Re: hey im new and am looking for advice

[Guest guest]

             Hi , I am 43yrs old and I was dxed about a year

and a half ago

with RA and had 2 positive markers for Lupus, at 17 I had a Xray that showed

arthritis in my spine and hips of a 40 yr old but never went to a rheumatolagist

until 1.5 yrs ago, after my joints were disfigured. If I would have been dxed

sooner and was on the right meds I might have saved my joints. Once the damage

is done there is no revercing it other than surgery.

I would highly recomend getting on the right meds as soon as you can. Do you

have a rheumatoligist? If not do the best you can to get one, I know that it

might be hard with out insurance but the alternative is more joint damage.

                                       

......Randy....

________________________________

From: sarah_70098 <sarah_70098@...>

Sent: Fri, November 5, 2010 10:45:49 AM

Subject: [ ] hey im new and am looking for advice

 

Hello everyone! I'm 24 and was diagnosed with RA a year and a half ago.. It all

started with a stiff neck 3 yrs ago that still won't go away its just getting

worse, costrochronditis which is finally gone and a swollen ring finger that

went down with a cortisone shot. I've been put on predisone for a month which

didn't help my neck then plaquenil for about a year anbd that didn't help. Then

was on sulfasaline which didn't do anything either. They then thought maybe my

neck is more of a fibromyalgia problem and gave me a few meds to try for that

and they just gave me headaches and made me more tired. So currently I'm on no

meds because I'm sick of all the side effects and getting frustrated because

nothing is helping and the drs don't seem to care and just go here try this med.

I heard maybe going gluten free might help.. I have been doing that for almost

two wks but read it'll take a month before I notice anything. I'm just not sure

what to do now.. I do not have good insurance and don't want things to keep

getting worse but I do not like my current dr who took me a couple months to

even find that accepted new patients.. Any advice?!

Thanks! -