Rashes

[Guest guest]

Hi ,

I didn't know plaquenil had sulfa in it. I was told it did not!

I always tell my doctors i'm allergic to sulfa! I tried plaquenil

after explicitly saying I was allergic to sulfa last year and had a

major nasty allergic reaction!!!

I just talked to the pharmacy and Celebrex for sure is sulfa-based.

Vioxx is different BUT it has a chemical structure similar to sulfa

so can cause the same kind of reactions.

Voila!

> hi all,

> i read this morning about a lot of you taking vioxx and

> celebrex having rashes. it says on the warnings not to

> take it if you are sulfa sensitive. i have noticed that

> many of us with pa are allergic to sulfa, including me.

> since sulfa has not been used in the us for decades,

> you should always alert your dr to the allergy. i didn't

> once and the idiot put me on plaquenil. didn't have

> ps until i had the reaction. there a few meds that have

> some form of sulfa in them. be careful

> susan in ohio

>

> [

[Guest guest]

Hi all

This may explain why I have not had any noticeable rash, the likes of which

have been attributed to vioxx and celebrex. The other medication that I am

on is Sulphasalazine which obviously is a sulpha based drug.

Regards,

Craig.

[ ] rashes

> hi all,

> i read this morning about a lot of you taking vioxx and

> celebrex having rashes. it says on the warnings not to

> take it if you are sulfa sensitive. i have noticed that

> many of us with pa are allergic to sulfa, including me.

> since sulfa has not been used in the us for decades,

> you should always alert your dr to the allergy. i didn't

> once and the idiot put me on plaquenil. didn't have

> ps until i had the reaction. there a few meds that have

> some form of sulfa in them. be careful

> susan in ohio

>

> [

[Guest guest]

In a message dated 04/18/2002 1:03:21 AM Eastern Daylight Time,

meghan@... writes:

> I just talked to the pharmacy and Celebrex for sure is sulfa-based.

> Vioxx is different BUT it has a chemical structure similar to sulfa

> so can cause the same kind of reactions.

>

>

I haven't tried Celebrex because I'm allergic to sulfa. I was told that

Celebrex has the chemical structure similar to sulfa. I have no problems

with the vioxx.

[Guest guest]

What type of rashes is everyone experiencing? I have been taking vioxx for

a couple of years now and I am experienceing rash like small bumps on my

feet and hands. It's very itchy and I just don't know what could be the

cause. I know that stress can cause this, however, after reading this post,

I thought that maybe vioxx could be a reason. Any responses for anyone?

kim

[

[Guest guest]

That sounds exactly like the rash I got from plaquenil.

Ks Di

Re: [ ] rashes

What type of rashes is everyone experiencing? I have been taking vioxx

for

a couple of years now and I am experienceing rash like small bumps on my

feet and hands. It's very itchy and I just don't know what could be the

cause. I know that stress can cause this, however, after reading this

post,

I thought that maybe vioxx could be a reason. Any responses for anyone?

kim

[

[Guest guest]

Deb,

My son had a mild rash on his cheeks when he first started the

enzymes. I'm not sure how long it lasted, but at least for several

weeks. It then went away and I haven't seen any rashes since and I

don't know why it appeared.

> Hi,

> I just noticed mild rashes on my son's right cheek. I know we had

some discussion related to this topic a while back. Anybody knows

what this could be? He is only taking the three Houston enzymes.

>

> Thanks

> Deb------------------------------(NOT DebGet!!!!)Get more from the

Web. FREE MSN Explorer download : http://explorer.msn.com

>

>

>

[Guest guest]

Thanks, . I feel a bit more relieved now.

Deb-------------------------------

[ ] Re: Rashes

Deb,

My son had a mild rash on his cheeks when he first started the

enzymes. I'm not sure how long it lasted, but at least for several

weeks. It then went away and I haven't seen any rashes since and I

don't know why it appeared.

> Hi,

> I just noticed mild rashes on my son's right cheek. I know we had

some discussion related to this topic a while back. Anybody knows

what this could be? He is only taking the three Houston enzymes.

>

> Thanks

> Deb------------------------------(NOT DebGet!!!!)Get more from the

Web. FREE MSN Explorer download : http://explorer.msn.com

>

>

>

[Guest guest]

This could be celiac.

[Guest guest]

Are these rashes with the use of Borage Oil or is it all GLA oils? Have you

thought of using Primrose Oil or Black Currant Oil instead? You could also

contact a natropath and see if you can get GLA in pure form; I believe it is

possible. I would think that the children are reacting to something else

besides GLA. HTH

Shalom,

Lynn

[Guest guest]

Actually yes. I've been watching this board for over three years and many

children have gotten rashes as they have moved mercury through their brains

and bodies. They've actually called it a " mercury rash " and it has usually

disappeared with time.

Barb

[ ] rashes

> Good day all, I have finished all my dental work, 51 yr old woman who

> decided to get real with my amalgam fillings. Had no health issues

> realted to, best of my knowledge, now that I am done and started oral

> chelation using DMSA noticing strange rashes. Wondering if anyone

> else has had such reaction, actually rashes started appearing upon

> dental work, could be something else entirely, just

> wondering ....blessings,

>

>

>

> =======================================================

>

[Guest guest]

,

What dose and schedule and what chelation agent? Makes a big difference.

S

>

Good day all, I have finished all my dental work, 51 yr old woman who <BR>

decided to get real with my amalgam fillings. Had no health issues <BR>

realted to, best of my knowledge, now that I am done and started oral <BR>

chelation using DMSA noticing strange rashes. Wondering if anyone <BR>

else has had such reaction, actually rashes started appearing upon <BR>

dental work, could be something else entirely, just <BR>

wondering ....blessings, <BR>

<BR>

</tt>

<br><br>

<tt>

=======================================================<BR>

[Guest guest]

> >

> Good day all, I have finished all my dental work, 51 yr old woman

who <BR>

> decided to get real with my amalgam fillings. Had no health issues

<BR>

> realted to, best of my knowledge, now that I am done and started

oral <BR>

> chelation using DMSA noticing strange rashes. Wondering if anyone

<BR>

> else has had such reaction, actually rashes started appearing upon

<BR>

> dental work, could be something else entirely, just <BR>

> wondering ....blessings, <BR>

> <BR>

> </tt>

>

> <br><br>

> <tt>

> =======================================================<BR>

>

[Guest guest]

<

Try Andy's protocol: 1/8-1/2 mg per lb of your weight every 4 hrs

round-the-clock for at least 3 days (and nights) on and at least as long off.

The schedule and dosage you currently use, tends to cause the mercury to

redistribute rather than exit the body. You might also try epsom salt baths.

S

>

<BR>

> ><BR>

> Good day all, I have finished all my dental work, 51 yr old woman <BR>

who <BR><BR>

> decided to get real with my amalgam fillings. Had no health issues <BR>

<BR><BR>

> realted to, best of my knowledge, now that I am done and started <BR>

oral <BR><BR>

> chelation using DMSA noticing strange rashes. Wondering if anyone <BR>

<BR><BR>

> else has had such reaction, actually rashes started appearing upon <BR>

<BR><BR>

> dental work, could be something else entirely, just <BR><BR>

> wondering ....blessings, <BR><BR>

> <BR><BR>

> </tt><BR>

> <BR>

> <br><br><BR>

> <tt><BR>

> =======================================================<BR><BR>

>

[Guest guest]

I totally forgot to mention the very many coinfections that can also cause odd

spotty rashes including ricketssials ( not just Rocky Mt Spotted)--very

important when testing and treating to know this!!

sorry for thebrain cell lapse

Finette

[Guest guest]

Hi ya'll,

A few weeks ago I had a bizarre rash on my hand and lower arm. Since I am at

the allergist's office weekly for shots, I decided to ask one of the residents

about my rash, and ended up in a room being poked and prodded by a whole bunch

of green doctors (gotta love a teaching hospital!). Long story short, I was

diagnosed with dermatitis herpetiformis, and I'm in the small percentage of

people who have it *without* having celiac disease. They gave me dapsone, and

the rash resolved.

About three or four days before the end of the course of dapsone, I started

getting what looks like excema all over my hands. I went back to the allergist

and he prescribed some medicated cream, but I'm being cheap and haven't filled

it yet. The rash has now spread all over my arms, chest and legs. I will get

the prescription filled tomorrow, but it doesn't really look like excema anymore

- it's flaky and shiny and red, almost looks more like hives or welts.

Anyone have any deep thoughts on rashes or have autoimmune-mediated skin

conditions? I'm pretty much tired of going to the doctor, so any homeopathic

remedies would be welcome, too!

Thanks -

Kate P-B in STL

Sent from my Verizon Wireless BlackBerry

[Guest guest]

Maybe it's the Orencia, Kate?

Not an MD

On Sun, Nov 1, 2009 at 11:34 PM, Kate -Behan

<microminimalist@...> wrote:

> Hi ya'll,

>

> A few weeks ago I had a bizarre rash on my hand and lower arm.  Since I am at

the allergist's office weekly for shots, I decided to ask one of the residents

about my rash, and ended up in a room being poked and prodded by a whole bunch

of green doctors (gotta love a teaching hospital!).  Long story short, I was

diagnosed with dermatitis herpetiformis, and I'm in the small percentage of

people who have it *without* having celiac disease.  They gave me dapsone, and

the rash resolved.

>

> About three or four days before the end of the course of dapsone, I started

getting what looks like excema all over my hands.  I went back to the allergist

and he prescribed some medicated cream, but I'm being cheap and haven't filled

it yet.  The rash has now spread all over my arms, chest and legs.  I will get

the prescription filled tomorrow, but it doesn't really look like excema anymore

- it's flaky and shiny and red, almost looks more like hives or welts.

>

> Anyone have any deep thoughts on rashes or have autoimmune-mediated skin

conditions?  I'm pretty much tired of going to the doctor, so any homeopathic

remedies would be welcome, too!  

>

> Thanks -

>

> Kate P-B in STL

[Guest guest]

Hi, Kate.

My name is . I was recently diagnosed with Psoriatic

Arthritis. I had read your post and I must say that your " rash " sounds

alot like Psoriasis(which I developed before the Psoriatic Arthritis).

Psoriatic and Rheumatoid Arthritis are very, very similar to each other. I would

suggest researching Psoriasis and Psoriatic Arthritis and asking your doctor

about it as well. I wish you luck and hope you

get it figured out soon!

- L.

--- In , " Kate -Behan " <microminimalist@...>

wrote:

>

> Hi ya'll,

>

> A few weeks ago I had a bizarre rash on my hand and lower arm. Since I am at

the allergist's office weekly for shots, I decided to ask one of the residents

about my rash, and ended up in a room being poked and prodded by a whole bunch

of green doctors (gotta love a teaching hospital!). Long story short, I was

diagnosed with dermatitis herpetiformis, and I'm in the small percentage of

people who have it *without* having celiac disease. They gave me dapsone, and

the rash resolved.

>

> About three or four days before the end of the course of dapsone, I started

getting what looks like excema all over my hands. I went back to the allergist

and he prescribed some medicated cream, but I'm being cheap and haven't filled

it yet. The rash has now spread all over my arms, chest and legs. I will get

the prescription filled tomorrow, but it doesn't really look like excema anymore

- it's flaky and shiny and red, almost looks more like hives or welts.

>

> Anyone have any deep thoughts on rashes or have autoimmune-mediated skin

conditions? I'm pretty much tired of going to the doctor, so any homeopathic

remedies would be welcome, too!

>

> Thanks -

>

> Kate P-B in STL

> Sent from my Verizon Wireless BlackBerry

>

[Guest guest]

This is the first time I am posting to this group.  i just joined a couple of

weeks ago.

My daughter is 11 years old and was diagnosed with lyme in August 2009. 

We believe she was showing symptoms starting in November 2008 but had no

bulls eye.  Her doctors could not figure out what was wrong with her and

resisted testing her for lyme (not sure why).  I had to insist she be tested,

which she was in feb 2009 and then again in August 2009.  We only got

the positive test for lyme in August 2009.  I wish I knew then what I know

now or we would have been seeing specialists back in 2008.

She has been sick off and on (fevers, joint pain, headaches, etc).  But the

moody behaviors and the OCD are persisting.  Her psychologist wants her to take

anti-anxiety meds but I'm on the fence.  

 

I feel like there is so much more to learn about this disease.  I am very

frustrated.  When I asked her doctors if the OCD and moody behaviors could be

related to the lyme they didn't really address the issue and I felt put off. 

We have started seeing an infectious disease doctor not a lyme specialist. 

I'm never sure we are doing the right thing for our daughter.

It helps to read what others are going though. Thank you for sharing.

________________________________

From: Natasha Moiseyev <nmoiseyev@...>

Sent: Wed, March 10, 2010 9:51:14 AM

Subject: Re: [ ] rashes

 

definitely longer to treat the neuropsych stuff, as I am coming to find out with

my younger daughter.  Might he have coinfections?  We just saw our LLMD and he

said my daughter's Lyme symptoms have subsided (for now -- retrenching? gone

cystic?) but the Bartonella is kicking up a huge fight.

Natasha

From: jchabot <jchabotsnet (DOT) net>

Subject: [ ] rashes

Date: Wednesday, March 10, 2010, 5:13 AM

 

Hello,

My son has been on  antibotics for 5 months now for lyme. He never had the

bullseye rash. He had little sporadic patches of rashes that erupted all over

his body. Well, the rashes went away a few weeks into the treatment and are now

back.

 Does anyone have any insight into this? His fatigue has gone away, as well as

his headaches and leg pains, but still is very moody and has lots of " ocd  bad

thoughts "

I'm guessing it takes longer to cure the neuropsychiatric symptoms than the

physical?

thanks

Judy

[Guest guest]

Hi,

 My son(age 8) has ocd, tourettes , lyme and PANDAS. Medication for the

anxiety, ocd, etc, is an individual choice. My son was non functioning, so we

elected to put him on medication. It is a tough call, especially when they  are

on all the antibiotics for the lyme.

None of my son's doctors, can give me an anwer as to whether or not this will go

away either. I can understand your frustration.

Know you are not alone!!!!!

Hugs

judy

________________________________

From: Mildred Reagle <mildge2@...>

Sent: Wed, March 10, 2010 11:48:03 AM

Subject: Re: [ ] rashes

 

This is the first time I am posting to this group.  i just joined a couple of

weeks ago.

My daughter is 11 years old and was diagnosed with lyme in August 2009. 

We believe she was showing symptoms starting in November 2008 but had no

bulls eye.  Her doctors could not figure out what was wrong with her and

resisted testing her for lyme (not sure why).  I had to insist she be tested,

which she was in feb 2009 and then again in August 2009.  We only got

the positive test for lyme in August 2009.  I wish I knew then what I know

now or we would have been seeing specialists back in 2008.

She has been sick off and on (fevers, joint pain, headaches, etc).  But the

moody behaviors and the OCD are persisting.  Her psychologist wants her to take

anti-anxiety meds but I'm on the fence.  

 

I feel like there is so much more to learn about this disease.  I am very

frustrated.  When I asked her doctors if the OCD and moody behaviors could be

related to the lyme they didn't really address the issue and I felt put off. 

We have started seeing an infectious disease doctor not a lyme specialist. 

I'm never sure we are doing the right thing for our daughter.

It helps to read what others are going though. Thank you for sharing.

____________ _________ _________ __

From: Natasha Moiseyev <nmoiseyev@sbcglobal .net>

Sent: Wed, March 10, 2010 9:51:14 AM

Subject: Re: [ ] rashes

 

definitely longer to treat the neuropsych stuff, as I am coming to find out with

my younger daughter.  Might he have coinfections?  We just saw our LLMD and he

said my daughter's Lyme symptoms have subsided (for now -- retrenching? gone

cystic?) but the Bartonella is kicking up a huge fight.

Natasha

From: jchabot <jchabotsnet (DOT) net>

Subject: [ ] rashes

Date: Wednesday, March 10, 2010, 5:13 AM

 

Hello,

My son has been on  antibotics for 5 months now for lyme. He never had the

bullseye rash. He had little sporadic patches of rashes that erupted all over

his body. Well, the rashes went away a few weeks into the treatment and are now

back.

 Does anyone have any insight into this? His fatigue has gone away, as well as

his headaches and leg pains, but still is very moody and has lots of " ocd  bad

thoughts "

I'm guessing it takes longer to cure the neuropsychiatric symptoms than the

physical?

thanks

Judy

[Guest guest]

My son has been on Zoloft for anxiety OCD. He is being treated by an internal

med doc who specializes in Lyme. We called infectious disease docs........most

said they do not deal with Lyme. Before diagnosis, we had been to EVERY

specialty. Everyone doc wanted to treat their particular area of expertise "

seperately. Sleep doc said he had restless legg syndrome and probably apnea.

Psych said it was " all in his head. " First doc just gave him b-12 shots and

antibiotics.

We hope that we have FINALLY reached the right doc!

[ ] rashes

Date: Wednesday, March 10, 2010, 5:13 AM

Hello,

My son has been on antibotics for 5 months now for lyme. He never had the

bullseye rash. He had little sporadic patches of rashes that erupted all over

his body. Well, the rashes went away a few weeks into the treatment and are now

back.

Does anyone have any insight into this? His fatigue has gone away, as well as

his headaches and leg pains, but still is very moody and has lots of " ocd bad

thoughts "

I'm guessing it takes longer to cure the neuropsychiatric symptoms than the

physical?

thanks

Judy

[Guest guest]

Hi Judy,

My son has had minor rashes all his life-- now I attribute them to Lyme and/or

Bartonella (diagnosed at 11yrs). Sometimes he just had itchy skin but nothing

visible. The occurrence of rashes and itches has subsided with his treatment.

I recently started treatment for Bartonella, after being treated for Lyme for

about 1 yr. During my herxing period, I developed minor rashes and/or itchy

skin that would come and go. My guess, although I am definitely not a doctor,

is that the rashes are a regular part of these infections and/or are part of

herxing. However, if the rashes concern you, or get worse, I would definitely

ask your doc about them. Take notes and describe them. I did that on one of my

rashes because one of my meds talks about a potentially fatal rash-- scared me!

Also, as far as the psyc symptoms-- from what we've experienced with me and my

son, these are the hardest and longest to treat. We put my son on Zoloft and an

anti-anxiety med. I tell myself this is only temporary and we need to do what

we need to do to get him through this with as much " normalcy " and ease as

possible.

Hope that helps.

Elaine

________________________________

From: jchabot <jchabot@...>

Sent: Wed, March 10, 2010 5:13:26 AM

Subject: [ ] rashes

Hello,

My son has been on antibotics for 5 months now for lyme. He never had the

bullseye rash. He had little sporadic patches of rashes that erupted all over

his body. Well, the rashes went away a few weeks into the treatment and are now

back.

Does anyone have any insight into this? His fatigue has gone away, as well as

his headaches and leg pains, but still is very moody and has lots of " ocd bad

thoughts "

I'm guessing it takes longer to cure the neuropsychiatric symptoms than the

physical?

thanks

Judy

[Guest guest]

I'm pretty sure B Duncani is a strain of the coinfection Babesia. Also, your

doctor may know best but I wouldn't necessarily trust a negative test result.

Good luck. Elaine

________________________________

From: jchabot <jchabot@...>

Sent: Wed, March 10, 2010 8:59:24 AM

Subject: Re: [ ] rashes

I was pretty confused at my last visit. We go again on Friday.The doctor thought

for sure my son had bartonella but the test was negative. His test for B Duncani

was positive. I don't know if this is another name for lyme or a co-infection.

They were concerned about him having the gene for arthritis,(HLADR? ) anyone

know about this? and they were going to give him plaquenil for it until they

realized he was on a med that would interact with it.

I'm hoping to clear up all this confusion Friday.

thanks

Judy

____________ _________ _________ __

From: Natasha Moiseyev <nmoiseyev@sbcglobal .net>

Sent: Wed, March 10, 2010 9:51:14 AM

Subject: Re: [ ] rashes

definitely longer to treat the neuropsych stuff, as I am coming to find out with

my younger daughter. Might he have coinfections? We just saw our LLMD and he

said my daughter's Lyme symptoms have subsided (for now -- retrenching? gone

cystic?) but the Bartonella is kicking up a huge fight.

Natasha

From: jchabot <jchabotsnet (DOT) net>

Subject: [ ] rashes

Date: Wednesday, March 10, 2010, 5:13 AM

Hello,

My son has been on antibotics for 5 months now for lyme. He never had the

bullseye rash. He had little sporadic patches of rashes that erupted all over

his body. Well, the rashes went away a few weeks into the treatment and are now

back.

Does anyone have any insight into this? His fatigue has gone away, as well as

his headaches and leg pains, but still is very moody and has lots of " ocd bad

thoughts "

I'm guessing it takes longer to cure the neuropsychiatric symptoms than the

physical?

thanks

Judy

[Guest guest]

Thanks Elaine,

Take Care

Judy

________________________________

From: <ecckwalk@...>

Sent: Wed, March 10, 2010 5:06:21 PM

Subject: Re: [ ] rashes

 

Hi Judy,

My son has had minor rashes all his life-- now I attribute them to Lyme and/or

Bartonella (diagnosed at 11yrs). Sometimes he just had itchy skin but nothing

visible. The occurrence of rashes and itches has subsided with his treatment. I

recently started treatment for Bartonella, after being treated for Lyme for

about 1 yr. During my herxing period, I developed minor rashes and/or itchy skin

that would come and go. My guess, although I am definitely not a doctor, is that

the rashes are a regular part of these infections and/or are part of herxing.

However, if the rashes concern you, or get worse, I would definitely ask your

doc about them. Take notes and describe them. I did that on one of my rashes

because one of my meds talks about a potentially fatal rash-- scared me!

Also, as far as the psyc symptoms-- from what we've experienced with me and my

son, these are the hardest and longest to treat. We put my son on Zoloft and an

anti-anxiety med. I tell myself this is only temporary and we need to do what we

need to do to get him through this with as much " normalcy " and ease as possible.

Hope that helps.

Elaine

____________ _________ _________ __

From: jchabot <jchabotsnet (DOT) net>

Sent: Wed, March 10, 2010 5:13:26 AM

Subject: [ ] rashes

Hello,

My son has been on antibotics for 5 months now for lyme. He never had the

bullseye rash. He had little sporadic patches of rashes that erupted all over

his body. Well, the rashes went away a few weeks into the treatment and are now

back.

Does anyone have any insight into this? His fatigue has gone away, as well as

his headaches and leg pains, but still is very moody and has lots of " ocd bad

thoughts "

I'm guessing it takes longer to cure the neuropsychiatric symptoms than the

physical?

thanks

Judy