Re: Forced to take prednisone, no other choice

[Guest guest]

Hi Nae:

     I was sorry to read that you are in such pain and suffering all the

time.  That makes for a miserable life each day.  Prednisone is my miracle

drug.  I have been on it daily for 5 1/2 + years.  I would not have a life

without it.  I am usually on 5 mg. a day, but have been on 10 mg. a day now for

quite awhile.  I will cut back slowly to my original dose.  I too wake up wtih

awful stiffness in my feet and ankles.  I do exercise them regularly, but I am

so afraid of falling.  I also have Neuropathy in both feet from the toes to the

arch of my foot.

    I have been in a medicine induced remission for over a year now, and it

is so good to be pain free.  I am very grateful for however long it lasts.

    Wishing you pain free days ahead.  It is very hard to tolerate pain

24/7.  My feet and ankles used to be unbearable with pain or even trying to

stand on them.  Many days I just wanted to chop them off.

    Have a great Thanksgiving.

 

Hugs,

 

Barbara

From: OKD <Cofade_2000@...>

Subject: [ ] Forced to take prednisone, no other choice

Date: Wednesday, November 25, 2009, 12:27 PM

 

Hi folks:

First thanks to you all for the support, I read this group religiously even

though I dont comment all the time.

I have been on Enbrel and MTX for 4 months now. I was refusing to take

prednisone (frankly it scared me becuz of my kids taking it for asthma for so

many years) but now I am going to have to breakdown and take it. I cant take the

inflam, it HURTS. I feel like the Enbrel is not strong enuf and the MTX I am

taking 8 pills a week. I dont want to have to take infusions so I am trying the

prednisone, 5 mgs a day for a couple of weeks to see if that makes a diff with

the Enbrel, MTX, lecovorin, Vit D, Fish Oil, B-12, Calcium. My Rhemuy has also

added B-12 to my regimen (Jeez, how many pills, no room for food, no wonder I

lost my appetite!) to see if that gives me energy (at least twice a week I am a

ZOMBIE, I resemble Herman Munster with the hands outstretched saying which way

do I go?). Funny I wake up and ask my husband " Do I have to go to work today,

what day is it " I am just being a robot cause half the time, I am in brain fog

or completely devoid of

energy. Doing my job, back hurting.

I am stiffing up at night, during sleep, so it hurts, the doc gave me some other

pain pill to help for breakthrus, but it doesnt all the time, so I am miserable

during rest too.

Some weekends I just cant get up on Sats and Sun and I have stuff to do, life is

passing me by.

never know what is going to hurt when, this week its the back and shoulders,

last week it was my jaw and gums and legs.

I was hoping for remission, my rhemy says just hold on, its not enuf time on the

right combo yet.

Holding and wishing everyone a happy holiday and pain free cooking (my daugher

is peeling, my son is lifing heavy stuff)!

Love OKD

[Guest guest]

OKD, I'm sorry to hear this.

Consider taking the MTX by injection. It might be more effective for

you that way.

Not an MD

On Wed, Nov 25, 2009 at 11:27 AM, OKD <Cofade_2000@...> wrote:

> Hi folks:

>

> First thanks to you all for the support, I read this group religiously even

though I dont comment all the time.

>

> I have been on Enbrel and MTX for 4 months now.  I was refusing to take

prednisone (frankly it scared me becuz of my kids taking it for asthma for so

many years) but now I am going to have to breakdown and take it.  I cant take

the inflam, it HURTS.  I feel like the Enbrel is not strong enuf and the MTX I

am taking 8 pills a week.  I dont want to have to take infusions so I am trying

the prednisone, 5 mgs a day for a couple of weeks to see if that makes a diff

with the Enbrel, MTX, lecovorin, Vit D, Fish Oil, B-12, Calcium.  My Rhemuy has

also added B-12 to my regimen (Jeez, how many pills, no room for food, no wonder

I lost my appetite!) to see if that gives me energy (at least twice a week I am

a ZOMBIE, I resemble Herman Munster with the hands outstretched saying which way

do I go?).  Funny I wake up and ask my husband " Do I have to go to work today,

what day is it " I am just being a robot cause half the time, I am in brain fog

or completely devoid of energy.  Doing my job, back hurting.

>

> I am stiffing up at night, during sleep, so it hurts, the doc gave me some

other pain pill to help for breakthrus, but it doesnt all the time, so I am

miserable during rest too.

>

> Some weekends I just cant get up on Sats and Sun and I have stuff to do, life

is passing me by.

>

> never know what is going to hurt when, this week its the back and shoulders,

last week it was my jaw and gums and legs.

>

> I was hoping for remission, my rhemy says just hold on, its not enuf time on

the right combo yet.

>

> Holding and wishing everyone a happy holiday and pain free cooking (my daugher

is peeling, my son is lifing heavy stuff)!

>

> Love OKD

>