Re: Re: Request for information/research for disability studies course at UMUC

October 21, 2009

I will e happy to cooperate with your research.

Medical advances in my lifetime are awesome thanks to research of those earlier

than me.

We all owe a debt.

Raniolo

From: alannakitty <Alannakitty@...>

Subject: [ ] Re: Request for information/research for disability

studies course at UMUC

Date: Wednesday, October 21, 2009, 10:58 AM

Hi ,

Nice to meet someone else who spells it the same way.

I'm basically going to be writing about underlying issues that individuals with

invisible disabilities such as RA or FMS face. An overall of what is the

" experience " of someone with seemingly invisible disabilities. The archives

probably will be a good reference point. I just don't want to come on here and

" take what I need " and leave. People should know that a) I'm observing but

I'm also a participant as I do have RA. That is my primary diagnosis and my FMS

secondary (as best as I can tell). People put a certain amount of trust when

they join groups that what they post will remain private. I don't want anyone to

be upset or offended.

If people want to relate their personal story/experiences to me. That be great

and I'm welcome to that. Otherwise, I will troll (evil word) around and see what

might be useful.

Thanks for your response!

~ Graves

>

> What kind of assistance do you need from group members?

> Reading archives sure gives a lot of info.

>

> Raniolo

>

October 21, 2009

Hi Graves, my name is Renae. I've had RA for over 50 years and

would be more than happy to talk to you if it would help. Should I email you

at your addy? My goal over all these years has been to be of some

help/support/service with anyone suffering with this awful disease. You can

notify me here or at renae1943@.... Renae

[ ] Re: Request for information/research for disability

studies course at UMUC

> Hi ,

>

> Nice to meet someone else who spells it the same way.

>

> I'm basically going to be writing about underlying issues that individuals

> with invisible disabilities such as RA or FMS face. An overall of what is

> the " experience " of someone with seemingly invisible disabilities. The

> archives probably will be a good reference point. I just don't want to

> come on here and " take what I need " and leave. People should know that a)

> I'm observing but I'm also a participant as I do have RA. That is my

> primary diagnosis and my FMS secondary (as best as I can tell). People

> put a certain amount of trust when they join groups that what they post

> will remain private. I don't want anyone to be upset or offended.

>

> If people want to relate their personal story/experiences to me. That be

> great and I'm welcome to that. Otherwise, I will troll (evil word) around

> and see what might be useful.

>

> Thanks for your response!

>

> ~ Graves

October 21, 2009

,

I, too have RA as well as fibro. I would be happy to share my info with you if

it could help! You can email me directly at ltdavis_jrdavis@....

in SC

From: alannakitty <Alannakitty@ earthlink. net>

Subject: [ ] Re: Request for information/ research for disability

studies course at UMUC

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