Re: Going off MS meds advice...

[Guest guest]

Hi ,

Welcome to the group!

Here is a website you may find helpful in answering some of your questions:

http://tinyurl.com/advice-to-msers

I think your best bet is to discontinue the Avonex and, with the exception of

Low Dose Naltrexone, go the natural route.

If you take an immunosuppressant like Avonex with immunoboosters, they tend to

cancel each other out, so you may not get the benefit of either.

With best wishes,

Dudley Delany

http://profiles.yahoo.com/dudley_delany

[Guest guest]

Hi -

Welcome and my name is Kopera and you come to the right group as there is a

wealth of knowledge from so many. Your story was the beginning story to my

journey, too. I was on Avonex as well for 2 years, it was tough.

Since that part of my life I conquered MS and you can read part of my ebook

there is a free preview at www.ginascorner.com

I follow a theory of Cleanse, Nourish and let thy body heal itself.

Have a Happy and Healthy Day,

Kopera M.H.

© Copyright 2007 www.sCorner.com . All rights reserved | Privacy Policy

WARNING: None of the above statements have been evaluated or approved by the

Food and Drug Administration or the American Medical Association. The

information provided on this site is intended for your general knowledge only

and is not a substitute for professional medical advice or treatment for

specific medical conditions. Always seek the advice of your physician or other

qualified health care provider before using any herbal products.

________________________________

To: mscured

Sent: Fri, February 26, 2010 10:45:47 PM

Subject: Going off MS meds advice...

Hello Group!

I am a new member so this is my first post. I have read breifly some other

posts and noted that one person said that most of the people in this group take

no meds for MS. This caught my attention because I am on Avonex and am having a

terrible time with it.

I am 29 years old, married with two daughters ages 5 and 4. I was diagnosed with

RRMS in July 2009. I spent several months in a wheelchair and not able to care

for myself. Thankfully, my wheelchair time is a lot less these days but I still

have other MS issues. I was put on Avonex after my first major relapse. I take

one injection once a week. First of all, I am very hard-pressed to take any

meds, even asprin, so this was very new for me. For the next 24-48 hrs after my

injection, I feel as though I have the flu. I get chills, body aches, the most

horrible headache possible, weakness is worse, fatigue is unbearable and brain

fog is at the max. It has helped to calm my MS symptoms but when I tried to

take my self off of it, I started to relapse again and had to go back on.

I want to be off MS meds completely. I have made several changes in my life.

One being the food I eat. I now stay away from MSG, High Frutcose Corn Syrup,

etc and I eat all organic and natural foods. I have even taken this to the exent

that I am raising my own chickens for the meat and eggs.

Back in Jan of 09, I lost quite a bit of my hair. I went to see a naturalist

and she gave me a huge amount of herbs to take. I was on Colloidial Silver,

Oragon Grape, Cloraphylle, Super Orac, Bifidopholis, Flax seed oil, and other

stuff I cant think of right now. My question is... Are these okay to take as a

suppliment for Avonex? What can I take to suppliment the Avonex and is all

natural or organic?

Also, when I take things to " boost my immune system " my MS gets worse. Why are

people telling me to boost my immune system when my overactive immune system is

my problem? I dont understand this.

Something that I have noticed is when I am emotionally distraught or going

through a hard time, the MS symptoms are at an all time high. Why is that? and

how can I prevent it from happening?

I'm sorry this was so long, but thanks for all the advise.

from Texas

[Guest guest]

Welcome ,

My advice - wean yourself off the ABC drugs and you'll feel better, start the

Best Bet Diet (remove gluten/casein/legumes from your diet at least), add

Vitamin D3 to your supplements, have a food allergy test, remove all amalgam

fillings if you have any, exercise, drink plenty of water and smile!

Janet

To: mscured

From: eliandgracesmom@...

Date: Sat, 27 Feb 2010 04:45:47 +0000

Subject: Going off MS meds advice...

Hello Group!

I am a new member so this is my first post. I have read breifly some other posts

and noted that one person said that most of the people in this group take no

meds for MS. This caught my attention because I am on Avonex and am having a

terrible time with it.

I am 29 years old, married with two daughters ages 5 and 4. I was diagnosed with

RRMS in July 2009. I spent several months in a wheelchair and not able to care

for myself. Thankfully, my wheelchair time is a lot less these days but I still

have other MS issues. I was put on Avonex after my first major relapse. I take

one injection once a week. First of all, I am very hard-pressed to take any

meds, even asprin, so this was very new for me. For the next 24-48 hrs after my

injection, I feel as though I have the flu. I get chills, body aches, the most

horrible headache possible, weakness is worse, fatigue is unbearable and brain

fog is at the max. It has helped to calm my MS symptoms but when I tried to take

my self off of it, I started to relapse again and had to go back on.

I want to be off MS meds completely. I have made several changes in my life. One

being the food I eat. I now stay away from MSG, High Frutcose Corn Syrup, etc

and I eat all organic and natural foods. I have even taken this to the exent

that I am raising my own chickens for the meat and eggs.

Back in Jan of 09, I lost quite a bit of my hair. I went to see a naturalist and

she gave me a huge amount of herbs to take. I was on Colloidial Silver, Oragon

Grape, Cloraphylle, Super Orac, Bifidopholis, Flax seed oil, and other stuff I

cant think of right now. My question is... Are these okay to take as a

suppliment for Avonex? What can I take to suppliment the Avonex and is all

natural or organic?

Also, when I take things to " boost my immune system " my MS gets worse. Why are

people telling me to boost my immune system when my overactive immune system is

my problem? I dont understand this.

Something that I have noticed is when I am emotionally distraught or going

through a hard time, the MS symptoms are at an all time high. Why is that? and

how can I prevent it from happening?

I'm sorry this was so long, but thanks for all the advise.

from Texas

_________________________________________________________________

Hotmail: Trusted email with Microsoft’s powerful SPAM protection.

https://signup.live.com/signup.aspx?id=60969

[Guest guest]

> start the Best Bet Diet (remove gluten/casein/legumes from your diet at

least), add Vitamin D3 to your supplements, have a food allergy test, remove all

amalgam fillings if you have any, exercise, drink plenty of water and smile!

>

I agree with this, the Best Bet Diet is where I started and it helped

tremendously. Removing potential allergens from your diet will help calm your

immune system down. This includes wheat, dairy, and ALL beans/peas/legumes,

including soy. It's not an easy transition, but it's worth it! It took about 5

weeks for it to work for me. The Vitamin D supplementation is very important

too, and make sure you take a cal/mag with it. I think the Vitamin E and fish

oil are probably the next most important supplements included in the diet.

Some other things which you may find helpful are anti-inflammatories like

turmeric and fresh pineapple. Also, astragalus root is meant to neither

suppress or boost the immune system, but balance it out.

There is a ton of info here, and lots of different strategies to try out. I

hope you are able to get off the meds and find something here that works for

you!

Crystal

[Guest guest]

Welcome! Keep learning and researching. My opionion, If someonecan not explain

why to you, move on. Would not take anything that has a goal of boosting immune

system boost. Your right you are in hyer drive already. I took A,B ,and R

drugs with Avonex only giving me the same side effects as you. Would start with

the D3. I am looking at LDN now.

Mark in Denton

[Guest guest]

Hi Mark, you suggested in your last post to " going off MS meds... " not to take

anything that would boost the immune system. However you also mentioned you were

looking at LDN?

Low Dose Naltrexone IS an immune stimulant. It is an opiate antagonist that

suppresses intake of our natural opiates thus causing the body to over produce

endorphins which stimulate the immune system.

Regards Steve

[Guest guest]

You can strengthen your immune system by repopulating your probiotic gut flora.

Your immune system begins in the GI tract. The drugs are brain stimulants

(incl. LDN).

>

>

> Hi Mark, you suggested in your last post to " going off MS meds... " not to take

anything that would boost the immune system. However you also mentioned you were

looking at LDN?

> Low Dose Naltrexone IS an immune stimulant. It is an opiate antagonist that

suppresses intake of our natural opiates thus causing the body to over produce

endorphins which stimulate the immune system.

> Regards Steve

>

[Guest guest]

Hi,

I agree that probiotics are a must.  I would also suggest going on a more basic

, natural diet. No gluten, no dairy  and no legumes either. just stick to the

basics, all vegetables, fruits  and lean chicken, fish, turkey etc, nuts. there

is a lot of products you can find that are good for this diet. try looking in

whole foods market.

If you don't want to take LDN that's ok but I take it and haven't had any

problems or side effects with this. 

 Pamela Castro Carcelen

________________________________

To: mscured

Sent: Mon, March 1, 2010 11:43:58 AM

Subject: Re: Going off MS meds advice...

 

You can strengthen your immune system by repopulating your probiotic gut flora.

Your immune system begins in the GI tract. The drugs are brain stimulants (incl.

LDN).

>

>

> Hi Mark, you suggested in your last post to " going off MS meds... " not to take

anything that would boost the immune system. However you also mentioned you were

looking at LDN?

> Low Dose Naltrexone IS an immune stimulant. It is an opiate antagonist that

suppresses intake of our natural opiates thus causing the body to over produce

endorphins which stimulate the immune system.

> Regards Steve

>