Re: RA, ldn and supplements

[Guest guest]

What is ldn?

Thanks,

, NY

________________________________

From: " mschooling@... " <mschooling@...>

Sent: Saturday, May 9, 2009 2:13:20 PM

Subject: [ ] RA, ldn and supplements

Hello

The symptoms of RA developed for me last autumn - unexplained pain in right hand

from wrist to middle finger, and by December all swollen and bad pains in both

hands. Crushing fatigue. Have seen uninterested rheumatologist who, after

negative blood tests and xrays showing deformations told me I had arthritis!

Three courses of cortisone made me feel better till they ended and it all

started again.

I have two friends with RA who seem to be getting worse despite medications - or

are replacing one problem with another.

A friend alerted me to ldn and I studied it on the internet. Beginning April I

went on restricted diet - no animal fats which for me meant no cheese or eggs,

no bread. I take Vit E 400 and fish oil and from the start had less pain, less

swelling. I began to feel a lot better.

I began ldn on 22 April. The balls of my feet are less tender, also the joint of

my big toe, left foot. I'm more or less without pain. I feel relaxed - I feel as

if I'm " convalescing " .

It's early days - are there others with Ra who are following a similar

treatment?

yours

Margaret

[Guest guest]

Sorry, it's short for low dose naltrexone. First used for addiction at 50 mg,

for auto immune disorders it's 3mg a day.

Margaret

________________________________

From: Bloomquist <skaye81@...>

Sent: Saturday, May 9, 2009 8:27:58 PM

Subject: Re: [ ] RA, ldn and supplements

What is ldn?

Thanks,

, NY

____________ _________ _________ __

From: " mschooling@rocketma il.com " <mschooling@rocketma il.com>

@gro ups.com

Sent: Saturday, May 9, 2009 2:13:20 PM

Subject: [ ] RA, ldn and supplements

Hello

The symptoms of RA developed for me last autumn - unexplained pain in right hand

from wrist to middle finger, and by December all swollen and bad pains in both

hands. Crushing fatigue. Have seen uninterested rheumatologist who, after

negative blood tests and xrays showing deformations told me I had arthritis!

Three courses of cortisone made me feel better till they ended and it all

started again.

I have two friends with RA who seem to be getting worse despite medications - or

are replacing one problem with another.

A friend alerted me to ldn and I studied it on the internet. Beginning April I

went on restricted diet - no animal fats which for me meant no cheese or eggs,

no bread. I take Vit E 400 and fish oil and from the start had less pain, less

swelling. I began to feel a lot better.

I began ldn on 22 April. The balls of my feet are less tender, also the joint of

my big toe, left foot. I'm more or less without pain. I feel relaxed - I feel as

if I'm " convalescing " .

It's early days - are there others with Ra who are following a similar

treatment?

yours

Margaret

[Guest guest]

i took low dose naltrexone last summer and it did help RA along with

diet. but i had to stop it after a couple mos due to masue dizziness

migraines. unfortunately i seem to get this eventually on all meds or

RA. 1st minocin put me in remission then after 3 y had to stop it die to

dizziness and nausea. then ldn did same. then mtx the same. and now

after 6 w on enbrel starting to get migraines dizzyness and nausea.

geez. is there any med for RA i can take?!

monique

[Guest guest]

hi margaret

i stick to diet as much as i can - paleo - as it definitely helps. i

generally feel better on it too. how are you doing with diet? i am

reading a book called against the grain that states fossil evidence

shows that RA didn't exist in the pre-agricultural era. the nutritionist

who wrote it has helped ppl with autoimmune disease improve by cutting

out all grains dairy and processed foods. i haven't really found any

supplmts that help. you? dr. trentham did some good research on UC-II

helping RA so ant to try that.

monique

That is such rotten luck. Have you stayed on the diet and supplements?

and if so have they helped?

Margaret

____________

____________________

From: Sauve <moniquesauve@... <mailto:moniquesauve%40shaw.ca>>

<mailto: %40>

Sent: Sunday, May 10, 2009 9:07:47 PM

Subject: [ ] Re: RA, ldn and supplements

i took low dose naltrexone last summer and it did help RA along with

diet. but i had to stop it after a couple mos due to masue dizziness

migraines. unfortunately i seem to get this eventually on all meds or

RA. 1st minocin put me in remission then after 3 y had to stop it die to

dizziness and nausea. then ldn did same. then mtx the same. and now

after 6 w on enbrel starting to get migraines dizzyness and nausea.

geez. is there any med for RA i can take?!

monique