Guest guest Posted May 19, 2009 Report Share Posted May 19, 2009 Hi there, Today I saw my Rheumy and he had a Resident with him. I always feel odd. However, he did his thorough exam, I brought some Drs. letters for him to read, which he did. He reviewed blood tests with me, and my CRP, was...1 !!!!! This is a first! He's going to decrease my mtx from 6 to 5 for a few months then to 4, see how that goes. From and RA point of view, I'm doing really well. Yes, my hands hurt, especially when he squeezed my knuckles, but nothing is ever perfect...I was really excited. I love my Enbrel, he has no plans to change that, he thinks the world of it as many of his patients are really happy with it. What is screwing me up is Fibro, my crazy back problems, etc. When you add that stuff to the mix it gets ugly. He said my Fibro is out of control...he has no idea why I'm having odd nerve pain in my fingers...could be the fibro...and I've just started having dizzy spells...awful...I thought I was going to keel over 4 times now. Does anyone else have these? I think I'm doing well, but something always screws it up. LOL, oh well. such is life. Heidi in Mass. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 19, 2009 Report Share Posted May 19, 2009 Heidi, It sounds like you had a wonderful RA visit, glad to hear it. I do have dizziness, and I believe its because of my vit d deficiency. Has your doctor checked your vit d level? You might contact them, and find out. I've been having a terrible time, if you read my post a couple of days ago. I also have fibro, and I have a terrible time with it. I take neurontin for neuropathy pain,(which it helps so much), but I don't think it helps the fibro. I am thinking about changing too Lyrica, I've heard it helps a great deal, for a lot of people. You might talk to your doctor about one of the meds for fibro. I've also heard Cymbalta is good for fibro pain too. It sounds like you have the RA control, that is great news. I hope you get the fibro pain down, I know its very painful. I live with it each day. Take care, feel better soon, Tawny > > Hi there, > > Today I saw my Rheumy and he had a Resident with him. I always feel odd. > However, he did his thorough exam, I brought some Drs. letters for him to > read, which he did. He reviewed blood tests with me, and my CRP, was...1 > !!!!! This is a first! He's going to decrease my mtx from 6 to 5 for a few > months then to 4, see how that goes. From and RA point of view, I'm doing > really well. Yes, my hands hurt, especially when he squeezed my knuckles, > but nothing is ever perfect...I was really excited. I love my Enbrel, he > has no plans to change that, he thinks the world of it as many of his > patients are really happy with it. What is screwing me up is Fibro, my > crazy back problems, etc. When you add that stuff to the mix it gets ugly. > He said my Fibro is out of control...he has no idea why I'm having odd nerve > pain in my fingers...could be the fibro...and I've just started having dizzy > spells...awful...I thought I was going to keel over 4 times now. Does anyone > else have these? I think I'm doing well, but something always screws it up. > LOL, oh well. such is life. > > Heidi in Mass. > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 19, 2009 Report Share Posted May 19, 2009 Heida! Just to let you know that i just read your Post and hope that you will feel better Soon; I have R.A. but no bad pain Right now; but the swelling in my fingers has become Worse -recently. Just wanted to let you know that I hope you will soon feel Much better. \ Judy in GA. From: tdianaok <tdianaok@...> Subject: [ ] Re: Saw my rheumy today Date: Wednesday, May 20, 2009, 12:27 AM Heidi, It sounds like you had a wonderful RA visit, glad to hear it. I do have dizziness, and I believe its because of my vit d deficiency. Has your doctor checked your vit d level? You might contact them, and find out. I've been having a terrible time, if you read my post a couple of days ago. I also have fibro, and I have a terrible time with it. I take neurontin for neuropathy pain,(which it helps so much), but I don't think it helps the fibro. I am thinking about changing too Lyrica, I've heard it helps a great deal, for a lot of people. You might talk to your doctor about one of the meds for fibro. I've also heard Cymbalta is good for fibro pain too. It sounds like you have the RA control, that is great news. I hope you get the fibro pain down, I know its very painful. I live with it each day. Take care, feel better soon, Tawny > > Hi there, > > Today I saw my Rheumy and he had a Resident with him. I always feel odd. > However, he did his thorough exam, I brought some Drs. letters for him to > read, which he did. He reviewed blood tests with me, and my CRP, was...1 > !!!!! This is a first! He's going to decrease my mtx from 6 to 5 for a few > months then to 4, see how that goes. From and RA point of view, I'm doing > really well. Yes, my hands hurt, especially when he squeezed my knuckles, > but nothing is ever perfect...I was really excited. I love my Enbrel, he > has no plans to change that, he thinks the world of it as many of his > patients are really happy with it. What is screwing me up is Fibro, my > crazy back problems, etc. When you add that stuff to the mix it gets ugly. > He said my Fibro is out of control...he has no idea why I'm having odd nerve > pain in my fingers...could be the fibro...and I've just started having dizzy > spells...awful. ..I thought I was going to keel over 4 times now. Does anyone > else have these? I think I'm doing well, but something always screws it up. > LOL, oh well. such is life. > > Heidi in Mass. > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 20, 2009 Report Share Posted May 20, 2009 Heidi, You talk to your doctor, when they call. If the cymbalta isn't helping, they can find something else. That med cost quite a bit, so I've heard. Keep us posted. I hope you feel better soon. Take care, Tawny > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 20, 2009 Report Share Posted May 20, 2009 Thanks Tawny, Yup my copay for Cymbalta is $35.00. I hope to talk to my PCP tomorrow. Not overly fond of these dizzy spells I'm getting. Thanks Judy for your reply as well! As soon as I talk to him, I'll let you know what he says. Heidi in Mass. On Wed, May 20, 2009 at 3:42 PM, tdianaok <tdianaok@...> wrote: > > > > Heidi, > > You talk to your doctor, when they call. If the cymbalta isn't helping, > they can find something else. That med cost quite a bit, so I've heard. > Keep us posted. I hope you feel better soon. > > Take care, > > Tawny > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 21, 2009 Report Share Posted May 21, 2009 Heidi. I am glad your ra is controlled but then you fibro is acting up. cant when..dizziness? our you on any new meds? or have a cold? have a great day diane in ohio Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 21, 2009 Report Share Posted May 21, 2009 Hi Heidi, Dizzy spells is no fun at all. My rheumy gave me a prescription for dizziness, when I need it called, " meclizine, " it helps me so much. I was sitting on the bed the other day, and just laid down for a minute, when I went to rise up, I almost toppled off the bed. It sounds kind of funny, but it sure wasn't at the time. I knew it was time for one, and it helped so much. Good luck at the doctor, and let us know how it goes. Gentle hugs, Tawny > > Thanks Tawny, > > Yup my copay for Cymbalta is $35.00. I hope to talk to my PCP tomorrow. Not > overly fond of these dizzy spells I'm getting. Thanks Judy for your reply > as well! As soon as I talk to him, I'll let you know what he says. > > Heidi in Mass. > Quote Link to comment Share on other sites More sharing options...
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