Guest guest Posted November 12, 1998 Report Share Posted November 12, 1998 This sounds great! Any ideas if it is currently available to the public? ------------------------------------------------------------------------ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 7, 2000 Report Share Posted August 7, 2000 Polly, Our Dr. said he had access to Web Sites for Dr's and was going to research SDS there. If your Dr. has access to a computer he should be able to access these same sites. Hope this will help. (no subject) > Hi, > > I have just become a part of your group, and have spent the last hour > catching up on all the e-mail that I received. My 73 year old father was > diagnosed with SDS Sept. '99. He is a manic depressive type and thinks his > life is over. We have tried everything and the doctor has given him some > meds to try to counter this. But so far, to no avail. > > I am curious, is there a Dr. somewhere out there, or a web site that I could > give to my dad's doctor for him to go and read and learn more about MSA and > SDS? He is a young doctor, and the only one who was able to diagnose him. > If there is a medical site that he could go to I think he might try doing > some research. > > It is good to read about how you are all doing. Keep up the great job, and > thanks to those who took the time to make something like this possible for me > and others in my boat. I am glad that I am not alone. > > Thanks, Polly > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 7, 2000 Report Share Posted August 7, 2000 Polly, Our Dr. said he had access to Web Sites for Dr's and was going to research SDS there. If your Dr. has access to a computer he should be able to access these same sites. Hope this will help. (no subject) > Hi, > > I have just become a part of your group, and have spent the last hour > catching up on all the e-mail that I received. My 73 year old father was > diagnosed with SDS Sept. '99. He is a manic depressive type and thinks his > life is over. We have tried everything and the doctor has given him some > meds to try to counter this. But so far, to no avail. > > I am curious, is there a Dr. somewhere out there, or a web site that I could > give to my dad's doctor for him to go and read and learn more about MSA and > SDS? He is a young doctor, and the only one who was able to diagnose him. > If there is a medical site that he could go to I think he might try doing > some research. > > It is good to read about how you are all doing. Keep up the great job, and > thanks to those who took the time to make something like this possible for me > and others in my boat. I am glad that I am not alone. > > Thanks, Polly > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 27, 2000 Report Share Posted August 27, 2000 Hi Diane, sorry you have to be here. this group is very helpful and supportive even though it someimes feels like a full-time job. You can talk about any thing you feel like to this group: feelings, problems, whatever. i'm 50, have same symtoms as you. I can't walk at all. I always use a wheelchair, type with one hand. your way of communication sounds intriging. Wha's it called? people can hardly understand me, even my own family. My life is becoming a constant game of charades. i have to repeat everything. I'm on Sinemet, Amantadine, mirapex, florinef for OH, paxil, ambien, benadryl. Hang in there. You are not alone. Sophia (no subject) > Hi I'am Diane, I have shydrager. I know Pam that's how I know about this > group. Shydrager ,is about can't walk very much, So there for I'am in a wheel > chair. I can't talk so I communicate on a board which I spell a word out. I > have hard time eating, I want to know if this is what I SHOULD talk about. > would it be any help to name the drugs that I'am on 1 requip= > 2promatine=3amantidine=4hyocsyamine=5zoloft= very body knows what that is!!!! > ha ha. 1= to keep you at the same level.These are the meaning to the drugs > 2=blood pressure3=4=bladder want you to email me back if you get this. > Maybe I can help you people with some things. Talk to u later > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 27, 2000 Report Share Posted August 27, 2000 Hi LadyDee, All sounds familiar. Welcome to the list. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 29, 2000 Report Share Posted August 29, 2000 My Mom and I are both on the list to gather information and support (Dad has MSA)...another great way to share the same information within family! Suzanne Grimmesey-Kirk, MFT Quality Care Management Voice: 884-1647 FAX: 884-1633 >>> cameron6878@... 08/29/00 08:23AM >>> Pam, I've learned more here in a week, then 7yrs. from the doctors. My sister is printing alot of info and we are handing it to here doctors and my mother. She is excited that we found this group. I am going to take my mother out today. I will tell her everything I read this week. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 23, 2002 Report Share Posted September 23, 2002 Personally, I like reading answers from everyone. I learn a lot through others' questions and situations. I agree that the "Yeah, Suzi, Congratulations"-type messages should be sent privately. But as to the other stuff - I personally appreciate reading the answers to individuals' questions. Just my 2 cents. ;-) Laurie (no subject) Hi everyone,I am wondering why the emails that are addressed to individuals aren't sent to their personal email address & not the group email address? I just spent over an hour reading email from the 3 groups that I belong to & at least half of them were directed at a specific person. I love reading every post but I'm running out of time to sit at the computer. Any suggestions?Thanks,CindiDr. Umbach11 am - 9/26/02 Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 24, 2002 Report Share Posted September 24, 2002 Hi Cindi, I totaly understand getting to many emails :)but I kinda of agree with laurie, I love reading all the post even if there not for me. I learn so much from everyone. I do understand that at times there can be allot of post and it is time consuming (sp?)I guess I would say just pass the thread of post that have no interest for you or you can also change how you recive the post. I only get them in the club. I don't have them going to my email for just that reason! lol There would be way way to many to read if I did that with the all clubs im in. I, very much in joy coming into a club and reading all the new post on my on time. I hope this help. I started this club so we could all share with each other or experience,strenngth and hope with each other and I encourage you all to keep doing it . Thanks Shell > Hi everyone, > > I am wondering why the emails that are addressed to individuals aren't sent > to their personal email address & not the group email address? > I just spent over an hour reading email from the 3 groups that I belong to & > at least half of them were directed at a specific person. I love reading > every post but I'm running out of time to sit at the computer. Any > suggestions? > > Thanks, > > Cindi > Dr. Umbach > 11 am - 9/26/02 Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 25, 2002 Report Share Posted December 25, 2002 Hi Coratoo, (not sure of your full name so am using your screen name.) First, Merry Christmas to you and your family. I also want to congratulate you on taking the steps necessary for a healthy life by deciding to have this surgery. Even more impressive is how you have taken the life changes you will be experiencing to heart by losing the 10% in preparation for surgery. One of the things I realized before surgery was that if I wasn't willing to commit to changing my life before surgery, it was going to be difficult after surgery when my body would not be able to give me a choice. Now, what you're feeling is perfectly normal. There are a lot of changes ahead of you and the unknown is a scary thing. I had the same feelings but what I realized is that I had put my trust in God and His plan for my life. He opened a lot of doors for me when it came to this surgery and I knew that He would not have made these things happen for me if His intent was not to have me come through this surgery. I came through fine and have had no physical complications. In fact, most everyone I know that has had this surgery, had come through fine. Complications can happen but compared to the numbers of people having this surgery at Kaiser, those numbers are low. Kaiser is a very conservative organization and would not be offering this surgery if they didn't feel that it was the best chance available for their morbidly obese patients. My surgeon was Dr. Gorrin and I found him competent, caring and supportive and he did a wonderful job for me. Dr. Meyerowitz is the surgeon who trained him and all the other surgeons at Kaiser. He is the " grandfather " of this surgery and knows his stuff. I had open as well on 12/13/01. In fact, I just celebrated my one year anniversary of surgery. I was very worried about pain but can tell you that my experience was good. They have wonderful drugs available for the management of pain and you should not be afraid to ask for them. If you have any pain, just ask for the medication and you will not feel the pain. I felt pain right after surgery but as soon as they gave me the drugs, it went away. I used the PCA for about a day and a half after surgery but stopped because I really didn't have any pain. The most I felt was discomfort from the incision. I have heard the mind over matter thing about pain and breathing through it and all. When I had my kids, they told me to breath. Well, I'm here to say I don't think that crap works! The only thing that really works is the medication! I did not have any pain when I got home either and did not use the liquid pain medication they gave me except to help me sleep the first two nights. By the way, when you go in for your surgery and if you are feeling any anxiety whatsoever, make sure you ask for something to calm you down. It helps alot! Below is the link to my profile on obesityhelp.com. Just click on it (if it is highlighted) or just copy it and paste it into your browser window. I go into much more detail about my experience with WLS and there are before and after photos as well. The hardest part of the surgery is afterwards when you start to live your new life. There are adjustments we have to make emotionally and psychologically in relationship to food and that is the toughest part. In retrospect, the surgery was easy! For me, I wish I had done it 10 years sooner but I know God was not ready for me to take the journey then. I have lost a total of 170lbs and now have a normal, healthy weight and BMI. I wouldn't change a thing and absolutely do not regret the decision to have the surgery. Congratulations again on taking the steps necessary to change your life. God bless you and your family. Please feel free to email me privately if you would like to exchange phone numbers and chat. Do you have an angel? Let me know if you need an angel. Hugs, Pat B. Here's my link: http://www.obesityhelp.com/morbidobesity/profile.phtml?N=B984762398 & NoStatic=1 (no subject) Hi everyone! Merry Christmas! I'm sitting at home worried about my surgery. I am scheduled with Dr Meyerowitz for 1/22/03. I have lost my 10%, my exercise is right on, my food handled and I am both emotionally and physically ready for the surgery except since reading the group mail, I am really getting worried about the pain. I am scheduled for open surgery as Meyerowitz feels it is the best and safest rather than a lap. But, I have a reasonably low pain tolerance and although most of the people that have come to talk from surgery during case management classes say the pain is tolerable especially after day 1, the recent e-mails tell me otherwise. Any suggestions other than breathing through/over it, etc. I had a full hysterectomy when I was 34 and managed through that pain. Is this worse or better or is it really just up to me anyway? I am nervous about the upcoming changes. To all of your post-ops, do any of you regret your decision? Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 14, 2003 Report Share Posted January 14, 2003 Thank you so much tami! > Suellen, I have not returned to the meetings in SSF because of transportation > woes and work. I was a happy to have met you that day I was there though. I > hope all is well with you and maybe I can get to a Tuesday meeting soon. > > Shell, I am so happy for you and am praying for a record breaking quick > surgery where all is perfect and that you have an uneventful recovery full of > nothing but great happenings. > > Tami > 450/388/ > Still waiting to be invited to orientation Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 5, 2003 Report Share Posted February 5, 2003 Tami & everyone else *smile* I thank you all for thanking me for starting this group but to be really honest it was purely a selfish move. I had joined a few other groups but none really could help me with kaiser issues and there was no kaiser group so I thought id try and start one, never imagening that it would turn out to be what it has become. Like I said earlier Tami was my first member and we were alone for some time lol I swear i never thought we'd grow like we have. This group is wonderful not because of me but because of what YOU all bring to it. Thats the truth so let me take a moment to THANK YOU ALL FOR JOINING!!! I love you guys! Shell > Thank you very much Shell. Again, I will say how very glad I am that you > started this group. It has been such a help and a friend at times. > > Thank you for the encouragement, Ramona. And thank you to everyone else for > being here. > > Tami Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 7, 2003 Report Share Posted February 7, 2003 Yeah, the seminar is the orientation. She can just walk in. If she is Kaiser-approved and assigned to PB, they will weigh her then as a baseline, and take her height. If she is not yet approved, I would just go for the information and the materials. Once the approval goes through, she may have to go again for a height/weight assessment. Hopefully she's been approved and can just breeze right through. Laurie W. (no subject) Laurie, when you said seminar is that the same as an orientation? , says a friend of hers is going to a PB orientation and I was wondering if they are the same thing and can you just walk in or do you have to be invited? I am so full of ????'s. Tami Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 7, 2003 Report Share Posted February 7, 2003 Hillcrest Surgical Group is the same thing as Pacific Bariatrics. I think they have two corporate names. I know -- because I got it too, and I called to verify. Laurie W. (no subject) Hey y'all! I just received a letter from Kaiser authorizing Hillcrest Surgical Group to provide me medical care. Is this the letter that tells you where you will be going? My approval letter back in Oct. said it would be held at Kaiser SSF and now is this the same sort of thing only a different place? Any clues folks? Laurie, I am relieved to have something in writing to take with me to the meeting next Monday. Thanks for your help. Tami Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 15, 2003 Report Share Posted February 15, 2003 Tami: Thanks for your words on encouragement. I agree with you that it's not productive to begrudge anyone going forward in this process. Like you, I just wanna be there with them. Let us know how every thing turns out with Pacific Bariatrics. Take care, Francisco > Francisco, > > I know just where you're comin' from. I got my letter in October, the first > week to be exact, and I just heard a week from last that they just sent my > paperwork to Pacific Bariatrics. I understand that that is something > normally done when you are approved so I am way behind in the game. > > I got a number from Pat. is the person I spoke to. I can't find the > phone number but maybe Pat would be so kind as to give the number out one > more time. I know how hard it is to have to wait and watch others who are > approved after you go ahead of you. You don't hold anything against those > folks but you sure wish it were you. I hope you get some good news. > > Tami Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 23, 2003 Report Share Posted February 23, 2003 Hi, For me the hardest was getting up off of the bed without using my stomach muscles. I found that if you have a night stand close to your bed and you use one hand to push up on and the other to push on the bed it makes it easier. Also getting used to eating no solid foods for the first 2 weeks. I couldn't tolerate the pain medication it made my stomach hurt because of my gasteritis. Also I always felt thirst no matter how much water I drank. That all goes away with time though I am almost 6 weeks post op and the pain is gone and I am almost doing all of my normal activities. I know thwere are some peopl that had very little pain after surgery adn got on fine. I have very little problem with food. I use the Lactaid milk but not at first. Stay away from milk for the first couple of weeks I tried using it and it made me very uncomfortable. Make sure you drink that water Ramona Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 23, 2003 Report Share Posted February 23, 2003 In the hospital learning to get in and out of bed. At home learning to sleep on my back. I had my surgery on 2-12-03 and I'm beginning to sleep on my side for a few minutes at a time. It's getting better. RevenStampin' Up! (no subject) I am have surgery on March 10th and I was wondering if you could tell me what were the things that were the hardest for you to adjust to in the first few days and weeks Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 23, 2003 Report Share Posted February 23, 2003 Hey , are the beds adjustable? My back won't let me lay that way for more than a few minutes without hurting. I can be in a semi-raised position and sleep, but not flat down. This is in So. Cal. BTW. Also who is in my class in Fontana? Do we have to loose 10% before we can have surgery? And if so 10% of what weight? For me that would be about 31 # and I don't think I can do that in 3 months. That's kind of asking the impossible I think. I'm loosing, but not that fast. I will ask Dave on Monday night also. Thanks for this terrific forum. -- Re: (no subject) In the hospital learning to get in and out of bed. At home learning to sleep on my back. I had my surgery on 2-12-03 and I'm beginning to sleep on my side for a few minutes at a time. It's getting better. RevenStampin' Up! (no subject) I am have surgery on March 10th and I was wondering if you could tell me what were the things that were the hardest for you to adjust to in the first few days and weeks Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 23, 2003 Report Share Posted February 23, 2003 10% from the time you see your doctor. The beds in the hospital do adjust. You can loose the weight here's how I did it, I was told to loose 27 lbs. I lost 56 lbs. before surgery. No Bread, No Rice, No Pasta, No fast food and No sodas. Walk a littler more and you can do it. RevenStampin' Up! (no subject) I am have surgery on March 10th and I was wondering if you could tell me what were the things that were the hardest for you to adjust to in the first few days and weeks Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 24, 2003 Report Share Posted February 24, 2003 If you know someone who can lend you a cane, it is a great help getting out of bed. If not a cane, keep a kitchen chair right by the bed as a support to pull yourself up. Re: (no subject) Hi,For me the hardest was getting up off of the bed without using my stomach muscles. I found that if you have a night stand close to your bed and you use one hand to push up on and the other to push on the bed it makes it easier. Also getting used to eating no solid foods for the first 2 weeks. I couldn't tolerate the pain medication it made my stomach hurt because of my gasteritis. Also I always felt thirst no matter how much water I drank. That all goes away with time though I am almost 6 weeks post op and the pain is gone and I am almost doing all of my normal activities. I know thwere are some peopl that had very little pain after surgery adn got on fine. I have very little problem with food. I use the Lactaid milk but not at first. Stay away from milk for the first couple of weeks I tried using it and it made me very uncomfortable. Make sure you drink that waterRamona Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 24, 2003 Report Share Posted February 24, 2003 cindy - did you have lap or open? i heard that different technques result in different recovery time. i'm taking 2 1/2 half weeks off work after surgery. i have a desk job. i am having my surgery on march 5th and i am extremely excited & anxious but completely nervious and a little scared. i don't know exactly what to expect post surgery. marcus pre-op/lap 308 lbs. Reven wrote: In the hospital learning to get in and out of bed. At home learning to sleep on my back. I had my surgery on 2-12-03 and I'm beginning to sleep on my side for a few minutes at a time.It's getting better. Reven Stampin' Up! (no subject) I am have surgery on March 10th and I was wondering if you could tell me what were the things that were the hardest for you to adjust to in the first few days and weeks Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 24, 2003 Report Share Posted February 24, 2003 cindy - did you have lap or open? i heard that different technques result in different recovery time. i'm taking 2 1/2 half weeks off work after surgery. i have a desk job. i am having my surgery on march 5th and i am extremely excited & anxious but completely nervious and a little scared. i don't know exactly what to expect post surgery. marcus pre-op/lap 308 lbs. Reven wrote: In the hospital learning to get in and out of bed. At home learning to sleep on my back. I had my surgery on 2-12-03 and I'm beginning to sleep on my side for a few minutes at a time.It's getting better. Reven Stampin' Up! (no subject) I am have surgery on March 10th and I was wondering if you could tell me what were the things that were the hardest for you to adjust to in the first few days and weeks Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 24, 2003 Report Share Posted February 24, 2003 Marcus, I had open. I'm ready to go back to work. I go tomorrow to have the staples out and hopefully he will let me drive and go back to work. They keep on telling me that recovery takes 4 to 6 weeks but I'm ready after only 2 weeks. I was very scared when they were pre op me for surgery the nurses came over and talked to me and calmed me down. It's nothing. They give you and IV in pre op, then in the surgery room they give you a breathing tube that you hold up to your mouth and breath deeply it's meds. to numb your throat for the breathing tube to go down and you don't remember it going in or out. Then you go to sleep. The next thing I remember is waking up in ICU. Your doing lap it will be a lot easier for you with recovery time. Good Luck, RevenStampin' Up! (no subject) I am have surgery on March 10th and I was wondering if you could tell me what were the things that were the hardest for you to adjust to in the first few days and weeks Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 25, 2003 Report Share Posted February 25, 2003 thanks cindy!!! i feel much better. how long did you stay in the hospital after your sugery? i'm going to the grocery store next monday to stock up. so far on my list of things to get post surgery are: cream soup, jello, bottled water, pro-complex protein shake, cream of wheat, yogurt, apple juice. marcus Reven wrote: Marcus,I had open. I'm ready to go back to work. I go tomorrow to have the staples out and hopefully he will let me drive and go back to work. They keep on telling me that recovery takes 4 to 6 weeks but I'm ready after only 2 weeks. I was very scared when they were pre op me for surgery the nurses came over and talked to me and calmed me down. It's nothing. They give you and IV in pre op, then in the surgery room they give you a breathing tube that you hold up to your mouth and breath deeply it's meds. to numb your throat for the breathing tube to go down and you don't remember it going in or out. Then you go to sleep.The next thing I remember is waking up in ICU. Your doing lap it will be a lot easier for you with recovery time.Good Luck, Reven Stampin' Up! (no subject) I am have surgery on March 10th and I was wondering if you could tell me what were the things that were the hardest for you to adjust to in the first few days and weeks Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 25, 2003 Report Share Posted February 25, 2003 My Surgery was on a Wednesday and home on Saturday. The pro -complex get vanilla it goes with everything, unless you like the other flavors. Keep in touch and good luck, RevenStampin' Up! (no subject) I am have surgery on March 10th and I was wondering if you could tell me what were the things that were the hardest for you to adjust to in the first few days and weeks Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 26, 2003 Report Share Posted February 26, 2003 thanks again cindy!!! Reven wrote: My Surgery was on a Wednesday and home on Saturday. The pro -complex get vanilla it goes with everything, unless you like the other flavors.Keep in touch and good luck, Reven Stampin' Up! (no subject) I am have surgery on March 10th and I was wondering if you could tell me what were the things that were the hardest for you to adjust to in the first few days and weeks Quote Link to comment Share on other sites More sharing options...
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