Guest guest Posted February 15, 2010 Report Share Posted February 15, 2010 Hi, I have a few questions. My flair started around june 09 and I was just diagnoised with MS. I was supposed to start IV steroids for three days. The IV infusion center was all booked up and I have been progressively declining to the point where I could barely walk. Out of fusteration, I started the oral dose of 800 mg. predisone and am on the 4th day of treatment, instead of waiting for IV therapy. It is to be tapered down 10 mg. per day. I am feeling so much better. My vision, balance, walking, all symptoms are gradually fading. I still feel weak. Like a newborn colt. Did I blow it by now waiting until midweek to do the IV treatment? I heard the orals would work. IV treatment is so expensive vs. the cost of pills. Does the IV increase the effectiveness of the treatment. I notified the neuro. that I started the pills rather than waiting. No response back from him. I was wondering how long will I feel good after completing steroids? My quadriceps are having a new symptom, they shake at times, quite visibly after exercising or gardening. Is this from weakness or the steroids, or a sign of progression? My throat has been sore for the last few days. Feels raw. My mouth looks like I am getting thrush. Has anyone used nyastatin swish and swallow or diflucan for this issue and is it common with the predisone? I am swelling up rapidly. My fingers and legs are puffing out. Would a herbal diuretic be helpful treatment for this symptom? Any way to avoid weight gain? Up a couple of pounds in a day with good eating habits. Will my strength gradually return now that the inflammed lesions are being treated? I started exercising any words of advise? I want to improve my strength. I am walking and doing leslie sampsons walking video, yoga, light weight lifting. How much do you improve between flairs? I have never had one that lasted so long and has been so severe? This is my first time ever being treated, but I have had the symptoms for nine years. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 15, 2010 Report Share Posted February 15, 2010 This group is dedicated to managing, treating and curing Multiple Sclerosis WITHOUT the use of pharmaceutical drugs. Prednisone is dangerous, and many here believe using it earlier in our lives contributed to an eventual decline in health. Questions regarding pharma drugs are inappropriate on this forum. Regards, Yvette (Moderator) On Mon, Feb 15, 2010 at 8:43 PM, joy inspired wrote: > > > > Hi, I have a few questions. My flair started around june 09 and I was > just diagnoised with MS. I was supposed to start IV steroids for three > days. The IV infusion center was all booked up and I have been > progressively declining to the point where I could barely walk. > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 15, 2010 Report Share Posted February 15, 2010 I realize that it is harmful to take medications and I do believe in alternative treatments.   However as a newly diagnoised patient, I feel I should be able to ask questions and seek the wisdom of other members in a welcoming way rather than being chewed out.  My alternative treatment is LDN along with numerous other supplements and diet, juicing.   I would hope you would welcome any questions rather than discourage them, even if it involved a simple medication to halt the progression of a flair.   I have seen other members post medication questions. If we do not support one another through the ups and downs, learning the ins and outs of this disease, then who do we have to turn to?   > > > > Hi, I have a few questions. My flair started around june 09 and I was > just diagnoised with MS. I was supposed to start IV steroids for three > days. The IV infusion center was all booked up and I have been > progressively declining to the point where I could barely walk. > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 15, 2010 Report Share Posted February 15, 2010 Hi Joy, There is a discussion of MS flairs near the bottom of http://tinyurl.com/advice-to-msers A number of your questions should really be directed to the doctor who put you on prednisone. With the exception of LDN, The focus of this group is on non-drug approaches to treating MS. With best wishes, Dudley Delany http://profiles.yahoo.com/dudley_delany Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 15, 2010 Report Share Posted February 15, 2010 I was not " chewing you out. " I simply was informing you of the guidelines you agreed to when joining this list. On the sign up page, it is clearly stated that discussion of standard, allopathic drugs is not appropriate here. There are an overload of places on the web where one can ask questions regarding allopathic medical treatments of ms. In this group, we try to focus our energy on alternative treatments. As I said, in depth questions regarding allopathic drugs are inappropriate for this list. LDN is an alternative treatment, as is the CSSVI surgery. Both are welcomed here. As a newly diagnosed ms patient, your best treatment is to follow the Best Bet Diet, remove all sugar, gluten and artificial food from your diet, continue with your LDN although most will recommend you not take LDN with prednisone, (a great LDN resource is the LDN users list on Yahoogroups), and begin a detox program that fits your lifestyle. Learn meditation and creative visualization, and look for possible mercury or flouride exposure in your past or present situations. I would even suggest researching the CSSVI treatments, to determine if you might be a good candidate for those. One of our members, Dudley has great info on Edgar Cassey's ms protocals, as well. Many here have had success with a raw food diet, where others do better with a metabolic specific diet. There are many other sucessful alternative ms treatments that I have not mentioned. I know it's frustrating to face ms, all of us here face it with you. Many of us, including myself have been able to stop disease progression and reverse symptoms without using allopathic drugs. (I have SPMS and have completely stopped the progression and regained 98% of my functioning. When I joined this list almost 5 years ago I had lost most of my vision, a good chunk of my coordination, part of my hearing, could not speak without stuttering, and needed a wheelchair outside my home. Today my only symptom is occasional slight vision disturbances, and occasional stuttering and occasional dizziness. I have never taken allopathic drugs for the ms) If you would like to discuss our " no allopathic drug discussion " policy with me further, please feel free to do so OFFLIST. Yvette On Mon, Feb 15, 2010 at 9:14 PM, joy inspired wrote: > > > I realize that it is harmful to take medications and I do believe in > alternative treatments. > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 15, 2010 Report Share Posted February 15, 2010 I shall be silent and speak no more since I crossed a forbidden line.  Pray I be forgiven by all. Subject: Re: Flair and Steroids To: mscured Date: Tuesday, February 16, 2010, 2:43 AM   Hi, I have a few questions. My flair started around june 09 and I was just diagnoised with MS. I was supposed to start IV steroids for three days. The IV infusion center was all booked up and I have been progressively declining to the point where I could barely walk.  Out of fusteration, I started the oral dose of 800 mg. predisone and am on the 4th day of treatment, instead of waiting for IV therapy. It is to be tapered down 10 mg. per day. I am feeling so much better. My vision, balance, walking, all symptoms are gradually fading. I still feel weak. Like a newborn colt.  Did I blow it by now waiting until midweek to do the IV treatment? I heard the orals would work. IV treatment is so expensive vs. the cost of pills. Does the IV increase the effectiveness of the treatment. I notified the neuro. that I started the pills rather than waiting. No response back from him.  I was wondering how long will I feel good after completing steroids? My quadriceps are having a new symptom, they shake at times, quite visibly after exercising or gardening. Is this from weakness or the steroids, or a sign of progression?  My throat has been sore for the last few days. Feels raw. My mouth looks like I am getting thrush. Has anyone used nyastatin swish and swallow or diflucan for this issue and is it common with the predisone?  I am swelling up rapidly. My fingers and legs are puffing out. Would a herbal diuretic be helpful treatment for this symptom?   Any way to avoid weight gain? Up a couple of pounds in a day with good eating habits.  Will my strength gradually return now that the inflammed lesions are being treated? I started exercising any words of advise? I want to improve my strength. I am walking and doing leslie sampsons walking video, yoga, light weight lifting.  How much do you improve between flairs? I have never had one that lasted so long and has been so severe? This is my first time ever being treated, but I have had the symptoms for nine years.   Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 16, 2010 Report Share Posted February 16, 2010 Hi there, ended up with the stomach flu that my kids had, been up since 1am with it pouring our both ends.. My legs hurt so bad from this and my head is pounding wondering what to take I only drink water. Please help this is horrible. Sent on the Sprint® Now Network from my BlackBerry® Re: Flair and Steroids Hi Joy, There is a discussion of MS flairs near the bottom of http://tinyurl.com/advice-to-msers A number of your questions should really be directed to the doctor who put you on prednisone. With the exception of LDN, The focus of this group is on non-drug approaches to treating MS. With best wishes, Dudley Delany http://profiles.yahoo.com/dudley_delany Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 16, 2010 Report Share Posted February 16, 2010 Dear Joy, No need to feel bad or guilty about asking some simple questions. We are all here to learn and share. It's just that this particular group, unlike most other MS groups, has a different focus in regard to they types of MS treatments discussed. With best wishes, Dudley Delany http://profiles.yahoo.com/dudley_delany Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 16, 2010 Report Share Posted February 16, 2010 Joy,    If you care to talk about anything you have a problem with, you are welcome to e-mail or im me. People can be rude sometimes. ________________________________ To: mscured Sent: Mon, February 15, 2010 11:13:37 PM Subject: Re: Flair and Steroids  I shall be silent and speak no more since I crossed a forbidden line.  Pray I be forgiven by all. From: joy inspired <yourbeamofsunshine@ yahoo.com> Subject: Re: Flair and Steroids To: mscured@yahoogroups .com Date: Tuesday, February 16, 2010, 2:43 AM   Hi, I have a few questions. My flair started around june 09 and I was just diagnoised with MS. I was supposed to start IV steroids for three days. The IV infusion center was all booked up and I have been progressively declining to the point where I could barely walk.  Out of fusteration, I started the oral dose of 800 mg. predisone and am on the 4th day of treatment, instead of waiting for IV therapy. It is to be tapered down 10 mg. per day. I am feeling so much better. My vision, balance, walking, all symptoms are gradually fading. I still feel weak. Like a newborn colt.  Did I blow it by now waiting until midweek to do the IV treatment? I heard the orals would work. IV treatment is so expensive vs. the cost of pills. Does the IV increase the effectiveness of the treatment. I notified the neuro. that I started the pills rather than waiting. No response back from him.  I was wondering how long will I feel good after completing steroids? My quadriceps are having a new symptom, they shake at times, quite visibly after exercising or gardening. Is this from weakness or the steroids, or a sign of progression?  My throat has been sore for the last few days. Feels raw. My mouth looks like I am getting thrush. Has anyone used nyastatin swish and swallow or diflucan for this issue and is it common with the predisone?  I am swelling up rapidly. My fingers and legs are puffing out. Would a herbal diuretic be helpful treatment for this symptom?   Any way to avoid weight gain? Up a couple of pounds in a day with good eating habits.  Will my strength gradually return now that the inflammed lesions are being treated? I started exercising any words of advise? I want to improve my strength. I am walking and doing leslie sampsons walking video, yoga, light weight lifting.  How much do you improve between flairs? I have never had one that lasted so long and has been so severe? This is my first time ever being treated, but I have had the symptoms for nine years.   Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 1, 2010 Report Share Posted May 1, 2010 Steroids despite the reviews and verbal abuse you'll receive on this group do help some people. As with any medication holistic, alternative or conventional react differently for everyone. Anyone who tells you different is trying to sell you something....their own line of BS most likely. For me in the past steroids have improved my condition everytime I've had a flare. You will need to try and see. Judging by the way you've responded to the prednisone it is fair to say you would do well on the IV's. It is plausable that you may suffer a few side effects from the IV as it will be a much higher dose. personally I never felt any immediate side effects from IV's. It wasn't until after I finished the 3-5 day series of IV's and started oral medrol pack when I would get constant hiccups. they drove me nuts. I've been debating going in for IV's for a flare I'm having now. I am on about 100+ vitamin supps a day, Calcium EAP therepy, LDN and BEST BET DIET. None of which are inrended to nor prevented the uninary tract infec I had that has resulted in an excacerbation that is presently making my lower left leg go numb. Now I'm certain there are those out there who'd say that LDN would stop my flareup just as steroids would but I disagree in my case. really stinks for me because I won't get contrast MRI's right now because I retained the Gadolinium from past contrast dye. Really want to know if I have active lesions. Oh well. So my advise to you is get your situation under control the best way it works for you. If you are interesred in alternative approaches try looking into Calcium EAP therepy and The Brewer Science Library. It has reduced the size of all my lesions. Good luck..... > > From: joy inspired <yourbeamofsunshine@ yahoo.com> > Subject: Re: Flair and Steroids > To: mscured@yahoogroups .com > Date: Tuesday, February 16, 2010, 2:43 AM > >  > >  Hi, I have a few questions. My flair started around june 09 and I was just diagnoised with MS. I was supposed to start IV steroids for three days. The IV infusion center was all booked up and I have been progressively declining to the point where I could barely walk. > >  > > Out of fusteration, I started the oral dose of 800 mg. predisone and am on the 4th day of treatment, instead of waiting for IV therapy. It is to be tapered down 10 mg. per day. I am feeling so much better. My vision, balance, walking, all symptoms are gradually fading. I still feel weak. Like a newborn colt. > >  > > Did I blow it by now waiting until midweek to do the IV treatment? I heard the orals would work. IV treatment is so expensive vs. the cost of pills. Does the IV increase the effectiveness of the treatment. I notified the neuro. that I started the pills rather than waiting. No response back from him. > >  > > I was wondering how long will I feel good after completing steroids? My quadriceps are having a new symptom, they shake at times, quite visibly after exercising or gardening. Is this from weakness or the steroids, or a sign of progression? > >  > > My throat has been sore for the last few days. Feels raw. My mouth looks like I am getting thrush. Has anyone used nyastatin swish and swallow or diflucan for this issue and is it common with the predisone? > >  > > I am swelling up rapidly. My fingers and legs are puffing out. Would a herbal diuretic be helpful treatment for this symptom? > >  > >  Any way to avoid weight gain? Up a couple of pounds in a day with good eating habits. > >  > > Will my strength gradually return now that the inflammed lesions are being treated? I started exercising any words of advise? I want to improve my strength. I am walking and doing leslie sampsons walking video, yoga, light weight lifting. > >  > > How much do you improve between flairs? I have never had one that lasted so long and has been so severe? This is my first time ever being treated, but I have had the symptoms for nine years. > >  > >  > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 1, 2010 Report Share Posted May 1, 2010 Steroids are a temporary fix and they diminish in potency the longer you take them. They also cause side effects that are sometimes dangerous. If inflammation is the reason that Prednisone is being considered, there are safer ways to deal with it. http://atlanteanproductions.wordpress.com/2008/01/14/managing-inflammation/ > > Steroids despite the reviews and verbal abuse you'll receive on this group do help some people. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 1, 2010 Report Share Posted May 1, 2010 > As with any medication holistic, alternative or conventional react differently for everyone. Anyone who tells you different is trying to sell you something....their own line of BS most likely. > Not necessarily. I may very well react positively to steroids, but I'm still not gonna take them. I don't have anything nice to say about western medicine's approach to MS, but I'm not selling anything either. I simply say this has worked for me, it might for you too. > I've been debating going in for IV's for a flare I'm having now. I am on about 100+ vitamin supps a day, Calcium EAP therepy, LDN and BEST BET DIET. None of which are inrended to nor prevented the uninary tract infec I had that has resulted in an excacerbation that > is presently making my lower left leg go numb. Wow, 100+? I can't help but think that something's got to be interacting in ways that aren't good. Or that there are some ingredients in some of them that are causing a problem. Or that digesting all those supplements is wreaking havoc on your GI system and possible leaky gut. When doing so much at once, it's hard to tell what is working and what isn't,you know? Honestly, I think if I got to this point where I was doing so much and it was obviously not helping, I would stop everything and start a fast. I have found that to be the quickest and easiest way to set myself right again. Then I'd add stuff back one at a time to see what is causing the problem. Just a thought! Crystal - currently on Day 6 of spring Master Cleanse, and saving money on food and supplements for a bit! lol Quote Link to comment Share on other sites More sharing options...
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