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Hi Tawny....   I just want to say that I'm very sorry that You are in such

severe pain. 

I just wanted to let you know that I Care and hope you will Soon be Pain-free. 

May God

Bless You!  You are in my Prayers...                           Judy in GA.

From: tdianaok <tdianaok@...>

Subject: [ ] Help, too much pain:(

Date: Sunday, May 31, 2009, 3:05 AM

Hi friends,

I finally went Friday, had my lab work done at my GP doctor. I know, it took a

long time. I'm still feeling dizzy and disoriented. I have another problem,

that is causing me a great deal of pain, so hope someone can help. I've been on

Neurontin for a few years now, my neurologist prescribed the med for neuropathy

pain for my left leg. I've had numbness, tingling, pins and needle feeling. I

will say, after awhile the med has helped me quite a bit. I still have the pain

and numbness in the leg,but its been tolerable. A few months ago, I fell, and a

little while later, my right hip started hurting me. The last few weeks, if I

stand for just a few minutes, my hip will start hurting. Also, I will have pain

go down my butt cheek, and have some pain in my right leg. It will stop when I

sit. The last few days, my left leg has been in severe pain, along with the

numbness. I also have numbness in my foot and toes. This morning when I woke up

in

horrible pain, and then it kind of felt like a charley horse, or something, my

left toe bent, and I couldn't move it. My hubby had to move my leg and toe. I

just don't know what's going on. The doc's office will call with the lab work,

Monday or Tuesday, and they make an appointment. I'm going to call my RA doc.

I have an appointment in like two weeks at the RA doc, but I cannot wait. I'm

in severe pain, and meds don't help the leg pain. Does anyone have this type of

problem? I am at my last end right now.

Thanks so much,

Tawny

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tawny --

It sounds like the nerve pain i had before hip replacement...see if your doc can

see u early. I know the pain is ridiculous...I will pray for you....

Jen P

From: tdianaok <tdianaok (DOT) com>

Subject: [ ] Help, too much pain:(

@gro ups.com

Date: Sunday, May 31, 2009, 3:05 AM

Hi friends,

I finally went Friday, had my lab work done at my GP doctor. I know, it took a

long time. I'm still feeling dizzy and disoriented. I have another problem, that

is causing me a great deal of pain, so hope someone can help. I've been on

Neurontin for a few years now, my neurologist prescribed the med for neuropathy

pain for my left leg. I've had numbness, tingling, pins and needle feeling. I

will say, after awhile the med has helped me quite a bit. I still have the pain

and numbness in the leg,but its been tolerable. A few months ago, I fell, and a

little while later, my right hip started hurting me. The last few weeks, if I

stand for just a few minutes, my hip will start hurting. Also, I will have pain

go down my butt cheek, and have some pain in my right leg. It will stop when I

sit. The last few days, my left leg has been in severe pain, along with the

numbness. I also have numbness in my foot and toes. This morning when I woke up

in

horrible pain, and then it kind of felt like a charley horse, or something, my

left toe bent, and I couldn't move it. My hubby had to move my leg and toe. I

just don't know what's going on. The doc's office will call with the lab work,

Monday or Tuesday, and they make an appointment. I'm going to call my RA doc. I

have an appointment in like two weeks at the RA doc, but I cannot wait. I'm in

severe pain, and meds don't help the leg pain. Does anyone have this type of

problem? I am at my last end right now.

Thanks so much,

Tawny

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Hi Tawny- I hope today finds more relief for you. Could your fall have cause

some back problems? I have 3 herniated discs that cause hip and leg pains that

sound like your stuff. My pain Dr. does some injections that provide me relief

for a couple of months. Lyrica also helps a little bit. I sleep sitting up in

a recliner- laying down presses on the hot spots. Hang in there friend! Just

keep on pushing the Dr.'s to help! - D. in very hot south Louisiana!

>

> Hi friends,

>

> I finally went Friday, had my lab work done at my GP doctor. I know, it took

a long time. I'm still feeling dizzy and disoriented. I have another problem,

that is causing me a great deal of pain, so hope someone can help. I've been on

Neurontin for a few years now, my neurologist prescribed the med for neuropathy

pain for my left leg. I've had numbness, tingling, pins and needle feeling. I

will say, after awhile the med has helped me quite a bit. I still have the pain

and numbness in the leg,but its been tolerable. A few months ago, I fell, and a

little while later, my right hip started hurting me. The last few weeks, if I

stand for just a few minutes, my hip will start hurting. Also, I will have pain

go down my butt cheek, and have some pain in my right leg. It will stop when I

sit. The last few days, my left leg has been in severe pain, along with the

numbness. I also have numbness in my foot and toes. This morning when I woke up

in horrible pain, and then it kind of felt like a charley horse, or something,

my left toe bent, and I couldn't move it. My hubby had to move my leg and toe.

I just don't know what's going on. The doc's office will call with the lab

work, Monday or Tuesday, and they make an appointment. I'm going to call my RA

doc. I have an appointment in like two weeks at the RA doc, but I cannot wait.

I'm in severe pain, and meds don't help the leg pain. Does anyone have this

type of problem? I am at my last end right now.

>

> Thanks so much,

>

> Tawny

>

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Guest guest

Tawny,

I have pain that goes down my butt cheek and then down my leg. It is

coming from my spine. My pain has not been as severe as yours, though,

and did not come after a fall.

I hope you can soon find a solution to the problem.

Sue

>

>

>

>

> A few months ago, I fell, and a little while later, my right hip

> started hurting me. The last few weeks, if I stand for just a few

> minutes, my hip will start hurting. Also, I will have pain go down

> my butt cheek, and have some pain in my right leg. It will stop when

> I sit. The last few days, my left leg has been in severe pain, along

> with the numbness. I also have numbness in my foot and toes.

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I had exactly what you describe when I herniated a disk in my lower back, the

pain shot down my leg and I had serious mobility problems with it until I got

into physical therapy. The best thing you can do right now is get an ice pack on

your lower back and try to get the swelling down, that's what's causing the pain

down your leg, for me, it was like magic, no more than twenty minutes at a time.

Stan

Seattle, Sun is coming!

Hi friends,

I finally went Friday, had my lab work done at my GP doctor.  I know, it took a

long time.  I'm still feeling dizzy and disoriented.  I have another problem,

that is causing me a great deal of pain, so hope someone can help.  I've been

on Neurontin for a few years now, my neurologist prescribed the med for

neuropathy pain for my left leg. I've had numbness, tingling, pins and needle

feeling.  I will say, after awhile the med has helped me quite a bit.  I still

have the pain and numbness in the leg,but its been tolerable.  A few months

ago, I fell, and a little while later, my right hip started hurting me.  The

last few weeks, if I stand for just a few minutes, my hip will start hurting.

 Also, I will have pain go down my butt cheek, and have some pain in my right

leg.  It will stop when I sit.  The last few days, my left leg has been in

severe pain, along with the numbness. I also have numbness in my foot and toes.

 This morning when I woke up in horrible pain, and then it kind of felt like a

charley horse, or something, my left toe bent, and I couldn't move it.  My

hubby had to move my leg and toe. I just don't know what's going on.  The doc's

office will call with the lab work, Monday or Tuesday, and they make an

appointment.  I'm going to call my RA doc.  I have an appointment in like two

weeks at the RA doc, but I cannot wait.  I'm in severe pain, and meds don't

help the leg pain.  Does anyone have this type of problem?  I am at my last

end right now.

Thanks so much,

Tawny  

------------------------------------

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Tawny-

i was just stickin my head in the door for a minute. Chas just got back from

visiting her boyfriend at the Christian camp he works at and I just got in from

church. we still have a wedding shower (chas' best friend, she's her moh) and

our great nieces'b-day party yet to go! I had a peach and some beef jerky for

lunch, lol. i am praying for you RIGHT NOW that God will give you comfort and a

respite from the pain. I had a compression fracture of a vertebra and was in a

hard back brace, steroid injections, etc. for a year or so so i can imagine how

bad you are hurting. Wish we lived closer so we could come see about you. Know

that you are loved and prayed for. Hang in there, sweetie. There are better days

ahead.

Love

Jane

-- In , " tdianaok " <tdianaok@...> wrote:

>

> Hi friends,

>

> I finally went Friday, had my lab work done at my GP doctor. I know, it took

a long time. I'm still feeling dizzy and disoriented. I have another problem,

that is causing me a great deal of pain, so hope someone can help. I've been on

Neurontin for a few years now, my neurologist prescribed the med for neuropathy

pain for my left leg. I've had numbness, tingling, pins and needle feeling. I

will say, after awhile the med has helped me quite a bit. I still have the pain

and numbness in the leg,but its been tolerable. A few months ago, I fell, and a

little while later, my right hip started hurting me. The last few weeks, if I

stand for just a few minutes, my hip will start hurting. Also, I will have pain

go down my butt cheek, and have some pain in my right leg. It will stop when I

sit. The last few days, my left leg has been in severe pain, along with the

numbness. I also have numbness in my foot and toes. This morning when I woke up

in horrible pain, and then it kind of felt like a charley horse, or something,

my left toe bent, and I couldn't move it. My hubby had to move my leg and toe.

I just don't know what's going on. The doc's office will call with the lab

work, Monday or Tuesday, and they make an appointment. I'm going to call my RA

doc. I have an appointment in like two weeks at the RA doc, but I cannot wait.

I'm in severe pain, and meds don't help the leg pain. Does anyone have this

type of problem? I am at my last end right now.

>

> Thanks so much,

>

> Tawny

>

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Judy,

Thanks Judy for your caring thoughts and prayers. Tawny

>

> Hi Tawny....   I just want to say that I'm very sorry that You are in such

severe pain. 

> I just wanted to let you know that I Care and hope you will Soon be

Pain-free.  May God

> Bless You!  You are in my Prayers...                           Judy in GA.

>

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Hi Jen,

Oh gosh, I hope that isn't the problem with me. The pain is so

terrible. I can take a lot of pain, but this is getting to be too much.

Thanks so much for the post, I appreciate you so much.

Have a bless day,

Tawny

>

> tawny --

> It sounds like the nerve pain i had before hip replacement...see if

your doc can see u early. I know the pain is ridiculous...I will pray

for you....

> Jen P

>

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Guest guest

Hi ,

I hope your day is going well, and your pain level is in control. The

fall may have caused a problem. I have all kinds of problems. I have 2

herniated disc in my spine and 3 in my cervical spine. I've lived with

the degenerative disc disease for a long time now. In 04, I started

getting this pain in my left leg, and that is when the doc put me on

Neurontin. It has helped some, tolerable.

The fall, may have started all this, and I am suppose to have x-rays and

a bone density test like June 16th at my RA doc, but they need to get me

in a LOT sooner. I will call my primary doctor also. I am

pre-diabetes, cholesterol problems, etc. They are doing lab work for

all this, so at least we can figure out what it can be.

I am a little worried, I've been having short of breath and I had a

light heart palpation last night. I've got a lot going on, I've just

kind of erased that part of my life, and went on with my fight with RA.

I know there is a bigger fight waiting in the wings for me. Its just so

hard to deal with so much, its like when is it enough.

Thanks for your support. Its so nice to have people too

understand, just what we go through each day. You take care of yourself,

and try to relax today.

Hugs,

Tawny

>

> Hi Tawny- I hope today finds more relief for you. Could your fall have

cause some back problems? I have 3 herniated discs that cause hip and

leg pains that sound like your stuff. My pain Dr. does some injections

that provide me relief for a couple of months. Lyrica also helps a

little bit. I sleep sitting up in a recliner- laying down presses on the

hot spots. Hang in there friend! Just keep on pushing the Dr.'s to help!

- D. in very hot south Louisiana!

>

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Guest guest

Tawny,

Sorry to hear your doing so poorly... I really hope you start feeling better

soon...

I'm having difficulty moving today, but I'm hopeful that tomorrow will be a

better day...

Bonnie

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Sue,

Have you been found out the reason why? I'm sorry, I know how painful

it is. The right hip, with the pain going down the butt cheek, leg,

could be from the fall. It started like two weeks probably, after the

fall. It didn't hurt all the time either. But now its constant, when I

stand for anytime.

The other pain in my left leg, not so sure about that. There can be so

many problems, that's causing the pain. I will keep you posted on the

situation.

Thanks so much for your caring support. Your such a good friend to me.

Take care,

Tawny

>

> Tawny,

>

> I have pain that goes down my butt cheek and then down my leg. It is

> coming from my spine. My pain has not been as severe as yours, though,

> and did not come after a fall.

>

> I hope you can soon find a solution to the problem.

>

> Sue

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Stan,

I have 2 herniated discs in my lower spine, and 2 in my neck. I've had

that dull ache pain in my lower back, no fun for sure. I will try a ice

pack though, and hope the doc can figure it out. It does cause mobility

problems for sure. I can't stand for long, and I am the type of person,

I push myself. I'm afraid its all catching up with me.

Thanks for the support Stan, your amazing. You bring us joy, even when

your in pain. Take care of yourself.

Sending some OK sunshine your way,....

Tawny

>

>

>

> I had exactly what you describe when I herniated a disk in my lower

back, the pain shot down my leg and I had serious mobility problems with

it until I got into physical therapy. The best thing you can do right

now is get an ice pack on your lower back and try to get the swelling

down, that's what's causing the pain down your leg, for me, it was like

magic, no more than twenty minutes at a time.

>

>

>

> Stan

>

> Seattle, Sun is coming!

>

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Jane,

Wow, you are a busy girl! I'm glad your having a good time. Thanks

for the support and prayers. It would be nice to live closer. Take

care of yourself, and glad your getting some time with your daughter.

Have a bless day,

Tawny

>

> Tawny-

> i was just stickin my head in the door for a minute. Chas just got

back from visiting her boyfriend at the Christian camp he works at and I

just got in from church. we still have a wedding shower (chas' best

friend, she's her moh) and our great nieces'b-day party yet to go! I had

a peach and some beef jerky for lunch, lol. i am praying for you RIGHT

NOW that God will give you comfort and a respite from the pain. I had a

compression fracture of a vertebra and was in a hard back brace, steroid

injections, etc. for a year or so so i can imagine how bad you are

hurting. Wish we lived closer so we could come see about you. Know that

you are loved and prayed for. Hang in there, sweetie. There are better

days ahead.

> Love

> Jane

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Hi...don't push it, it only makes it worse, you have to give it a chance to

hear, and unfortunately it does take a long time. When I screw up my back,

regardless, it took twenty-four hours of ice packs and heating pads to recover

and be moble again. It sucks!

Stan

Seattle, Sun.

[ ] Re: Help, too much pain:(

Stan,

I have 2 herniated discs in my lower spine, and 2 in my neck.  I've had

that dull ache pain in my lower back, no fun for sure.  I will try a ice

pack though, and hope the doc can figure it out.  It does cause mobility

problems for sure.  I can't stand for long, and I am the type of person,

I push myself.  I'm afraid its all catching up with me.

Thanks for the support Stan, your amazing.  You bring us joy, even when

your in pain.  Take care of yourself.

Sending some OK sunshine your way,....

Tawny

>

>

>

> I had exactly what you describe when I herniated a disk in my lower

back, the pain shot down my leg and I had serious mobility problems with

it until I got into physical therapy. The best thing you can do right

now is get an ice pack on your lower back and try to get the swelling

down, that's what's causing the pain down your leg, for me, it was like

magic, no more than twenty minutes at a time.

>

>

>

> Stan

>

> Seattle, Sun is coming!

>

------------------------------------

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Bonnie,

I hope you will feel better soon. Thanks for your support, it means a

lot to me. Tawny

>

> Tawny,

> Sorry to hear your doing so poorly... I really hope you start feeling

better soon...

> I'm having difficulty moving today, but I'm hopeful that tomorrow will

be a better day...

> Bonnie

>

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Thanks Stan, I will give it a try. I was curious about my message, it

has a,(A), in my sentences, not sure why. Hope it stops.

Have a great day,

Tawny

>

>

>

> Hi...don't push it, it only makes it worse, you have to give it a

chance to hear, and unfortunately it does take a long time. When I screw

up my back, regardless, it took twenty-four hours of ice packs and

heating pads to recover and be moble again. It sucks!

>

>

>

> Stan

>

> Seattle, Sun.

>

>

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'Cause we're " special! "

Stan

[ ] Re: Help, too much pain:(

Thanks Stan, I will give it a try.  I was curious about my message, it

has a,(A), in my sentences, not sure why.  Hope it stops.

Have a great day,

Tawny

>

>

>

> Hi...don't push it, it only makes it worse, you have to give it a

chance to hear, and unfortunately it does take a long time. When I screw

up my back, regardless, it took twenty-four hours of ice packs and

heating pads to recover and be moble again. It sucks!

>

>

>

> Stan

>

> Seattle, Sun.

>

>

------------------------------------

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Tawny,

My ex-rays showed that I have some degenerative disease and also

spondylolisthesis. This is when a vertebra has slipped out of

alignment, and I guess it presses on a nerve. I went to an orthopedic

surgeon a few months back, and he sent me for an MRI. I'm afraid I

haven't been back to him to find out the results or his recommended

treatment. I have so many doctors that I have to go to, I try to

spread them out. It was also not bothering me as much as it was when I

went to him. Maybe I'm hoping it will go away, LOL.

My pain is worse when I'm standing, too. Walking doesn't bother it

quite as much as just standing still. On my last two trips, it really

bothered me, I guess because I was doing more standing in line and

walking around than usual. I also was not getting my usual amount of

sleep and rest.

I know that it's not going to go away by itself, and I need to go back

to the doctor. But right now I'm having a fit with pain in my left

eye. I have Fuchs' corneal dystrophy, on the innermost layer of the

cornea, and map-dot dystrophy on the outermost layer. I've been having

corneal erosions in that eye from the map-dot, and it's very painful.

I went to the cornea specialist Friday, but what he did has not solved

the problem yet. So that's what I need to deal with at present.

When they get ex-rays of your spine or an MRI, hopefully they'll be

able to pinpoint the problem. Hopefully, they will offer a solution.

Do keep us posted. I hope you don't have to continue to suffer so much

pain.

I treasure your friendship, too. You are one of our chief

cheerleaders, even when you're in pain yourself.

Sue

On May 31, 2009, at 4:18 PM, tdianaok wrote:

>

> Sue,

>

> Have you been found out the reason why? I'm sorry, I know how painful

> it is. The right hip, with the pain going down the butt cheek, leg,

> could be from the fall. It started like two weeks probably, after the

> fall. It didn't hurt all the time either. But now its constant,

> when I

> stand for anytime.

>

> The other pain in my left leg, not so sure about that. There can be

> so

> many problems, that's causing the pain. I will keep you posted on the

> situation.

>

> Thanks so much for your caring support. Your such a good friend to

> me.

>

> Take care,

>

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Hey Sue,

I'm like you Sue, just too many doctors. I want to just run and hide

somewhere. My appointment at the primary doc was in March. I've put it

off, and I will get in trouble about it. My doctor, tries to rip me a

new *##!LOL

I did read a little on spondylolistesis on the PC today. It sounds

very painful. You do need to get in there, and please keep me posted.

I have less pain with the hip, butt, and leg pain when walking. But

standing, I could climb a wall from the pain.

You are also going through a lot to, its just a struggle isn't it? If

it was up to the docs, I would be in there the entire year. I'm trying

to stay home with the swine flu on the loose. When I did my lab work,

the whole staff was coughing and sneezing. The lab tech sneezed, while

doing my lab work, nice huh?

Yes, you need to take care of that eye. I hope the doc can get you some

help and relief.

You take care, and know I will be cheering for you.

Tawny

>

> Tawny,

>

> My ex-rays showed that I have some degenerative disease and also

> spondylolisthesis. This is when a vertebra has slipped out of

> alignment, and I guess it presses on a nerve. I went to an orthopedic

> surgeon a few months back, and he sent me for an MRI. I'm afraid I

> haven't been back to him to find out the results or his recommended

> treatment. I have so many doctors that I have to go to, I try to

> spread them out. It was also not bothering me as much as it was when I

> went to him. Maybe I'm hoping it will go away, LOL.

>

> My pain is worse when I'm standing, too. Walking doesn't bother it

> quite as much as just standing still. On my last two trips, it really

> bothered me, I guess because I was doing more standing in line and

> walking around than usual. I also was not getting my usual amount of

> sleep and rest.

>

> I know that it's not going to go away by itself, and I need to go back

> to the doctor. But right now I'm having a fit with pain in my left

> eye. I have Fuchs' corneal dystrophy, on the innermost layer of the

> cornea, and map-dot dystrophy on the outermost layer. I've been having

> corneal erosions in that eye from the map-dot, and it's very painful.

> I went to the cornea specialist Friday, but what he did has not solved

> the problem yet. So that's what I need to deal with at present.

>

> When they get ex-rays of your spine or an MRI, hopefully they'll be

> able to pinpoint the problem. Hopefully, they will offer a solution.

>

> Do keep us posted. I hope you don't have to continue to suffer so much

> pain.

>

> I treasure your friendship, too. You are one of our chief

> cheerleaders, even when you're in pain yourself.

>

> Sue

>

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