Re: New to Group/just needing support

May 20, 2009

Hi !

I just joined the group 2 days ago, and have already received many warm welcomes

and support.

Sometimes I do feel like a hypochondriac. It seems like there are so many aches

and pains!

Anyway, I look forward to the support and hopefully friendships that will come

from this group.

Hope you have a great day!

________________________________

From: hodgiebaseball <hodgiebaseball@...>

Sent: Wednesday, May 20, 2009 9:52:06 AM

Subject: [ ] New to Group/just needing support

Hello to all!

I just joined this group because I need to hear from other people w/ RA, Fibro

and ankylosing spondylitis (I have all 3).

I have a loving family (I am the mother of a 17 year old son and a 3 year old

daughter), but I hurt all the time and I try not to complain..but when I do...it

seems that my family thinks I am just whining. I feel that because I don't have

a visible sign on my body, they think I am just complaining. Therefore, I keep

my comments to myself and go to bed in major pain...crying most nights.

I take Enbrel injections 2 times a week and I am on Lyrica. Do any of you ever

feel like a hypochondriac? When I go to see my Doc with a list of my

complaints.. .I feel that he thinks I am faking it...but, I am not.

I guess what I am looking for are people who feel (and hurt) like I do. Many

times it takes me 15 - 20 minutes to get out of bed. I have a very difficult

time doing most everything (I can't shower b/c the water hurts me so bad...but I

do bathe). I have a difficult time cooking for my family and keeping my house

clean. I can't seem to bend over to get the clothes our of the dryer, etc.

Any support would be appreciated. Thanks for listening to my " whining. "

May 20, 2009

Hi ,

You have came to the right place for support. I feel the same way, the

family just don't understand. I'm sure there are many members here,

that honestly feel this way, but it hurts too much to reply.

I've felt the pain of this disease, (and the others that attatch along

behind the RA), and it totally sucks. My friends are in this group,

they understand. I feel so alone with this disease sometimes, and the

depression starts stirring in my body.

If you ever need a friend to talk to, you can email me anytime. I hope

you find comfort in this group.

Gentle hugs,

Tawny

--- In , " hodgiebaseball " <hodgiebaseball@...>

wrote:

>

> Hello to all!

>

> I just joined this group because I need to hear from other people w/

RA, Fibro and ankylosing spondylitis (I have all 3).

>

> I have a loving family (I am the mother of a 17 year old son and a 3

year old daughter), but I hurt all the time and I try not to

complain..but when I do...it seems that my family thinks I am just

whining. I feel that because I don't have a visible sign on my body,

they think I am just complaining. Therefore, I keep my comments to

myself and go to bed in major pain...crying most nights.

>

> I take Enbrel injections 2 times a week and I am on Lyrica. Do any of

you ever feel like a hypochondriac? When I go to see my Doc with a list

of my complaints...I feel that he thinks I am faking it...but, I am not.

>

> I guess what I am looking for are people who feel (and hurt) like I

do. Many times it takes me 15 - 20 minutes to get out of bed. I have a

very difficult time doing most everything (I can't shower b/c the water

hurts me so bad...but I do bathe). I have a difficult time cooking for

my family and keeping my house clean. I can't seem to bend over to get

the clothes our of the dryer, etc.

>

> Any support would be appreciated. Thanks for listening to my

" whining. "

>

May 21, 2009

Hello , , any other newbies I've missed and the " regulars " !

Thought I'd pop in to welcome the newbies and say a quick " Hi " to everyone!

I'm playing the waiting game to find out how much of the Enbrel cost my health

insurance (Regence Blue Shield) will cover and then to figure out how to pay for

the copay (although my doc, Dr. , of Seattle Arthritis Clinic says

they'll help find a way, also). I am now on 4mg of Medrol daily, folic acid, Vit

D and 6 Methotrexate tablets weekly. I am not feeling any significant side

effects and usually feel pretty good, except when it's cold/damp and rainy,

which it's been the last couple of days! My hands don't seem to like this

weather at all!! I should liv in Arizona!!

Anyway, this is a great place to find caring, sympathetic friends,useful

information and a place for all the support you can handle!

That's it from me (for now)!

Take care!

Elly

(Seattle area)

May 21, 2009

Hi Elly! Just wanted to say hi; i'm fairlly new IN THIS Group. Hope you feel

better soon!

my R.A. is somewhat worse lately; but i've been lucky; only been taking two -

200 mg. of non-prescription ibuprofen DAILY for several years now; it's sort of

like it was in remission, but lately it's a little worse - the swelling in my

fingers; hard to make a fist. I have dr. appt this Sat.; had blood work Tues/

not for RA tho; other lab work--for cholesterol, checking for diabetees, and

thyroid. My thyroid level has been a little high -a few mo's ago, but after

only 2 mo's of taking generic synthyroid - it was normal on my last visit to my

Dr.

Best wishes in your health and I wish for you to be Pain-FREE!

jUDY

From: Elly Cyr <ellycyr@...>

Subject: [ ] Re: New to Group/just needing support

Date: Thursday, May 21, 2009, 2:41 AM