Guest guest Posted February 8, 2010 Report Share Posted February 8, 2010 Sorry I didn't answer this sooner Betsy - went into my spam folder, go figure. I had a lot of plaque on the brain, looks like someone took their hand and just covered my brain with it, fingers running down part way (1st MRI - optic neuritis was one of first symptoms). And, when they did another MRI, they found lesions on my spinal chord, although they only did an upper/cervical MRI (2nd). They then wanted to give me a spinal tap, but I had a great excuse not to let them do that - my insurance was denied - didn't want them poking a hole in my spinal chord anyway. Ended up paying $14,000 for the MRI's - ouch! Jim ____________________________________________________________________________ __________ In a message dated 2/4/2010 9:19:46 A.M. Eastern Standard Time, sammarco54@... writes: Jim, The weakness / soreness in all limbs sounds a lot like me. I'm wondering if you had spinal lesions on MRI, or did you have only brain lesions? thanks! betsy > > > Like the others have said, you can get better, it will just take some time. > > When I was diagnosed 3 years ago, it was devastating, but I have learned a > lot since then. I had balance issues, weakness/soreness in all my limbs, > my mind was mush (I couldn't even carry on a decent conversation) my mind w > doctors wanted to put me on Avonex. I looked hard at that, and didn't like > the odds that it 'might' help, might do nothing, or might make me worse. > And, I was ready to quit my job since it requires that I think clearly and > quickly, and a required a lot of travel. > > So I turned to alternative meds - at least they work on healing your body > instead of trying to mask the symptoms. I had all of my amalgams removed. > I started to stay away, or at least minimize the really high fat meals I > used to eat. I got on LDN. I started Andy Cutler chelation. > > Over the last year, my symptoms have gradually decreased. I'm able to > think again. The neuropathy has decreased from constant and irritating to > barely noticeable when I get up in the morning. Most of my weakness/soreness > has disappeared. > > I still have 'issues', and I pay attention to how I feel the day after all > meals so that I know to what to avoid in the future. I am not cured, but > I have come so far from when I first started wrestling with this that it > doesn't even really slow me down anymore. > > Everyone is different, but don't let the PT's or MD's get you down over > it. The problem is the pharmaceutical company's drugs have failed miserably > for MS as they don't attempt to heal the body which is at least one of the > many contributing factors of MS. Because of that, many MD's/PT's do feel > that MS is basically helpless - but that is because they will not open their > mind to alternative treatments that heal the body. > > It won't be easy, nor cheap, but you can overcome most, if not all of the > issues with MS. This group is a good start as there are many success > stories here. But as you will see from reading the posts, I don't believe any > of us are 'cured', but some of us do get it into 100% remission. A lot of > that depends on how much things have already progressed, and your commitment > to getting well - how much effort, time, and money you are willing to put > into overcoming your situation. > > Chin up, there is a lot you can do to improve your health to overcome the > MS issues. > > Best of luck to you! > > > Jim > ____________ ____ ____ ____ ____ ____ > __________ > > > In a message dated 2/1/2010 8:36:16 P.M. Eastern Standard Time, > yourbeamofsunshine@ yourbeamof > > > > > > > I went to see a new PT today. I have weak legs, balance issues, problems > sitting up, rolling over, etc. She said she didn't see why I needed PT. > That MS pretty much was hopeless to treat. I left crying. > I got home in tears and hubby said, I don't see why you went to PT (a > different one last year) you are just wasting your money and other worse > things. > > I told the pt the reason I was going to her was to help me get stronger > and work on balance. > > I feel so horrible, sad. > > [Non-text portions of this message have been removed] > > > > > > > [Non-text portions of this message have been removed] > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 9, 2010 Report Share Posted February 9, 2010 thanks Jim - it gives me some hope to hear stuff like this . .. wishing you the best of health . . . betsy Re: Question for Jim Sorry I didn't answer this sooner Betsy - went into my spam folder, go figure. I had a lot of plaque on the brain, looks like someone took their hand and just covered my brain with it, fingers running down part way (1st MRI - optic neuritis was one of first symptoms). And, when they did another MRI, they found lesions on my spinal chord, although they only did an upper/cervical MRI (2nd). They then wanted to give me a spinal tap, but I had a great excuse not to let them do that - my insurance was denied - didn't want them poking a hole in my spinal chord anyway. Ended up paying $14,000 for the MRI's - ouch! Jim __________________________________________________________ __________ In a message dated 2/4/2010 9:19:46 A.M. Eastern Standard Time, sammarco54@... writes: Jim, The weakness / soreness in all limbs sounds a lot like me. I'm wondering if you had spinal lesions on MRI, or did you have only brain lesions? thanks! betsy > > > Like the others have said, you can get better, it will just take some time. > > When I was diagnosed 3 years ago, it was devastating, but I have learned a > lot since then. I had balance issues, weakness/soreness in all my limbs, > my mind was mush (I couldn't even carry on a decent conversation) my mind w > doctors wanted to put me on Avonex. I looked hard at that, and didn't like > the odds that it 'might' help, might do nothing, or might make me worse. > And, I was ready to quit my job since it requires that I think clearly and > quickly, and a required a lot of travel. > > So I turned to alternative meds - at least they work on healing your body > instead of trying to mask the symptoms. I had all of my amalgams removed. > I started to stay away, or at least minimize the really high fat meals I > used to eat. I got on LDN. I started Andy Cutler chelation. > > Over the last year, my symptoms have gradually decreased. I'm able to > think again. The neuropathy has decreased from constant and irritating to > barely noticeable when I get up in the morning. Most of my weakness/soreness > has disappeared. > > I still have 'issues', and I pay attention to how I feel the day after all > meals so that I know to what to avoid in the future. I am not cured, but > I have come so far from when I first started wrestling with this that it > doesn't even really slow me down anymore. > > Everyone is different, but don't let the PT's or MD's get you down over > it. The problem is the pharmaceutical company's drugs have failed miserably > for MS as they don't attempt to heal the body which is at least one of the > many contributing factors of MS. Because of that, many MD's/PT's do feel > that MS is basically helpless - but that is because they will not open their > mind to alternative treatments that heal the body. > > It won't be easy, nor cheap, but you can overcome most, if not all of the > issues with MS. This group is a good start as there are many success > stories here. But as you will see from reading the posts, I don't believe any > of us are 'cured', but some of us do get it into 100% remission. A lot of > that depends on how much things have already progressed, and your commitment > to getting well - how much effort, time, and money you are willing to put > into overcoming your situation. > > Chin up, there is a lot you can do to improve your health to overcome the > MS issues. > > Best of luck to you! > > > Jim > ____________ ____ ____ ____ ____ ____ > __________ > > > In a message dated 2/1/2010 8:36:16 P.M. Eastern Standard Time, > yourbeamofsunshine@ yourbeamof > > > > > > > I went to see a new PT today. I have weak legs, balance issues, problems > sitting up, rolling over, etc. She said she didn't see why I needed PT. > That MS pretty much was hopeless to treat. I left crying. > I got home in tears and hubby said, I don't see why you went to PT (a > different one last year) you are just wasting your money and other worse > things. > > I told the pt the reason I was going to her was to help me get stronger > and work on balance. > > I feel so horrible, sad. > > Quote Link to comment Share on other sites More sharing options...
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