Guest guest Posted February 25, 2003 Report Share Posted February 25, 2003 Are the schools closed? If so, I am going to try to call Cody.... Good Morning Good morning all! Dallas is covered in snow and ice but here I am at work. It took me 2 hours to drive in this morning seeing I live so far. Don't know if will work today or not. The roads are really bad and no improvement is expected. Not supposed to get out of the 20's today here. They are calling for more freezing rain tonight! Ugh! Well just wanted to tell you all that I am here and I got the webcam up and running at home now so if you have Yahoo Messenger I do also. My ID is etphonehome57. That way you can see me as we visit! Hugz- Terrie in Texas Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 26, 2003 Report Share Posted February 26, 2003 Only one more day home... and only 3 1/2 hours of daycare left! LOL Good morning > Just wanted to wish everyone a great morning(I didn't want to miss anyone's good morning that was posted) I am trying to catch up with everything and don't want to miss. Today is my last day of daycare so I can try and get somethings done tomorrow because we have to leave the house at 5am on Friday for the c-section(and I can't wait.. I feel like a house! LOL) I will keep popping in until Thursday night then I will be AWOL until sometime next week. Then I will be able to send pics of the baby for everyone to see. Have a great one and for all you northerners... try and stay warm! > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 26, 2003 Report Share Posted February 26, 2003 Only one more day home... and only 3 1/2 hours of daycare left! LOL Good morning > Just wanted to wish everyone a great morning(I didn't want to miss anyone's good morning that was posted) I am trying to catch up with everything and don't want to miss. Today is my last day of daycare so I can try and get somethings done tomorrow because we have to leave the house at 5am on Friday for the c-section(and I can't wait.. I feel like a house! LOL) I will keep popping in until Thursday night then I will be AWOL until sometime next week. Then I will be able to send pics of the baby for everyone to see. Have a great one and for all you northerners... try and stay warm! > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 26, 2003 Report Share Posted February 26, 2003 I cant believe the day is almost here....... WOOOOOOOWHOOOOOOOO churn party churn party lol Were gonna have a churn party Good morning > Just wanted to wish everyone a great morning(I didn't want to miss anyone's good morning that was posted) I am trying to catch up with everything and don't want to miss. Today is my last day of daycare so I can try and get somethings done tomorrow because we have to leave the house at 5am on Friday for the c-section(and I can't wait.. I feel like a house! LOL) I will keep popping in until Thursday night then I will be AWOL until sometime next week. Then I will be able to send pics of the baby for everyone to see. Have a great one and for all you northerners... try and stay warm! > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 26, 2003 Report Share Posted February 26, 2003 I cant believe the day is almost here....... WOOOOOOOWHOOOOOOOO churn party churn party lol Were gonna have a churn party Good morning > Just wanted to wish everyone a great morning(I didn't want to miss anyone's good morning that was posted) I am trying to catch up with everything and don't want to miss. Today is my last day of daycare so I can try and get somethings done tomorrow because we have to leave the house at 5am on Friday for the c-section(and I can't wait.. I feel like a house! LOL) I will keep popping in until Thursday night then I will be AWOL until sometime next week. Then I will be able to send pics of the baby for everyone to see. Have a great one and for all you northerners... try and stay warm! > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 19, 2003 Report Share Posted October 19, 2003 Luanne, Plaquenil is a slow acting drug, that may take up to six months to be effective, but can be very good with Lupus symptoms. It also helps lower blood pressure and blood sugars if those are problems for you, as they are for some of our members. As for immunosuppressants, I have managed to avoid them thus far, but the docs are talking about them for me, too. I have no experience with them thus far, though. For me, Plaquenil has put me into negative ANA's for about two thirds of my tests. This is good progress. My malar rash, skin lesions are lessening as well. Not gone, and certainly not forgotten, but much improved. I hope they will do the same for you. Since you have neurological involvement, too, you may need to be referred to a neurologist for some further testing and treatment options. Discuss this with your rheumy, too. Please keep us posted on your progress. Hugs, MM Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 19, 2003 Report Share Posted October 19, 2003 Dont worry about remembering all the names .. I have been here since Jan 2001, and I still get confused sometimes. Your daughter will cope .. just tell her the truth. Explain to her exactly what is going on with you .. never hedge the truth. If she wants to know .. tell her. As far as your daughter having to pick up doing the things that you cannot do .. that is all part of being a family. Just as long as you remember to give her her own time as well. Children are resilient and if given the chance to talk out their feelings with someone who is not going to lie to them, they usually turn out just fine. I had my first heart attack when my youngest son was 12 yrs. old. He was the one who gave me CPR and kept me going till the rescue got here. We knew that the time might come, so my kids took a CPR course just in case they ever needed it. Being prepared may save your life and your daughter would feel even worse if she could not tell the rescue squad anything that is going on with you. Now .. your facial pain. It could be a number of things, it could be the lupus, but I am guessing that you have been under a deal of stress lately and have been gritting your teeth a lot in having to deal with pain. The joints in the jaw can become inflammed just as any other joint in the body. And .. when inflammed, they can cause muscle spasms in the jaw which in turn puts the squeeze on the nerve along the jawline which ends up behind the ear. Thus .. pain. Methotrexate is usually the first immunosuppressant drug the doctors will try. I have a page on my web site with information about the drug. http://www.itzarion.com/lupusmethotrexate.html good luck.. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 22, 2008 Report Share Posted February 22, 2008 Bruce... pardon the changing of fonts here, I'm still trying to change the color/font of INCOMING mail. Portland stats can sound dreary ok but the rain is so fresh and the green trees and grass fairly sparkle. Most folks run around w/o so much as a coat unless it is really a down pour and we all recognize a 'visitor' if they carry an umbrella. lol. There may be limited days of sunshine but we have lots of "hours" of sunshine. It comes and goes. Spring is wonderful and summer is downright HOT. I remember Longview TX being HOT and HUMID. I was glad to get back to the Pacific Northwest. Have a good day. Mama-Sher, 69, IPF 3-06, OR.Don't fret about tomorrow, God is already there! Re: good morning SherYes, I can believe you actually like the rain. But, I've found peoplewho have lived in Oregon a long time very much like it. It's those whomove there from elsewhere who get depressed when (now this is a Portlandstatistic) the average January has 3 days of sunshine.>> Good morning everyone> not much chatter going on today> was everyone up to late?>> brett bowser> brett@...> Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 9, 2008 Report Share Posted March 9, 2008 A cheerful good morning to all. I feel 150% better today and I guess the Leviquin is working as well as the cough med. Sat. It all my energy to walk to the bathroom. If this is TMI let me know. Joanie has become addicted to this site as she is learning also what works, helps, and just the comraderie of all of the inflicted. Love you guys, Joe Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 9, 2008 Report Share Posted March 9, 2008 One word about the Levaquin and whatever you have. If you're not completely well at the end of the ten day cycle, then don't let there be a lapse. Get to the doctor and get more. Often today and even more with us, one round of antibiotics is not getting it done and if you have a few days between then you slip and the second round might not even get it done. > > A cheerful good morning to all. I feel 150% better today and I guess the > Leviquin is working as well as the cough med. Sat. It all my energy to walk > to the bathroom. If this is TMI let me know. > Joanie has become addicted to this site as she is learning also what > works, helps, and just the comraderie of all of the inflicted. > Love you guys, > Joe > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 9, 2008 Report Share Posted March 9, 2008 Thanks for the info. You could be at least a PA if not a full fledged Dr. Concerning IPF. All this inf helps greatly. THANKS Bruce. Joe -- Re: Good Morning One word about the Levaquin and whatever you have. If you're not completely well at the end of the ten day cycle, then don't let there be a lapse. Get to the doctor and get more. Often today and even more with us, one round of antibiotics is not getting it done and if you have a few days between then you slip and the second round might not even get it done. >> A cheerful good morning to all. I feel 150% better today and I guess the> Leviquin is working as well as the cough med. Sat. It all my energy to walk> to the bathroom. If this is TMI let me know.> Joanie has become addicted to this site as she is learning also what> works, helps, and just the comraderie of all of the inflicted.> Love you guys,> Joe> Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 9, 2008 Report Share Posted March 9, 2008 Learning more each day. I was in ER, getting shot of Levaquin and got prescription. I wanted to get home and to the forum so I could find out about any side effects. I'm in a hospital but trust the board more. Oh, by the way, main side effect is Thrush Mouth, which I didn't have, but if you do, then you won't be surprised. Normally annoying but nothing more. > > > > A cheerful good morning to all. I feel 150% better today and I > guess the > > Leviquin is working as well as the cough med. Sat. It all my energy > to walk > > to the bathroom. If this is TMI let me know. > > Joanie has become addicted to this site as she is learning > also what > > works, helps, and just the comraderie of all of the inflicted. > > Love you guys, > > Joe > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 9, 2008 Report Share Posted March 9, 2008 Hi Joe, I think Bruce is doing a wonderful job putting information here for all of us. BUT please know no one can give you correct information FOR YOU but your Dr. We KNOW the practical side of living with this monster, things that make it easier. Individually we have different Dx and medications to deal with. So one stroke does not cover it all. I think everybody here knows I truly love and value Bruce and his opinions. I worry newbies will mistake some of thinking Bruce may be a Dr. And as such would follow his advise as opposed to their Dr.'s. Ya know what I mean?? Boy I know some of y'all will not like this post but please think about what I am saying. Nothing against Bruce what so ever We learn so much from each other. I have been so very Blessed by information on how everyone solves out various problems. Joe and Joanie, We are so glad to have you here with us. I have a prayer box and have added your names. God Bless you both with strength, Peace and wisdom dealing with this monster. Love and Prayers, Peggy Florida, ipf 6/04 Worry looks around. Sorry looks back, Faith looks up. Thanks for the info. You could be at least a PA if not a full fledged Dr. Concerning IPF. All this inf helps greatly. THANKS Bruce. Joe -- Re: Good Morning One word about the Levaquin and whatever you have. If you're not completely well at the end of the ten day cycle, then don't let there be a lapse. Get to the doctor and get more. Often today and even more with us, one round of antibiotics is not getting it done and if you have a few days between then you slip and the second round might not even get it done. > > A cheerful good morning to all. I feel 150% better today and I guess the > Leviquin is working as well as the cough med. Sat. It all my energy to walk > to the bathroom. If this is TMI let me know. > Joanie has become addicted to this site as she is learning also what > works, helps, and just the comraderie of all of the inflicted. > Love you guys, > Joe > <6A798E76-47D9-4176-8372-AD13069E6A18> <C53FF153-69AC-47AA-AD16-F95EDC83B413> Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 9, 2008 Report Share Posted March 9, 2008 Joe, I'm so glad that you two are finding help and support in this group. It has just been a Godsend for me, so much practical, helpful information....support so sincere it's just remarkable, not to mention the friendships that grow. You two are so welcome here though we all wish we had no reason to be here, right? Have a great day! Beth in NC age 48 Fibrotic NSIP 06/06 "For as long as I shall live, I will testify to Love." Good Morning A cheerful good morning to all. I feel 150% better today and I guess the Leviquin is working as well as the cough med. Sat. It all my energy to walk to the bathroom. If this is TMI let me know. Joanie has become addicted to this site as she is learning also what works, helps, and just the comraderie of all of the inflicted. Love you guys, Joe Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 9, 2008 Report Share Posted March 9, 2008 Thanks Peggy I even go to 2 pulmanologists to get 2 opinions constantly. I do realize Dr. Is best but even Dr.'S opinions conflict. One of my Dr.'S said listen to your body constantly and you will constantly learn. I have done so. I went to Dr. Immediately yesterday as I felt the chest tightening, weakening of body, extra coughing, etc. Prior to IPF it took a team of horses to get me to Dr. Sur[rising hoe much I have learned in a few weeks. Mostly I am not 10 feet tall and Bulletproof. Joe -- Re: Re: Good Morning Hi Joe, I think Bruce is doing a wonderful job putting information here for all of us. BUT please know no one can give youcorrect information FOR YOU but your Dr. We KNOW the practical side of living with this monster, things that make it easier. Individually we have different Dx and medications to deal with. So one stroke does not cover it all.I think everybody here knows I truly love and value Bruce and his opinions. I worry newbies will mistake some of thinkingBruce may be a Dr. And as such would follow his advise as opposed to their Dr.'s. Ya know what I mean??Boy I know some of y'all will not like this post but please think about what I am saying. Nothing against Bruce what so everWe learn so much from each other. I have been so very Blessed by information on how everyone solves out various problems.Joe and Joanie, We are so glad to have you here with us. I have a prayer box and have added your names. God Bless you both with strength, Peace and wisdom dealing with this monster.Love and Prayers, PeggyFlorida, ipf 6/04Worry looks around.Sorry looks back,Faith looks up.Thanks for the info. You could be at least a PA if not a full fledged Dr. Concerning IPF. All this inf helps greatly. THANKS Bruce.Joe-------Original Message-------From: Bruce MorelandDate: 3/9/2008 12:49:48 PMTo: Breathe-Support Subject: Re: Good MorningOne word about the Levaquin and whatever you have. If you're notcompletely well at the end of the ten day cycle, then don't let therebe a lapse. Get to the doctor and get more. Often today and even morewith us, one round of antibiotics is not getting it done and if youhave a few days between then you slip and the second round might noteven get it done.>> A cheerful good morning to all. I feel 150% better today and Iguess the> Leviquin is working as well as the cough med. Sat. It all my energyto walk> to the bathroom. If this is TMI let me know.> Joanie has become addicted to this site as she is learningalso what> works, helps, and just the comraderie of all of the inflicted.> Love you guys,> Joe><6A798E76-47D9-4176-8372-AD13069E6A18><C53FF153-69AC-47AA-AD16-F95EDC83B413> Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 9, 2008 Report Share Posted March 9, 2008 Yea you are right but there is comfort to know others feel the same way, and there is a place to go to get good advice from past experience. I know there is no sub for a good Dr. But if you have walked in the shoes it is easier to relate. Thanks again, Joe -- Re: Good Morning Joe, I'm so glad that you two are finding help and support in this group. It has just been a Godsend for me, so much practical, helpful information....support so sincere it's just remarkable, not to mention the friendships that grow. You two are so welcome here though we all wish we had no reason to be here, right? Have a great day! Beth in NC age 48 Fibrotic NSIP 06/06 "For as long as I shall live, I will testify to Love." Good Morning A cheerful good morning to all. I feel 150% better today and I guess the Leviquin is working as well as the cough med. Sat. It all my energy to walk to the bathroom. If this is TMI let me know. Joanie has become addicted to this site as she is learning also what works, helps, and just the comraderie of all of the inflicted. Love you guys, Joe Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 9, 2008 Report Share Posted March 9, 2008 Joe, You are soooo right! The support makes it so much easier to get through day by day. I love learning from others experience. I remember being encouraged to get my shower chair, take my o2 with me into the shower, the LL Bean bag that's useful for many to carry the small O2 bottles in... countless little things that make our lives easier. We've all walked the walk and we "get it"! Beth in NC age 48 Fibrotic NSIP 06/06 "For as long as I shall live, I will testify to Love." Good Morning A cheerful good morning to all. I feel 150% better today and I guess the Leviquin is working as well as the cough med. Sat. It all my energy to walk to the bathroom. If this is TMI let me know. Joanie has become addicted to this site as she is learning also what works, helps, and just the comraderie of all of the inflicted. Love you guys, Joe Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 9, 2008 Report Share Posted March 9, 2008 Joe, You are soooo right! The support makes it so much easier to get through day by day. I love learning from others experience. I remember being encouraged to get my shower chair, take my o2 with me into the shower, the LL Bean bag that's useful for many to carry the small O2 bottles in... countless little things that make our lives easier. We've all walked the walk and we "get it"! Beth in NC age 48 Fibrotic NSIP 06/06 "For as long as I shall live, I will testify to Love." Good Morning A cheerful good morning to all. I feel 150% better today and I guess the Leviquin is working as well as the cough med. Sat. It all my energy to walk to the bathroom. If this is TMI let me know. Joanie has become addicted to this site as she is learning also what works, helps, and just the comraderie of all of the inflicted. Love you guys, Joe Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 9, 2008 Report Share Posted March 9, 2008 Peggy...I fuss about the newbies taking information here as "Gospel" anyway. Bruce has become careful about qualifying himself, don't you think? Is everyone leaving today? Oh there will be a silence in your home for a couple of days! Mama-Sher, age 69. UIP-IPF 3-06, OR. Don't fret about tomorrow, God is already there! Re: Re: Good Morning Hi Joe, I think Bruce is doing a wonderful job putting information here for all of us. BUT please know no one can give youcorrect information FOR YOU but your Dr. We KNOW the practical side of living with this monster, things that make it easier. Individually we have different Dx and medications to deal with. So one stroke does not cover it all.I think everybody here knows I truly love and value Bruce and his opinions. I worry newbies will mistake some of thinkingBruce may be a Dr. And as such would follow his advise as opposed to their Dr.'s. Ya know what I mean??Boy I know some of y'all will not like this post but please think about what I am saying. Nothing against Bruce what so everWe learn so much from each other. I have been so very Blessed by information on how everyone solves out various problems.Joe and Joanie, We are so glad to have you here with us. I have a prayer box and have added your names. God Bless you both with strength, Peace and wisdom dealing with this monster.Love and Prayers, PeggyFlorida, ipf 6/04Worry looks around.Sorry looks back,Faith looks up.Thanks for the info. You could be at least a PA if not a full fledged Dr. Concerning IPF. All this inf helps greatly. THANKS Bruce.Joe-------Original Message-------From: Bruce MorelandDate: 3/9/2008 12:49:48 PMTo: Breathe-Support Subject: Re: Good MorningOne word about the Levaquin and whatever you have. If you're notcompletely well at the end of the ten day cycle, then don't let therebe a lapse. Get to the doctor and get more. Often today and even morewith us, one round of antibiotics is not getting it done and if youhave a few days between then you slip and the second round might noteven get it done.>> A cheerful good morning to all. I feel 150% better today and Iguess the> Leviquin is working as well as the cough med. Sat. It all my energyto walk> to the bathroom. If this is TMI let me know.> Joanie has become addicted to this site as she is learningalso what> works, helps, and just the comraderie of all of the inflicted.> Love you guys,> Joe><6A798E76-47D9-4176-8372-AD13069E6A18><C53FF153-69AC-47AA-AD16-F95EDC83B413> Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 9, 2008 Report Share Posted March 9, 2008 MB...since I find my cyl. will fit in my BOA I am going to buy a new one for spring/summer. Mine now is a khaki green velour for winter. uggg. You must be typing from Peggy's...or did you leave yesterday? Mama-Sher, age 69. UIP-IPF 3-06, OR. Don't fret about tomorrow, God is already there! Good Morning A cheerful good morning to all. I feel 150% better today and I guess the Leviquin is working as well as the cough med. Sat. It all my energy to walk to the bathroom. If this is TMI let me know. Joanie has become addicted to this site as she is learning also what works, helps, and just the comraderie of all of the inflicted. Love you guys, Joe Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 9, 2008 Report Share Posted March 9, 2008 I'd go one step further. Many people can give you information including your doctors. No one can make your life choices for you, not even your doctor. You must learn as much as possible but ultimately decide what is best for you. As far as the Levaquin information, if thats what Peggy is referring to, I believe my information is such as to say if he isn't completely well, he needs to talk to his doctor. I certainly wasn't prescribing Levaquin so it seemed to me to be an obvious inference that if the first round doesn't get you well, I advise you to contact doctor because a lapse might take you backward. I've never professed to be a PA or Doctor or even that knowledgeable. But, I certainly do know that one round of an antibiotic isn't working for many people. > > > > A cheerful good morning to all. I feel 150% better today and I > guess the > > Leviquin is working as well as the cough med. Sat. It all my energy > to walk > > to the bathroom. If this is TMI let me know. > > Joanie has become addicted to this site as she is learning > also what > > works, helps, and just the comraderie of all of the inflicted. > > Love you guys, > > Joe > > > > > > > <6A798E76-47D9-4176-8372-AD13069E6A18> > > <C53FF153-69AC-47AA-AD16-F95EDC83B413> > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 9, 2008 Report Share Posted March 9, 2008 Bruce , this is exactly what my pulmo told me , 'take your antibiotic till the infection goes completely, I think you should get an hon. MD Geeta ________________________________________________________________________________\ ____ Looking for last minute shopping deals? Find them fast with Yahoo! Search. http://tools.search.yahoo.com/newsearch/category.php?category=shopping Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 10, 2008 Report Share Posted March 10, 2008 Actually even if I was an MD, seeing the actions and behavior of many I don't know how honorary I'd consider it. Thats a shame. There are many incredible and dedicated and caring doctors. But its a profession rapidly suffering from those who aren't. There are honest politicians, honest lawyers, yes honest used car salesmen but look at the professions. As someone who is an accountant by training I was embarrassed to be when we saw the shenanigans of Arthur and other major firms and the hundreds of thousands of people badly hurt. I believe many who entered the medical profession did it for the right reasons, while I know some did it for money. But, somewhere along the line they became overworked, overstressed, lost any chance at a real life with their family, and no longer had the strength or resolve to do things the way they started out to. What makes you worry more is the reduced applicants for medical school. Just think about PF for a moment. I heard someone who has tremendous knowledge recently say he'd trust 100 pulmonologists in the country when it came to PF. That sounds outrageous. But, how much time has the average pulmonologist spent in the last three years keeping abreast of the latest related to the disease. How many pulmonologists actually know as many people with the disease as the members of this board do? No, I'm like everyone else here-struggling for knowledge and to live the best I can with the disease. If I have knowledge on PF at all, the majority has come from reading this forum and the rest from other information online. Yes, some things I was told by doctors but more effectively here. Some things are so complex and some choices we have to make so difficult. Prednisone and VATS are two prime examples. Others however are absolute givens, such as the necessity to maintain our saturation levels and the damage that low blood oxygen can cause. Yet, even there, when our doctors told us the importance, did they tell us how? Did they suggest oximeters? Did they explain oxygen choices? Did they tell you how to work with your oxygen supplier? Did they tell you all the things you might experience? Did they explain humidification or cannula choices? Now I will accept proudly one honor-being a member of this forum. This collective fight we're in is something I am passionate about. If suddenly a miracle occured and I found out I was misdiagnosed and didn't have PF, I'd still be committed to the fight to help those who do, the need to educate and the need for funding and awareness. And, even though I would no longer fit the technical requirements to be here, I'd go to Chicago if I had to in order to plead to be part of this group as long as I'm alive. > > Bruce , > this is exactly what my pulmo told me , 'take your > antibiotic till the infection goes completely, > I think you should get an hon. MD > Geeta > > > ________________________________________________________________________\ ____________ > Looking for last minute shopping deals? > Find them fast with Yahoo! Search. http://tools.search.yahoo.com/newsearch/category.php?category=shopping > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 10, 2008 Report Share Posted March 10, 2008 AMEN!!!!! Brother Bruce. -- Re: Good Morning Actually even if I was an MD, seeing the actions and behavior of many Idon't know how honorary I'd consider it. Thats a shame. There are manyincredible and dedicated and caring doctors. But its a professionrapidly suffering from those who aren't. There are honest politicians,honest lawyers, yes honest used car salesmen but look at theprofessions. As someone who is an accountant by training I wasembarrassed to be when we saw the shenanigans of Arthur andother major firms and the hundreds of thousands of people badly hurt.I believe many who entered the medical profession did it for the rightreasons, while I know some did it for money. But, somewhere along theline they became overworked, overstressed, lost any chance at a reallife with their family, and no longer had the strength or resolve to dothings the way they started out to. What makes you worry more is thereduced applicants for medical school.Just think about PF for a moment. I heard someone who has tremendousknowledge recently say he'd trust 100 pulmonologists in the country whenit came to PF. That sounds outrageous. But, how much time has theaverage pulmonologist spent in the last three years keeping abreast ofthe latest related to the disease. How many pulmonologists actually knowas many people with the disease as the members of this board do?No, I'm like everyone else here-struggling for knowledge and to live thebest I can with the disease. If I have knowledge on PF at all, themajority has come from reading this forum and the rest from otherinformation online. Yes, some things I was told by doctors but moreeffectively here. Some things are so complex and some choices we have tomake so difficult. Prednisone and VATS are two prime examples. Othershowever are absolute givens, such as the necessity to maintain oursaturation levels and the damage that low blood oxygen can cause. Yet,even there, when our doctors told us the importance, did they tell ushow? Did they suggest oximeters? Did they explain oxygen choices? Didthey tell you how to work with your oxygen supplier? Did they tell youall the things you might experience? Did they explain humidification orcannula choices?Now I will accept proudly one honor-being a member of this forum. Thiscollective fight we're in is something I am passionate about. Ifsuddenly a miracle occured and I found out I was misdiagnosed and didn'thave PF, I'd still be committed to the fight to help those who do, theneed to educate and the need for funding and awareness. And, even thoughI would no longer fit the technical requirements to be here, I'd go toChicago if I had to in order to plead to be part of this group as longas I'm alive.>> Bruce ,> this is exactly what my pulmo told me , 'take your> antibiotic till the infection goes completely,> I think you should get an hon. MD> Geeta>>>__________________________________________________________\____________> Looking for last minute shopping deals?> Find them fast with Yahoo! Search.http://tools.search.yahoo.com/newsearch/category.php?category=shopping> Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 10, 2008 Report Share Posted March 10, 2008 I cannot help but feel that God has placed you here on these board just for the role you are now playing , helping and guiding all of us often encouraging explaining , digging out information and trying to answer every little query , may be you got the disease just to be able to help others so whole heartedly and patiently,may God bless you! Geeta ________________________________________________________________________________\ ____ Looking for last minute shopping deals? Find them fast with Yahoo! Search. http://tools.search.yahoo.com/newsearch/category.php?category=shopping Quote Link to comment Share on other sites More sharing options...
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