Guest guest Posted May 6, 2004 Report Share Posted May 6, 2004 Hello Tish, My name is a and I am about to have the spinal fusion for L5 done and was hoping for an update on your condition. It sounded like disability and employer were giving you a very hard time. I am very scared of the same thing. Any advice that you learned from your experience? My short-term disability (thru work) is about to expire and I'll be filing for long-term. Hope you are feeling better. -a Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 7, 2004 Report Share Posted May 7, 2004 HELLO ERICA, LET ME WELCOME YOU TO THE GROUP.I CAN NOT HELP YOU WITH YOUR QUESTION ABOUT THE FUSION YOU ARE GOING TO HAVE DONE. I JUST WANTED TO WELCOME YOU. WE ARE A CARING GROUP OF PEOPLE WHO WILL HELP YOU IN ANY WAY THAT WE CAN,WHENEVER WE CAN. WE ARE HERE TO SHARE OUR EXPERIENCE,STRENGTH ,AND HOPE WITH YOU. I HOPE THAT YOU WILL CONTINUE TO COME HERE AND SHARE WITH US WHEN YOU NEED TO SHARE. THERE WILL ALWAYS BE SOMEONE HERE TO OFFER YOU WORDS OF ENCOURAGEMENT WHEN YOU NEED TO BE ENCOURAGED. THOSE OF US WHO HAVE CHRONIC BACK AND NECK PAIN UNDERSTAND WHAT YOU ARE GOING THROUGH. THERE IS A HIGH LEVEL OF STRESS , ANXIETY AND FEAR WHEN YOU HAVE THIS TYPE OF INJURY AND THE CONSTANT PAIN THAT COMES WITH IT. I THINK THE FEAR OF SURGERY IS SOMETHING THAT WE ALL EXPERIENCE. THE FEAR OF LOSING A JOB ,BEING UNEMPLOYED AND ALL THAT GOES WITH IT IS SOMETHING THAT WE ALL MAY HAVE TO FACE AT ONE TIME OR ANOTHER. AS WE ALL DEAL WITH THESE THINGS WE NEED SOME PLACE TO GO AND VENT.WE NEED A PLACE TO COME AND TO SEEK HELP TO GET US THROUGH THE DIFFICULT TIMES. THAT IS WHY WE ARE HERE IN THIS GROUP. WE ARE HERE TO HELP EACH OTHER TO GET THROUGH THOSE DIFFICULT TIMES. WELL, I HAVE SAID ENOUGH,SO I WILL SAY NO MORE. MAY YOU HAVE A BETTER DAY TODAY THAN YOU HAD YESTERDAY,AND NOT AS GOOD A DAY AS YOU WILL HAVE TOMORROW. TAKE AS BEST CARE AS YOU CAN, LARRY mumpkin7913 <estevens@...> wrote: Hello Tish, My name is a and I am about to have the spinal fusion for L5 done and was hoping for an update on your condition. It sounded like disability and employer were giving you a very hard time. I am very scared of the same thing. Any advice that you learned from your experience? My short-term disability (thru work) is about to expire and I'll be filing for long-term. Hope you are feeling better.-a Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 14, 2005 Report Share Posted January 14, 2005 Hi Amy..my name is Donna. I am the founder and group leader for FACES. It always bother me to hear when parents cannot find a support sysytem/activities for their children yet the complaint is far too common. I have a few recommendations for you. If your desire is start something contact your local AF if there is one near you and let them know of your wishes. Second, contact any local rheumatologist who may see children, its not only ped. rheumies, let them know of your idea and ask if you can leave a flyer in their waiting areas. because of HIPPA you cannot go seek out patients but you can leave info and anyone else interested can contact you. Third, the first week of March is Juvenile Arthritis Awareness Week and I would highly encourage you ( and everyone on the list) to contact the local media (TV, Newspaper or Radio) for a few minutes of time or space to tell about your child, JRA and your desires to start a group (thats how FACES formed..one article in the newspaper). I knew I was not alone and I was 32 before I ever met another JRA-er (sad but true). The demand is there and I wish you luck. Please keep in mind you may do alot and get litlle reponse but if one other person reaches out to you, it will be worth it. I get burn-out and frustrated alot but every time I receive a new email or phone call I am re-energized and ready to keep up the work. Good luck and if I can be of any help just let me know... Donna Fox-Keidel, President FACES C/O Arthritis Foundation- KY Branch 2908 Brownsboro Rd., Suite 100 Louisville, Ky 40206 502-585-1866 faces faces1999@... Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 27, 2005 Report Share Posted January 27, 2005 , Many people here, patients and caregivers, understand your frustration. People who are not very involved with Lyme just do not get it. Period. It makes you feel very alone sometimes. In your case, it sounds like you are fighting this by yourself. The anger you feel toward your family is also understandable. Some Lyme patients have family members who are very supportive, but I've talked to many people who are as disappointed as you are in people they count on who not only don't help, but sometimes make it worse through their lack of compassion. Hopefully, someday when you are healthier, you're anger will subside and you will be able to deal with your family again. Do you have someone else who is helping you, a friend? This is a good place to vent, and getting your frustration out may help a bit. There are times when we all want to scream! I don't even have Lyme, but care for my daughter, and there are times when I feel like I can't face one more thing. There's an old saying, " God never gives us more than we can handle " . Sometimes I think God has way too much faith in me! Either that or a very odd sense of humor. Do you now have a diagnosis and an Llmd? Are you in treatment? There are lots of good people here, with good information to share; good ears too, if you just need to talk. Hang in there! Carol Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 28, 2005 Report Share Posted January 28, 2005 > > People who are not very involved with Lyme just do not get it. Period. No they dont. Its even worse if you look healthy. Least if you have a leg in a cast they can see what is going on. I swear if I hear just one more time how well I look, I will seriously beat someone about the head *-) Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 4, 2005 Report Share Posted May 4, 2005 Trudy, I'm so sorry you are in limbo, waiting for disability and not being able to see a doctor. Have you tried Medicaid for temporary assistance? http://jfs.ohio.gov/ohp/consumer.stm Some cities have programs for people in your situation. Your doctor probably knows about these programs and may be able to direct you. It's worth a few phone calls to see what assistance you can get until your disability is approved. I'm assuming you applied for Social security disability. Does your state have temporary disability to hold you over? You can also try clinical trials, in which you'll be able to see a doctor and get meds. Most times, it is at no cost to you and you'll be on the same meds most of us are on. I will keep you in my prayers. a On May 4, 2005, at 2:48 PM, tru0204 wrote: > Hi it has been a while since i have posted. I do read all of the > emails daily. you are all in my prayers at all times. I just need to > vent today, I have been off all meds since the end of Feb. I lost my > ins and cant afford any meds. I am waiting on ins approval through the > state welfare program. They keep telling me they want proof of income > and I keep telling them I have applied for Disability. They asked me > when my disability checks would start. How would I know I applied in > Jan. Got 1 phone call in Feb. and that is the last i have heard from > them. Should I call them???????? They never even made a Dr. appt for > me. I always thought they sent everyone to their Dr. The 12th will be > 4 months. Anyeay without meds all I want to do is sleep. Major Flare, > My Dr. wants to see me but I cant afford to go. I keep praying this > disability process will go fast but I guess it just doesn't > > Â Â Â Â Â Â Â Â Â Â Â Â Â Â Â Â Â Â Â Â Â Â Â Â Â Â Â Â Â Â Â Trudy > Â Â Â Â Â Â Â Â Â Â Â Â Â Â Â Â Â Â Â Â Â Â Â Â Â Â Â Â Â Â Â Â Â Â Ohio > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 4, 2005 Report Share Posted May 4, 2005 Trudy, I'm sooo sorry you are having such a difficult time right now. Losing your insurance is just one more stress you didn't need. I will keep you in my prayers.....Marina > Hi it has been a while since i have posted. I do read all of the > emails daily. you are all in my prayers at all times. I just need to > vent today, I have been off all meds since the end of Feb. I lost my > ins and cant afford any meds. I am waiting on ins approval through the > state welfare program. They keep telling me they want proof of income > and I keep telling them I have applied for Disability. They asked me > when my disability checks would start. How would I know I applied in > Jan. Got 1 phone call in Feb. and that is the last i have heard from > them. Should I call them???????? They never even made a Dr. appt for > me. I always thought they sent everyone to their Dr. The 12th will be > 4 months. Anyeay without meds all I want to do is sleep. Major Flare, > My Dr. wants to see me but I cant afford to go. I keep praying this > disability process will go fast but I guess it just doesn't > > Trudy > Ohio Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 6, 2005 Report Share Posted May 6, 2005 Trudy: I am praying that everything sorts itself out for you. I am fortunate enough to live in Canada and not have to worry about paying to see a doctor. I am having trouble with paying for my medications though, so I understand what it's like to go without. I find it very frustrating to fill a prescription, not have it work, then have to try something else. I don't have the money to throw away on meds like that. Wish I had more advice on what to do for help. I am crossing my fingers that things will turn around for you. I am in the middle of a flare right now as well, and wish it would end! Hang in there... > Hi it has been a while since i have posted. I do read all of the > emails daily. you are all in my prayers at all times. I just need to > vent today, I have been off all meds since the end of Feb. I lost my > ins and cant afford any meds. I am waiting on ins approval through the > state welfare program. They keep telling me they want proof of income > and I keep telling them I have applied for Disability. They asked me > when my disability checks would start. How would I know I applied in > Jan. Got 1 phone call in Feb. and that is the last i have heard from > them. Should I call them???????? They never even made a Dr. appt for > me. I always thought they sent everyone to their Dr. The 12th will be > 4 months. Anyeay without meds all I want to do is sleep. Major Flare, > My Dr. wants to see me but I cant afford to go. I keep praying this > disability process will go fast but I guess it just doesn't > > Trudy > Ohio Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 21, 2005 Report Share Posted June 21, 2005 don't use tucks. Get some hemorrhoid cream and use it. Tucks set me on fire....very painful. joy Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 21, 2005 Report Share Posted June 21, 2005 What kind of Cream do you recommend? > don't use tucks. Get some hemorrhoid cream and use it. Tucks set me on > fire....very painful. > > joy kk Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 21, 2005 Report Share Posted June 21, 2005 I used a generic cream I bought at Wal-Mart. I guess anusol or any of them would work. joy Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 23, 2005 Report Share Posted August 23, 2005 Jo, Don't feel alone on this. You have good people and bad people on this earth. Some as I call it are for Self and Self only. Then you have those who have the Caring Heart of what your Auction means. I am not sure how the Auction work's but I would assume you could write that these are for Donations to the Fund of helping JRA kids in your area. You can't resale for a profit. Somewhere in the way your Auctioning it off and have them agree to that. If this person is making a Profit off something always remember this old saying. What comes around goes around. or What goes over the Devils back with come under his belly. Either way it means She will get what she did to you back 10 fold. This helps us deal with wrong doing's to us. Remember that ok. Robbin Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 23, 2005 Report Share Posted August 23, 2005 Jo, people never cease to shock me. It seems so many are out for their own good and have forgotten compassion. Greed is often a culprit for destroying the good of mankind but my friend dont let it get ya down. This woman was wrong but maybe the next will bid more on an item knowing the cause of the auction...hugs and smiles! Donna Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 23, 2005 Report Share Posted August 23, 2005 How awful!! Some people are just such jerks! Too bad you couldn't stop the sale. No wonder it is hard to get people to donate stuff - they try to do a good thing and there is always some idiot who will make a profit off of them. Could Ebay do something to prevent this in the future? Or perhaps you could somehow place a comment in the sellers profile on Ebay? Isn't there a way to post comments about sellers? I don't go on Ebay very often, but I thought I remembered reading something like that. I am sorry this person has no clue as to what she has done. Michele ( 18, pauci & spondy) need to vent G'day, Sorry but I need to let off some steam after a particularly emotional day. No, Bayly's ok... acting like a typical bratty 3 y.o, so that's normal. Into the 2nd week without NSAIDs so I'm happy there. What's got my goat is our Celebrity Charity Auction that we're running online for Aussie kids with Arthritis (www.ausauction.com) Anothe rmum and I have spent months approaching famous folk to donate signed gear to auction, and months setting it up and chasing publicity, in order to try raise something for training or research or something for our kids. And some scum are abusing and exploiting it. Today has been a pretty bad example, of buying something from us for $100, and reselling it on ebay for over $600!! We have tried everything we could to prevent the sale, or try to convince the seller to find it in her heart to donate some of the proceeds back to Arthritis, since she bought something she obviously always intended to reuse for profit. But she point blank refuses, says she feels abused by our asking! How unfair is that? How wrong is that, to profit at the expense of our kids? How sad am I. It still always amazes me when my faith in human goodness is shaken. Jo Bayly, 3, extended oligo Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 23, 2005 Report Share Posted August 23, 2005 Generally the "feedback" portion for buyers and sellers on ebay are open for people to make comments regarding someone who purchased something from them (bad check, slow to pay, or never sent the payment after bidding, etc - and vice versa for the buyer to comment on the seller - ie, slow to ship, merchandise not in the promised condition, etc.) It may be possible to make a comment another way, I guess you could check with ebay. I hesitate to write this because I don't want it to be misunderstood - but the reality is that most people who purchase "signed" collectibles - do it for the resale value - what is the difference if it is re-sold now or 20 years from now? It is unfortunate that the item didn't generate that kind of interest on your auction site - but if you were going to get more money for it on your site, then it would have happened and she would have been out bid. Once someone purchases something from you, it belongs to them to do with as they please. Putting some kind of restriction on the items up front would probably have a detrimental effect, lowering the interest and in turn the money raised. It would be nice if the lady who got the item in the auction would donate someof her profit to the cause - but again, she is not obligated to do so. I know it's frustrating to see that turn around - and of course the right thing would be for the items to bring that kind of money into helping kids with arthritis - after all the work you put into obtaining the items. Try to not think about what happens to them after purchased from your auction - if you didn't know she turned around and made that kind of profit -wouldn't you be pleased that you were bringing in money to help fund research, etc - and pleased that items were being purchased? Try to focus on that Jo, and put the rest out of your mind - focus on all the wonderful things you have been accomplishing there!!!! We are all so very proud of you and all that you have been doing to get the word out that kids get arthritis too. Hang in there! Val Rob's Mom (7,systemic) need to vent G'day, Sorry but I need to let off some steam after a particularly emotional day. No, Bayly's ok... acting like a typical bratty 3 y.o, so that's normal. Into the 2nd week without NSAIDs so I'm happy there. What's got my goat is our Celebrity Charity Auction that we're running online for Aussie kids with Arthritis (www.ausauction.com) Anothe rmum and I have spent months approaching famous folk to donate signed gear to auction, and months setting it up and chasing publicity, in order to try raise something for training or research or something for our kids. And some scum are abusing and exploiting it. Today has been a pretty bad example, of buying something from us for $100, and reselling it on ebay for over $600!! We have tried everything we could to prevent the sale, or try to convince the seller to find it in her heart to donate some of the proceeds back to Arthritis, since she bought something she obviously always intended to reuse for profit. But she point blank refuses, says she feels abused by our asking! How unfair is that? How wrong is that, to profit at the expense of our kids? How sad am I. It still always amazes me when my faith in human goodness is shaken. Jo Bayly, 3, extended oligo Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 23, 2005 Report Share Posted August 23, 2005 Me again - I just had another thought - when things are on a charity auction on ebay I have sometimes seen it announced on tv that the items was being put on ebay to raise money for the selected charity - and have heard it on the radio as well. Maybe you could contact the show that interviewed you and Bayly & let them know these items are up for bid & maybe they can make some kind of announcement to help generate some interest - or make a call to some of your morning radio shows. You may have already done this - but I thought I'd throw it out there as a thought. Good luck with the auctions! Val Rob's Mom (7,systemic) need to vent G'day, Sorry but I need to let off some steam after a particularly emotional day. No, Bayly's ok... acting like a typical bratty 3 y.o, so that's normal. Into the 2nd week without NSAIDs so I'm happy there. What's got my goat is our Celebrity Charity Auction that we're running online for Aussie kids with Arthritis (www.ausauction.com) Anothe rmum and I have spent months approaching famous folk to donate signed gear to auction, and months setting it up and chasing publicity, in order to try raise something for training or research or something for our kids. And some scum are abusing and exploiting it. Today has been a pretty bad example, of buying something from us for $100, and reselling it on ebay for over $600!! We have tried everything we could to prevent the sale, or try to convince the seller to find it in her heart to donate some of the proceeds back to Arthritis, since she bought something she obviously always intended to reuse for profit. But she point blank refuses, says she feels abused by our asking! How unfair is that? How wrong is that, to profit at the expense of our kids? How sad am I. It still always amazes me when my faith in human goodness is shaken. Jo Bayly, 3, extended oligo Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 23, 2005 Report Share Posted August 23, 2005 -HI Jo... HUGS.. im sorry ( Im sorry to say this is reality. Theres just no getting away from the fact that there are people out there with crappy morals. I chose not to focus on them and instead think of all the GOOD people in this world who are doing what they can to make it an even better one. People like YOU!!! who is working fearlessly to raise awareness and money for your own child and for the children of others you might never meet. Money that will be used to one day find that cure we are all waiting for. Remember that theres soo much more good in the world if we just focus more on that. At the end of the day you DID raise $100 from that particular hat...thats $100 more than there was before you put yourself out there to work so hard at raising awareness and money..Give yourself a pat on the back and dont give this other person another moments thought. They are not worth it... YOU are!! Hugs Helen and (8,systemic) - In , " Jo & Grant " <gtur5559@b...> wrote: > G'day, > > Sorry but I need to let off some steam after a particularly > emotional day. > > No, Bayly's ok... acting like a typical bratty 3 y.o, so that's > normal. Into the 2nd week without NSAIDs so I'm happy there. > > What's got my goat is our Celebrity Charity Auction that we're > running online for Aussie kids with Arthritis (www.ausauction.com) > > Anothe rmum and I have spent months approaching famous folk to > donate signed gear to auction, and months setting it up and chasing > publicity, in order to try raise something for training or research > or something for our kids. > > And some scum are abusing and exploiting it. > > Today has been a pretty bad example, of buying something from us for > $100, and reselling it on ebay for over $600!! > > We have tried everything we could to prevent the sale, or try to > convince the seller to find it in her heart to donate some of the > proceeds back to Arthritis, since she bought something she obviously > always intended to reuse for profit. But she point blank refuses, > says she feels abused by our asking! > > How unfair is that? > > How wrong is that, to profit at the expense of our kids? > > How sad am I. > > It still always amazes me when my faith in human goodness is shaken. > > Jo > Bayly, 3, extended oligo Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 24, 2005 Report Share Posted August 24, 2005 I could not have said it better Helen! Jo, just keep up the excellent work and dont let anyone or thing keep you from it..hugs! Donna Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 2, 2005 Report Share Posted September 2, 2005 -, Im sorry you are soo frustated, I can totally understand where you are coming from. Im sorry i dont have any ideas apart from trying to talk to others " further up the chain " and see if you cant get something going in your area. I hope others can come up with some better ideas.. Hugs Helen and (8,systemic) -- In , " ttownyvonne " <maydo65@a...> wrote: > Hi everyone, > Hope all are doing as well as possible. I need to vent for a moment > and get some help from you guys. I know you all don't know me well. > I haven't been in the group long and I don't post very often, but > the help you guys have given me is greatly appreciated. My thing is, > I want to start a walk in our area next year and I have talked with > the necessary people at the Carolinas Chapter about 4 months ago. At > that time, kaylee wasn't doing well and the pres of the chapter told > me to concentrate on Kaylee and get back with her in a few months. > Well, i couldn't remember her name as I had spoken with another lady > as well and emailed the wrong one, her name is Penny by the way. the > pres's name is Gail. Well, Penny proceeds to tell me that I may not > be able to organize a walk here as there are limited funds and > staff. Well, that totally pissed me off. Here I am trying to > anything and everything I can to raise awareness and raise money and > these people tell me that there are already 12 scheduled for nc and > sc next year, but haven't told me the locations, but i might not be > able to. They tend to schedule things that are close to charlotte. > Well i am 6 hours from Charlotte. I am in eastern nc and we need > things here too. What can i do? What should I do? Can anyone help > me? Where can I turn and what can I do to do a walk on my own if > these chapter people won't help me? I am so mad and upset about > this. Here I am doing newspaper and tv interviews trying to raise > awareness and get people to donate to the arthritis fund and then > the chapter is going to tell me i might can't do it. What's the > matter with these people. I am still waiting to see the locations of > the 2006 walks. Can you all please help me? > > and Kaylee, 3, pauci Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 3, 2005 Report Share Posted September 3, 2005 Oh boy can I relate!!! Those words " lack of funding " are bug bears of mine. Everytime I get inspired with an idea to raise funds or awareness or both for kids living with Arthritis, here in Australia, I get that old line. Sadly, from the AF, from the genetics companies, and from any other source that's connected with whatever idea I'm chasing at the time. And I'm prepared to do most of the work!!! So don't fret , the way I see it, you are doing a tremendous job with awareness, and maybe the funding will come. Remember, the people in these organisations whose job it is to help people like us, are probably every bit as peed off as yourself, having to recite those words " lack of funding " . But hassle the crap out of them anyway, I say! ;-) Jo Bayly, 3, extended oligo > Hi everyone, > Hope all are doing as well as possible. I need to vent for a moment > and get some help from you guys. I know you all don't know me well. > I haven't been in the group long and I don't post very often, but > the help you guys have given me is greatly appreciated. My thing is, > I want to start a walk in our area next year and I have talked with > the necessary people at the Carolinas Chapter about 4 months ago. At > that time, kaylee wasn't doing well and the pres of the chapter told > me to concentrate on Kaylee and get back with her in a few months. > Well, i couldn't remember her name as I had spoken with another lady > as well and emailed the wrong one, her name is Penny by the way. the > pres's name is Gail. Well, Penny proceeds to tell me that I may not > be able to organize a walk here as there are limited funds and > staff. Well, that totally pissed me off. Here I am trying to > anything and everything I can to raise awareness and raise money and > these people tell me that there are already 12 scheduled for nc and > sc next year, but haven't told me the locations, but i might not be > able to. They tend to schedule things that are close to charlotte. > Well i am 6 hours from Charlotte. I am in eastern nc and we need > things here too. What can i do? What should I do? Can anyone help > me? Where can I turn and what can I do to do a walk on my own if > these chapter people won't help me? I am so mad and upset about > this. Here I am doing newspaper and tv interviews trying to raise > awareness and get people to donate to the arthritis fund and then > the chapter is going to tell me i might can't do it. What's the > matter with these people. I am still waiting to see the locations of > the 2006 walks. Can you all please help me? > > and Kaylee, 3, pauci Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 5, 2005 Report Share Posted October 5, 2005 I know this situation seems hard, but I would encourage you to try to calm down some about it. You are in a marathon, not a sprint, and you'll have many other hurdles to cross as the years go on. You'll have some good teachers and some not so good teachers (like we all did growing up). If Pre-K isn't perfect, your daughter's future isn't ruined, trust me. My daughter had pretty good pre-K years, but Kindergarten made a huge difference to so many of her skills...and she didn't have a good teacher - quite the contrary. She learned so much in K because of her peers, letters, speech, beginning reading skills, etc. I would encourage you to see if there is some way to volunteer in the teacher's room to help her. Even offer to take home papers to cut out for pasting or whatever. She may just need some time to get her " sea legs, " the population she is now serving is way different from high school. Be an ally as best you can. You want to develop and foster those relationships and believe me, the teachers notice who tries to help and who doesn't and it gets passed up the chain. Believe me. You'll be in my thoughts, Eleanor Green _____ From: [mailto: ] On Behalf Of Angie Tate Sent: Wednesday, October 05, 2005 9:30 AM down_syndrome ; Subject: NEED TO VENT Hey everybody...I dont even know where to start........... Sydnie is in Inclusion PreK this year....we have a new teacher....she was an asst for 12 years, not sure what grade...I know she worked with High School EC kids but not sure if it was right before coming to our school. She has said that her passion is kindergarten and that 'she didnt ask for this'...ok she didnt have to take this job either. Anywayyyyyyyyy, I do know that no curriculum has been started and nothing on Sydnie's IEP has been worked on. Ive talked to her about this and she said she just got the IEP paperwork....(i dont know that I believe this) Im getting alot of info from her asst who isnt happy with the way things are going. I think the teacher is a bit overwhelmed with her 9 typical kids and 7 EC kids.....she has two assts in the classroom. I kind of dont think she knows which direction to take especially with the kids goals....I think there is a bit of strain, because she knows she's struggling....it is clear that she is unhappy. Again Ive gotten info from the asst that terrifies me that Syd wont be ready for kindergarten. Im praying DESPERATELY that things turn around and things take off.....this will be our last year at this school and then we'll be going to the school in our district. Mind you we have been spoiled the last two years.....with awesome teachers! and now I feel like we're back tracking.................Ive got so many thoughts running through my head I cant even get it all typed. Ive spoke with her case mgr who plans to observe one day to see how things are going...which she has to do anyway. Anyboy ever been in this situation????? ~Angie mom to Sydnie (5/26/00) and Saylor (4/30/04) May God Bless You As He Has Us A extra little chromosome, that's all it is, you see. Where all of you were born with two, I was blessed with three www.babiesonline.com/babies/s/sydniebrooke www.babiesonline.com/babies/b/babytate My Children are God's gift to me. How I raise them, is my gift to God. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 21, 2006 Report Share Posted January 21, 2006 You'll get there one decision at a time. We all just take it one day at a time. Set your goals and go for it. Oops, wrong page number... I love the interviews on page 13. http://www.bodychangers.com/interviews13.shtml (check out her before the before photo) Pam Brown Kailee Rainey All the women on page 13 tell remarkable stories with ALL the details I needed to hear. These women give me stamina to keep " hiking " up my own path. We can do this, one minute, one hour at a time. M. > > > > hello... > > > > My name is Tatiane and I am 27 years old, married, mother of 1 > baby. A couple of weeks ago I decided to start the body for life > chalenge. 2 weeks has past and nothing has happened. I am feeling so > discouradged and disgusted with myself. I hate how I look and so does > my husband. I have tried everything under the sun and nothing seems > to work.... Any word of encouragement would be highly appreciated. > > > > Thanks, > > Tatiane > > > > > > > > --------------------------------- > > Photos > > Got holiday prints? See all the ways to get quality prints in your > hands ASAP. > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 21, 2006 Report Share Posted January 21, 2006 hi , honey .... i am a 30 year old mom of 2 when i started this only two weeks and two days ago i weighed 186 i am down to 178 i know that's not a whole lot but i promise you it works , how are you doing on your eating ... i was following the book eating for life and figured out with the help of the group that alot of my portions were still to big ...i don't know if anyone else has done this but one of our health food stores can measure your metabolism, how much food you burn in a day .... mine is low , it always has been , it is hard for me because i am an emotional eater ......and i love sweets , but i unlike you i have a husband who supports me ..... but not long ago he was the same as your husband .....i guess he finally figured love and support go alot longer than demands , if you need to talk i am here for you , and GOD i understand .........with all the love and support you need ....... Angie tjay1302000 <t-jay130@...> wrote: You'll get there one decision at a time. We all just take it one day at a time. Set your goals and go for it. Oops, wrong page number... I love the interviews on page 13. http://www.bodychangers.com/interviews13.shtml (check out her before the before photo) Pam Brown Kailee Rainey All the women on page 13 tell remarkable stories with ALL the details I needed to hear. These women give me stamina to keep " hiking " up my own path. We can do this, one minute, one hour at a time. M. > > > > hello... > > > > My name is Tatiane and I am 27 years old, married, mother of 1 > baby. A couple of weeks ago I decided to start the body for life > chalenge. 2 weeks has past and nothing has happened. I am feeling so > discouradged and disgusted with myself. I hate how I look and so does > my husband. I have tried everything under the sun and nothing seems > to work.... Any word of encouragement would be highly appreciated. > > > > Thanks, > > Tatiane > > > > > > > > --------------------------------- > > Photos > > Got holiday prints? See all the ways to get quality prints in your > hands ASAP. > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 21, 2006 Report Share Posted January 21, 2006 tatiane, you need to remember to do this for YOU, not for your husband. Shame on him for telling you that he's turned off by you. Shame on him, indeed. That said, if you truly want to lose weight and look your age, do it for you. In the BFL book is asks, " why " ... do you know your why? if not, sit down and write it out! On the back of my bedroom door i've posted several photos of women that I've taken out of fitness magazines.. great looking butts, firmed and toned up women. It gives me great incentive to look at this and say, " that's why I'm exercising today! That's why I'm eating clean today! " Good luck to you, stay strong willed and do it to SPITE your husband (and to get those 'second' looks from other men!) Kanala > > > > hello... > > > > My name is Tatiane and I am 27 years old, married, mother of 1 > baby. A couple of weeks ago I decided to start the body for life > chalenge. 2 weeks has past and nothing has happened. I am feeling so > discouradged and disgusted with myself. I hate how I look and so does > my husband. I have tried everything under the sun and nothing seems > to work.... Any word of encouragement would be highly appreciated. > > > > Thanks, > > Tatiane > > > > > > > > --------------------------------- > > Photos > > Got holiday prints? See all the ways to get quality prints in your > hands ASAP. > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 22, 2006 Report Share Posted January 22, 2006 Hey Tatiane! I'm new to this forum myself and am ending my 3rd week on BFL today (go FREE day!). I got really frustrated myself last Wed. because I hadn't seen much in results - i was also expecting some kind of major change ( I don't have a lot of weight to loose, but tonig up is another issue all together). I got through the week somehow, and measured myself this morning (I have not gotten on a scale at all during this program). I've lost an inch on my waist and hips in three weeks. To me, this is pretty dramatic - I'm not sure if it is to you, but I want you to know that I'm seeing results even though I too had lost hope. Sorry to hear about your husband's support. Just do it for you, girl and not him! Visualize how hot you're going to look and get an attitude and that will help you succeed! My boyfriend likes the changes he sees in me, but at the same time, keeps trying to stuff non BFL food down my face with perserverence. It's really hard to say no sometimes and very discouraging, but then I just tell him that he's not being supportive and somehow that gets me stubborn enough to show him - and I get even more determined with the program. At any rate, just want you to know from someone who is only a week ahead of you - that it does get better, just hang on. I've heard from others in the program that you see the most major results in weeks 6-8! WOOHOO! Hope this helps - stay strong!! Take care, Kim > > > > hello... > > > > My name is Tatiane and I am 27 years old, married, mother of 1 > baby. A couple of weeks ago I decided to start the body for life > chalenge. 2 weeks has past and nothing has happened. I am feeling so > discouradged and disgusted with myself. I hate how I look and so does > my husband. I have tried everything under the sun and nothing seems > to work.... Any word of encouragement would be highly appreciated. > > > > Thanks, > > Tatiane > > > > > > > > --------------------------------- > > Photos > > Got holiday prints? See all the ways to get quality prints in your > hands ASAP. > > > > Quote Link to comment Share on other sites More sharing options...
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