Guest guest Posted December 9, 2008 Report Share Posted December 9, 2008 Well, its been a month since my surgery and I've been off the enbrel now for almost 2 months. I miss my enbrel!!! I was told that I could start it a month after my surgery but have not yet. I went back to work on the 20th of november and since then have been deteriorating. My Hands hurt like no tomorrow feels like someone is hitting them with a hammer and they get tinglely now in the finger tips. My feet Hurt when I walk feels like walking on broken glass and they get tinglely as well. Also, I have been getting the cramps in the legs in the morning from knee to ankle sometimes I can relieve them right away and other times it takes up to 10 mins for them to go away. The popping, snapping of my joints every time I move causes even more pain. No one seems to understand the pain I am in. I have basically stopped telling the people around me about how I feel and play off that I am ok. In all reality I'm not. I don't want to worry them I don't want to scare them. _______________________________________ No viruses found in this outgoing message Scanned by iolo AntiVirus 1.5.3.5 http://www.iolo.com Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 9, 2008 Report Share Posted December 9, 2008 Oh , It's horrible that you are having so much pain now being off your Enbrel. Bad that your doctor hasn't let you go back on it yet. Maybe you should call and tell him you are in such pain without it. Best of luck to you! Will keep you in my thoughts and prayers. soft warm hugs, Debbie L > > Well, its been a month since my surgery and I've been off the enbrel now for almost 2 months. I miss my enbrel!!! I was told that I could start it a month after my surgery but have not yet. I went back to work on the 20th of november and since then have been deteriorating. > > > > _______________________________________ > No viruses found in this outgoing message > Scanned by iolo AntiVirus 1.5.3.5 > http://www.iolo.com > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 9, 2008 Report Share Posted December 9, 2008 ((((())))), I'm sorry you are hurting so badly. Have you spoken to your Rheumy yet? Why haven't they allowed you to start back on your Enbrel yet? Are you able to take any other meds to help with this pain? My prayers are with you. Keep us posted........Doreen Well, its been a month since my surgery and I've been off the enbrel now for almost 2 months. I miss my enbrel!!! I was told that I could start it a month after my surgery but have not yet. I went back to work on the 20th of november and since then have been deteriorating. My Hands hurt like no tomorrow feels like someone is hitting them with a hammer and they get tinglely now in the finger tips. My feet Hurt when I walk feels like walking on broken glass and they get tinglely as well. Also, I have been getting the cramps in the legs in the morning from knee to ankle sometimes I can relieve them right away and other times it takes up to 10 mins for them to go away. The popping, snapping of my joints every time I move causes even more pain. No one seems to understand the pain I am in. I have basically stopped telling the people around me about how I feel and play off that I am ok. In all reality I'm not. I don't want to worry them I don't want to scare them. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 9, 2008 Report Share Posted December 9, 2008 I haven't been able to see my rheumy because i can't afford to go. I can't afford the $40 copay for my ins. So in the meantime I have been taking either demrol when at work or precocets when I am at home. [ ] Re: Rant ((((())))), I'm sorry you are hurting so badly. Have you spoken to your Rheumy yet? Why haven't they allowed you to start back on your Enbrel yet? Are you able to take any other meds to help with this pain? My prayers are with you. Keep us posted........Doreen Well, its been a month since my surgery and I've been off the enbrel now for almost 2 months. I miss my enbrel!!! I was told that I could start it a month after my surgery but have not yet. I went back to work on the 20th of november and since then have been deteriorating. My Hands hurt like no tomorrow feels like someone is hitting them with a hammer and they get tinglely now in the finger tips. My feet Hurt when I walk feels like walking on broken glass and they get tinglely as well. Also, I have been getting the cramps in the legs in the morning from knee to ankle sometimes I can relieve them right away and other times it takes up to 10 mins for them to go away. The popping, snapping of my joints every time I move causes even more pain. No one seems to understand the pain I am in. I have basically stopped telling the people around me about how I feel and play off that I am ok. In all reality I'm not. I don't want to worry them I don't want to scare them. ------------------------------------------------------------------------------ No viruses found in this incoming message Scanned by iolo AntiVirus 1.5.3.5 http://www.iolo.com _______________________________________ No viruses found in this outgoing message Scanned by iolo AntiVirus 1.5.3.5 http://www.iolo.com Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 9, 2008 Report Share Posted December 9, 2008 I decided that I have put myself through enough pain and going to start taking it sunday again. Re: [ ] Rant So, , what's stopping you from resuming your Enbrel? Sue On Tuesday, December 9, 2008, at 09:53 AM, Massey wrote: > Well, its been a month since my surgery and I've been off the enbrel > now for almost 2 months. I miss my enbrel!!! I was told that I could > start it a month after my surgery but have not yet. I went back to > work on the 20th of november and since then have been deteriorating. > ------------------------------------------------------------------------------ No viruses found in this incoming message Scanned by iolo AntiVirus 1.5.3.5 http://www.iolo.com _______________________________________ No viruses found in this outgoing message Scanned by iolo AntiVirus 1.5.3.5 http://www.iolo.com Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 9, 2008 Report Share Posted December 9, 2008 That's good, . I am also on a hiatus from Enbrel, because I've been sick with a sinus infection and a stomach virus. That is my self-diagnosis, LOL. I missed my Saturday dose and also my Tuesday dose, and so far I haven't had any RA pain, thank goodness. It's hard to know when to resume it after an infection. I'm always extra cautious. Sue On Tuesday, December 9, 2008, at 09:39 PM, Massey wrote: > I decided that I have put myself through enough pain and going to > start taking it sunday again. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 9, 2008 Report Share Posted December 9, 2008 my enbrel took about 2 weeks to stop working after going off of it. It varies to the person though. Re: [ ] Rant That's good, . I am also on a hiatus from Enbrel, because I've been sick with a sinus infection and a stomach virus. That is my self-diagnosis, LOL. I missed my Saturday dose and also my Tuesday dose, and so far I haven't had any RA pain, thank goodness. It's hard to know when to resume it after an infection. I'm always extra cautious. Sue On Tuesday, December 9, 2008, at 09:39 PM, Massey wrote: > I decided that I have put myself through enough pain and going to > start taking it sunday again. ------------------------------------------------------------------------------ No viruses found in this incoming message Scanned by iolo AntiVirus 1.5.3.5 http://www.iolo.com _______________________________________ No viruses found in this outgoing message Scanned by iolo AntiVirus 1.5.3.5 http://www.iolo.com Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 7, 2010 Report Share Posted May 7, 2010 ((((JENNIFER)))))BIG mom hug from dallas. Blessings to you. jane > > I haven't tried prednisone yet and I do have some here but take it with a grain of salt. Don't like what it does to me. I end up eating everything everytime I go on it. I usually go through this the week after an infusion. I recently switched infusion treatments from orencia which failed at 6 months to remicade. I am going to give it its 6 month march to see if it works. been on it since the end of march and just had my 3rd infusion about a week ago and i'm just very fustrated and stressed with everything. > > in maryland > [ ] rant > > I feel like I live life in nothing but pain, when is it my turn to stop suffering. When will I find the right medication to manage through this horrific desease that riddles my body full of pain. There isn't enough tramadol and percocet in this world to get rid of it. The remicade which I hope would work seems to be failing just like all the other meds I have been on over the years. > Day after day I try to live my life and the pain is there no matter what I do. I work as much as I can and feel like the more I work the more pain I am in. This time around its my hands and wrists. The only way I could type this was with the aid of my wrist braces that I have to wear sometimes to give them a break from the day in and day out pain that I live in them. > > I have had a bad day. My neighbors are stupid, the boy next door decided to heat some grease up to cook chicken nuggets and caught the damn house on fire. The people I live with who I thought were suppose to be my family forgot about getting me out. I was asleep in my room in the basement. kinda messed up isn't. The only thing he could say to me was, oh I thought you were at work. My truck was sitting right there in front of the house, how the heck could he miss it. On my way to get my daughter from school today, I saw a tanker truck crush an suv on the drivers side. The driver instantly died, I travel that stretch of road daily and it scared me. Then later on this evening I saw a car run over a motorcycle and the driver thrown into the middle of the highway where a tractor trailer ran him over. so yeah bad day today really bad day. > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 7, 2010 Report Share Posted May 7, 2010 Hi ,  I'm pretty new here, but wanted to say how sorry I am that you had such a bad day. Whenever I see accidents like that, I try to look on the bright side. At least it wasn't you in those wrecks. You're still here and although life is a challenge, there are still good things. I hope today brings you something that makes you smile....a beautiful flower, bright sunshine, birds singing....something that will bring you joy.  Blessings, Sheryl From: Massey <renandstimpy3@...> Subject: [ ] rant Date: Thursday, May 6, 2010, 11:05 PM  I feel like I live life in nothing but pain, when is it my turn to stop suffering. When will I find the right medication to manage through this horrific desease that riddles my body full of pain. There isn't enough tramadol and percocet in this world to get rid of it. The remicade which I hope would work seems to be failing just like all the other meds I have been on over the years. Day after day I try to live my life and the pain is there no matter what I do. I work as much as I can and feel like the more I work the more pain I am in. This time around its my hands and wrists. The only way I could type this was with the aid of my wrist braces that I have to wear sometimes to give them a break from the day in and day out pain that I live in them. I have had a bad day. My neighbors are stupid, the boy next door decided to heat some grease up to cook chicken nuggets and caught the damn house on fire. The people I live with who I thought were suppose to be my family forgot about getting me out. I was asleep in my room in the basement. kinda messed up isn't. The only thing he could say to me was, oh I thought you were at work. My truck was sitting right there in front of the house, how the heck could he miss it. On my way to get my daughter from school today, I saw a tanker truck crush an suv on the drivers side. The driver instantly died, I travel that stretch of road daily and it scared me. Then later on this evening I saw a car run over a motorcycle and the driver thrown into the middle of the highway where a tractor trailer ran him over. so yeah bad day today really bad day. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 7, 2010 Report Share Posted May 7, 2010 Hi... You confirm my suspicion that those of use with RA develop a special ability. It's like blind people can hear so well it's almost a super power. Mute people can learn to read lips, body posture and facial expressions much better. Our super power is what I call BS sensitivity. You'll notice the ability kick in instanly as you wait in the grocery store for Bob Andy (usually know as " Big A " or " Little A " or or " A's " or something like that) to fumble around looking for his wallet, the same wallet he's put in his right hip pocket for the last twenty years, but no... he has to look for it! No, it will never occur to him to shave that nasty ZZ Top beard hanging off his face or change that nasty ass t-shirt more than once a month. As your ankles swell and you can feel a flare comin' on in your shoulder (the dreaded one) and Bob asks for his change only in nickles (for whatever reasons God only knows) the cashier looks at him glassy eyed, as though the word " nickle " has never been used in human history. Your BS sensitivity indicates that if there were two brain cells between them that could light up it would be a miracle. Rheumatoid Arthritis is hard to live with. Case in point, relatives in my circle have decided their three year old has ADD ( 'cause they heard) and the treatment for this is to give him coffee! Gee, if only I were making it up! Stan Seattle, Sun! [ ] rant  I feel like I live life in nothing but pain, when is it my turn to stop suffering.  When will I find the right medication to manage through this horrific desease that riddles my body full of pain.  There isn't enough tramadol and percocet in this world to get rid of it.  The remicade which I hope would work seems to be failing just like all the other meds I have been on over the years.  Day after day I try to live my life and the pain is there no matter what I do.  I work as much as I can and feel like the more I work the more pain I am in.  This time around its my hands and wrists.  The only way I could type this was with the aid of my wrist braces that I have to wear sometimes to give them a break from the day in and day out pain that I live in them.  I have had a bad day.  My neighbors are stupid, the boy next door decided to heat some grease up to cook chicken nuggets and caught the damn house on fire.  The people I live with who I thought were suppose to be my family forgot about getting me out.  I was asleep in my room in the basement.  kinda messed up isn't.  The only thing he could say to me was, oh I thought you were at work.  My truck was sitting right there in front of the house, how the heck could he miss it.  On my way to get my daughter from school today, I saw a tanker truck crush an suv on the drivers side.  The driver instantly died, I travel that stretch of road daily and it scared me.  Then later on this evening I saw a car run over a motorcycle and the driver thrown into the middle of the highway where a tractor trailer ran him over.  so yeah bad day today really bad day. Quote Link to comment Share on other sites More sharing options...
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