questions?

March 19, 2001

I'm sure it's ok to take your med's in the morning, but taken them with water. When I have test done I normally have to take my med's But not with milk products. I would check with your doc thou, just to be on the safe side. You don't want to take your med's and then the doc says that you shouldn't have.

Take Care

Matt Hastings (AIH 94)

http://AutoImmuneHepatitis.HomeStead.com

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--- Cheryl wrote:

> Hi all,

> I'm back from taking 14 students to State

> Academic Decathlon. We did

> OK. But it's a bit much for me to do all that. I'm

> glad it's over. I

> have AIH and autoimmune cholangitis, colitis, so

> far. But I have two

> questions: My feet, particularly the bottom of them,

> are really hurting.

> The pain is radiating up my legs. They feel kind of

> tingly, too. Does

> anyone else have that? I'm on Pred 30 mg. and Imuran

> 100 mg., Prilosec,

> synthyroid, calcium, and a diuretic. If anyone can

> think of something,

> I'd be interested in hearing what you think. The

> other questions deals

> with going in for my test on Thursday. I'm going in

> for an ERCP(checking

> for PSC). I'm not supposed to eat or drink after

> midnight. I know I will

> not be cognizant of anything until late in the

> afternoon. So what about

> my drugs? Particularly the pred. If no one knows, I

> will call the dr and

> ask what they want me to do. I just thought I'd see

> what others of you

> have done with your meds when you're going in for

> tests. LOL, Cheryl ID

> >

March 19, 2001

In a message dated 3/19/01 7:46:35 PM Pacific Standard Time, lrb@... writes:

Matt, Thanks for the answer. I'm sure you're right. I need to check with

the doctor to know for sure what he wants. It's so hard to get any info

from his office. I have complained. I guess I'll try again. Maybe

something has changed since the last time I had to get a hold of him.

LOL Cheryl ID

Cheryl, this one is important. If you guess wrong, the tests could be invalid or you could be in trouble from missing your meds.

Harper

March 19, 2001

Hi Cheryl,

I'm glad your trip is behind you. You didn't need the added stress. Re:

meds and ERCP: I don't have AIH, but have many other autoimmune diseases. I

would advise you to ask your doctor. Depending upon the test, sometimes I

was told to take them in the AM with minimum amount of water and other

times I was told to take them after the test. Some of my meds which were

twice a day, I only took the evening dose. Again, I would ask your doctor.

Debbie (Tommy's Mom)

> [Original Message]

> From: Cheryl <lrb@...>

> Liver Support Group < >

> Date: 3/18/01 9:07:15 PM

> Subject: [ ] questions?

>

> Hi all,

> I'm back from taking 14 students to State Academic Decathlon. We

> did

> OK. But it's a bit much for me to do all that. I'm glad it's over. I

> have AIH and autoimmune cholangitis, colitis, so far. But I have two

> questions: My feet, particularly the bottom of them, are really

> hurting.

> The pain is radiating up my legs. They feel kind of tingly, too.

> Does

> anyone else have that? I'm on Pred 30 mg. and Imuran 100 mg.,

> Prilosec,

> synthyroid, calcium, and a diuretic. If anyone can think of

> something,

> I'd be interested in hearing what you think. The other questions

> deals

> with going in for my test on Thursday. I'm going in for an

> ERCP(checking

> for PSC). I'm not supposed to eat or drink after midnight. I know I

> will

> not be cognizant of anything until late in the afternoon. So what

> about

> my drugs? Particularly the pred. If no one knows, I will call the dr

> and

> ask what they want me to do. I just thought I'd see what others of

> you

> have done with your meds when you're going in for tests. LOL, Cheryl

> ID

>

March 19, 2001

Matt Hastings wrote:

> I'm sure it's ok to take your med's in the morning, but taken them

> with water. When I have test done I normally have to take my med's But

> not with milk products. I would check with your doc thou, just to be

> on the safe side. You don't want to take your med's and then the doc

> says that you shouldn't have.

>

> Take Care

>

> Matt Hastings (AIH 94)

>

Matt, Thanks for the answer. I'm sure you're right. I need to check with

the doctor to know for sure what he wants. It's so hard to get any info

from his office. I have complained. I guess I'll try again. Maybe

something has changed since the last time I had to get a hold of him.

LOL Cheryl ID

February 21, 2003

Bonnie ...in a nutshell yes...it looked as if I had a case of the permanent

flushes....it disappeared altho have some broken veins left on my face. To

deal with dryness, I made sure I drank adequate amounts of pure water and

also hunted down the best 'non perfumed' face cream. Look at the

ingredients of these creams, some of them contain a lot of chemicals which

youll find the skin on your face cant deal with. I bought Clinique but even

then I checked out ingredients. No lanolin as it'll make your face pimply.

After coming off pred my skin has gone back to normal.

Jan

[ ] Questions?

> I recently reduced my dosage of Prednisone and it seems like ever

> since I did that my face dried up and has a reddish tint to it. Has

> anyone ever experienced this? Does anyone have any recommendations?

> I try to keep lotion on it but it is still dry and itchy.

>

August 12, 2004

Hi Ann,

I have DDD and stenosis....C3-7 compressed and a herniated L5.....The

Ortho also wanted to operate on me and I said " NO " ! My AP, MD had me

try Colchicine IV's....The IV takes about 2-3 minutes....I had a

total of 5 plus one booster....That was last October....It sure did

help. I was suffering from severe headaches as well as spine

pain...I show RA on x-ray, but negative in blood work...I do have

Lupus and Raynauds...My Lupus is in remission due to antibiotic

therapy.

Please feel free to e-mail me. I have an 8 page article on the

colchicine therapy that I cn e-mail you.

Hope this helps.....

Barb

> Hello All,

> I am wondering if any one in this group has Arthritis in the spine?

> My Dr. says I have DDD plus Stenosis. Does anyone have this? If so

> what do you take for it? I am so painful and nothing has helped. I

am

> trying so hard to avoid surgery, but I don't know-----.

> God Bless

> Ann

> vjeemt2@y...

May 17, 2006

~~~hi kim, it's suz here, welcome aboard!! i'll get you started in

the right direction...

>I am getting ready to make the committment. I

> have a few questions.

~~~first of all, good for you for listening to your body and

searching out your own answers. this eating style is very good for

helping the body re-stabilize and get candida symptoms into check,

but its also just a great way to eat, period!

>I have been reading through some of the MANY

> files and have questions:

>

> 1. No beans? ...Ever? I love my hummus... no lentils? I love my

> pappadums...

~~~in the beginning phases of the diet beans are not on the menu,

they are high in carbohydrates.

> 2. What about coffee? Can I have decaf?

~~~the caffeine in coffee puts more stress on an already weakened

system, if you can begin adding decaf to your regular and slowly wean

off the caffeinated coffee, that's a great first step.

> 3. For the first stage of the diet, no avocado?

~~~avocado is also pretty high in carbohydrates, so it's recommended

to keep it off the menu in the beginning phases of the diet. some

people can tolerate it just fine, i think because of its high fat

content. i ate it a few times a week during my beginning phase of the

diet, as i was living in southern california and had an abundant free

supply from neighbors and friends. it didn't seem to bother me or

hinder my success, but others report reacting badly to it.

> 4. Is yoghurt that is plain and organic with no sugar or

sweeteners

> a no-no?

~~~best to stay off the yogurt. bee recommends that most candida

sufferers cannot tolerate any dairy except for butter (because butter

is mostly made of fat unlike other dairy). you can get the good

probiotic effects from homemade sauerkrauts & kimchi. recipes are in

the files, they're easy to make.

> 5. No gluten free grains like quinoa?

~~~not in the beginning, even though they're gluten free, they're

still high in carbohydrates, and we work on feeding our bodies

without overfeeding the candida.

>

> I have this rash that looks like a pigment discolouration on my

neck

> and chest. It has started to be itchy when I eat certain things.

> And it's all things that are no-nos on the candida diet - dairy,

> wheat, soy (bigtime) but also garlic seems to trigger the itchiness

> and I get a swollen tingly mouth with little white spots. I used

to

> get this when I'd eat peaches.

~~~~dairy (aside from 'beautiful butter'), wheat and soy give a lot

of people trouble, candida or not. garlic is a very potent

antifungal, so it may be triggering the same skin reaction as the

other foods in the form of a healing reaction because its stirring up

the internal fungus/yeast. skin reactions are a way of your body

externalizing an internal imbalance, so you are on the right track by

beginning to switch over to our healthy program...

>

> Thanks for your help!

>

> Kim

~~~hope that helps for now... ~ suz

May 17, 2006

>

> Hi Bee

==>Hi Kim, I'm glad you are part of our group.

>

> I have been " lurking " for a couple months, trying to figure out if

> this is truly the solution I need, and all signs are pointing to

> YES. I realize that my body has been telling me for years that

this has been going on. I am getting ready to make the committment.

==>Good for you on making that decision. Candida is not something to

fool around with because as it further depresses the immune system

other diseases can occur.

> I have a few questions. I have been reading through some of the

MANY > files and have questions:

<snip> Suz's answers to your question were right on!

> I have this rash that looks like a pigment discolouration on my

neck and chest. It has started to be itchy when I eat certain

things. And it's all things that are no-nos on the candida diet -

dairy, wheat, soy (bigtime) but also garlic seems to trigger the

itchiness and I get a swollen tingly mouth with little white spots.

I used to get this when I'd eat peaches.

==>Remember that your body externalizes healing to the skin to

protect vital inner organs. The itching is caused by the immune

system putting out histamines to handle toxins and to heal. Good

foods like garlic can trigger immune responses, just like toxins (soy

& wheat) or foods that feed candida like dairy (except butter), but

they are healing reactions. To understand better read the articles

in the Allergies and Healing Reactions Folders.

>

> Thanks for your help!

You are welcome!

Bee

May 22, 2006

Thanks for the answers to my questions, Suz and Bee. This is so

helpful to have this group since everyone in my life thinks I am crazy

right now to do this diet. I have been lucky enough to never be

terribly sick, just alot of annoying problems that all add up to this

yeast overgrowth. At least my family now has experienced how sensitive

I am to foods now since I spent the weekend at the cottage.

I will read those files right now!

Kim

April 17, 2009

hi group.

I just want to know when is it time start biologics? I know you have to fail

two dmards..But what do they consider failer? concrete evidence like x ray

damage or worsening of lab work..or..My opionion that I am not getting enough

relief??

I have rheumatoid factor positive RA.started treatment may 2008.I have been on

a rollar coaster..I have been on oral mtx.than plaquanil and arava. arava was

causing side effects..so, I went back to injectable mtx with the plaquanil..I am

still having considarble amount of flares..when I start to notice some

improvement than a flare comes on like every other month..but now I have been on

the injectable mtx for 12 weeks and flare for 4 to 6 weeks.I just dont feel good

and in pAIN..AND THE LAST TIME HE SAW ME HE SAID MY RA WAS MANGEABLE. than why

havent I been painfree within this last year but only a few weeks..

Any thoughts would greatly be appreciated.

diane in ohio

April 17, 2009

Diane,

I did not have to fail two dmards to start biologics, I was offered them from

the first day however I chose at that time mtx only.

in PA

[ ] questions?