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I had my third Remicade infusion yesterday. The good news is that the person

who took me back to the room let me go into a smaller room so I didn't have

to listen to the music the nurse likes and I hate.

A few hours after the infusion, my knees became stiff and feel swollen. I

can't think of anything I've done that would have hurt my knees. My shoulder

seems worse than usual also, but that does come and go normally.

It could be a coincidence, but I wondered if it had happened to anyone else.

I felt fine after the other two infusions.

dd

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  • 7 months later...
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- are you still on Remicaide? I've been doing Enbrel for 7 weeks now and

still am not feeling anything from it. <sigh> I wish SSD would hurry up with

their decision on the hearing so I could get Medicare rolling and more options

opened up to me.....Doreen :(

,

When I was first diagnosed I was on remicaide and it was GREAT!! I would feel

so good after an infusion that I went for a run. I regretted the next day, and I

had to learn to pase myself. I had no side effects from it and it helped me soo

much.

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  • 1 year later...

I am on Remicade. I get one Atarax and two tylenol before the infusion starts

to help reduce side effects. Needless to say, I feel a little tired and sleepy

from the Atarax. I have no other side effects. I feel less joint pain in about

24 hours. I get 600mg every six weeks. I hope you do well.

Dale Ellen

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Drink lots of water before your appointment, or the nurse may have a hard time

getting the needle in.

-

>

> Hello All,

> I am getting ready to start remicade, (I hope) and I have read about all the

side effects, but is there anything I should know about when I am actually

getting the treatment? Any immediate issues?

> Thanks

> Heidi Hart

>

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Thanks for the input, I should find out today when i start. Of course

all last week I was in rough shape, and now that I am going in to the

Rheumy, my joints are returning to 'normal'

Heidi

--

PK

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