Re: Re: Rheumy don't want to prescibe pain meds

[Guest guest]

,

I empathize with and feel the same. I'm not a person with dependency issure.

I've had 3 children natural childbirth and I have a high tolerance to pain.

However, this pain is driving me insane. I can't sleep and walk the floor. I cry

at the drop of the hat and fear of losing my job because I can't do it anymore.

I plan to find an empathic doctor that will give me something for pain on those

days I can't stand it.

Judith

________________________________

From: " Normsgrl@... " <Normsgrl@...>

Sent: Thu, October 22, 2009 1:51:03 PM

Subject: [ ] Re: Rheumy don't want to prescibe pain meds

 

Thank you all for responding to my post. Your opinions and advice was

greatly appreciated.

Hi ,

[Guest guest]

Hi ! I have to drive over an hour now but I'm not sorry for my choice. I

live in a small city- about 40,000 people with only 2 ra doc's. One is a known

quack & the other one I saw for 4 years. I'm afraid I may have been

misunderstood by some of the group re: pain medicine. What I meant was this-

Sent from my iPhone

On Oct 22, 2009, at 2:51 PM, Normsgrl@... wrote:

[Guest guest]

I just sent a partial message and accidentally hit send!! Sorry!!

 

Hi ! (from in SC) I have to drive over an hour or so to my new doc and

I am not sorry for that one bit. I live in a small city, approx 40,000 people

with only 2 RA docs. One is a well known quack and the other one I saw for about

4 1/2 years. I'm afraid I may have been misunderstood by some of the group in

re: to pain meds. What I meant was this - if the doctor is NOT listening to your

problems, pain issues, whatever, then yes, I think you should change docs. My

example is this. I've got shoulder issues from 6 seperate dislocations over the

years. My last RA doc just wrote out RX's for percocet. I figured he knew best

and that was my only option. The doc he referred me to didn't listen to my

issues regarding my shoulders - not one bit. Claimed I had a sleeping disorder

when in reality I couldn't sleep because of the pain in my shldrs! THIS doc I am

going to now, put me on cymbalta for the nerve pain caused by the shoulder

damage + it helps my

fibro. SO = LONG story short = when you can't get the answers you need, go some

place else. I am no fan of pain pills = they are good for when you really,

really have no choice but other than that, there are so many drugs out there

that you just have to do the trial and error thing!

 

Good luck!

in SC

From: Normsgrl@... <Normsgrl@...>

Subject: [ ] Re: Rheumy don't want to prescibe pain meds

Date: Thursday, October 22, 2009, 2:51 PM

 

Thank you all for responding to my post. Your opinions and advice was

greatly appreciated.

Hi ,

I'm sorry you had to go through all of that. But I'm glad it all worked

out for you! I'm glad to see I'm really not alone in this situation.

Thank you for the web sites. I checked them out and I think they are

awesome! There are doctors mentioned that aren't on other lists of doctors

that I have access too. There was one that popped up that supposedly is only

1 mile away! Wow! Before...the only closest doctor I could find was my

current one. He is about 48 miles away while all the others were 1 1/2 miles

to 3 miles away. But I have reached the point where I will drive at least

the 1 1/2 miles to see another doctor.

I've never heard of this doctor that I found on the web site you sent. I

have a friend that is a nurse there at that office he is supposedly at. I

emailed her and asked if she has heard of him or knows him. I was talking

to her about this situation that I'm in last night and she didn't mention a

Rheumy here in town. Soooo... I'm checking it out. Thanks so much for

the info!

Hi Dottie,

Thank you also for your response.

Yes, everything you said is the same as what he says.

I'm sorry, I was only referring to medication for the pain. I didn't

mention the other anti inflammatory drugs that I've tried and am taking. He

started me on MTX and Predisone. The MTX didn't work out so he put me on

Sulfasalazine and the Predisone. Still wasn't enough to ease the pain so he

added Leflunomide. He now says there isn't anything more to do except go

on Humira or Enbrel.

I do understand that he is trying to lower the inflammation by using these

anti inflamatories. But I don't understand why I can't take something

only when the pain is unbearable. I'm only asking for something to take only

as needed basis. Not something to take all of the time, so it wouldn't be

masking the pain. If the anti inflamatories start working I don't see any

reason to take anything for pain. Just something to help me through a

night of a bad flare. So I'm not crying and squirming and pacing the floor

because I can't lay down and holding in my screams as not to wake up the

family and praying to God and thinking of drastic ways to end the pain through

out the whole night.

I'd rather put poison in my body once in awhile rather than on a regular

basis. Instead of letting me take something on a as needed basis for the

pain which would be once in a while, He us upping my Predisone that I will be

taking on a regular bases. I'm not real comfortable with that.

Hi ,

So far only been on MTX that made me sick. Sulfasalazine doesn't seem to

be doing anything. I've been on that for about a year now. And the

Leflunomide is causing my hair to fall out.

The doc says that all there is now left to do is go on Humira or Enbrel.

I've been reading posts and doing some research and I see there is plenty

other DMARDs I could be trying out first.

I'm going to go ahead and search for another Rheumy. Maybe they will try

other DMARDs. And also see about pain management specialist.

Thanks you!

Hi Nae,

Thank you too for letting me know I'm not alone in this situation. It

gives me some hope that everything will work out.

I've asked my GP if she could over see my RA condition and she said no.

But I did check out that website posted and found a Rhuemy right here

in town!! OMG! Well anyway.. I'm still checking him out and see if he is

still here or if my insurance covers him. But either way... I'm going to

find me a good Rheumy or else! And I won't stop until I'm satisfied!

Thank you so much!

Hi Annette,

Voltaren... there is one I can suggest. Thanks!

[Guest guest]

One of the fellows that I was seeing (along with a rheumy) once said

to me, " We're not concerned about pain; we're concerned about

inflammation. "

I don't think he really meant what he was saying or realized how bad

it sounded, LOL.

Sue

On Oct 22, 2009, at 6:54 AM, Mimi wrote:

> Hi - My Rheumy won't prescribe pain meds either. He recommends

> a pain management clinic, which IMHO would be the better place for

> managing chronic pain. The role of the Rheumatologist is to keep our

> disease activity to a minimum, so if you are having break-through

> pain, it could mean you need a change in your RA meds. What RA meds

> do you take? What is he treating your FMS with?

[Guest guest]

Hi Mousie:

I was so sorry to read that you are not feeling good, and in a lot of pain.  It

is so hard to deal with on a daily basis.

I know the Sed.Rate is supposed to be low, maybe 3o or under, I think.  When I

am in bad pain and flaring badly, my sed. rate has gone to over 70.  You must be

in agony, and I am so sorry about that.

Please rest when you can, and I hope you start to feel better soon.

 

Hugs,

 

Barbara

 

From: M A <pcortas1@...>

Subject: [ ] Re: Rheumy don't want to prescibe pain meds

Date: Saturday, October 24, 2009, 4:25 PM

 

Irish,

I too just finished my 2nd treatment of RETUXZIN on 9/11/09. I see that it stop

my pain for a few weeks but now I am back to my pain in my elbows, arms & feet

especially at night. I thought this treatmeant was to help stop the pain for

longer periods? I have notice that at night time besides the pain my body is

very hot all night does this happen to you? I am off work tempoarily & don't

know if I will be able to return to work since I am very fatigue all day & the

stiffness and my inflamation is still very hight level, I am at 130 sed rate

right now. Does anyone know what the normal rate should be at? I have my

Rhuemy's appt on 10/26 & I will have alot of questions for him. Hope you feel

better soon & I hope we get some answers soon.

Mousie in Calif.

>

> My Rheumatologist does not like prescribing pain meds to his patients

> either. But he will prescribe me darvocet. It does not get rid of the pain for

> me, but will put the pain at a point that I can deal with it. Lortab and

> vicodine (msp) makes me too loopy and so I just use the darvocet. I also will

> add tylenol along with it to help make the pain lesser so i can sleep.

> Every joint in my body hurts and swells with or without the RA meds. I tell my

> Rheumatologist this and he says that as long as I continue to over do

> things and not pace myself my joints will react. I have had 3 rounds of the

> Retuxin and they work for about 2 months and the flares seem to get worse each

> time showing up in different places each time. I too thought about changing

> RA doctor, but there is not but 2 in the city where I live and not having

> a car or any type transportation right now is a problem if I made an

> appointment with a doctor that I saw years ago 80 miles away. I hurt so bad

some

> times that I want to pull what little hair I have out of my head. I have

> worn down cringing my teeth from the pain in my hips joints when I walk. I

> started upping my walking routine evenings to help tire me out so I can sleep

> at least 4 hours a night with P.M. sleep meds without getting up and

> having to watch TV all night and not be in pain.

>

> Irish

>

>

>

>

[Guest guest]

" body is very hot all night does this happen to you? "

Yes this does happen to me. The last time I had my SED rate done it was

149. I read an article a few weeks ago that a normal SED rate was 17 I think.

Mine has been as high as 182 and had to be placed on prednisone and told by

my doctor to stay away from sick folk as getting an infection with a SED

rate this high could be dangerous for me. I catch every little cold my son

or daughter has. I used to catch strep throat every time my son or daughter

had it.

Irish