Re: HELLO EVERYONE.....

[Guest guest]

Hello Janet,

Well, I just took a look at the survey page

/surveys/

and though only twelve people have responded to the survey question

about prednisone/steroids, all but one said steroids have been used as

part of the treatment for JRA. For varying lengths of time and I'm sure,

at different sorts of doses.

I don't know of any children with the systemic form of JRA who have not

been given steroids at least temporarily. I have heard of several

children with poly/pauci JRA that have taken them, as well.

Hope Mandy is feeling somewhat better.

Aloha,

Georgina

> Janet & Gilbert Moyer wrote:

>

> I am just trying to figure out if most children on this list are on

> steroids.....I wonder if the fact that Mandy has polyarticular

> arthritis, and not systemic? Once again, I have never even heard of an

> iv pulse. What is that? I was just curious. Mandy seems to be pretty

> much the same....Good days, and bad days....Yest. was a bad day...I am

> waiting to hear from her doctor. Janet

[Guest guest]

Well well well! YAY!!!!!! Good to see you here! I'm so happy you are back

home.

This being on gmail is driving me nuts, so when a note from BARBARA flashed

across my screen

I had to zoom in here! Welcome back. I'm sure we'll talk soon. Glad you

are back in the comfort of our own home and your own bed and new chair and

family, etc....yipee!!!! ok, you get the point...welcome back...

many many many monster hugs!!!

Heidi in Mass.....

On Fri, May 29, 2009 at 8:25 PM, Barbara <bcreedon@...> wrote:

>

>

>

> I am finally home today. It is great to be home, that's for sure.

>

> My knee replacement went well, and I am doing good. Finally got my pain

> under control 9 days after the surgery. It was pure hell, and my

> doctors were trying so hard to find the right pain meds. that would work

> for me. The morphine pump did nothing for me. I have never cried so

> much in my life. I was totally unprepared for all that. They finally

> put in a Dulouded? pump, took 2 perkies every 4 hours, oxycodone in

> between and they added a muscle relaxer. This was the right meds. for

> me, thank God.

>

> My P.T. went well, and I am walking with the walker, and also with a

> cane. Right now I am sticking with the walker for stability and safety.

>

> I have thought of all of you, and hope everyone is doing better. It was

> great to talk with Heidi and Doreen. I was so happy that they called

> me. Also, thanks for all the cards. I sure did enjoy getting them.

>

> I have over 2100 e-mails, and I will begin reading all the ones from our

> group tomorrow.

>

> Wishing everyone pain free days ahead.

>

> Hugs,

>

> Barbara

>

>

>

[Guest guest]

Hi Heidi:

So glad to hear from you tonight. I will look forward to when we talk

again.

My bed felt so good..... took a 3 hour nap today as I am very tired. I

am just so happy to be home. All the animals are here in my bedroom

with me. We sure missed each other!

Hope you are feeling better. I know you are having nasty weather, and I

am sure that makes you feel awful. I hate those cold, nasty rainy days

in Mass. My best friend Joyce says it is so nasty on the Cape. Yuk.

90 today, but breezy and humid. Have the ac on so it is nice inside. I

am off to bed soon. Take care and again, glad to hear from you. I so

missed being on line!!!

Big monster hugs to you.

Barbara

>

> >

> >

> >

> > I am finally home today. It is great to be home, that's for sure.

> >

> > My knee replacement went well, and I am doing good. Finally got my

pain

> > under control 9 days after the surgery. It was pure hell, and my

> > doctors were trying so hard to find the right pain meds. that would

work

> > for me. The morphine pump did nothing for me. I have never cried so

> > much in my life. I was totally unprepared for all that. They finally

> > put in a Dulouded? pump, took 2 perkies every 4 hours, oxycodone in

> > between and they added a muscle relaxer. This was the right meds.

for

> > me, thank God.

> >

> > My P.T. went well, and I am walking with the walker, and also with a

> > cane. Right now I am sticking with the walker for stability and

safety.

> >

> > I have thought of all of you, and hope everyone is doing better. It

was

> > great to talk with Heidi and Doreen. I was so happy that they called

> > me. Also, thanks for all the cards. I sure did enjoy getting them.

> >

> > I have over 2100 e-mails, and I will begin reading all the ones from

our

> > group tomorrow.

> >

> > Wishing everyone pain free days ahead.

> >

> > Hugs,

> >

> > Barbara

> >

> >

> >

>

>

>

[Guest guest]

Glad to hear you are back and everything went okay. Nothing as been going on

with me, I was accused of being rude and insensitive (words I can't find in my

" guy " dictionary) and is keenly reading everything I post. In other words,

nothing has changed. I'm so glad you got through it, So....what do you plan to

do with all those pain killers you couldn't take? lol

Stan

Seattle, Sun! (when it's not dark)

[Guest guest]

Barbara

WELCOME HOME!!!!!! We missed you. I know you will feel better everyday.

Just don't overdo. Glad to see you post again

Heidibug

On Fri, May 29, 2009 at 8:25 PM, Barbara <bcreedon@...> wrote:

>

>

>

> I am finally home today. It is great to be home, that's for sure.

>

> My knee replacement went well, and I am doing good. Finally got my pain

> under control 9 days after the surgery. It was pure hell, and my

> doctors were trying so hard to find the right pain meds. that would work

> for me. The morphine pump did nothing for me. I have never cried so

> much in my life. I was totally unprepared for all that. They finally

> put in a Dulouded? pump, took 2 perkies every 4 hours, oxycodone in

> between and they added a muscle relaxer. This was the right meds. for

> me, thank God.

>

> My P.T. went well, and I am walking with the walker, and also with a

> cane. Right now I am sticking with the walker for stability and safety.

>

> I have thought of all of you, and hope everyone is doing better. It was

> great to talk with Heidi and Doreen. I was so happy that they called

> me. Also, thanks for all the cards. I sure did enjoy getting them.

>

> I have over 2100 e-mails, and I will begin reading all the ones from our

> group tomorrow.

>

> Wishing everyone pain free days ahead.

>

> Hugs,

>

> Barbara

>

>

>

[Guest guest]

Hi Stan:

Glad to hear from you today. I always enjoy your posts, and hope you

continue to do so.

I was happy to read you are having some sunshine. That must make you

feel happy.

I am only taking oxycodone and Perky's plus muscle relaxers. I don't

think I will stay on them long. My knee feels good but stiff when I get

up in the morning. I will do my many knee exercises everyday. They

really help. I am just glad the surgery is over and I am on the road to

a complete recovery. I hope this is my last surgery!!!!

I hope you have a good day, and wish you to be pain free soon.

Hugs,

Barbara

>

>

>

> Glad to hear you are back and everything went okay. Nothing as been

going on with me, I was accused of being rude and insensitive (words I

can't find in my " guy " dictionary) and is keenly reading everything

I post. In other words, nothing has changed. I'm so glad you got through

it, So....what do you plan to do with all those pain killers you

couldn't take? lol

>

>

>

> Stan

>

> Seattle, Sun! (when it's not dark)

>

>

[Guest guest]

Hi Heidibug:

Thanks for the welcome, and glad to hear from you.

I intend to take things easy and slow. I am very tired and hope this

ends soon. I am on Iron pills as my blood was very low. I hope these

pills do the trick.

How have you been doing? I hope better. I pray you will be pain free

soon.

Wishing you pain free days ahead.

Hugs,

Barbara

>

> >

> >

> >

> > I am finally home today. It is great to be home, that's for sure.

> >

> > My knee replacement went well, and I am doing good. Finally got my

pain

> > under control 9 days after the surgery. It was pure hell, and my

> > doctors were trying so hard to find the right pain meds. that would

work

> > for me. The morphine pump did nothing for me. I have never cried so

> > much in my life. I was totally unprepared for all that. They finally

> > put in a Dulouded? pump, took 2 perkies every 4 hours, oxycodone in

> > between and they added a muscle relaxer. This was the right meds.

for

> > me, thank God.

> >

> > My P.T. went well, and I am walking with the walker, and also with a

> > cane. Right now I am sticking with the walker for stability and

safety.

> >

> > I have thought of all of you, and hope everyone is doing better. It

was

> > great to talk with Heidi and Doreen. I was so happy that they called

> > me. Also, thanks for all the cards. I sure did enjoy getting them.

> >

> > I have over 2100 e-mails, and I will begin reading all the ones from

our

> > group tomorrow.

> >

> > Wishing everyone pain free days ahead.

> >

> > Hugs,

> >

> > Barbara

> >

> >

> >

>

>

>

[Guest guest]

welcome Back,

 

You have been in all our thoughts. You have been sorely missed.

I am so happy you are doing better day,by day.

do you have access to a pool? When you can navigate a bit, a pool would help

that stiffness.

Blessings, love and light,

Raniolo

From: Barbara <bcreedon@...>

Subject: [ ] HELLO EVERYONE.....

Date: Friday, May 29, 2009, 8:25 PM

I am finally home today. It is great to be home, that's for sure.

My knee replacement went well, and I am doing good. Finally got my pain

under control 9 days after the surgery. It was pure hell, and my

doctors were trying so hard to find the right pain meds. that would work

for me. The morphine pump did nothing for me. I have never cried so

much in my life. I was totally unprepared for all that. They finally

put in a Dulouded? pump, took 2 perkies every 4 hours, oxycodone in

between and they added a muscle relaxer. This was the right meds. for

me, thank God.

My P.T. went well, and I am walking with the walker, and also with a

cane. Right now I am sticking with the walker for stability and safety.

I have thought of all of you, and hope everyone is doing better. It was

great to talk with Heidi and Doreen. I was so happy that they called

me. Also, thanks for all the cards. I sure did enjoy getting them.

I have over 2100 e-mails, and I will begin reading all the ones from our

group tomorrow.

Wishing everyone pain free days ahead.

Hugs,

Barbara

[Guest guest]

Hi :

Yes, we have an inground pool at our new house. I need to have the pool

company come here and install a banister into the pool. Then I will go

in everyday.

It is great to be home, and back on our support group e-mails.

I hope you are doing better since we last talked. Wishing you pain free

days ahead.

Hugs,

Barbara

>

>

> From: Barbara bcreedon@...

> Subject: [ ] HELLO EVERYONE.....

>

> Date: Friday, May 29, 2009, 8:25 PM

>

>

>

>

>

>

>

>

>

> I am finally home today. It is great to be home, that's for sure.

>

> My knee replacement went well, and I am doing good. Finally got my

pain

> under control 9 days after the surgery. It was pure hell, and my

> doctors were trying so hard to find the right pain meds. that would

work

> for me. The morphine pump did nothing for me. I have never cried so

> much in my life. I was totally unprepared for all that. They finally

> put in a Dulouded? pump, took 2 perkies every 4 hours, oxycodone in

> between and they added a muscle relaxer. This was the right meds. for

> me, thank God.

>

> My P.T. went well, and I am walking with the walker, and also with a

> cane. Right now I am sticking with the walker for stability and

safety.

>

> I have thought of all of you, and hope everyone is doing better. It

was

> great to talk with Heidi and Doreen. I was so happy that they called

> me. Also, thanks for all the cards. I sure did enjoy getting them.

>

> I have over 2100 e-mails, and I will begin reading all the ones from

our

> group tomorrow.

>

> Wishing everyone pain free days ahead.

>

> Hugs,

>

> Barbara

>

>

>

>

>

>

>

>

>

>

>

>

>

>

>

>

>

[Guest guest]

(((((Barbara))))) Welcome home!! I was thinking about you the other day and was

going to call, but got side tracked - you know how that goes. I am so happy to

hear you are doing better. Take it easy now, don't overdo, go slowly and I look

forward to talking with you again - whether it be here, email or phone. I'm just

so danged happy for you!.....Doreen

>

> I am finally home today. It is great to be home, that's for sure.

>

> My knee replacement went well, and I am doing good. Finally got my

> pain under control 9 days after the surgery. It was pure hell, and

> my doctors were trying so hard to find the right pain meds. that

> would work for me. The morphine pump did nothing for me. I have

> never cried so much in my life. I was totally unprepared for all

> that. They finally put in a Dulouded? pump, took 2 perkies every 4

> hours, oxycodone in between and they added a muscle relaxer. This

> was the right meds. for me, thank God.

>

> My P.T. went well, and I am walking with the walker, and also with a

> cane. Right now I am sticking with the walker for stability and

> safety.

>

> I have thought of all of you, and hope everyone is doing better.

> It was great to talk with Heidi and Doreen. I was so happy that

> they called me. Also, thanks for all the cards. I sure did enjoy

> getting them.

>

> I have over 2100 e-mails, and I will begin reading all the ones

> from our group tomorrow.

>

> Wishing everyone pain free days ahead.

>

> Hugs,

>

> Barbara

>

[Guest guest]

Stan - YOU rude and insensitive? No way!! Must've been impersonating you

again. Dang sock!! LOL.....Doreen

Glad to hear you are back and everything went okay. Nothing as been going on

with me, I was accused of being rude and insensitive (words I can't find in my

" guy " dictionary) and is keenly reading everything I post. In other words,

nothing has changed. I'm so glad you got through it, So....what do you plan to

do with all those pain killers you couldn't take? lol

Stan

Seattle, Sun! (when it's not dark)

[Guest guest]

I know, it's shocking. I was very upset, almost as upset as when I watched the

grand finale of American Idol and I saw many of those " so called " celebrities

wearing white before Memorial Day! Unbelievable.

Stan

Seattle, SUN!

[ ] Re: HELLO EVERYONE.....

Stan - YOU rude and insensitive? No way!!  Must've been impersonating

you again. Dang sock!! LOL.....Doreen

 Glad to hear you are back and everything went okay. Nothing as been going on

with me, I was accused of being rude and insensitive (words I can't find in my

" guy " dictionary) and is keenly reading everything I post. In other words,

nothing has changed. I'm so glad you got through it, So....what do you plan to

do with all those pain killers you couldn't take? lol

 

 Stan

 Seattle, Sun! (when it's not dark)

[Guest guest]

Hi Doreen:

So nice to hear from you. I too look forward to talking with you. I

sure am going slowly and taking things easy. I start the P.T. at home

tomorrow morning. I am also doing the exercises from the Rehab. P.T.'s.

How have you been feeling lately? What have you been doing?

I hope you have a nice night. Just loving the weather here now.

Wishing you pain free days.

Hugs,

BarbarA

> >

> > I am finally home today. It is great to be home, that's for sure.

> >

> > My knee replacement went well, and I am doing good. Finally got my

> > pain under control 9 days after the surgery. It was pure hell, and

> > my doctors were trying so hard to find the right pain meds. that

> > would work for me. The morphine pump did nothing for me. I have

> > never cried so much in my life. I was totally unprepared for all

> > that. They finally put in a Dulouded? pump, took 2 perkies every 4

> > hours, oxycodone in between and they added a muscle relaxer. This

> > was the right meds. for me, thank God.

> >

> > My P.T. went well, and I am walking with the walker, and also with a

> > cane. Right now I am sticking with the walker for stability and

> > safety.

> >

> > I have thought of all of you, and hope everyone is doing better.

> > It was great to talk with Heidi and Doreen. I was so happy that

> > they called me. Also, thanks for all the cards. I sure did enjoy

> > getting them.

> >

> > I have over 2100 e-mails, and I will begin reading all the ones

> > from our group tomorrow.

> >

> > Wishing everyone pain free days ahead.

> >

> > Hugs,

> >

> > Barbara

> >

>

[Guest guest]

(((Barbara)))

I am so glad to see you back on board:) You have went through a lot girl,hope

you feel better soon. I'm glad you finally got the right meds that work for

you. You have been missed, we've all been so worried about you. Glad your back

online.

Take it easy,

Tawny

>

>

> I am finally home today. It is great to be home, that's for sure.

>

> My knee replacement went well, and I am doing good. Finally got my pain

> under control 9 days after the surgery. It was pure hell, and my

> doctors were trying so hard to find the right pain meds. that would work

> for me. The morphine pump did nothing for me. I have never cried so

> much in my life. I was totally unprepared for all that. They finally

> put in a Dulouded? pump, took 2 perkies every 4 hours, oxycodone in

> between and they added a muscle relaxer. This was the right meds. for

> me, thank God.

>

> My P.T. went well, and I am walking with the walker, and also with a

> cane. Right now I am sticking with the walker for stability and safety.

>

> I have thought of all of you, and hope everyone is doing better. It was

> great to talk with Heidi and Doreen. I was so happy that they called

> me. Also, thanks for all the cards. I sure did enjoy getting them.

>

> I have over 2100 e-mails, and I will begin reading all the ones from our

> group tomorrow.

>

> Wishing everyone pain free days ahead.

>

> Hugs,

>

> Barbara

>

[Guest guest]

Hi Tawny: So glad to hear from you today. I feel so bad that you are

suffering so with all that pain. It is really hard to bear it day in

and day out. I hope your drs. find you the right pain meds. so you can

at least be comfortable. You have been through much too much.

I am glad to be home and back to posting here. I have missed all of

you, that's for sure.

My P.T. came this a.m. and she said I am doing great. I thank God that

I am. My RA is quiet, which I am very grateful for. I need a breather

from all that.

Talk soon, and I am praying for you to get pain free.

Hugs,

Barbara

> >

> >

> > I am finally home today. It is great to be home, that's for sure.

> >

> > My knee replacement went well, and I am doing good. Finally got my

pain

> > under control 9 days after the surgery. It was pure hell, and my

> > doctors were trying so hard to find the right pain meds. that would

work

> > for me. The morphine pump did nothing for me. I have never cried so

> > much in my life. I was totally unprepared for all that. They finally

> > put in a Dulouded? pump, took 2 perkies every 4 hours, oxycodone in

> > between and they added a muscle relaxer. This was the right meds.

for

> > me, thank God.

> >

> > My P.T. went well, and I am walking with the walker, and also with a

> > cane. Right now I am sticking with the walker for stability and

safety.

> >

> > I have thought of all of you, and hope everyone is doing better. It

was

> > great to talk with Heidi and Doreen. I was so happy that they called

> > me. Also, thanks for all the cards. I sure did enjoy getting them.

> >

> > I have over 2100 e-mails, and I will begin reading all the ones from

our

> > group tomorrow.

> >

> > Wishing everyone pain free days ahead.

> >

> > Hugs,

> >

> > Barbara

> >

>

[Guest guest]

barbara.

hi and welcome back..

daine in ohio

[Guest guest]

Barbara,

I love you so much girl. You have just been through hell, and your

worrying about me. I will call my doctors tomorrow. You are right, its

hard to bear this pain every day, almost too much.

Glad your doing well, and I hope things just go smoothly. I'm glad the

RA is quiet right now, amazing. Are you back on your RA meds yet? I

know its been a long road for you, glad your healing at home.

Take care, and my thoughts are with you always,

Tawny

[Guest guest]

HI Tawny:

I have been thinking of you all day today, and wish you were feeling

better. I am glad you will call your dr. tomorrow.

I swear it is always something with us. As if RA is easy to deal with!!

I am still on all my RA meds, even took them in the hosp. and Rehab

center. I need to cut my dose of Pred. to 5 instead of 10. Maybe I

will try that next week.

I am just so damn happy to be home. Just taking it real easy, and

resting a lot. at least the knee pain is miminal. I am grateful for

that.

I am praying for you my dear friend, and hope you will be pain free

soon. Talk again soon.

Hugs,

Barbara

>

>

> Barbara,

>

> I love you so much girl. You have just been through hell, and your

> worrying about me. I will call my doctors tomorrow. You are right, its

> hard to bear this pain every day, almost too much.

>

> Glad your doing well, and I hope things just go smoothly. I'm glad the

> RA is quiet right now, amazing. Are you back on your RA meds yet? I

> know its been a long road for you, glad your healing at home.

>

> Take care, and my thoughts are with you always,

>

> Tawny

>

[Guest guest]

Barbara,

Well, that is a relief to know your able to take your RA meds. I hope

your able to go off the pred, without too much problem. I would wait

until next week also. Just get settled into being home, I know your so

happy.

Thanks for the support and prayers Barbara, it means so much to me. You

take care my friend, and your in my thoughts and prayers always.

Gentle hugs,

Tawny

[Guest guest]

Hi Tawny:

I have been reading all your posts, and I feel just awful that you are

suffering so much. You have so much to deal with each day, I can see

why you are so overwhelmed. Daily pain is so wearing, that you can

hardly think straight. I hope you see your dr. very soon, tell your

Rheumy everthing, and I mean everything. Your Rheumy needs to hear all

about what you are dealing with, plus being so depressed. Who can blame

you for being depressed? I have gone through times like that, and I

really thought I was losing my mind. We all have a maximum for our

endurance. You have reached yours. I know what it is like to feel so

alone and that no one understands or cares what you are dealing with. I

know your family loves you, and it must be so tough on them to see what

you endure each day. Your dr. needs to be there for you, and find the

right cocktail of pain meds for you so you can get through this bad

time.

I have changed how I view things in my life now. I concentrate on the

things I can do, not what I have given up. I lead a much more sedate

and quiet life. As you know I am going through a very painfull divorce.

I still can't believe what has been done to me, but I need to survive so

I can have a life. I will probably always love the man I married, but

he is gone. 29 years of marriage, just gone. He wants me to come home

and just continue with life. I can't do it as I can't trust him, nor

can I forgive him. Maybe in time, I just don't know.

I am living a very peaceful and happy life with my son and his family. I

can feel the love from them to me, and that gives me such a good

feeling. I am loving our new home, and so happy to be home again. As

always, I am just taking one day at a time. I am thankful for my loving

family and loving friends. I am very rich in that area of my life. I

have many hobbies, so I look forward to when I can sit for awhile and do

my folk art painting. I also do needlepoint, and will start that kit

soon. I also read everyday. I can't go, go, go anymore but that is

o.k. I take my time and go slowly. This is just another phase of my

life.

I am so praying for you Tawny. I want you to feel better and be pain

free. Please take care and see your dr. soon. I care about you my dear

friend. God Bless you always and in all ways. Many gentle hugs to you.

Barbara

>

[Guest guest]

Hi Tawny:

I have been reading all your posts, and I feel just awful that you are

suffering so much. You have so much to deal with each day, I can see

why you are so overwhelmed. Daily pain is so wearing, that you can

hardly think straight. I hope you see your dr. very soon, tell your

Rheumy everthing, and I mean everything. Your Rheumy needs to hear all

about what you are dealing with, plus being so depressed. Who can blame

you for being depressed? I have gone through times like that, and I

really thought I was losing my mind. We all have a maximum for our

endurance. You have reached yours. I know what it is like to feel so

alone and that no one understands or cares what you are dealing with. I

know your family loves you, and it must be so tough on them to see what

you endure each day. Your dr. needs to be there for you, and find the

right cocktail of pain meds for you so you can get through this bad

time.

I have changed how I view things in my life now. I concentrate on the

things I can do, not what I have given up. I lead a much more sedate

and quiet life. As you know I am going through a very painfull divorce.

I still can't believe what has been done to me, but I need to survive so

I can have a life. I will probably always love the man I married, but

he is gone. 29 years of marriage, just gone. He wants me to come home

and just continue with life. I can't do it as I can't trust him, nor

can I forgive him. Maybe in time, I just don't know.

I am living a very peaceful and happy life with my son and his family. I

can feel the love from them to me, and that gives me such a good

feeling. I am loving our new home, and so happy to be home again. As

always, I am just taking one day at a time. I am thankful for my loving

family and loving friends. I am very rich in that area of my life. I

have many hobbies, so I look forward to when I can sit for awhile and do

my folk art painting. I also do needlepoint, and will start that kit

soon. I also read everyday. I can't go, go, go anymore but that is

o.k. I take my time and go slowly. This is just another phase of my

life.

I am so praying for you Tawny. I want you to feel better and be pain

free. Please take care and see your dr. soon. I care about you my dear

friend. God Bless you always and in all ways. Many gentle hugs to you.

Barbara

>

[Guest guest]

Barbara,

Thanks my friend for the wonderful words you offer, it helps so much.

It's really hard not to have depression with all the health problems.

I've been off the mood meds for quite awhile. I will be on the

depression med, and then I will go off for awhile, when I'm in a better

place. I just hate taking so many meds. I will talk to my primary

doctor, when I see her about the depression.

You have been through a lot, and I'm so glad you are with family. You

are loved, and you don't have to wonder what's going on. You need to

have happiness around you, not gloom. Hey, life isn't over, you will

find someone special, who loves you unconditionally. I'm glad you keep

busy, with your activities. I hope when the knee is healed, you can get

out more, now that your a single woman.

I do have things to keep me busy. Its just so hard when the pain will

not let you do any of them. I hope the doctors will be able to find out

something. I'm dreading to hear my lab results. I'm sure my

cholesterol is high. It did go down last time, I hope its went down

more. I'm also worried, I was pre-diabetes too. My three brothers have

it, and one is waiting for a kidney, just a devastating disease. I

don't cook like I use to, so its hard to be on a good diet. Too bad I

can't have my own personal chef, life would be good.

I will close, and again thanks so much for your support. I know you are

on the mend, but you still have time to help us all. I really love you

Barbara, and so glad your doing better.

Take care,

Tawny

>

>

> Hi Tawny:

>

> I have been reading all your posts, and I feel just awful that you are

> suffering so much. You have so much to deal with each day, I can see

> why you are so overwhelmed. Daily pain is so wearing, that you can

> hardly think straight. I hope you see your dr. very soon, tell your

> Rheumy everthing, and I mean everything. Your Rheumy needs to hear all

> about what you are dealing with, plus being so depressed. Who can

blame

> you for being depressed? I have gone through times like that, and I

> really thought I was losing my mind. We all have a maximum for our

> endurance. You have reached yours. I know what it is like to feel so

> alone and that no one understands or cares what you are dealing with.

I

> know your family loves you, and it must be so tough on them to see

what

> you endure each day. Your dr. needs to be there for you, and find the

> right cocktail of pain meds for you so you can get through this bad

> time.

>

> I have changed how I view things in my life now. I concentrate on the

> things I can do, not what I have given up. I lead a much more sedate

> and quiet life. As you know I am going through a very painfull

divorce.

> I still can't believe what has been done to me, but I need to survive

so

> I can have a life. I will probably always love the man I married, but

> he is gone. 29 years of marriage, just gone. He wants me to come home

> and just continue with life. I can't do it as I can't trust him, nor

> can I forgive him. Maybe in time, I just don't know.

>

> I am living a very peaceful and happy life with my son and his family.

I

> can feel the love from them to me, and that gives me such a good

> feeling. I am loving our new home, and so happy to be home again. As

> always, I am just taking one day at a time. I am thankful for my

loving

> family and loving friends. I am very rich in that area of my life. I

> have many hobbies, so I look forward to when I can sit for awhile and

do

> my folk art painting. I also do needlepoint, and will start that kit

> soon. I also read everyday. I can't go, go, go anymore but that is

> o.k. I take my time and go slowly. This is just another phase of my

> life.

>

> I am so praying for you Tawny. I want you to feel better and be pain

> free. Please take care and see your dr. soon. I care about you my dear

> friend. God Bless you always and in all ways. Many gentle hugs to you.

>

> Barbara

[Guest guest]

Tawny,

Diabetes can be much more manageable than RA. I am able to control my

diabetes very well with diet and oral medication. I couldn't do it if

I hadn't educated myself about the disease and its requirements. If

you find out that you do have diabetes, I'll be glad to answer any

questions you may have about it. Even with pre-diabetes, you can go

ahead and take measures to prevent full-blown diabetes.

Sue

On Jun 1, 2009, at 11:15 PM, tdianaok wrote:

> I'm also worried, I was pre-diabetes too. My three brothers have

> it, and one is waiting for a kidney, just a devastating disease. I

> don't cook like I use to, so its hard to be on a good diet. Too bad I

> can't have my own personal chef, life would be good.

[Guest guest]

Sue,

I would love to have your support. Most of my family,(on my dads side),

has diabetes. So, its always scared me. I collect diseases, the way

some collect baseball cards. I dread going to the doctor, they always

seem to find something.

I'm glad your managing your diabetes. I have changed my lifestyle quite

a bit. I've never been much on sweets, so that is not a big problem for

me to cut out. I have always liked soda's, and now I drink diet, if I

want one. So, I'm doing much better. I'm eating more veggies, and

actually eat a lot of them, for snacking.

So, thanks for the offer, and I'll let you know the results. Hope your

week goes well, and with less pain.

Gentle hugs,

Tawny

>

> Tawny,

>

> Diabetes can be much more manageable than RA. I am able to control my

> diabetes very well with diet and oral medication. I couldn't do it if

> I hadn't educated myself about the disease and its requirements. If

> you find out that you do have diabetes, I'll be glad to answer any

> questions you may have about it. Even with pre-diabetes, you can go

> ahead and take measures to prevent full-blown diabetes.

>

> Sue

[Guest guest]

So glad to hear from you, Barbara! I'm happy that you are doing well.

Not an MD

On Fri, May 29, 2009 at 7:25 PM, Barbara <bcreedon@...> wrote:

>

>

>

> I am finally home today. It is great to be home, that's for sure.

>

> My knee replacement went well, and I am doing good. Finally got my pain

> under control 9 days after the surgery. It was pure hell, and my

> doctors were trying so hard to find the right pain meds. that would work

> for me. The morphine pump did nothing for me. I have never cried so

> much in my life. I was totally unprepared for all that. They finally

> put in a Dulouded? pump, took 2 perkies every 4 hours, oxycodone in

> between and they added a muscle relaxer. This was the right meds. for

> me, thank God.

>

> My P.T. went well, and I am walking with the walker, and also with a

> cane. Right now I am sticking with the walker for stability and safety.

>

> I have thought of all of you, and hope everyone is doing better. It was

> great to talk with Heidi and Doreen. I was so happy that they called

> me. Also, thanks for all the cards. I sure did enjoy getting them.

>

> I have over 2100 e-mails, and I will begin reading all the ones from our

> group tomorrow.

>

> Wishing everyone pain free days ahead.

>

> Hugs,

>

> Barbara