newbie to group

October 10, 2009

Hi all

I am a 43yr old female that has been diagnosed with Fibromyalgia a few years

ago. I really just ignored the diagnosis for a long long time simply b/c there

wasn't a definitive answer as to how one is diagnosed. For me, my PCP just said

I have FM during one of many visits of complaints. She asked where the pain was

and I replied it's just all over. I just couldn't understand how she could

simply sum up my complaints and say that's your diagnosis. No tests, no needles,

no scans, just---Ok you have FM. I have also been diagnosed with a number of

other disease such as, degenerative disc disease (DDD), Cauda Equina Syndrome

(CES), Arachnoiditis, Spinal Stenosis, Autoimmune Disease (AD), Graves disease,

and not at all least but last, Depression.

Anyway, I came across this support group and decided to join this one b/c first

of all, I didn't know FM was in the rhuematic family, and secondly b/c my sister

and her 19yr old daughter both have been diagnosed with RA. I just thought that

maybe I could kill 2 birds with one stone ans see if I could help them out also.

Now just in the past couple of months, the FM has been extremely painful. I

ache all over and the pain meds (lortab 10mg x 4 daily) that I take for the

Cauda equina syndrome is doing nothing what-so-ever for the FM. Cauda Equina is

a result of a ruptured disc that occured in 2002, and as a result of the

ruptured disc, my nerves that were impinged in that area caused me to go numb

from the waist down on my left side. I also have severe chronic pain from that

and suffered from sciatica as well. To try to make a long story short, I had

surgery on that disc, but the nerves were damaged to no return resulting in my

having to go to pain management. I have a really hard time getting around some

days as the pain is worse at times (most times). My bowels my bladder, and even

my sexual feeling is gone. I have to use enimas and whatever is neccessary at

the time to go to the potty. I have also had 3 other spinal surgeries due to the

DDD. I've had 2 lumbar laminectomies and 2 cervical spine fusions. Sorry, guys

it's really hard to make a long story short and make it understandable at the

same time. Needless to say, I been to hell and back. I try so hard to keep my

complaints to myself, but it's not easy. When your disabilities are not visible,

no one understands the amount of pain you are in. I guess you all already know

that.

I was just wondering how some of you all here were diagnosed. Did you all just

get the diagnosis from your PCP, or what? It's a difficult pill to swallow, when

given this diagnosis or any for that matter. I sure hope I can get a little

insight here and maybe even help my sis with her RA.

talk soon

December 19, 2010

Hi, Mark,

Our menu/files has a hep-c section, did you read that?

4 mhz, you mean 4 hertz? that would be a beck device, usually used on wrist?

bG

>

> Hi I'm Mark and new to the group. I received my zilla a few days ago and

used it three times (hep-c about 20 years). The first day I used it for 20

minutes at 4 MHz and had a little headache the next day. The other two days I

used it 25 and 30 minutes at 30 second interval with no symptoms. I'm currently

making a gutzilla at 6 volts for both sides. Can I use the zilla and 6volt

gutzilla at same time? Should I use it every 12 hours?

> About 5-6 years ago I was seeing someone certified in alternative

therapies. She " muscle tested " me before each session I had. Then she would plug

in a transformer (voltage unknown), and I would grip in each hand an electrode

bar wrapped in a thin wet cloth. I would lie down and she would cover me with a

thin foil blanket. Depending on the muscle test she would set a timer. At first

it was 14 minutes then it would lessen to 6-8 minutes at successive sessions.

After about 15 or so sessions (every 2 weeks) she said " it " was down 40%. At the

same time I was taking a Chinese herb supplement called VSC concentrate caps at

naturessunshine.com. It makes an unhealthy environment for the virus itself and

supports the immune system. I moved after that and never saw her again but I did

buy some more VSC when I bought the zilla a few days ago. Anyone ever hear of

this method? Thanks, Mark

>

December 19, 2010