Re: ms and headaches

[Guest guest]

Hi all,

 

I have never had headaches before I started taking Rebif.  Now I have them

pretty much all the time and most of the they are severe.

 

I don't know if any of you on Rebif also experience these, but it's one of the

affects of the drug.

 

Shirley

[Guest guest]

Most here are not on the Interferons but I have a friend who was on

Rebif. She took advil a couple hours before the Rebif and that

prevented the headaches the majority of the time for her. They call

this pre-medicating.

>

> Hi all,

>  

> I have never had headaches before I started taking Rebif.  Now I have

them pretty much all the time and most of the they are severe.

>  

> I don't know if any of you on Rebif also experience these, but it's

one of the affects of the drug.

>  

> Shirley

>

[Guest guest]

Most of us do not use drugs and this is not the place to discuss them.

>

> -Hi shirley

> I am on Rebif and have been for 6 years, it's been a fantastic

> experience for me. I have a very strict routine on " Shot days " . I

> eat a very light dinner no later than 6 p.m. nothing after that

> except water or juice. At 9:00 I take two Advil. Then at 10:00p.m.

> I give myself the injection. If I wake up at night it's usually with

> a dull headache sometimes a low grade fever, I take 2 Ibubrofen and

> usually get back to sleep fairly quickly. I have never had sever or

> even lasting headaches with this medication.

>

>

[Guest guest]

I'm sorry I don't understand. I thought this groups focus was

MS and everything that goes with this unpleasant disease. Now

whether it's drugs or diets I think we can all learn from each other.

I'm newly diagnosed and right now I don't know any better than to

take my Rebif injections. That's why I signed up for this group,

I want to learn from experienced people. So I'm sorry if asking a

question about drugs upset anyone, I was totally unaware that this

is a no drug group.

Thank you

Shirley

[Guest guest]

Yes, Shirley, this group focuses on natural and alternative ways to

treat, manage and HEAL autoimmune disorders, specifically Multiple

Sclerosis.

Most of us are anti drug because the big pharma drugs are dangerous,

ineffective and cause more problems than they solve. We use methods like

nutrition, herbs, acupuncture, LDN, Reiki, special diets, meditation,

chemical avoidance, toxin cleaning, colon cleanse, and a host of other

methods to control multiple sclerosis.

Many of us here have seen symptom control, symptom reversal and even

complete halt of the disease process using the methods above. This is

the place to learn about these methods. We have many successful people

here who are willing to share their experiences to help you learn.

Yvette

(Moderator)

RMS 19 years

SPMS 3 years

treat with diet, supplements, and LDN with 0 real function loss

[Guest guest]

Yvette, I'm very interested in your approach to this disease but am very

confused on where to start.  Everyone seems very experienced, can you help me

out?

 

Thanks

Shirley

[Guest guest]

Thank you Bruce for being so understanding. You see

I've been very healthy all my life and I really don't know who to turn to. My

family is also very healthy and I haven't even told them about my ms. So this

was the first place that I found a bit of comfort with and really had no idea

that there were options besides the Rebif. I still don't know how to begin to

change my diet and get off the Rebif. I never wanted anyone in the group to get

upset with me.

But I wanted to say thank you for understanding where I was coming from and

being nice enough to let me know.

Shirley