Guest guest Posted November 27, 2008 Report Share Posted November 27, 2008 Hi My last set of bloods showed AST at 225, I am on weekly blood test until it recovers and then back on MTX but at 2.5mg! I am a little worried I must admit. Take care, Lesley x  Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 11, 2009 Report Share Posted October 11, 2009 I have been in the background reading post all along. I too have been taking Methotrexate (8/week) since I was diagnosed 4 years ago. I am happy and very grateful to say for the last year I have had minimal to no pain or swelling. I take RA a day at a time and do what my general Practioner and Rheumy say. I have noticed that my mental outlook has alot to do with how I feel. I try to be positive and instead think how happy I am without the terrible pain I suffered for at least 2 years. I thought my life was over. I am thinking of asking my Rheumy to change me to injectable Metho because of the sick stomach I do have for at least 2-3 days. I know my limitations and try to live within them...whenever I start to feel the least bit of pain...I scale back on what I am doing and rest more. I hope this info can help any of you. > Bless you all, > Kathy S Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 1, 2009 Report Share Posted November 1, 2009 " Has anyone here used Orencia and hopefully it worked for them? " Hi Sue, I have been on Orencia for about 2 years, and it has worked pretty well. I was diagnosed with JRA when I was 10, had a " honeymoon " period from my late teens to my early twenties, and came back with relatively severe RA in my mid-twenties. I had done methotrexate, Plaquenil, Enbrel and Humira prior to the Orencia, then moved to a combo of the methotrexate and Orencia, and am now on Orencia and Arava. The only weird thing I have with the Orencia is about 2 days of increased joint pain right after the infusion. My last four infusions I have had a metal taste in my mouth for about 12 hours afterwards, but that just started recently. I get about 2.5-3 weeks of relief out of the infusion now (I used to get 4 full weeks), but I feel like it's working pretty decently for me. Definitely easier than the self-injectors, which, while I'm not at all needle-phobic, were kind of painful. Good luck to your Mom! Kate P-B in STL Sent from my Verizon Wireless BlackBerry Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 1, 2009 Report Share Posted November 1, 2009 I have been on orencia since the beginning of september. I thought well this is great but it doesn't seem to be working, Well I got my first infection of bronchitis right before my 4th infusion which was this week. I couldn't get my infusion and can't until the infection goes away but realized that since i have missed it that I'm hurting like hell now, cramps in my legs and feet. I guess i will have to live with them til I can get my next infusion and be thankful that it is working but not like I really would want it. Re: [ ] Methotrexate " Has anyone here used Orencia and hopefully it worked for them? " Hi Sue, I have been on Orencia for about 2 years, and it has worked pretty well. I was diagnosed with JRA when I was 10, had a " honeymoon " period from my late teens to my early twenties, and came back with relatively severe RA in my mid-twenties. I had done methotrexate, Plaquenil, Enbrel and Humira prior to the Orencia, then moved to a combo of the methotrexate and Orencia, and am now on Orencia and Arava. The only weird thing I have with the Orencia is about 2 days of increased joint pain right after the infusion. My last four infusions I have had a metal taste in my mouth for about 12 hours afterwards, but that just started recently. I get about 2.5-3 weeks of relief out of the infusion now (I used to get 4 full weeks), but I feel like it's working pretty decently for me. Definitely easier than the self-injectors, which, while I'm not at all needle-phobic, were kind of painful. Good luck to your Mom! Kate P-B in STL Sent from my Verizon Wireless BlackBerry ------------------------------------------------------------------------------ No virus found in this incoming message. Checked by AVG - www.avg.com Version: 8.5.423 / Virus Database: 270.14.39/2470 - Release Date: 10/30/09 15:18:00 Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 2, 2009 Report Share Posted November 2, 2009 Thanks Kate, She seems to have lots of pain days with the Methotrexate plus I wonder if it is connected to the fatigue she seems to feel. Sue Re: [ ] Methotrexate " Has anyone here used Orencia and hopefully it worked for them? " Hi Sue, I have been on Orencia for about 2 years, and it has worked pretty well. I was diagnosed with JRA when I was 10, had a " honeymoon " period from my late teens to my early twenties, and came back with relatively severe RA in my mid-twenties. I had done methotrexate, Plaquenil, Enbrel and Humira prior to the Orencia, then moved to a combo of the methotrexate and Orencia, and am now on Orencia and Arava. The only weird thing I have with the Orencia is about 2 days of increased joint pain right after the infusion. My last four infusions I have had a metal taste in my mouth for about 12 hours afterwards, but that just started recently. I get about 2.5-3 weeks of relief out of the infusion now (I used to get 4 full weeks), but I feel like it's working pretty decently for me. Definitely easier than the self-injectors, which, while I'm not at all needle-phobic, were kind of painful. Good luck to your Mom! Kate P-B in STL Sent from my Verizon Wireless BlackBerry Quote Link to comment Share on other sites More sharing options...
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