Re: I must take a moment and commend this group........

[Guest guest]

Joanna,

Today I feel OK...and can walk with a slight limp. My hand is deformed but

otherwise I look fine.

Other days, I can't get out of bed.

Your sister is fortunate to have you.

Judith

________________________________

From: Joanna S <joannaswank@...>

Sent: Fri, October 30, 2009 12:16:58 AM

Subject: [ ] I must take a moment and commend this group........

 

I joined this group and other arthritis ones because of several reasons:

1) My sister has RA

2) The doctors say I have arthritis (fortunately not that bad yet) and possibly

dormant RA

3) I volunteer for the arthritis foundation and wanted to know more about what

is going on.

But the open support I see for each other touches me. My sister is often shunned

becuase she looks healthy. She'll par in handicap spots and get glared at

because she looks " fine " . But 30 minutes later and she is struggling to walk

back to the car.

I am going to tell her about this group because I think its the ideal support

group she needs.

Thanks

Joanna

[Guest guest]

Welcome, Joanna and I hope your sister will also join and become a part of this

awesome group. I pray your diagnosis of " possibly dormant RA " does not come to

fruition. This disease is a horrible one with no cure and no guaranteed combo of

meds that will work for all of us - its a crap-shoot until we each find our own

individual combination of meds that will prayerfully throw us into remission. At

this point in my life (without health insurance), I pray for pain freedom -

which is rare - but I keep plugging away and never give up.

There is an awesome website http://www.butyoudontlooksick.com/ that addresses

the " But You Don't Look Sick " part of this illness. Take special note of The

Spoon Theory. Its been a mainstay for me and several others here.

I look forward to hearing more from you and your sister. Again, welcome and have

a blessed day..... Doreen

>

> I joined this group and other arthritis ones because of several

> reasons:

> 1) My sister has RA

> 2) The doctors say I have arthritis (fortunately not that bad yet)

> and possibly dormant RA

> 3) I volunteer for the arthritis foundation and wanted to know more

> about what is going on.

>

> But the open support I see for each other touches me. My sister is

> often shunned becuase she looks healthy. She'll par in handicap

> spots and get glared at because she looks " fine " . But 30 minutes

> later and she is struggling to walk back to the car.

>

> I am going to tell her about this group because I think its the

> ideal support group she needs.

>

> Thanks

>

> Joanna