advice on dealing with doctor

[Guest guest]

I am in severe pain... my ankles, feet wrists and fingers are extremely swollen

and I'm having extremely hard time walking... I called my Rhuem to see if he

can give me anything better then tylenol 3 while he is holding off my Rituxin

infusion which is due on June 10th... He's holding off the infusion to get more

tests done but the results will not be in for another week.

Anyway, his nurse gave me the run around about him probably not allowing me to

get anything stronger and gave me an appointment to for tomorrow at 12:00...

I'm in tears, I hurt so bad... How do I make him understand.. I work full

time and I have no intentions of doing other wise... Shouldn't he be obligated

to help subside my pain while trying to find out my issues? I am seriously

loosing my mind, the pain is making me want to pass out as I'm constantly

feeling sick to my stomach and dizzy when I try to walk. I know its not right,

but if he will not give me something to help, then I'm gonna have to find

something to help myself...

My job is already in jeopardy due to the state budget and our shitty governor...

I seriously can't afford to be out of work or showing any type of weakness...

This is not just a job for me, this is my career and I'm not going to give up

with out fighting like hell!

Thanks for letting me vent

Bonnie

[Guest guest]

Your symptoms sound like a side effect from the tyl 3.......you could always

see a pain doc.....

Deb

From: [mailto: ] On

Behalf Of Bonnie

Sent: Tuesday, June 02, 2009 7:51 PM

Subject: [ ] advice on dealing with doctor

I am in severe pain... my ankles, feet wrists and fingers are extremely

swollen and I'm having extremely hard time walking... I called my Rhuem to

see if he can give me anything better then tylenol 3 while he is holding off

my Rituxin infusion which is due on June 10th... He's holding off the

infusion to get more tests done but the results will not be in for another

week.

Anyway, his nurse gave me the run around about him probably not allowing me

to get anything stronger and gave me an appointment to for tomorrow at

12:00... I'm in tears, I hurt so bad... How do I make him understand.. I

work full time and I have no intentions of doing other wise... Shouldn't he

be obligated to help subside my pain while trying to find out my issues? I

am seriously loosing my mind, the pain is making me want to pass out as I'm

constantly feeling sick to my stomach and dizzy when I try to walk. I know

its not right, but if he will not give me something to help, then I'm gonna

have to find something to help myself...

My job is already in jeopardy due to the state budget and our shitty

governor... I seriously can't afford to be out of work or showing any type

of weakness... This is not just a job for me, this is my career and I'm not

going to give up with out fighting like hell!

Thanks for letting me vent

Bonnie

[Guest guest]

Bonnie:

 

You dont make your Rheumy understand.  You ask him for a referral to a

specialist in pain and palliative care, there is an entire clinical speciality

built around pain, its called Pain management.  They deal with chronic, acute,

and terminal pain.   It sounds like you could use something much stronger than

T3.

 

OKD

From: Bonnie <tiredtaz@...>

Subject: [ ] advice on dealing with doctor

Date: Tuesday, June 2, 2009, 8:50 PM

I am in severe pain...  my ankles, feet wrists and fingers are extremely swollen

and I'm having extremely hard time walking...  I called my Rhuem to see if he

can give me anything better then tylenol 3 while he is holding off my Rituxin

infusion which is due on June 10th...  He's holding off the infusion to get more

tests done but the results will not be in for another week. 

Anyway, his nurse gave me the run around about him probably not allowing me to

get anything stronger and gave me an appointment to for tomorrow at

12:00...   I'm in tears, I hurt so bad...  How do I make him understand..   I

work full time and I have no intentions of doing other wise...  Shouldn't he be

obligated to help subside my pain while trying to find out my issues?   I am

seriously loosing my mind, the pain is making me want to pass out as I'm

constantly feeling sick to my stomach and dizzy when I try to walk.   I know its

not right, but if he will not give me something to help, then I'm gonna have to

find something to help myself...

My job is already in jeopardy due to the state budget and our shitty governor...

I seriously can't afford to be out of work or showing any type of weakness... 

This is not just a job for me, this is my career and I'm not going to give up

with out fighting like hell!

Thanks for letting me vent

Bonnie

------------------------------------

[Guest guest]

Bonnie:

Please get an immediate referral to a Pain Management/Palliative Care

specialist. This is an entire clinical specialties built around pain

alleviation. I think certain specialists are now getting hip and realizing they

may be specialists in Rheumy, Endo, Cardiology, etc. but they dont know how to

effectively alleviate pain.

I hate it when a doc doesnt listen. If they were all empaths they would.

I hope you got some relief. Dont wait for someone to bring it to you, you have

to search for it.

This is a great group. I thank all of you for posting, i am learning so much

about RA.

OKD

[Guest guest]

Bonnie,

It sounds like your in a big flare!! I'm so sorry, I know its very bad

for you, and then trying to work. I would just tell the doctor how you

feel. The doctor should be able to see how swollen you are. He might

give you a burst of prednisone, that usually helps with the pain and

swelling. Also, a steroid shot can help also. The last time I went to

my rheumy, I was in a major flare, and it helped so much.

Let us know how your doc appointment goes.

Good luck,

Tawny

>

> I am in severe pain... my ankles, feet wrists and fingers are

extremely swollen and I'm having extremely hard time walking... I called

my Rhuem to see if he can give me anything better then tylenol 3 while

he is holding off my Rituxin infusion which is due on June 10th... He's

holding off the infusion to get more tests done but the results will not

be in for another week.

> Anyway, his nurse gave me the run around about him probably not

allowing me to get anything stronger and gave me an appointment to for

tomorrow at 12:00... I'm in tears, I hurt so bad... How do I make him

understand.. I work full time and I have no intentions of doing other

wise... Shouldn't he be obligated to help subside my pain while trying

to find out my issues? I am seriously loosing my mind, the pain is

making me want to pass out as I'm constantly feeling sick to my stomach

and dizzy when I try to walk. I know its not right, but if he will not

give me something to help, then I'm gonna have to find something to help

myself...

> My job is already in jeopardy due to the state budget and our shitty

governor... I seriously can't afford to be out of work or showing any

type of weakness... This is not just a job for me, this is my career and

I'm not going to give up with out fighting like hell!

> Thanks for letting me vent

> Bonnie

>