Guest guest Posted December 24, 2009 Report Share Posted December 24, 2009 $1,500.00 for 4 shots ( a months worth) Wow!!!! I'm very fortunate to have health insurance and only have to pay $45.00 for a co-pay. I'm so very sorry for those without insurance. Why so expensive? I could understand if someone had to squeeze the potion out of a million bee's hienny (sp?)? Happy Holidays to everyone and I hope you are able to have a pain free time! , Michigan Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 26, 2009 Report Share Posted December 26, 2009 , My hubby has RA and rheumatoid lung. He takes Enbrel and our copay is $50 but we applied for an Enbrel card through the company that makes Enbrel. This company pays our copay. It does not matter what your income is. Go to enbrel.com to apply. Lynn in Louisiana, hubby with RA and rheumatoid lung > > $1,500.00 for 4 shots ( a months worth) Wow!!!! > > I'm very fortunate to have health insurance and only have to pay $45.00 for > a co-pay. > > I'm so very sorry for those without insurance. > > Why so expensive? I could understand if someone had to squeeze the potion > out of a million bee's hienny (sp?)? > > Happy Holidays to everyone and I hope you are able to have a pain free > time! > > , > Michigan > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 27, 2009 Report Share Posted December 27, 2009 Dear Lynn, Bless your heart! That was very nice of you to give this information. I'm going to jump right on it. Thank you!! Michigan P.S. Safe and pain free new year wishes to everyone!. 2a. _Re: the cost of " Enbrel " _ ( /message/134158;_ylc=X3oDMTJyZzBxaDcxBF\ 9TAzk3MzU5NzE1BGdycElkAzEwMTQ3OARncnBzcElkAz E3MDUwNjE2MTAEbXNnSWQDMTM0MTU4BHNlYwNkbXNnBHNsawN2bXNnBHN0aW1lAzEyNjE5MDkyMD Y-) Posted by: " crj129 " _crj129@... _ (mailto:crj129@...?Subject= Re:%20the%20cost%20of%20 " Enbrel " ) _crj129 _ (crj129) Sat Dec 26, 2009 6:26 am (PST) , My hubby has RA and rheumatoid lung. He takes Enbrel and our copay is $50 but we applied for an Enbrel card through the company that makes Enbrel. This company pays our copay. It does not matter what your income is. Go to enbrel.com to apply. Lynn in Louisiana, hubby with RA and rheumatoid lung Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 28, 2009 Report Share Posted December 28, 2009 When my Reumy gave me the prescription for Enbrel he gave me a co-pay assistance card. Enbrel pays the co-pay for six months and then my co-pay will be no more than ten dollars. At least that's the way I understand it. If I didn't have that card my co-pay would be $120 dollars. There's no way I could afford that. I just started Enbrel on Friday. It took me two months to get up enough nerve to get the prescription filled. I'm not afraid of needles as long as someone else is doing the sticking instead of me. The pharmacist told me he could give me the shot if I didn't think I could do it. It wasn't as bad as I thought it would be. I use the sure-click so I don't have to actually see the needle. Before I could start on Enbrel, I had to have a chest x-ray done and they sent me a letter to tell me it was abnormal. I got pretty upset about it and I called them and they said I had COPD and that I would need to take a breathing test at my next appointment. Pam Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 28, 2009 Report Share Posted December 28, 2009 Hi Pam, I was just now on line to apply for the Enbrel card that Lynn mentioned. And then the phone rang, it was the pharmacy that is going to be delivering the Enbrel. They told me that Enbrel automatically signed me up for the first 6 months. And then after that the co-pay will be $9.00! The Enbrel will be here Wednesday. I can't really say I'm afraid of needles either. I just don't like them poking me! LOL! My husband will do it for me because I'm afraid that my reflex will yank it back out before the injection is done. And that would be a waste of med's. Keep us posted on how your Enbrel is working for you. And how the breathing test came out? Thanks for your reply, , Michigan > > > > When my Reumy gave me the prescription for Enbrel he gave me a co-pay assistance card. Enbrel pays the co-pay for six months and then my co-pay will be no more than ten dollars. At least that's the way I understand it. If I didn't have that card my co-pay would be $120 dollars. There's no way I could afford that. > > I just started Enbrel on Friday. It took me two months to get up enough nerve to get the prescription filled. I'm not afraid of needles as long as someone else is doing the sticking instead of me. The pharmacist told me he could give me the shot if I didn't think I could do it. It wasn't as bad as I thought it would be. I use the sure-click so I don't have to actually see the needle. Before I could start on Enbrel, I had to have a chest x-ray done and they sent me a letter to tell me it was abnormal. I got pretty upset about it and I called them and they said I had COPD and that I would need to take a breathing test at my next appointment. > > Pam > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 28, 2009 Report Share Posted December 28, 2009 Good luck ! The needle is NOT bad- promise! Hope it gives you the relief you need!!! in SC Sent from my iPhone On Dec 28, 2009, at 1:30 PM, " normsgrl " <Normsgrl@...> wrote: Hi Pam, I was just now on line to apply for the Enbrel card that Lynn mentioned. And then the phone rang, it was the pharmacy that is going to be delivering the Enbrel.. They told me that Enbrel automatically signed me up for the first 6 months. And then after that the co-pay will be $9.00! The Enbrel will be here Wednesday. I can't really say I'm afraid of needles either. I just don't like them poking me! LOL! My husband will do it for me because I'm afraid that my reflex will yank it back out before the injection is done. And that would be a waste of med's. Keep us posted on how your Enbrel is working for you. And how the breathing test came out? Thanks for your reply, , Michigan > > > > When my Reumy gave me the prescription for Enbrel he gave me a co-pay assistance card. Enbrel pays the co-pay for six months and then my co-pay will be no more than ten dollars. At least that's the way I understand it. If I didn't have that card my co-pay would be $120 dollars. There's no way I could afford that. > > I just started Enbrel on Friday. It took me two months to get up enough nerve to get the prescription filled. I'm not afraid of needles as long as someone else is doing the sticking instead of me. The pharmacist told me he could give me the shot if I didn't think I could do it. It wasn't as bad as I thought it would be. I use the sure-click so I don't have to actually see the needle. Before I could start on Enbrel, I had to have a chest x-ray done and they sent me a letter to tell me it was abnormal. I got pretty upset about it and I called them and they said I had COPD and that I would need to take a breathing test at my next appointment. > > Pam > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 28, 2009 Report Share Posted December 28, 2009 Thank you! ! Michigan > > Good luck ! The needle is NOT bad- promise! Hope it gives you the relief you need!!! > in SC > > Sent from my iPhone > > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 29, 2009 Report Share Posted December 29, 2009 Pam, Did a pulmologist tell you that you had COPD? My hubby had an abnormal chest xray and was sent to a pulmologist and he ordered a CT scan of his lungs. He was diagnosed with rheumatoid lung which is RA attacking the lungs. Ask your doctor if you should see a pulmologist. It is important to get the correct diagnosis. Lynn in Louisiana, hubby with RA and rheumatoid lung > > > > When my Reumy gave me the prescription for Enbrel he gave me a co-pay assistance card. Enbrel pays the co-pay for six months and then my co-pay will be no more than ten dollars. At least that's the way I understand it. If I didn't have that card my co-pay would be $120 dollars. There's no way I could afford that. > > I just started Enbrel on Friday. It took me two months to get up enough nerve to get the prescription filled. I'm not afraid of needles as long as someone else is doing the sticking instead of me. The pharmacist told me he could give me the shot if I didn't think I could do it. It wasn't as bad as I thought it would be. I use the sure-click so I don't have to actually see the needle. Before I could start on Enbrel, I had to have a chest x-ray done and they sent me a letter to tell me it was abnormal. I got pretty upset about it and I called them and they said I had COPD and that I would need to take a breathing test at my next appointment. > > Pam > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 1, 2010 Report Share Posted January 1, 2010 Lynn, I haven't been to a pulmologist yet. My Reumy did a baseline chest x-ray before I could start on the Enbrel. I talked to his nurse on the phone and she said I would need to take a breathing test at my next appointment. The only breathing problem I have is occasional shortness of breath. I used to be a light smoker, about 2 packs a week if that much. I have worked in a cotton mill for 24 years and we have to take a breathing test once or twice a year depending on how high we can blow after working in the cotton dust for 4 hours. I usually have to take it twice a year but the test I took in May was so good they said I didn't have to take it but one time this year. What is the difference in COPD and rheumatoid lung? What symtoms did your husband have? When I told my doctor at the pain clinic that my Rheumy thinks I have COPD she said she didn't see how they could tell that from just one x-ray. I thought the pain patches might be causing the shortness of breath, but she said if that was the case I would be having shortness of breath all the time. I have to do another Enbrel shot today. The last time I did the shot it bled quite a bit because I'm on a blood thinner because of a defect in my blood. More than anything else I hope the Enbrel helps with the fatique I feel all the time. I work the night shift 7 p.m. to 7 a.m. 2 days on, 2 days off and every other weekend. On my days off I don't feel like doing anything I need to be doing. I just want to sleep all the time. Sometimes I feel like I'm sleeping my life away. Pam > > Pam, > Did a pulmologist tell you that you had COPD? My hubby had an abnormal chest xray and was sent to a pulmologist and he ordered a CT scan of his lungs. He was diagnosed with rheumatoid lung which is RA attacking the lungs. Ask your doctor if you should see a pulmologist. It is important to get the correct diagnosis. > > Lynn in Louisiana, hubby with RA and rheumatoid lung Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 1, 2010 Report Share Posted January 1, 2010 Pam, There is a difference between copd and rheumatoid lung. I think copd is an obstructive lung disease and rheumatoid lung is a restrictive lung disease. Rheumatoid lung causes pulmonary fibrosis which my hubby has. His lungs are permanently damaged from the RA. My hubby used to smoke but stopped 2 years ago. He has been coughing for a long time but his PCP said it was asthma and that was how he was treated for years. In August 08, his cough worsened and he had severe joint pain for the first time. He went to his PCP and a chest xray and blood work were ordered. The lung CT scan showed the pulmonary fibrosis in his lungs. His RA blood test, c-reactive protein and sed rate were sky high. He was sent to a pulmologist and was diagnosed with rheumatoid lung. The pulmonologist sent him to a rheumy. He is now treated by the rheumy and pulmonary doc. He takes 17.5 mg of prednisone, 150 mg of Imuran and 50mg sureclick Enbrel. They are working on getting his dosage of Enbrel lowered. From reading on the Internet, I have found articles that lots of people with RA have an abnormal chest xray because RA effects the lungs. Please go one time to see a pulmonologist. You probably have nothing to worry about but it's better to be safe. A lung CT scan is what you need. A chest xray does not tell exactly what is happening. After hubby was diagnosed, we changed pulmologist to a doctor that is a center of excellence for PF. Good luck. I hope that I haven't upset you. I care. Take care, Lynn in Louisiana > > > Lynn, > > I haven't been to a pulmologist yet. My Reumy did a baseline chest x-ray > before I could start on the Enbrel. I talked to his nurse on the phone > and she said I would need to take a breathing test at my next > appointment. The only breathing problem I have is occasional shortness > of breath. I used to be a light smoker, about 2 packs a week if that > much. I have worked in a cotton mill for 24 years and we have to take a > breathing test once or twice a year depending on how high we can blow > after working in the cotton dust for 4 hours. I usually have to take it > twice a year but the test I took in May was so good they said I didn't > have to take it but one time this year. What is the difference in COPD > and rheumatoid lung? What symtoms did your husband have? When I told my > doctor at the pain clinic that my Rheumy thinks I have COPD she said she > didn't see how they could tell that from just one x-ray. I thought the > pain patches might be causing the shortness of breath, but she said if > that was the case I would be having shortness of breath all the time. > > I have to do another Enbrel shot today. The last time I did the shot it > bled quite a bit because I'm on a blood thinner because of a defect in > my blood. More than anything else I hope the Enbrel helps with the > fatique I feel all the time. I work the night shift 7 p.m. to 7 a.m. 2 > days on, 2 days off and every other weekend. On my days off I don't feel > like doing anything I need to be doing. I just want to sleep all the > time. Sometimes I feel like I'm sleeping my life away. > > Pam Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 1, 2010 Report Share Posted January 1, 2010 I made a mistake in my post. The docs are trying to lower his prednisone, not his enbrel. Sorry. Lynn > > Pam, > > There is a difference between copd and rheumatoid lung. I think copd is an obstructive lung disease and rheumatoid lung is a restrictive lung disease. Rheumatoid lung causes pulmonary fibrosis which my hubby has. His lungs are permanently damaged from the RA. > > My hubby used to smoke but stopped 2 years ago. He has been coughing for a long time but his PCP said it was asthma and that was how he was treated for years. In August 08, his cough worsened and he had severe joint pain for the first time. He went to his PCP and a chest xray and blood work were ordered. The lung CT scan showed the pulmonary fibrosis in his lungs. His RA blood test, c-reactive protein and sed rate were sky high. He was sent to a pulmologist and was diagnosed with rheumatoid lung. The pulmonologist sent him to a rheumy. He is now treated by the rheumy and pulmonary doc. He takes 17.5 mg of prednisone, 150 mg of Imuran and 50mg sureclick Enbrel. They are working on getting his dosage of Enbrel lowered. > > From reading on the Internet, I have found articles that lots of people with RA have an abnormal chest xray because RA effects the lungs. Please go one time to see a pulmonologist. You probably have nothing to worry about but it's better to be safe. A lung CT scan is what you need. A chest xray does not tell exactly what is happening. After hubby was diagnosed, we changed pulmologist to a doctor that is a center of excellence for PF. > > Good luck. I hope that I haven't upset you. I care. > > Take care, > Lynn in Louisiana > Quote Link to comment Share on other sites More sharing options...
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