Re: Question about Restless Leg Syndrome

[Guest guest]

OH no!!! LOL. Go figure. Well, I've taken Benadryl before I even had this

problem for the itchies I got from Vicodin, which I refuse to take anymore.

It's bad enough I get itchies from Percocet that I will only take when

totally desperate, but they are more tolerable and look a little less goofy as

I

walk around scratching. LOL. I will definitely mention this! Thanks !

Heidi in Mass.

In a message dated 12/31/2008 10:33:23 A.M. Eastern Standard Time,

Rheumatoid.Arthritis.Support@... writes:

Heidi,

I know that Benadryl can make restless legs worse.

I'd run your problems by your nurse and physician and see what they

recommend. I would also mention the oil you are considering.

Sorry that you are suffering.

Not an MD

On Wed, Dec 31, 2008 at 8:30 AM, <_sposy@..._ (mailto:sposy@...) >

wrote:

> Hi,

>

> I have been experiencing this problem on and off for about 3 weeks now.

> Yesterday I got my 2nd spine shot nerve blocker L5....and sure enough, last

> night I was up for about 2 hours with this annoyance. I looked it up and

> found

> out that some causes are iron deficiency, joint illness, vitamin

deficiency,

> which I have. A medication that can help with this is Tramadol which I

take.

> It's not helping. I found an oil on line that I think I'm going to order,

> I'd rather try this than take yet another pill. I'll mention it to the

nurse

> today when she calls to follow-up about yesterdays procedure. I have to

take

> benadryl since I've been reacting to the steroid with rosey cheeks and a 4

> to 5 day headache that Tylenol won't touch. I'd love to hear your

> experiences, comments on this.

>

> Thanks and Happy New Year!

>

> Heidi in Mass.

**************New year...new news. Be the first to know what is making

headlines. (http://www.aol.com/?ncid=emlcntaolcom00000026)

[Guest guest]

Hi Coetta,

I just heard from the Dr. My RLS is a direct result from the nerve block

and is expected to be temporary as I've never had it before. It should go away

once the medication is out of my system within 7 to 10 days. I still have to

take the Benadryl as there are 2 different problems going on.

Tonight he wants me to take Benadryl with 2 Xanaflex (tizanidine). This

should pretty much knock me out and totally relax me. I hope it works. I

cannot imagine having RLS as an every day occurring problem on top of RA and

anything else. Will keep you posted. What did you mean by having the radio

frequency started?

Thanks,

Heidi in Mass.

In a message dated 12/31/2008 10:41:45 A.M. Eastern Standard Time,

horseinaroundgal@... writes:

Hi Heidi,

I had the same reaction when I had the nerve block. I take Klonopin for

restless leg already. I also have had the epideral. It seemed to help. But I

have

had the radio frequency started. I don't like the idea of having that stuff

injected in my spine. I had a killer head ache everytime they do this. And I

couldn't sleep as well. The doc contributed it to my restless legs, RA, Lupus

or Fibromyalgia. It did throw me into a flare. Good luck and hope it works

for you and is over soon.

God Bless and Have a wonderful and safe New Year!

Coetta

From: _sposy@..._ (mailto:sposy@...) <_sposy@..._

(mailto:sposy@...) >

Subject: [ ] Question about Restless Leg Syndrome

_ @groRA-SUPP_ (mailto: )

Date: Wednesday, December 31, 2008, 8:30 AM

Hi,

I have been experiencing this problem on and off for about 3 weeks now.

Yesterday I got my 2nd spine shot nerve blocker L5....and sure enough, last

night I was up for about 2 hours with this annoyance. I looked it up and

found

out that some causes are iron deficiency, joint illness, vitamin deficiency,

which I have. A medication that can help with this is Tramadol which I take.

It's not helping. I found an oil on line that I think I'm going to order,

I'd rather try this than take yet another pill. I'll mention it to the nurse

today when she calls to follow-up about yesterdays procedure. I have to take

benadryl since I've been reacting to the steroid with rosey cheeks and a 4

to 5 day headache that Tylenol won't touch. I'd love to hear your

experiences, comments on this.

Thanks and Happy New Year!

Heidi in Mass.

************ **New year...new news. Be the first to know what is making

headlines. (_http://www.aol._ (http://www.aol./) com/?ncid=

emlcntaolcom0000 0026)

[Non-text portions of this message have been removed]

[Non-text portions of this message have been removed]

**************New year...new news. Be the first to know what is making

headlines. (http://www.aol.com/?ncid=emlcntaolcom00000026)

[Guest guest]

Heidi,

I know that Benadryl can make restless legs worse.

I'd run your problems by your nurse and physician and see what they

recommend. I would also mention the oil you are considering.

Sorry that you are suffering.

Not an MD

On Wed, Dec 31, 2008 at 8:30 AM, <sposy@...> wrote:

> Hi,

>

> I have been experiencing this problem on and off for about 3 weeks now.

> Yesterday I got my 2nd spine shot nerve blocker L5....and sure enough, last

> night I was up for about 2 hours with this annoyance. I looked it up and

> found

> out that some causes are iron deficiency, joint illness, vitamin deficiency,

> which I have. A medication that can help with this is Tramadol which I take.

> It's not helping. I found an oil on line that I think I'm going to order,

> I'd rather try this than take yet another pill. I'll mention it to the nurse

> today when she calls to follow-up about yesterdays procedure. I have to take

> benadryl since I've been reacting to the steroid with rosey cheeks and a 4

> to 5 day headache that Tylenol won't touch. I'd love to hear your

> experiences, comments on this.

>

> Thanks and Happy New Year!

>

> Heidi in Mass.

[Guest guest]

Hi Heidi,

        I had the same reaction when I had the nerve block. I take Klonopin for

restless leg already. I also have had the epideral. It seemed to help. But I

have had the radio frequency started. I don't like the idea of having that stuff

injected in my spine. I had a killer head ache everytime they do this. And I

couldn't sleep as well. The doc contributed it to my restless legs, RA, Lupus or

Fibromyalgia. It did throw me into a flare. Good luck and hope it works for you

and is over soon.

God Bless and Have a wonderful and safe New Year!

                                                           Coetta

From: sposy@... <sposy@...>

Subject: [ ] Question about Restless Leg Syndrome

Date: Wednesday, December 31, 2008, 8:30 AM

Hi,

I have been experiencing this problem on and off for about 3 weeks now.

Yesterday I got my 2nd spine shot nerve blocker L5....and sure enough, last

night I was up for about 2 hours with this annoyance. I looked it up and found

out that some causes are iron deficiency, joint illness, vitamin deficiency,

which I have. A medication that can help with this is Tramadol which I take.

It's not helping. I found an oil on line that I think I'm going to order,

I'd rather try this than take yet another pill. I'll mention it to the nurse

today when she calls to follow-up about yesterdays procedure. I have to take

benadryl since I've been reacting to the steroid with rosey cheeks and a 4

to 5 day headache that Tylenol won't touch. I'd love to hear your

experiences, comments on this.

Thanks and Happy New Year!

Heidi in Mass.

************ **New year...new news. Be the first to know what is making

headlines. (http://www.aol. com/?ncid= emlcntaolcom0000 0026)

[Guest guest]

Hi Doreen,

Do you have it every single night? or does it skip? I managed to have a

good night the first night, and almost got thru last night but it woke me up

around 5:30 this am, so I took the dogs out then fed them, then took my meds

again. I just cannot imagine the fear of going to bed worrying about whether

or

not you'll get one of these " attacks " . These bring me back to my childhood

fears, when I would have really painful sore throats and earaches. I would

be so afraid to go to sleep at night because that's always when things hurt

the most. Guess that is still with me now! Do the meds you take help you? I

am still waiting to get that oil rub that I ordered on line to see if it

helps, it's organic and has good reviews. Anything to avoid another pill. I

put

that aspercreme night time heat rub on and that helped too.

I get scared with all this crazy stuff happening. Why when we try to have a

procedure to help us tolerate daily living do odd things come out of

it...lol..why?

Heidi in Mass.

" Be kinder than necessary, for everyone you meet is fighting some

kind of battle. " Happy 2009

In a message dated 1/2/2009 7:42:55 A.M. Eastern Standard Time,

mimi212@... writes:

Hi Heidi - I'm so glad to hear that your RLS is temporary. I live with

it daily - just because - and it can be horrible - especially when I

wake up during the night with the pain in my legs and the jerking

sensations that don't seem to want to go away. I get most of my relief

from Skelaxin and Xanax at night (along with my regular RA meds). I

wouldn't wish the feeling of RLS on my worst enemy.

Hope you feel better soon.....Doreen

>

> Hi Coetta,

>

> I just heard from the Dr. My RLS is a direct result from the nerve

> block and is expected to be temporary as I've never had it before.

> It should go away once the medication is out of my system within 7

> to 10 days. I still have to take the Benadryl as there are 2

> different problems going on.

> Tonight he wants me to take Benadryl with 2 Xanaflex (tizanidine) T

> This should pretty much knock me out and totally relax me. I hope

> it works. I cannot imagine having RLS as an every day occurring

> problem on top of RA and anything else. Will keep you posted.

>

> What did you mean by having the radio frequency started?

>

> Thanks,

>

> Heidi in Mass.

**************New year...new news. Be the first to know what is making

headlines. (http://www.aol.com/?ncid=emlcntaolcom00000026)

[Guest guest]

Hi Heidi - I'm so glad to hear that your RLS is temporary. I live with

it daily - just because - and it can be horrible - especially when I

wake up during the night with the pain in my legs and the jerking

sensations that don't seem to want to go away. I get most of my relief

from Skelaxin and Xanax at night (along with my regular RA meds). I

wouldn't wish the feeling of RLS on my worst enemy.

Hope you feel better soon.....Doreen

>

> Hi Coetta,

>

> I just heard from the Dr. My RLS is a direct result from the nerve

> block and is expected to be temporary as I've never had it before.

> It should go away once the medication is out of my system within 7

> to 10 days. I still have to take the Benadryl as there are 2

> different problems going on.

> Tonight he wants me to take Benadryl with 2 Xanaflex (tizanidine).

> This should pretty much knock me out and totally relax me. I hope

> it works. I cannot imagine having RLS as an every day occurring

> problem on top of RA and anything else. Will keep you posted.

>

> What did you mean by having the radio frequency started?

>

> Thanks,

>

> Heidi in Mass.

[Guest guest]

Hi Heidi,

         The radio frequency is a procedure on my back. They burn the nerves

into, from L1 thru L5, This is what they did on me. I had the nerve block , then

I had an epidural, and now I am on the radio frequency. The doc has done the

right side of my spine, on January 12, they will do the left side. And in 6 to 8

weeks, I pray that I have no more back pain. They say that the nerves can grow

back together. I am not sure what the next route is if it doesn't work. I am so

glad for you that your RLS is temporary. It disrupts sleep so terribly. It is

hard enough to sleep with all of the pain, let alone have RLS. I know every time

I have had a procedure on my back, I have had a terrible time sleeping for days.

Good Luck, hopefully it will be a better year for all of us.

                                                           Coetta

From: sposy@... <sposy@...>

Subject: Re: [ ] Re: Question about Restless Leg Syndrome

Date: Friday, January 2, 2009, 8:59 AM

Hi Doreen,

Do you have it every single night? or does it skip? I managed to have a

good night the first night, and almost got thru last night but it woke me up

around 5:30 this am, so I took the dogs out then fed them, then took my meds

again. I just cannot imagine the fear of going to bed worrying about whether or

not you'll get one of these " attacks " . These bring me back to my childhood

fears, when I would have really painful sore throats and earaches. I would

be so afraid to go to sleep at night because that's always when things hurt

the most. Guess that is still with me now! Do the meds you take help you? I

am still waiting to get that oil rub that I ordered on line to see if it

helps, it's organic and has good reviews. Anything to avoid another pill. I put

that aspercreme night time heat rub on and that helped too.

I get scared with all this crazy stuff happening. Why when we try to have a

procedure to help us tolerate daily living do odd things come out of

it...lol..why?

Heidi in Mass.

" Be kinder than necessary, for everyone you meet is fighting some

kind of battle. " Happy 2009

In a message dated 1/2/2009 7:42:55 A.M. Eastern Standard Time,

mimi212cfl (DOT) rr.com writes:

Hi Heidi - I'm so glad to hear that your RLS is temporary. I live with

it daily - just because - and it can be horrible - especially when I

wake up during the night with the pain in my legs and the jerking

sensations that don't seem to want to go away. I get most of my relief

from Skelaxin and Xanax at night (along with my regular RA meds). I

wouldn't wish the feeling of RLS on my worst enemy.

Hope you feel better soon.....Doreen

>

> Hi Coetta,

>

> I just heard from the Dr. My RLS is a direct result from the nerve

> block and is expected to be temporary as I've never had it before.

> It should go away once the medication is out of my system within 7

> to 10 days. I still have to take the Benadryl as there are 2

> different problems going on.

> Tonight he wants me to take Benadryl with 2 Xanaflex (tizanidine) T

> This should pretty much knock me out and totally relax me. I hope

> it works. I cannot imagine having RLS as an every day occurring

> problem on top of RA and anything else. Will keep you posted.

>

> What did you mean by having the radio frequency started?

>

> Thanks,

>

> Heidi in Mass.

************ **New year...new news. Be the first to know what is making

headlines. (http://www.aol. com/?ncid= emlcntaolcom0000 0026)

[Guest guest]

Hi Heidi - no, I don't have the RLS symptoms every night anymore. As

long as I take my Skelaxin and Xanax, I only have them every once in a

great while - and that usually happens if I've overdone it. Skelaxin

is a muscle relaxer - my rheumy wanted to put me on Flexeril, but it

causes me to have urinary retention problems. I've had anxiety issues

my whole life and the Xanax was prescribed to help me unwind at the

end of the day and if I needed it for breakthrough anxiety. The

combination of the two has given me a more restful sleep with quiet

legs. Now if I could keep the RA/FMS from interrupting my sleep at

times, I would be doing really good.....Doreen

>

> Hi Doreen,

>

> Do you have it every single night? or does it skip? I managed to

> have a good night the first night, and almost got thru last night

> but it woke me up around 5:30 this am, so I took the dogs out then

> fed them, then took my meds again. I just cannot imagine the fear

> of going to bed worrying about whether or not you'll get one of

> these " attacks " . These bring me back to my childhood fears, when

> I would have really painful sore throats and earaches. I would

> be so afraid to go to sleep at night because that's always when

> things hurt the most. Guess that is still with me now! Do the

> meds you take help you? I am still waiting to get that oil rub

> that I ordered on line to see if it helps, it's organic and has

> good reviews. Anything to avoid another pill. I put that

> aspercreme night time heat rub on and that helped too. I get

> scared with all this crazy stuff happening. Why when we try to

> have a procedure to help us tolerate daily living do odd things

> come out of it...lol..why?

>

> Heidi in Mass.

>

> " Be kinder than necessary, for everyone you meet is fighting some

> kind of battle. " Happy 2009

[Guest guest]

Group;

I was wondering if anyone ever hear of restless feet syndrone.

My feet won't stop moving at night when I go to bed. It's not

my legs. I keep moving my feet on top of each other till I

get a foot cramp. If I realize I am doing it I will try to

hold them to stop and than they begin to quiver. That is really

weird.

I am seeing my mental health doctor about it the 22nd of this

month. I also grind my teeth. This has just started in the

last few months. I didnt really notice it till I tried to stop

and I can't seem to stop either one at night when i go to bed

gentle hugs

Clora

**********************************************************

[Guest guest]

>

> Group;

>

> I was wondering if anyone ever hear of restless feet syndrone.

> My feet won't stop moving at night when I go to bed. It's not

> my legs. I keep moving my feet on top of each other till I

> get a foot cramp. If I realize I am doing it I will try to

> hold them to stop and than they begin to quiver. That is really

> weird.

>

> I am seeing my mental health doctor about it the 22nd of this

> month. I also grind my teeth. This has just started in the

> last few months. I didnt really notice it till I tried to stop

> and I can't seem to stop either one at night when i go to bed

>

> gentle hugs

> Clora

>

> **********************************************************

>

Many people use the drug Requip for restless leg syndrome. I

recently read a newspaper article about putting a bar of soap under

the corner of your mattress and there are people who swear this helps

with it though they don't know why. I've also heard of people taking

their calcium supplement right before bed as this is a natural muscle

relaxant. Hope this helps.

[Guest guest]

--- =

> > **********************************************************

> >

> Many people use the drug Requip for restless leg syndrome. I

> recently read a newspaper article about putting a bar of soap under

> the corner of your mattress and there are people who swear this

helps

> with it though they don't know why. I've also heard of people

taking

> their calcium supplement right before bed as this is a natural

muscle

> relaxant. Hope this helps.

>

>

>*******************************************************************

and group;

Thanks you so much I will try all of this

gentle hugs

Clora

********************************************************