Guest guest Posted May 3, 2009 Report Share Posted May 3, 2009 Xharon, You need to see an ophthalmologist. An Optometrist can fit you with glasses, but might not be able to diagnose your eye problems. I would also call my rheumy; if he feels you should see an ophthalmologist, maybe his referral could get you in more quickly. Good luck. Sue On May 3, 2009, at 6:32 PM, bon_mac18 wrote: > Hi everyone, > More annoying than anything else, but for the last month or so my > left eye muscles have been really spastic. Mostly only mildly so you > can't really notice it (when looking) but quite often the top eyelid > will quite dramatically spasm (I'm talking 10-20 times an hour). > area around eye feels kinda tense/numb (hard to describe). Only my > left eye, right eye is hanky dory. > > having some vision probs (left eye only agin), bit blurry & kind of > a " ghosting " affect I spose, but had this to a lesser extent for > about a year or so. Also hearing in left ear has changed, with aids > it gone a bit " underwater " (i'm severely hearing impaired) & my > tinnitis now includes a lovely high pitched " zingggggggggggg " . > > Been on Plaquenil since December 08, Started sulfa & pred a year > ago. weaning off pred (down to 3mg a day, Yippee!!!) because of side > effects at low dose. > > Not sure if this is a doc or optomatrist (spelling) thing, bit of a > waiting list for optom appointments. > > Had a look @ askapatient.com but couldn't really see much that > matches my lot. > http://www.askapatient.com/viewrating.asp?drug=9768 & name=PLAQUENIL & sort=age & page\ =3 > > Love your thoughts & experiences, > cheers, Sharon of oz > > > > ------------------------------------ > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 4, 2009 Report Share Posted May 4, 2009 Sharon, My son was diagnosed with the markers for AIED, autoimmune inner ear disease, frankly I didn't even know this exists. If his hearing starts to diminish at all, I am to get him to his ENT doc asap so they can start him on drugs right away. I'm just hoping this never happens, he has the markers but not the disease yet. in PA [ ] Plaquenil side effect? eye twitch & tinnitis . Or pred, Sulfa? Hi everyone, More annoying than anything else, but for the last month or so my left eye muscles have been really spastic. Mostly only mildly so you can't really notice it (when looking) but quite often the top eyelid will quite dramatically spasm (I'm talking 10-20 times an hour). area around eye feels kinda tense/numb (hard to describe). Only my left eye, right eye is hanky dory. having some vision probs (left eye only agin), bit blurry & kind of a " ghosting " affect I spose, but had this to a lesser extent for about a year or so. Also hearing in left ear has changed, with aids it gone a bit " underwater " (i'm severely hearing impaired) & my tinnitis now includes a lovely high pitched " zingggggggggggg " . Been on Plaquenil since December 08, Started sulfa & pred a year ago. weaning off pred (down to 3mg a day, Yippee!!!) because of side effects at low dose. Not sure if this is a doc or optomatrist (spelling) thing, bit of a waiting list for optom appointments. Had a look @ askapatient.com but couldn't really see much that matches my lot. http://www.askapatient.com/viewrating.asp?drug=9768 & name=PLAQUENIL & sort=age & page\ =3 Love your thoughts & experiences, cheers, Sharon of oz Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 6, 2009 Report Share Posted May 6, 2009 Sharon, I had vision problems while on Plaquenil. I went off the med, and the problems stopped. One of the side effects was blurry vision. Have you let your rheumy know about the problem? I hope you are able to see the eye doc soon. Take care, Tawny > > Hi everyone, > More annoying than anything else, but for the last month or so my left eye muscles have been really spastic. Mostly only mildly so you can't really notice it (when looking) but quite often the top eyelid will quite dramatically spasm (I'm talking 10-20 times an hour). area around eye feels kinda tense/numb (hard to describe). Only my left eye, right eye is hanky dory. > > having some vision probs (left eye only agin), bit blurry & kind of a " ghosting " affect I spose, but had this to a lesser extent for about a year or so. Also hearing in left ear has changed, with aids it gone a bit " underwater " (i'm severely hearing impaired) & my tinnitis now includes a lovely high pitched " zingggggggggggg " . > > Been on Plaquenil since December 08, Started sulfa & pred a year ago. weaning off pred (down to 3mg a day, Yippee!!!) because of side effects at low dose. > > Not sure if this is a doc or optomatrist (spelling) thing, bit of a waiting list for optom appointments. > > Had a look @ askapatient.com but couldn't really see much that matches my lot. > http://www.askapatient.com/viewrating.asp?drug=9768 & name=PLAQUENIL & sort=age & page\ =3 > > Love your thoughts & experiences, > cheers, Sharon of oz > Quote Link to comment Share on other sites More sharing options...
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