Guest guest Posted November 27, 2009 Report Share Posted November 27, 2009 I agree with 's post below. I really think Dr. Dake knows how to test people and if a small percentage of people show no abnormalities on MRV, as understood by experts such as Dr. Dake, then I think the patient needs to move on to try something else for their illness, rather than push for a procedure that the expert feels is not indicated....I have always believed that MS/demyelination/or whatever one wants to call it has different causes in different incividuals (e.g., heavy metals, leaky gut, candida. Lyme etc) and different solutions for different individuals. Anyway, that is my belief about MS after 3 years of researching it pretty much full time. There is not a one-size-fits-all approach yet. Wish there was, it sure would make things a lot easier. > > Hi , > > Dr. Dake at Stanford is the Dr. here in America who has most closely followed the Dr. in Italy. He travels over to Italy all the time. They use an MRV test at Stanford which is very thorough. Unfortunately, we all have different things which triggered are illnesses. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 9, 2009 Report Share Posted December 9, 2009 I would bring up grape seed extract to your Doc UCLA did a study on it for you to find on the internet I would also suggest brown seaweed to remove extra iron/metals released from CCSVI. Antoinette > > > > Any pointers? > > Janet > > _________________________________________________________________ > Windows Live: Make it easier for your friends to see what you're up to on Facebook. > http://www.microsoft.com/middleeast/windows/windowslive/see-it-in-action/social-\ network-basics.aspx?ocid=PID23461::T:WLMTAGL:ON:WL:en-xm:SI_SB_2:092009 > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 10, 2009 Report Share Posted December 10, 2009 Hi Janet Do you have the link to www.w5.ctv.ca? Also, I'm happy to email you Zamboni's paper if you'd like. Check out the Michelangelo'S Angels on Facebook and there should be quite a few links. Also there's a group CCSVI in Multiple Sclerosis I think it's called...but my memory's el crappola these days! Let me know vis FBk or on Facebook and I'll get you any info you want! 'What we do in life, echoes through eternity.' MARCUS AURELIUS (121 - 180 A.D.) _________________________________________________________________ A world FIRST in property search has arrived! Check out Domain Radar NOW! http://clk.atdmt.com/NMN/go/157631292/direct/01/ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 11, 2009 Report Share Posted December 11, 2009 Thanks . I have all those links except Michelangelo's Angels which I can't find. Could you pass it on sometime? Thanks Janet To: mscured From: rachael.m.thomas@... Do you have the link to www.w5.ctv.ca? Also, I'm happy to email you Zamboni's paper if you'd like. Check out the Michelangelo'S Angels on Facebook and there should be quite a few links. Also there's a group CCSVI in Multiple Sclerosis I think it's called...but my memory's el crappola these days! _________________________________________________________________ Windows Live: Friends get your Flickr, Yelp, and Digg updates when they e-mail you. http://www.microsoft.com/middleeast/windows/windowslive/see-it-in-action/social-\ network-basics.aspx?ocid=PID23461::T:WLMTAGL:ON:WL:en-xm:SI_SB_3:092010 Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 1, 2010 Report Share Posted February 1, 2010 It's not the Caroteid artery that is the problem with MS (altho in some it might play a part). It is another vein that drains blood from the brain--I can't think of the name of it off the top of my head, but it's a vein that is not normally tested. When I can look up where I wrote the name of the vein, I'll post. Beverly Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 23, 2010 Report Share Posted February 23, 2010 HI ALL. I wrote to Univ. of Buffalo to see if I could get in their study. Following is reply I received. Evidently they are not taking candidates at this time (?) But the Administrator included in her letter the Protocol for getting the proper scans. And links to explaining the protocol. I guess if I copied out all this info. and got a doctor to prescribe the tests, I could have a radiologist follow the protocol and at least get tested. IF I can find a doctor willing to prescribe them. Am sending you all this letter in case any of you have particularly open-minded neurologists and can have the tests done on your own. Good luck to us all. Beverly Subject: CCSVI To: " Beverly Hammons " Date: Tuesday, February 23, 2010, 10:59 AM Dear Beverly, I received your letter yesterday inquiring about the CCSVI study. We do not have a link to sign up any volunteers since we do not have IRB approval. You can take the protocol from our website and try and find a site to run the scan or get your doctor to give you a script for the scans. After you get them, send us the CD and we can review the data for you. We are not medical doctors, so we cannot make a diagnosis. You can take the finding to your doctor to discuss further treatment options for you. Potential protocols http://www.ms-mri.com/potential.php This section provides a list of potential sequences that can be used to collect data on arteries, veins, flow and iron content in the body for the CCSVI/SWI study. The radiologist will know how to run the following scans: a 2D time-of-flight MRV through the head and neck down to the subclavian a time resolved MRA/MRV of the head and neck coronally to the aortic arch flow quantification through the straight sinus, the jugular (upper and lower) and coronally through the jugular/subclavian and brachiocephalic veins in one plane, to check for reflux flow and slow flow SWI if available to check for the small venous structures and iron content Sincerely, D. Martis-Laze Administrator The MRI Institute for Biomedical Research 440 East Ferry Street Detroit, MI 48202 - Tel - Fax rdmlaze@... - Email www.mrimaging.com - Website Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 23, 2010 Report Share Posted February 23, 2010 Thanks Beverly, That is very helpful Stanford University where I live is not doing the testing or procedures like I had hoped so I will try to find someone to get the testing done for me. Thanks again Best, Quote Link to comment Share on other sites More sharing options...
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