Re: Told I was Hopeless

[Guest guest]

Dear Joy,

You should not be horribly sad. A lot of people have MS alrady and there are

a lot of hopes now for MS people. It might be a good time to have MS

compared with patients 10 years ago. LDN, CCSVI, Inclined bed therapy, BB

diets in addition to several drugs that are coming or are already on the

market.

Beleive it or not, there are a lot of tools to avoid this terrible feeling

and we are all hopeful that a new treatment is on the way. MS needs high

hope and you need also to share and talk. Do not keep it inside because it

might make things worse.

The first thing I advise you to do is to change your diet and look for what

kind of food is making things better or worse. Look for Best Bet Diet either

on this list or on thisisms.com forum. Second, try the inclined bed therapy.

Raise the bed for few inches from the head side. If things did not improve,

try the drugs them.

A CCSVI (http://www.thisisms.com/forum-40.html) surgery might be a good

approach also in your case but it is not widely available yet. It is

available in Poland.

Finally, having a high esteem is the best treatment for the down syndromes.

You are strong that you took the initiative to talk and to write about that.

Keep hopes that there is something better coming. If yo beleive in God, this

will help a lot as well because patience pays. You can try meditation

otherwise or reading stories about other people who are suffering because

looking at what others have faced will really help one feel better because

each human being is unique and have some qualities that makes her or him

better than 90% of people who lacks that.

bilal

--

Verily, with hardship comes ease.

On Mon, Feb 1, 2010 at 8:35 PM, joy inspired

wrote:

>

>

> I went to see a new PT today. I have weak legs, balance issues, problems

> sitting up, rolling over, etc. She said she didn't see why I needed PT.

> That MS pretty much was hopeless to treat. I left crying.

> I got home in tears and hubby said, I don't see why you went to PT (a

> different one last year) you are just wasting your money and other worse

> things.

>

> I told the pt the reason I was going to her was to help me get stronger and

> work on balance.

>

> I feel so horrible, sad.

>

[Guest guest]

It is NOT hopeless! Many people have regained muscle tone and balance with

exercise and/or P.T. combined with supplements, diet changes and, in some

cases, LDN.

Hugs. I wish I could be there to set your physical therapist straight. (and

your husband, too. He of ALL the people in your life should be supportive of

your efforts.)

Yvette

On Mon, Feb 1, 2010 at 7:35 PM, joy inspired

wrote:

>

>

>

>

> I went to see a new PT today. I have weak legs, balance issues, problems

> sitting up, rolling over, etc. She said she didn't see why I needed PT.

> That MS pretty much was hopeless to treat. I left crying.

> I got home in tears and hubby said, I don't see why you went to PT (a

> different one last year) you are just wasting your money and other worse

> things.

>

> I

>

[Guest guest]

Where there's life, there's hope. Visit this site for more information:

http://tinyurl.com/advice-to-msers

[Guest guest]

Avoid ones like that, like you would the plaque!

I am here to share with you I was in the hopeless situation at one time, too!

MS is not hopeless by any means nor are you.

There are avenues you can venture and see what fits you best, what may make the

most sense to you.

Have a Happy and Healthy Day,

Kopera M.H.

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________________________________

To: mscured

Sent: Mon, February 1, 2010 7:35:54 PM

Subject: Told I was Hopeless

I went to see a new PT today. I have weak legs, balance issues, problems

sitting up, rolling over, etc. She said she didn't see why I needed PT. That

MS pretty much was hopeless to treat. I left crying.

I got home in tears and hubby said, I don't see why you went to PT (a different

one last year) you are just wasting your money and other worse things.

I told the pt the reason I was going to her was to help me get stronger and work

on balance.

I feel so horrible, sad.

[Guest guest]

MS is like that! I DO NOT mean hopeless, I mean that with MS (the hidden

disease) not many weeks go by, certainly when it is new to you, without someone

upsetting you - " you can walk, you just can't be bothered " , " it's all a sham " ,

and other hurtful things. You have to toughen up and not let these comments get

to you. YOU know what it is like and YOU know your limits.

I gave up on PT/other medical " help " a long time ago and do my own thing. You

have to be strong and routined but it is worth it. I bought a big exercise ball

and practise sitting on it for balance, I do yoga, use an electric mini walker,

and make myself do at least a few steps with my walker every day.

I hope that next time you post on here you've either got your husband on your

side fighting for you, or you say " husband (a different one to last year) "

Janet

To: mscured

From: yourbeamofsunshine@...

Date: Mon, 1 Feb 2010 17:35:54 -0800

Subject: Told I was Hopeless

I went to see a new PT today. I have weak legs, balance issues, problems

sitting up, rolling over, etc. She said she didn't see why I needed PT. That

MS pretty much was hopeless to treat. I left crying.

I got home in tears and hubby said, I don't see why you went to PT (a different

one last year) you are just wasting your money and other worse things.

I told the pt the reason I was going to her was to help me get stronger and work

on balance.

I feel so horrible, sad.

[Guest guest]

Like the others have said, you can get better, it will just take some time.

When I was diagnosed 3 years ago, it was devastating, but I have learned a

lot since then. I had balance issues, weakness/soreness in all my limbs,

my mind was mush (I couldn't even carry on a decent conversation), and the

doctors wanted to put me on Avonex. I looked hard at that, and didn't like

the odds that it 'might' help, might do nothing, or might make me worse.

And, I was ready to quit my job since it requires that I think clearly and

quickly, and a required a lot of travel.

So I turned to alternative meds - at least they work on healing your body

instead of trying to mask the symptoms. I had all of my amalgams removed.

I started to stay away, or at least minimize the really high fat meals I

used to eat. I got on LDN. I started Andy Cutler chelation.

Over the last year, my symptoms have gradually decreased. I'm able to

think again. The neuropathy has decreased from constant and irritating to

barely noticeable when I get up in the morning. Most of my weakness/soreness

has disappeared.

I still have 'issues', and I pay attention to how I feel the day after all

meals so that I know to what to avoid in the future. I am not cured, but

I have come so far from when I first started wrestling with this that it

doesn't even really slow me down anymore.

Everyone is different, but don't let the PT's or MD's get you down over

it. The problem is the pharmaceutical company's drugs have failed miserably

for MS as they don't attempt to heal the body which is at least one of the

many contributing factors of MS. Because of that, many MD's/PT's do feel

that MS is basically helpless - but that is because they will not open their

mind to alternative treatments that heal the body.

It won't be easy, nor cheap, but you can overcome most, if not all of the

issues with MS. This group is a good start as there are many success

stories here. But as you will see from reading the posts, I don't believe any

of us are 'cured', but some of us do get it into 100% remission. A lot of

that depends on how much things have already progressed, and your commitment

to getting well - how much effort, time, and money you are willing to put

into overcoming your situation.

Chin up, there is a lot you can do to improve your health to overcome the

MS issues.

Best of luck to you!

Jim

____________________________________________________________________________

__________

In a message dated 2/1/2010 8:36:16 P.M. Eastern Standard Time,

yourbeamofsunshine@... writes:

I went to see a new PT today. I have weak legs, balance issues, problems

sitting up, rolling over, etc. She said she didn't see why I needed PT.

That MS pretty much was hopeless to treat. I left crying.

I got home in tears and hubby said, I don't see why you went to PT (a

different one last year) you are just wasting your money and other worse

things.

I told the pt the reason I was going to her was to help me get stronger

and work on balance.

I feel so horrible, sad.

[Non-text portions of this message have been removed]