gets to cold. And i know you all feel

like when your feet do not thaw out for the day your hole body refuses to get

warm. But during summer it gets up in triple digits and way too hot. My hands

are sweeling up like

baloons, my rings get stuck and it is painfull, i have to try to remember to

take my rings off before bed, but even now that is getting to be really early

about 7:00 pm. The worst part of the day is about 3 to 4 in the morning. So,

anyway i will join the pity party. Now i wish it was spring again.

Feel better okay.

Kris

[Guest guest]

Awww, Kami - vent away, dear one. Pity Partiers join in! We all have

these kinds of days. I'm 47 and if I allow myself, I can see the

downward spiral as well. But, I refuse to give up and let this disease

take over. I have my days when I just want to stay in bed all day. We

are all aging - that's a fact of life. I'm determined to find " new "

ways of doing things - like using scissors to cut open the Splenda

package instead of trying to tear it.

I hope your Rheumy or his associate will get back with you soon. As

much as we all hate Prednisone, sometimes it is our saving grace in

order to get through this pain...........Doreen

I am starting to feel like a lil old lady! Please don't anyone take

offense to that statement..... I am officially old according to my

daughter.

I turned 39 last week and seeing the downward spiral my life has taken

this year... I am starting to FEEL old and I HATE IT. I think that RA

rearing it's ugly head into my life on my birthday last year has made

me depressed because I HOPED it would have been better by THIS

birthday. Age has never mattered to me... It was only a number and

when I FELT good, life was great. Life sucks right now. I am flaring

in the worst possible way and I am blaming the %^$#@ & !!! weather.

I am having pain in my: hands, fingers, elbows, hips, knees, feet, and

once again my toes. If I could pinpoint the WORST pain, it has to be

in my elbows and then my hands/fingers. Gone are the days of being

able to tie my shoes comfortably, peeling a banana, and today the

ultimate slap in the face so to speak: I couldn't open a splenda

packet. I found myself looking at slip on shoes this morning....

I felt the best on MTX and Humira together. Humira alone, even though

I inject every 10 days, is NOT cutting it..... I do have a call in to

my rheumy and am hoping he can see me this week. I am pretty sure he

will put me on Prednisone (YAY! Weight gain! *sarcasm*) and see me

within a few days unless, of course, he is on vacation. Maybe he can

come up with a better option.

So all together now.... 1...2...3..... AWWWWWWWWWW.

I feel so much better! :-)

*~ Kami ~*

[Guest guest]

Kami and group;

 

Kami your sarcasm and complaints is to much for me so I am ROFL.  Please let me

explain!  Yes, you may be old now but wait she will catch up with you and than

see who's old lol. 

 

My mommy is 75 and I have been catching up with her every decade.  I am 55.  It

will be soon that there is no difference in our looks.  We will appear to be

twins in another decade, we may appear that now.  People who first meet me and

mommy ask if we are sisters haaaaaaaa. 

 

I am truly sorry to hear you are having so much pain.  Can't open a splenda

packet that's pretty painful.  Don't gain to much weight or while putting socks

on will be like a gymnastic or acrobat act lol. 

 

Hope you have better days.  Have a nice Thanksgiving. God bless and take care. 

Injoyed your post.

 

gentle hugs

Clora

 

**************************************************  

 

From: ~ Kami ~ <kamilleon@...>

Subject: [ ] I'm having a pity party! Feel free to join!

" " < >

Date: Monday, November 24, 2008, 9:25 AM

I am starting to feel like a lil old lady! Please don't anyone take offense to

that statement... .. I am officially old according to my daughter.

I turned 39 last week and seeing the downward spiral my life has taken this

year... I am starting to FEEL old and I HATE IT. I think that RA rearing it's

ugly head into my life on my birthday last year has made me depressed because I

HOPED it would have been better by THIS birthday. Age has never mattered to

me... It was only a number and when I FELT good, life was great. Life sucks

right now. I am flaring in the worst possible way and I am blaming the %^$#@ & !!!

weather.

I am having pain in my: hands, fingers, elbows, hips, knees, feet, and once

again my toes. If I could pinpoint the WORST pain, it has to be in my elbows and

then my hands/fingers. Gone are the days of being able to tie my shoes

comfortably, peeling a banana, and today the ultimate slap in the face so to

speak: I couldn't open a splenda packet. I found myself looking at slip on shoes

this morning....

I felt the best on MTX and Humira together. Humira alone, even though I inject

every 10 days, is NOT cutting it..... I do have a call in to my rheumy and am

hoping he can see me this week. I am pretty sure he will put me on Prednisone

(YAY! Weight gain! *sarcasm*) and see me within a few days unless, of course, he

is on vacation. Maybe he can come up with a better option.

So all together now.... 1...2...3... .. AWWWWWWWWWW.

I feel so much better! :-)

*~ Kami ~*

[Guest guest]

Corinne and group;

 

Welcome to our humble group Corninne.  Forgive me for being so late on welcoming

you.  I read the text than I write. I tend to get behind.  

 

I live in the USA, South Carolina.  I have OA also and Fibro.  I know exactly

how you feel.  I have RA and Bursitis.  They take turns giving me pain.  I think

they know each other real good. 

 

Sorry to hear you have the dreaded arthritis.  This is a great group here. There

is a lot of info here I hope you enjoy our group as much as I do. 

 

gentle hugs

Clora

 

*****************************************************

 

From: Corinne Drover <Corinne@...>

Subject: Re: [ ] I'm having a pity party! Feel free to join!

Date: Monday, November 24, 2008, 11:23 AM

Hi all,

I am 47 and living in Ottawa. I have been diagnosed with RA and Fibro

and OA for about 7 years now.

Was wondering if anybody on this list from Ontario....

Corinne

[Guest guest]

Bonnie and group;

 

Bonnie that sounds so wonderful walking on the farm. I am so sorry you can't do

this anymore.  I too can't walk around anymore. 

 

I love taking a walk through the neighborhood and saying hi to everyone.  I

can't even walk to the mail box with out hurting so bad.  I understand how you

feel. 

 

I hope your new medicine helps.  I hope the meetings with your pastor helps

out.  I too use to say the wrong things to my pastor haaaaaaa. And end up

getting help for my remarks lol. 

 

Gentle hugs

Clora

 

*****************************************

 

From: Bonnie <tiredtaz@...>

Subject: [ ] Re: I'm having a pity party! Feel free to join!

Date: Monday, November 24, 2008, 5:50 PM

Kami,

OMG, I feel so bad for you... I truly hope you feel better real soon!

These diseases are awful... I was feeling so low yesterday, I

actually told the preacher that hell would be a walk in the park...LOL

Opps! That was a bad idea... Now I have a meeting scheduled with him

to discuss my emotional distress....

Every week I spend my sunday afternoons at my grandmothers 40 acre

farm... Pre-disease, I would spend my time walking around and

visiting all the animals or helping to feed/water them all... Now I

sit around the kitchen table with my aunts, who are all in there early

and late 70's, comparing aches and pains.... I'm only 33! I

shouldn't have issues with severe aches and pains... (by the way I

realize there are some much younger then me, dealing with more then I

am.... I'm just joining the pitty party)

On a bright note, my mtx was increased as of last night, and I already

noticed a difference as I felt a little bit better today... Today

was the first day in three weeks that I didn't have tears in my eyes

as I was attempting to do my version of walking (or gimping).

Tomorrow, I'll start my Rituxin infusions... (I'm so scared I can

hardly function)... My doc says this could be my miracle... The

answer to all my prayers... We'll see...

I'll keep everyone posted on the results, perhaps you can talk to your

doctor about this as well...

Hope you are feeling a bit better this evening... Try a warm bath...

bubbles are always a fun way to feel young again...

Bonnie

[Guest guest]

Kris and group;

 

HAPPY BIRTHDAY KRIS AND KAMI. 

 

It has been unusually cold this time of the year for South Carolina.  We been

getting freezing at night.  Usually it don't start freezing at night till the

end of December.  Our days are usually 50 and 60s. 

 

I spent my life in Cleveland Ohio, so I know people up north has to endure

freezing weather during the day as well.  Yes it's going to be a very cold

winter.  So, get out all that heavy snow gear and layers of clothing to stay

warm.  I am glad it's winter here. Summer is to hot for me being from the north.

 

My feet gets cold even when its warm.  I put them in a bucket of warm water.

That seems to help to make them warm. Than I quickly put on my socks.  I hope

you get some warm days for Thanksgiving. 

 

I got up this morning to finish my Post from yesterday and wow 40 post.  I

thought wow someone is getting looked after today.  Cause usually when there is

that many post some one is hurting or having problems.  I just read all the post

and bless you all.  I am touched how wonderful this group is. 

 

gentle hugs

Clora

 

************************************************

 

 

 

From: Kris Allan <aradiamoon2006@...>

Subject: [ ] Re: I'm having a pity party! Feel free to join!

Date: Monday, November 24, 2008, 11:39 PM

Hello Kami,

i am sorry to hear of your pain. I too am having a flare up due to the weather

as well. As you know i have Lupus, as well as firbro and RA. And i too have a

birthday coming November 26th i will be 43, and feeling 93 these days. And wear

i live sort of the dessert, in central washington. Seems like the winter is

going to be early this year. Last night it was down past 30 a few degrees. And

each year my Lupus gets worse, i was in remission for a few months last year.

And the only rhemy in this twon does not take my medical. So i have to go to

Wenatchee to see the rhumatologist. And i find myself going to bed around 8:30

anymore like i did when i was five, lol. I love the changing seasons and fall is

my favorite time of year, after that it gets to cold. And i know you all feel

like when your feet do not thaw out for the day your hole body refuses to get

warm. But during summer it gets up in triple digits and way too hot. My hands

are sweeling up like

baloons, my rings get stuck and it is painfull, i have to try to remember to

take my rings off before bed, but even now that is getting to be really early

about 7:00 pm. The worst part of the day is about 3 to 4 in the morning. So,

anyway i will join the pity party. Now i wish it was spring again.

Feel better okay.

Kris

[Guest guest]

We all have to fight the pity parties, Kami. One thing: when I started Humira,

10 months

ago, my dr insisted that I continue my MTX injections. He decreased the MTX

from 25

mg/week to 17.5 mg per week.

Ask your dr about starting the MTX back up. Mine said that the Humira alone

would not

help and it sounds like that's true with you. My MTX makes me slightly nauseous

for 12

hours and the Humira gives me a headache for about 12 hours. So I take them at

bedtime and I take them on different nights. (Humira is every other wk, MTX

every wk).

It's definitely no fun, but definitely worth the fight. Hang in there!

Joy

>

> I am starting to feel like a lil old lady! Please don't anyone take

> offense to that statement..... I am officially old according to my

> daughter.

>

> I turned 39 last week and seeing the downward spiral my life has taken

> this year... I am starting to FEEL old and I HATE IT. I think that RA

> rearing it's ugly head into my life on my birthday last year has made

> me depressed because I HOPED it would have been better by THIS

> birthday. Age has never mattered to me... It was only a number and

> when I FELT good, life was great. Life sucks right now. I am flaring

> in the worst possible way and I am blaming the %^$#@ & !!! weather.

>

> I am having pain in my: hands, fingers, elbows, hips, knees, feet, and

> once again my toes. If I could pinpoint the WORST pain, it has to be

> in my elbows and then my hands/fingers. Gone are the days of being

> able to tie my shoes comfortably, peeling a banana, and today the

> ultimate slap in the face so to speak: I couldn't open a splenda

> packet. I found myself looking at slip on shoes this morning....

>

> I felt the best on MTX and Humira together. Humira alone, even though

> I inject every 10 days, is NOT cutting it..... I do have a call in to

> my rheumy and am hoping he can see me this week. I am pretty sure he

> will put me on Prednisone (YAY! Weight gain! *sarcasm*) and see me

> within a few days unless, of course, he is on vacation. Maybe he can

> come up with a better option.

>

> So all together now.... 1...2...3..... AWWWWWWWWWW.

>

> I feel so much better! :-)

>

> *~ Kami ~*

>