Enbrel

[Guest guest]

Hi,

Currently my copay is $20.00 per month and it is delivered by Caremark. I am

wondering, what do you all do with your sharps containers? Mine is about

half full right now.

Heidi in Mass.

_

In a message dated 12/8/2008 11:06:52 P.M. Eastern Standard Time,

renandstimpy3@... writes:

I get my delievered as well. My co-pay is $35 but that is picked up through

the enbrel assist program. So in reality I get it for free at this point. I

can not afford even my co-pay.

Re: [ ] Enbrel

Hi Lynn,

I don't know what your pharmacy charges, but when I was on it and picked it

up, it would show that the insurance paid 1400.00 I had to pay 70.00

Heidibug

On Sat, Dec 6, 2008 at 9:32 AM, crj129 <_ (http://www.flmnetwork.com/)

_crj129@..._ (mailto:crj129@...) > wrote:

> My hubby has pulmonary fibrosis caused by RA. This came on all of a

> sudden in July of this year. He had never been diagnosed with RA or had

> any joint pain until July. His rheumy thinks that he has a rare case of

> RA where the RA attacks the lungs before the joints. He also goes to a

> pulmonologist. He is on prednisone and Imuran. His lung doc is

> considering Enbrel for him but his rheumy has reservations because he

> has seen studies that it can damage the lungs. The lung doc has seen

> the studies and does not agree with the studies.

>

> I went online and checked and our ins. covers Enbrel with auth but it

> looks like it is only covered 50%. Does anyone know the cost and how

> often you usually take it? I understand that it is an injection.

>

> Lynn J., in Louisiana

>

>

>

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[Guest guest]

well here we are suppose to take them back to our doctor but I have about 2

years of sharps containers and each time I goto the doc I forget to take them.

Sigh, I guess I'm forgetful.

Re: [ ] Enbrel

Hi Lynn,

I don't know what your pharmacy charges, but when I was on it and picked it

up, it would show that the insurance paid 1400.00 I had to pay 70.00

Heidibug

On Sat, Dec 6, 2008 at 9:32 AM, crj129 <_ (http://www.flmnetwork.com/)

_crj129@..._ (mailto:crj129@...) > wrote:

> My hubby has pulmonary fibrosis caused by RA. This came on all of a

> sudden in July of this year. He had never been diagnosed with RA or had

> any joint pain until July. His rheumy thinks that he has a rare case of

> RA where the RA attacks the lungs before the joints. He also goes to a

> pulmonologist. He is on prednisone and Imuran. His lung doc is

> considering Enbrel for him but his rheumy has reservations because he

> has seen studies that it can damage the lungs. The lung doc has seen

> the studies and does not agree with the studies.

>

> I went online and checked and our ins. covers Enbrel with auth but it

> looks like it is only covered 50%. Does anyone know the cost and how

> often you usually take it? I understand that it is an injection.

>

> Lynn J., in Louisiana

>

>

>

[Guest guest]

ya that is the way mine is right now which is great because if it was any other

way

i wouldn't be able to take it

Re: [ ] Enbrel

I get my delievered as well. My co-pay is $35 but that is picked up through the

enbrel assist program. So in reality I get it for free at this point. I can

not afford even my co-pay.

Re: [ ] Enbrel

Hi Lynn,

I don't know what your pharmacy charges, but when I was on it and picked it

up, it would show that the insurance paid 1400.00 I had to pay 70.00

Heidibug

On Sat, Dec 6, 2008 at 9:32 AM, crj129 <crj129@...> wrote:

> My hubby has pulmonary fibrosis caused by RA. This came on all of a

> sudden in July of this year. He had never been diagnosed with RA or had

> any joint pain until July. His rheumy thinks that he has a rare case of

> RA where the RA attacks the lungs before the joints. He also goes to a

> pulmonologist. He is on prednisone and Imuran. His lung doc is

> considering Enbrel for him but his rheumy has reservations because he

> has seen studies that it can damage the lungs. The lung doc has seen

> the studies and does not agree with the studies.

>

> I went online and checked and our ins. covers Enbrel with auth but it

> looks like it is only covered 50%. Does anyone know the cost and how

> often you usually take it? I understand that it is an injection.

>

> Lynn J., in Louisiana

>

>

>

[Guest guest]

Hi Lynn,

I've used the Sureclick for over a year now and I love it. I alternate

thighs and have never bruised from it. I usually bruise easily. Do you think

maybe he's pushing it too hard? I'm just grasping at straws to get an

idea. All you have to do is find the place and press the purple top down.

Make sure to let the alcohol dry completely before doing it so it doesn't

burn. That's all I got. Hope it gets better for you both!

Heidi in Mass.

A positive attitude may not solve every problem but it makes solving any

problem a more pleasant experience.

In a message dated 11/1/2009 9:15:55 A.M. Eastern Standard Time,

crj129@... writes:

I have been a member for a while but I don't post often. My hubby has

rheumatoid lung and pulmonary fibrosis caused by RA. His lung doc had tried to

get Enbrel approved by Blue Cross and it was denied as investigational for

rheumatoid lung. Recently his rheumy tried again as his joint xrays were

starting to show RA damage. Well, Blue Cross approved and we received our

first shipment last Thursday. Hubby has been taking enbrel since 9/2 using

free samples from his rheumy.

My question is for those that use Enbrel, do you use the sureclick or the

prefilled syringes? Hubby uses the sureclick and he gets a bruise where it

is injected. Do you also get bruises? Any suggestions or help would be

appreciated. Thanks.

Lynn in Louisiana, hubby with rhematoid lung caused by RA, Sept 2008

[Guest guest]

I have been a member for a while but I don't post often. My hubby has rheumatoid

lung and pulmonary fibrosis caused by RA. His lung doc had tried to get Enbrel

approved by Blue Cross and it was denied as investigational for rheumatoid lung.

Recently his rheumy tried again as his joint xrays were starting to show RA

damage. Well, Blue Cross approved and we received our first shipment last

Thursday. Hubby has been taking enbrel since 9/2 using free samples from his

rheumy.

My question is for those that use Enbrel, do you use the sureclick or the

prefilled syringes? Hubby uses the sureclick and he gets a bruise where it is

injected. Do you also get bruises? Any suggestions or help would be appreciated.

Thanks.

Lynn in Louisiana, hubby with rhematoid lung caused by RA, Sept 2008

[Guest guest]

Hi Lynn, my name is Renae & I've been on Enbrel for a short time but I use

the sureclick and have never had a problem. Last week I had a very minor

blood spot. Never any bruising & I bruise very easily. A lot of people I

know, however, do the syringes. I just don't think I could handle the

syringe. Hope this helps/ Nae in TX

[ ] Enbrel

>I have been a member for a while but I don't post often. My hubby has

>rheumatoid lung and pulmonary fibrosis caused by RA. His lung doc had tried

>to get Enbrel approved by Blue Cross and it was denied as investigational

>for rheumatoid lung. Recently his rheumy tried again as his joint xrays

>were starting to show RA damage. Well, Blue Cross approved and we received

>our first shipment last Thursday. Hubby has been taking enbrel since 9/2

>using free samples from his rheumy.

>

> My question is for those that use Enbrel, do you use the sureclick or the

> prefilled syringes? Hubby uses the sureclick and he gets a bruise where it

> is injected. Do you also get bruises? Any suggestions or help would be

> appreciated. Thanks.

>

> Lynn in Louisiana, hubby with rhematoid lung caused by RA, Sept 2008

[Guest guest]

I use the 25mg twice-weekly Enbrel that I have to mix myself. It

doesn't contain preservatives, so it doesn't sting when going in. I

get a bruise only when I hit a capillary. If blood comes out of the

injection site, I will get a bruise. I try to pick a site with no

blood vessels. I inject into my stomach.

Sue

On Nov 1, 2009, at 9:13 AM, crj129 wrote:

>

> My question is for those that use Enbrel, do you use the sureclick

> or the prefilled syringes? Hubby uses the sureclick and he gets a

> bruise where it is injected. Do you also get bruises? Any

> suggestions or help would be appreciated. Thanks.

>

[Guest guest]

Lynn,

When I was on EMBREL I took the injections it was alot easier for me & I never

got brusied. Just make sure you inject properly where instructed this really

helps.

Mousie in Calif.

>

> I have been a member for a while but I don't post often. My hubby has

rheumatoid lung and pulmonary fibrosis caused by RA. His lung doc had tried to

get Enbrel approved by Blue Cross and it was denied as investigational for

rheumatoid lung. Recently his rheumy tried again as his joint xrays were

starting to show RA damage. Well, Blue Cross approved and we received our first

shipment last Thursday. Hubby has been taking enbrel since 9/2 using free

samples from his rheumy.

>

> My question is for those that use Enbrel, do you use the sureclick or the

prefilled syringes? Hubby uses the sureclick and he gets a bruise where it is

injected. Do you also get bruises? Any suggestions or help would be appreciated.

Thanks.

>

> Lynn in Louisiana, hubby with rhematoid lung caused by RA, Sept 2008

>

[Guest guest]

Hi crj129:

I have been on Enbrel for 4 months now. I use the sureclick. I find it is most

helpful to take it out of the fridge and let it warm up first, because if you

inject it cold, you bruise, AND it burns going in. Plus, I ice my thigh 5

minutes before I use it (with the ice pack they send you), and then 5 minutes

after. I havent had a problem. Once in a while you do bleed, but I find that

its when I dont let it come to room temp that this happens, when the Enbrel is

cold, its thick and viscous.

Good Luck

OKD

[Guest guest]

Hi !

I've been on just about ALL the drugs there are out there. For me, Rituxan was

the key. It has put me into RA remission. Unfortunately, the current  aches &

pains, etc that I have are related to OA and other forms of arthritis where the

rituxan doesn't do anything for. Yes, as you stated, we are all different and

these drugs (the good, the bad & THE UGLY) do each of us totally different. At

least for what has worked on me, it's been since 2007 since my infusions and I

have gone to 2 differrent doctors other than the doc that was treating during

the rituxan infusion, and it's verified - I'm in remiision. No telling how long

it will be but I'm greatful.

 

If anyone is reading this that has OA, what types of treatment can be given for

that? I don't see my RA doc again until Feb and I'm just curious.

 

Good luck !  Oh, and giving yourself the injections is NOT bad - I had a

fear of needles but I got over it really quick. Enbrel actually worked for me

but I had a lot of bad side effects - unusual side effects = so honestly, I

think it's a good drug - if you can take it, and I hope & pray it is the answer

for you!!

 

in SC

> Sue and a,

>

> Thank you for telling me about your experiences with enbrel. I'm very

> glad that it works for you both. I see that it does work for lots

> of people.

>

> Do you still get flare ups once in awhile? Or is it like a

> remission? I

> know... I know... everyone is different and I'll have to see for

> myself.

> But I'm just curious?

>

[Guest guest]

Hi ,

 I know what you mean about the Enbrel shot hurting so bad. I gave

 myself the first shot on Christmas Day. I least I won't have any trouble

 remembering when I started on Enbrel. The shot hurt more than I expected

 it to. I was supposed to take the second shot on Friday morning, but I

 kept putting it off because I just didn't want to feel the pain. So I

 ended up doing it around 3:00 that evening. I did everything the same

 way except I used the opposite thigh about 5 inches from my knee. I

 didn't feel any pain at all. None whatsoever. I couldn't believe it at

 first. I thought maybe  the needle didn't come out. Then I heard the

 click when it was through injecting. I checked the window on the side

 and it was purple. So I checked my leg and it wasn't bleeding any. There

 was a red dot where the needle went in. I was so happy that there wasn't

 any pain this time. I hope it's the same way next Friday. Maybe it will

 be better for you next week too. I truly hope so. I was sitting in a

 chair both times when I did the injections. I don't think I could

 actually stick the needle in my leg. When I got the prescription filled,

 the pharmacist made a mistake and gave me the prefilled syringes instead

 of the SureClick. I had talked to my Reumy about which one I wanted to

 use. He told me most of his patients use the SureClick. When I opened

 that box and saw those needles I knew I couldn't use those. I hope you

feel better after reading  all the comments from the group.

 

Pam

NC

 Hi all,

 My husband gave me my first shot of " Enbrel " today with the sureclick

 pen.

 My God!! That hurt worse than any shot I've ever had in my life!!!!! I

 even iced it first. Let the alcohol dry first. And man did it hurt!

 Sorry, I just had to vent about that.

 Also.. I was wondering if anyone could please tell me what caused

 StitchingQueens sad passing??

 I'm so very sorry.

 Thanks,

 

 Michigan

 

[Guest guest]

Good for you, a! Enbrel must be the correct med for us. I am doing

very well with my half dosage, and saving myself and my insurance

company some money.

Sue

On Jan 28, 2010, at 1:25 PM, rascalsniche@... wrote:

> I just started doing the same thing in December Sue....I take the

> self mix

> 25 mg twice a week and dropped it down to once a week. I'm doing

> good with

> that dosage.

>

> Hugs..a