Re: Request for information/research for disability studies course at UMUC

[Guest guest]

What kind of assistance do you need from group members?

Reading archives sure gives a lot of info.

Raniolo

From: alannakitty <Alannakitty@...>

Subject: [ ] Request for information/research for disability studies

course at UMUC

Date: Tuesday, October 20, 2009, 10:53 AM

 

Greetings,

My name is Graves. I'm currently an information specialist for the

National Rehabilitation Information Center (NARIC) and a Social Science major at

the University of land University College (UMUC). I also have two underlying

" invisible " disabilities (Fibromyalgia and Rheumatoid Arthritis).

I am writing a paper on invisible disabilities such as FMS, RA, and other ID's.

I am looking to converse privately or in the public forum with individuals for

research. Privacy can be maintained but logs and chat conversations may be used

for reference.

Please be assured I'm not interested in capturing personal information or data

mining... none of that type of behavior. Just speaking with like-minded people

and writing for school.

If you have any questions, concerns, or would like to speak with me

individuallly feel free to email me directly at alannakitty@ earthlink. net or

cgraves@heitechserv ices.com (work email).

Thank you for your time and consideration.

Graves

Information Specialist II

National Rehabilitation Information Center (NARIC)

http://www.naric. com

800/346-2742

[Guest guest]

Hi ,

Nice to meet someone else who spells it the same way.

I'm basically going to be writing about underlying issues that individuals with

invisible disabilities such as RA or FMS face. An overall of what is the

" experience " of someone with seemingly invisible disabilities. The archives

probably will be a good reference point. I just don't want to come on here and

" take what I need " and leave. People should know that a) I'm observing but

I'm also a participant as I do have RA. That is my primary diagnosis and my FMS

secondary (as best as I can tell). People put a certain amount of trust when

they join groups that what they post will remain private. I don't want anyone

to be upset or offended.

If people want to relate their personal story/experiences to me. That be great

and I'm welcome to that. Otherwise, I will troll (evil word) around and see

what might be useful.

Thanks for your response!

~ Graves

>

> What kind of assistance do you need from group members?

> Reading archives sure gives a lot of info.

>

> Raniolo

>