Re: ~hugging Dee~

[Guest guest]

Dee,

It has been a tough diagnosis, more emotional than anything. Here is my

bright, loving son who is having so much difficulty and no one seemed to be

able to figure it out... The school just wanted to blow it off, saying that

he just " couldn't " get the physical/spacial/emotional stuff, and others just

thought him weird. It was a releif to put a name to it, but devistating as

well... It took us a while to realize we hadn't lost anything when a label

was applied... We had actually gained a tool. He has come soooo far over the

summer and will continue to advance, for we have a team working with him

through a child neurodevelopmental center. He is very smart (high iq) and

has always known something is different about him. Surrounded by positive

attitudes, he has put everything he has into finding ways to overcome the

obsticles before him. I am VERY proud of him and all the hard work he

does... I am hoping the best from the school. It reminds me much of the

battles we go through with insurance. Allowing a child to recieve special

help at school takes extra funding. They always deny at first and you have

to go through rounds of appeals to gain access to the help and modifications

he needs. Again, I am thankful for the team at PNCC because they are

standing with me, working to keep him from being one who would fall through

the cracks.

~giggles and blushes about the super woman thing~ I didn't think I could do

this at my weight either. I guess, when push comes to shove, there are many

things we force ourselves to do when a loved one is on the line. I would die

for my kids... so a bit of pain in the back, neck, knees, ankles, etc

(though very painful and daunting) is better than death... They are also

reasons for having this surgery. I want to be able to do even more and want

to be there (in one piece) to enjoy their kids!!! At the rate I am going, my

body is going to be all used up... The strain of all I do is taking its toll

on my joints and cartelege.

~imagining how it will be minus the weight~ Hmmmmmm ~big grin~ I would get

this 100 pound monkey off my back, my butt, my body.... ~laughin~ hmmmm I

guess I could darn near move mountains!!! ~winks~

Thank you for the hugs.... You have really helped me through a tough week!!!

~hugs~

Rabecca

Re: ~hugging Dee~

> Rabecca,

> WOW! Your schedule made ME tired all of the way over here!! ) You

are

> one busy and giving lady! I think you definitely deserve to have times

when

> you are feeling overwhelmed and overstressed... And this list is

certainly

> a good place to be able to come and get some encouragement.

>

> I think it's great that you are having such a positive effect on so

many

> young lives. I know some things about Asperger's syndrome so I know what

a

> tough diagnosis that can be... and sometimes a tough road ahead. I hope

that

> you have some good doctors on your side and some good schools that are

> willing to work with you. In my area we have one very wonderful live in

> residence for people with Autism, and the wait for a placement there is

over

> 6 years!!! I have always said that if I had the money I would start

another

> school, work, living environment for the autistic population. It is

> definitely an undermet need... at least in my state and the surrounding

> states (Ohio).

>

> Well... I really just wanted to tell you that you sound like the

living

> breathing equivalent to SuperWoman!! I could not do what you are doing at

> the weight that I am now. I commend you for being so very active. Can

you

> imagine how you will be once the weight comes off??? LOOK OUT!!! )

>

> Find some time for you.. (easier said than done) and remember that if

> you want to vent.. it's ok to do it here!! Sending you another hug..

> Dee in Ohio )

>

>

>

>

[Guest guest]

Rabecca,

I'm so glad to hear that you have a good group of people working on behalf

of your son. I know of a young man who has Asperger's and he has been

unable to find a placement (he is now 23 years old). A lot of it is his own

fault, because he, too, is very intelligent and thinks that he can manipulate

people and situations at his will. He did NOT have a good support group as he

was growing up so I'm sure that he missed out the good stable groundwork that

your son is getting. I do know how tough it can be.. It's a subject that

really interests me, because I think it is so misunderstood. If you ever

want to talk... just let me know.

And I'll be right there with you, moving those mountains, when I get this

weight off too!!! I can't wait!!! I think it will be so neat to see so many

of us here on the OTHER side of the surgery.. I just hope that people will

continue with the list so that we can see the progress.

I'm glad I could help you through the week... in saying that, you've

really helped me through today!! ) Dee in Ohio